Is my son's apraxia leading to crying and screaming spells??

[Guest guest]

Oh I love you guys.......the comfort of understanding anothers pain...

channa

To: mb12valtrex Sent: Tuesday, February 21, 2012 5:42 PMSubject: Re: Is my son's apraxia leading to crying and screaming spells??

You said it Channa. It is a real, physical pain- wanting to feed them but knowing something will cause them so much hurt and pain- emotionally and physically- GI symptoms, seizures, shiners, stimming, aggression. Feeding them something, hoping, and then watching the symptoms cascade. I likened it to living with a gun pointed at my head. Truly, sincerely- like a real gun. Pain.>> I

[Guest guest]

you can not even taste the greens at all if you blend with banana! and teeny bit maple syrup..but i dont even think you need that..

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 21, 2012 10:47 AMSubject: Re: Re: Is my son's apraxia leading to crying and screaming spells??

Love the freezing,The banana thing when I did it it looked like ice cream... Will try the greens... My son is hard to get to take green (likes sweet things.. So end up wth carrots and add avocado or pineapple) soo glad we r off sugar!!!

Even wth the broth thing in gaps am finding I ve to add carrot juice(never mind the high oxalates in them... Since we add Longvida he seems ok on high oxalates but am keeping close eye we just started two days ago..)

God sometimes I feel like am doing a never ending science project on food and supplements.. I find myself watching and waiting for good pooh, good behaviour and then ticking what works... Phenols where such a problem wth him that when I gave him some almond butter nut pancakes he would be soo high a druggie would ve nothing on him.. So used coconut flour... Hard...then there is the fish oil, the fermented cod liver oil the digestive enzymes.... The list is never ending and finding ways to get him to take them...(ve now come to blending veggies and adding most in that as he likes the soup...)

Still learning loads from u lot...

Sent from my iPod

yay tendia! yes organic and lots of greens...from what i gather many people who heal from chronic illness seem to eat a lot of greens whether in smoothies or juicing...

personally im sold on the smoothies as it is so easy and with the frozen friut inside you feel like you are eating a milkshake except it taste even better....

i still am only give my son one glass a day....because of his fruit issues...but he seems to do better digesting the friut in smoothies then in by itself...will keep every one posted on this...would be interesting if this holds true...

channa

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 21, 2012 3:42 AMSubject: Re: Re: Is my son's apraxia

leading to crying and screaming spells??

Loving the juicer... Remember to make juices or smoothes wth organic produce!!Sent from my iPod

I wonder how he would do on smoothies? I just got a vitamixer from the home shopping network QVC i think it is ...i dont know if i already mentioned it...80 dollars a month..

anyway how does he do with leafy greens? like romaine ,arugula ect....if you put it thru the blender like a vitamixer it is really easy to digest...and you mix it with frozen bananas or some other friut it taste good and really healing for the body...do you have a farmers market that you could try diffrent fresh veggies...

in the beginning my son could not tolerate any supps at all....i think i agree with alberta about the mitochondrial issues that make it hard for out kids to tolerate supps...some kids cant even do enzymes in the beginning..

my son to this day can only do magnesium in his liguid multimineral by aidon.

this is a menu from today maybe it can help give you idea...

for morning i gave my son baby kale banana raw whey protien smoothie

lunch he had organic chicken hot dog and lentil soup with kombu seaweed celery onions

for dinner he had rutabagus with butter..

If your son can do well with seaweed it has lot minerals and detoxes metals....

just ideas....we will keep brainstorming with you is....as long as you want...

channa

To: mb12valtrex Sent: Monday, February 20, 2012 6:18 PMSubject: Re: Is my son's apraxia leading to crying and screaming spells??

Channa, thank you so much for helping me here. I can always count on you. Unfortunately, my son doesn't tolerate most of the veggies. He will do fine with zucchini, squash, carrots and celery. I have tried organic cabbage, broccoli, green beans, green peas and some others but he ends up either having bad stomach ache or vomiting. These days, he is having regular bowel movements. They are formed mostly but not hard. He goes at least once a day. He does get stomach aches, sometimes in the lower belly and sometimes in the upper. I noticed that it sometimes follows magnesium glycinate by klaire labs. I took one magnesium citrate capsule few days ago and it gave me stomach cramps. Maybe he is sensitive to it too. I will keep a track of things and see what finally works. is>> usually from what i hear in others and myself die off should get better after a couple weeks or at least have gains along with it....I can tell you that instinctively when my son is really off....I start from the beginning....just easy veggies or veggie soup for a couple days and see if he gets better...if he does the you know it is caused from a food or supplement issue....> how is his poop?  does he have any bloating at all? does he burp a lot or have any bad breath?> does he feel warm or cold..is he flushed or pale?.....is he have a lot of energy or is he tired a lot?>  just trying to brain storm here...> channa> > > ________________________________> > To: mb12valtrex > Sent: Sunday, February 19, 2012 11:13 PM> Subject: Re: Is my son's apraxia leading to crying and screaming spells??> > >  > Alberta, > Thank you so much for your input. My son is taking zinc picolinate by thorne which contains leucine and aspartic acid. I have been looking for an alternate zinc source because of leucine and aspartic acid but either I get the ingredients right or the dose right, never both. I was discussing the same thing with my husband regarding 5 htp this am as now his condition seems more like mood swings when he would be laughing and enjoying himself and then all of a sudden will be screaming and crying. My son has used in the past but at that time he was on homeotoxicology treatments and nothing made a difference. Then we used tryptophan which gave us good results but if he would

even miss one dose, he will have a terrible day with frequent crying episodes. Then my dan explained that tryptophan consumption in our kids can lead to neurotoxin production as it gets thrown towards kynurenine pathway resulting in the generation of quinolinic acid which is a known> neurotoxin. So I stopped the tryptophan and since 5 htp never did anything for him in the past, I just didn't try it again. I have been thinking of getting Dr Amy Yasko's testing done and see if 5htp was right for him. But I am not sure when I will get the testing done so I guess I will just give 5htp a try. > I have been writing down all the dates. My son started Tomatis Listening therapy on 01/30/12 and started having crying episodes on 02/03/12. The same night I started diflucan as it was a friday night and I didn't want to wait till monday. His crying episodes gradually worsened. Initially I attributed it to phenols but now the phenols are almost gone and

I am also using no phenol with any phenols consumed. I am wondering if this could be a result of listening therapy affecting his nerves in a negative way. In this therapy, he has to listen to some classical type music with alternate light sounds for about 15 minutes each morning. The timing of the symptoms points me towards that. But then we started diflucan on 02/03/12 and he could be having die off. If we started 02/03/12, how long could the die off last? Could treating for yeast potentiate the need for the neurotransmitters and make it even more important to add 5htp?? My homeotoxicologist started 5htp> during the detox also. I would really appreciate if someone can explain yeast die off onset and duration. > My poor kid had a horrible long weekend and we took him to his favorite cousins and one minute he was happy and next minute he couldn't stop crying. Channa, there is definitely some element of pain also but I cannot get accurate

information from my kid as he always agrees that he has a booboo. But these days when I ask him why he is crying he says "SAD". He is getting treatment for both yeast and clostridia so I don't think it is clostridia and besides the symptoms are much different from when he had the clostridia flare. I appreciate all of you helping me with my kid. I feel so bad that these days I am unable to provide any help to anyone on the forum as I get to spend few minutes on the net and then I find my son crying again. I hope my current experience will help me learn some more and my frequent questions will help some other readers in similar situations. > Thanks> is>

[Guest guest]

, Channa I get u all.. Sending ours sourcing the "right" foods (never mind the supps) and then waiting and watching if they can even digest it or how bad or good it affects them the gun analogy is best way to explain....Sent from my iPod

Oh I love you guys.......the comfort of understanding anothers pain...

channa

To: mb12valtrex Sent: Tuesday, February 21, 2012 5:42 PMSubject: Re: Is my son's apraxia leading to crying and screaming spells??

You said it Channa. It is a real, physical pain- wanting to feed them but knowing something will cause them so much hurt and pain- emotionally and physically- GI symptoms, seizures, shiners, stimming, aggression. Feeding them something, hoping, and then watching the symptoms cascade. I likened it to living with a gun pointed at my head. Truly, sincerely- like a real gun. Pain.>> I