Re: NEW MEMBER -- sue22310/ Hello, Sue!

[Guest guest]

Thanks, n. I will check it out.

<hugs>

-Sue

>

> http://www.wrongdiagnosis.com/m/multiple_sclerosis/intro.htm

>

> Cancel panic; we here know that you have a definite neurological

> condition. Consider, please, the site at the above link.

>

> Love and hope,

> n aka " your friendly neighborhood Link Lady "

>

>

>

>

> ________________________________

>

> To: MSersLife

> Sent: Fri, July 2, 2010 12:39:27 PM

> Subject: Re: NEW MEMBER -- sue22310

>

>

> Hi, Everyone!

>

> Thank you all for the warm welcome. Wow!

> To answer some of your questions:

> After the " clean " MRI, I was told not to worry about it. So, no " spinal tap "

yet.

>

> In the meanwhile, I am patiently going through appts after appts with various

" specialists " to address the symptoms: physical therapy exercises to deal with

the pain, weakness and tingling and burning sensations in my right shoulder,

right arm, right lower back, right hip, right thigh, right leg. Yes, all on the

right side.

> The ophthalmology appts to find out why I have episodes of losing vision in my

right eye.

> Other symptoms:

> I stumble and fall often - my right leg gives out when I walk or run; I have

bruises and cuts from falling.

> I have burn scars on my right arm now from misplacing where my hand and arm is

intended to reach when I reach for stuff while I am cooking. I drop and break

things for no apparent reasons - even light stuff like a pen or a dish. I can't

use my right hand for more intricate work - like writing or dialing a

combination lock.

>

> When I walk, I weave like I am drunk so have to steady myself by touching the

walls/railings. (I am terrified of getting pulled over - I know I can never

pass those sobriety tests I see on TV if they make me walk heel-to-toe!)

>

> I have urinated on myself in public places several times, so have been wearing

pads for protection. And I go to the bathroom every hour or so just as a

precaution, whether I need to or not.

>

> I am exhausted all the time.

>

> I have problems focusing and am slow to understand what people say, but I

passed the cognitive tests even though I had to really, really struggle to think

through each answer. Same with when I speak; the wrong words would come out of

my mouth or they come out in the wrong order - it is easier for me to type; I

can go back and edit.

>

> I forget people that I just meet (not just their names but the fact that we

had even met the day before) and that is upsetting because I am in the Army and

work as an aide to a VIP - and I can't do my job now. People are beginning to

treat me as if I am stupid and they don't give me any important work to do

anymore because I keep asking people to repeat what they say; now, I just answer

the phone and print out and file papers. I even avoid answering the phone

because I need to keep asking people to repeat themselves or I say things

incorrectly and they do not understand me!

> I have been transfered to two jobs already in the past six months - this is

after a successful career of over 20 years!

>

> When these crazy symptoms were first really noticeable in January, I contacted

the endocrinologist to see if it was the thyroid but she said not. So, I looked

up the symptoms at the Mayo Clinic web site and the list had suggested MS. But,

the MRIs looked good.

>

> I guess all I can do is be patient and go through the tests then go back to

the neurologist as the symptoms persist.

>

> Sorry for going on and on.

> I am OK, but just need to plod through everything steadily.

> I do have " good " days where I don't stumble but the bad days are becoming more

frequent. I will schedule another MRI in a few months, to see if they are still

good. And, I will demand a spinal fluid test.

>

> regards-

> Sue

>