Is my son's apraxia leading to crying and screaming spells??

February 19, 2012

Hi everyone,

My son is currently on diflucan and I have been dealing with crying episodes

which last for more than 20 minutes at a time. I have been maintaining a log and

it is hard to relate it to a particular supplement. The symptoms are progressive

and started one day before starting fluconazole. I initially attributed it to

phenol sensitivity but now he is not getting much phenol and I am religiously

using the trienza and no phenol. We are also using gcmaf and when I have asked

other parents who are using gcmaf for their kids, they are not experiencing

similar symptoms. The children have become more aware and opinionated so as a

result a little aggressive but they are not going through what my son is going

through. He is at least having 1 episode where he will start crying all of a

sudden which will then progress to screaming. At that point all he wants us to

do is rock him or give him lots of kisses and he wants the parent rocking him

all to himself. Poor guy had an awful weekend and the only new supplement is

ubiquinol but the symptoms started before that also. We closely observed him

today and we realized that the episodes start when he wants something to be done

or when he is getting bored. His speech has declined this month along with

articulation so I am thinking could it be apraxia which is frustrating him as he

is making more silly sounds and stimming nonstop and makes crazy happy sounds

when gets excited. Alberta recently talked about apraxia but if it is a new

concept for me, it takes me time to process it by observing my son and I do

believe that it is apraxia. I know we discussed mito dysfunction but what are

some other common causes of apraxia? My son's eye contact is amazing and now is

not squinting his eyes like he was before diflucan. His carb cravings are better

after diflucan but his speech is still very poor and actually random words come

out of his mouth but those words make sense according to the situation. Like

today he saw children playing on a beach on tv and when his dad was trying to

talk to him, he suddenly said beach. If anyone has any ideas, please let me

know.

Thanks

is

February 19, 2012

Maia's leucine meltdowns looked like what you're describing. I don't think that's yeast. I know what yeast looks like in her -- like today...too much sugar in the last few days at school and ABA and a slightly protruding belly -- she laughs uncontrollably about the slightest thing. It does affect the apraxia because articulation gets sloppy or she " forgets " how to say certain words (when she's said them dozens of times before).

But the crying at the slightest things...for her, it's a serotonin-dopamine imbalance. Related to mito dysfunction for her. We've been addressing this with 5-HTP and, more recently, tyrosine. 5-HTP does not convert into quinolinic so that creates more resources to make serotonin. If he has low dopamine or serotonin, that will cause the feelings of anxiety/discontent/unhappiness. Dopamine and serotonin are the neurotransmitters that tell you that everything is ok in the outside world. It's what gives feedback to the brain that says, " Hey, no need to be upset or afraid, everything's cool. " But, sometimes our kids can't process certain amino acids because something's missing (usually a component of mito functions) and when they have too much of certain amino acids, suddenly the resources to make neurotransmitters all get diverted to try to " neutralize " the elevated metabolite from the amino acid they can't process. This is why our apraxia symptoms spike, too, when she goes into these type of " meltdown modes " .

Our leucine meltdowns ramped up over time because it took time for resources to be depleted and for the metabolite (3-methylglutaric) to build up and to start signalling more and more for tryptophan to be diverted to make more and more quinolinic and but the part of the pathway that converts quinolinic to niacin was blocked (because B2 is required to use B6 to facilitate the conversion from quinolinic to niacin).

This was the very reason why I started adding more and more components of the mito cocktail in the first place...our leucine metabolism problem. Again, I'm not saying your son has this but if he can't metabolize something, it will divert the resources for neurotransmitters to try to neutralize the metabolite for the amino it can't process and it will steal resources away from the pathways that produce the " everything is ok " neurotransmitters.

February 19, 2012

Alberta, I wish I could borrow your brain for a week. How you are able to make heads and tails of all this is beyond me. Good Job. : )

Sent from my Kindle Fire

February 19, 2012

when i here a kid wanting to be rcked i think pain...for my son anyways that was the case when he had his severe gut inflammation....have you done a stool test recently? i did one a couple years back and they had markers for inflammation which for my son of course was thru the roof...

but he also had loose stool with undigested food which confirmed gut inflammation in my case

To: mb12valtrex Sent: Sunday, February 19, 2012 4:35 PMSubject: Is my son's apraxia leading to crying and screaming spells??

Hi everyone, My son is currently on diflucan and I have been dealing with crying episodes which last for more than 20 minutes at a time. I have been maintaining a log and it is hard to relate it to a particular supplement. The symptoms are progressive and started one day before starting fluconazole. I initially attributed it to phenol sensitivity but now he is not getting much phenol and I am religiously using the trienza and no phenol. We are also using gcmaf and when I have asked other parents who are using gcmaf for their kids, they are not experiencing similar symptoms. The children have become more aware and opinionated so as a result a little aggressive but they are not going through what my son is going through. He is at least having 1 episode where he will start crying all of a sudden which will then progress to screaming. At that point all he wants us to do is rock him or give him lots of kisses and he wants the parent rocking him all

to himself. Poor guy had an awful weekend and the only new supplement is ubiquinol but the symptoms started before that also. We closely observed him today and we realized that the episodes start when he wants something to be done or when he is getting bored. His speech has declined this month along with articulation so I am thinking could it be apraxia which is frustrating him as he is making more silly sounds and stimming nonstop and makes crazy happy sounds when gets excited. Alberta recently talked about apraxia but if it is a new concept for me, it takes me time to process it by observing my son and I do believe that it is apraxia. I know we discussed mito dysfunction but what are some other common causes of apraxia? My son's eye contact is amazing and now is not squinting his eyes like he was before diflucan. His carb cravings are better after diflucan but his speech is still very poor and actually random words come out of his mouth but those

words make sense according to the situation. Like today he saw children playing on a beach on tv and when his dad was trying to talk to him, he suddenly said beach. If anyone has any ideas, please let me know. Thanksis

February 19, 2012

I would check for seizures. Crying and screaming were seizure related in my

son...maybe back off the gcmaf dose - it may have increased seizure activity in

my son. Pam

Sent from my iPhone

February 19, 2012

Alberta,

Thank you so much for your input. My son is taking zinc picolinate by thorne

which contains leucine and aspartic acid. I have been looking for an alternate

zinc source because of leucine and aspartic acid but either I get the

ingredients right or the dose right, never both. I was discussing the same thing

with my husband regarding 5 htp this am as now his condition seems more like

mood swings when he would be laughing and enjoying himself and then all of a

sudden will be screaming and crying. My son has used in the past but at that

time he was on homeotoxicology treatments and nothing made a difference. Then we

used tryptophan which gave us good results but if he would even miss one dose,

he will have a terrible day with frequent crying episodes. Then my dan explained

that tryptophan consumption in our kids can lead to neurotoxin production as it

gets thrown towards kynurenine pathway resulting in the generation of quinolinic

acid which is a known neurotoxin. So I stopped the tryptophan and since 5 htp

never did anything for him in the past, I just didn't try it again. I have been

thinking of getting Dr Amy Yasko's testing done and see if 5htp was right for

him. But I am not sure when I will get the testing done so I guess I will just

give 5htp a try.

I have been writing down all the dates. My son started Tomatis Listening therapy

on 01/30/12 and started having crying episodes on 02/03/12. The same night I

started diflucan as it was a friday night and I didn't want to wait till monday.

His crying episodes gradually worsened. Initially I attributed it to phenols but

now the phenols are almost gone and I am also using no phenol with any phenols

consumed. I am wondering if this could be a result of listening therapy

affecting his nerves in a negative way. In this therapy, he has to listen to

some classical type music with alternate light sounds for about 15 minutes each

morning. The timing of the symptoms points me towards that. But then we started

diflucan on 02/03/12 and he could be having die off. If we started 02/03/12, how

long could the die off last? Could treating for yeast potentiate the need for

the neurotransmitters and make it even more important to add 5htp?? My

homeotoxicologist started 5htp during the detox also. I would really appreciate

if someone can explain yeast die off onset and duration.

My poor kid had a horrible long weekend and we took him to his favorite cousins

and one minute he was happy and next minute he couldn't stop crying. Channa,

there is definitely some element of pain also but I cannot get accurate

information from my kid as he always agrees that he has a booboo. But these days

when I ask him why he is crying he says " SAD " . He is getting treatment for both

yeast and clostridia so I don't think it is clostridia and besides the symptoms

are much different from when he had the clostridia flare. I appreciate all of

you helping me with my kid. I feel so bad that these days I am unable to provide

any help to anyone on the forum as I get to spend few minutes on the net and

then I find my son crying again. I hope my current experience will help me learn

some more and my frequent questions will help some other readers in similar

situations.

Thanks

is

February 19, 2012

Pamela,

How did you figure out that your son had seizure activity? My son had a negative

EEG in december and we havn't noticed something that specifically looks like

absence seizures. Can you please share what was the dose of gcmaf that led to

increase in seizure activity? Is it possible that gcmaf has awaken a silent

virus in his brain and that is causing seizures? Really really a scary thought

but don't want to continue with gcmaf if this is the case. Please elaborate on

it. I will really appreciate your help.

is

February 19, 2012

Hi alexis,I'm so sorry your little guy has to go through all of this!! On the die off question, have you noticed if his symptoms get any better with charcoal? I have heard of weepyness linked to detox and liver stress? Is he taking a liver life or silymarin? Has he had his liver enzymes checked lately? If it isn't any of those and it started the same day as the diflucan, I would think he may be sensitive to diflucan or something in the med (is it compounded gfcfsf etc?)....hope he feels better soon!!!-- Sent from my Palm Pre

Alberta,

Thank you so much for your input. My son is taking zinc picolinate by thorne which contains leucine and aspartic acid. I have been looking for an alternate zinc source because of leucine and aspartic acid but either I get the ingredients right or the dose right, never both. I was discussing the same thing with my husband regarding 5 htp this am as now his condition seems more like mood swings when he would be laughing and enjoying himself and then all of a sudden will be screaming and crying. My son has used in the past but at that time he was on homeotoxicology treatments and nothing made a difference. Then we used tryptophan which gave us good results but if he would even miss one dose, he will have a terrible day with frequent crying episodes. Then my dan explained that tryptophan consumption in our kids can lead to neurotoxin production as it gets thrown towards kynurenine pathway resulting in the generation of quinolinic acid which is a known neurotoxin. So I stopped the tryptophan and since 5 htp never did anything for him in the past, I just didn't try it again. I have been thinking of getting Dr Amy Yasko's testing done and see if 5htp was right for him. But I am not sure when I will get the testing done so I guess I will just give 5htp a try.

I have been writing down all the dates. My son started Tomatis Listening therapy on 01/30/12 and started having crying episodes on 02/03/12. The same night I started diflucan as it was a friday night and I didn't want to wait till monday. His crying episodes gradually worsened. Initially I attributed it to phenols but now the phenols are almost gone and I am also using no phenol with any phenols consumed. I am wondering if this could be a result of listening therapy affecting his nerves in a negative way. In this therapy, he has to listen to some classical type music with alternate light sounds for about 15 minutes each morning. The timing of the symptoms points me towards that. But then we started diflucan on 02/03/12 and he could be having die off. If we started 02/03/12, how long could the die off last? Could treating for yeast potentiate the need for the neurotransmitters and make it even more important to add 5htp?? My homeotoxicologist started 5htp during the detox also. I would really appreciate if someone can explain yeast die off onset and duration.

My poor kid had a horrible long weekend and we took him to his favorite cousins and one minute he was happy and next minute he couldn't stop crying. Channa, there is definitely some element of pain also but I cannot get accurate information from my kid as he always agrees that he has a booboo. But these days when I ask him why he is crying he says "SAD". He is getting treatment for both yeast and clostridia so I don't think it is clostridia and besides the symptoms are much different from when he had the clostridia flare. I appreciate all of you helping me with my kid. I feel so bad that these days I am unable to provide any help to anyone on the forum as I get to spend few minutes on the net and then I find my son crying again. I hope my current experience will help me learn some more and my frequent questions will help some other readers in similar situations.

Thanks

is

February 19, 2012

Thanks ! I have been giving him activated charcoal every night two hours

after diflucan. Today I actually gave him in the afternoon also and he is also

taking epsom salt foot soak every day. I didn't see any help with both activated

charcoal and epsom salt like the way they helped when I was dealing with

clostridia. It feels like some kind of " switch on " and " switch off " type issue

and it may be a combination of all the things he is on. He is not on any liver

support but his LFTs have been good. I do remember reading in one of the posts

that we need to support liver while treating yeast or because of antifungals, I

am not sure. I remember you started 5htp recently. Can you recommend a good

brand and the starting dose and if it is still helping your kid?

is

>

> & nbsp;

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> Alberta,

>

> Thank you so much for your input. My son is taking zinc picolinate by thorne