How to help the child during viral die off?

[Guest guest]

Hi everyone,

As you all know that we are using gcmaf for my son. I have been maintaining a

strict log of what he is getting and what symptoms I observe every day. I have

come to a conclusion that every time I give him gcmaf shot, he is miserable at

least for 48-72 hours. He gets crying episodes, tantrums, complains of chest

pain, tummy pain, becomes sound sensitive, aggressive, has some low grade fever

maybe for a couple of hours, and seems like having mood swings, increased

stimming, sometimes petechial rash which goes away in a couple of days. From

what I understand, gcmaf is helping vitamin D function better and at the same

time helping his immune system namely macrophages do a better job at ridding

viruses. So could it be viral die off or maybe immune reconstitution? I

personally feel like it is die off. What helps is charcoal, motrin and sometimes

just waiting for 2-3 days to pass. Now my question is for expert moms who have

used valtrex or other antiviral treatments, do you agree that my son's symptoms

sound like viral die off? I do see some improvements in his ability to answer

questions and he acts more responsible and transitions from one activity to

another smoothly once the bad days are over. If anyone has any ideas what I can

use other than activated charcoal, ibuprofen and epsom salt foot soaks(can't

tolerate baths) to deal with his die off symptoms, please share. My son is

currently dealing with flu which is much better now. I have taken out a lot of

factors which were confusing me as to what was going on like the listening

therapy, eggs (high in leucine and Alberta suggested Leucine meltdowns). And he

is not behaving like a clostridia kid as there is no ocd and anxiety. He mostly

points to his left chest for pain exactly at the heart level but the pain seems

more superficial. He also discovered his nipples and keeps pulling his shirt

away from skin to either look at them and is more focused on the left one. He

called them booboos but I told him that they are a type of belly button so now

he shows me the nipples and says belly button. Sometimes says there is pain in

them especially in the left one and sometimes laughs at them. I am sure there is

pain as this has been going on for a while and he asks us to rub on the left

nipple. There is no obvious rash. Please advise as to what could be going on.

Thanks

is

[Guest guest]

Hi is,

We have not done Valtrex - kind of funny considering how long I have been on

this list. I know very, very little about gcmaf. However, I feel bad for your

son and thought I would throw out some of the things that immediately popped

into my head.

I wonder if gcmaf could be affecting ammonia levels, bh4/serotonin, histamine,or

nerve regeneration/ " awakening " . Some of these symptoms (like aggression,

stimming, etc) are sometimes caused by pain, ammonia, a lack of serotonin, or

high histamine.

I wondered with the new discovery of his body if nerves were " awakening " and

causing discomfort or something (kind of like when your foot has fallen asleep

and then " awakens " ), so I did a quick google search for gcmaf and nerves and

found a discussion about gcmaf side effects on a CFS site. I have not read the

whole thread, but saw some people referring to pain like burning mouth and a

person's back being " on fire. " You might find some insight in that thread about

what your son may be experiencing...I don't know.

http://forums.phoenixrising.me/showthread.php?12976-Gcmaf-reactions-and-side-eff\

ects/page2

I also searched regarding the histamine factor and found this website about

gcmaf. Apparently it can cause a histamine response in some people, possibly

with a headache. It can also cause tiredness, fatigue, increased cytokine

activity, and symptoms of fever. The website is directed toward people using it

for cancer or HIV, so they say there aren't really many side effects, but I

would guess it would be different for our kids.

http://www.gcmaf.eu/info/index.php?option=com_content & view=article & id=109 & Itemid\

=50

The increased cytokines can cause " sickness behavior " , which includes increased

pain sensitivity:

http://www.ncbi.nlm.nih.gov/pubmed/12615196

They can also cause aggression:

http://www.sciencedirect.com/science/article/pii/S0889159106002492

Anyway, I don't know if any of this is helpful to spark your own thoughts, but I

hope you can figure it out! Have you talked to his doctor? Has he seen these

side effects in anyone else?

Cathy

>

> Hi everyone,

> As you all know that we are using gcmaf for my son. I have been maintaining a

strict log of what he is getting and what symptoms I observe every day. I have

come to a conclusion that every time I give him gcmaf shot, he is miserable at

least for 48-72 hours. He gets crying episodes, tantrums, complains of chest

pain, tummy pain, becomes sound sensitive, aggressive, has some low grade fever

maybe for a couple of hours, and seems like having mood swings, increased

stimming, sometimes petechial rash which goes away in a couple of days. From

what I understand, gcmaf is helping vitamin D function better and at the same

time helping his immune system namely macrophages do a better job at ridding

viruses. So could it be viral die off or maybe immune reconstitution? I

personally feel like it is die off. What helps is charcoal, motrin and sometimes

just waiting for 2-3 days to pass. Now my question is for expert moms who have

used valtrex or other antiviral treatments, do you agree that my son's symptoms

sound like viral die off? I do see some improvements in his ability to answer

questions and he acts more responsible and transitions from one activity to

another smoothly once the bad days are over. If anyone has any ideas what I can

use other than activated charcoal, ibuprofen and epsom salt foot soaks(can't

tolerate baths) to deal with his die off symptoms, please share. My son is

currently dealing with flu which is much better now. I have taken out a lot of

factors which were confusing me as to what was going on like the listening

therapy, eggs (high in leucine and Alberta suggested Leucine meltdowns). And he

is not behaving like a clostridia kid as there is no ocd and anxiety. He mostly

points to his left chest for pain exactly at the heart level but the pain seems

more superficial. He also discovered his nipples and keeps pulling his shirt

away from skin to either look at them and is more focused on the left one. He

called them booboos but I told him that they are a type of belly button so now

he shows me the nipples and says belly button. Sometimes says there is pain in

them especially in the left one and sometimes laughs at them. I am sure there is

pain as this has been going on for a while and he asks us to rub on the left

nipple. There is no obvious rash. Please advise as to what could be going on.

> Thanks

> is

>

[Guest guest]

Thank you ! You're so sweet! Thanks for finding all those links for me.

I have been doing the same search myself and have been visiting the cfs, hiv and

cancer sites. I have read some people get pain around the liver, back or other

places. I just wanted to see if parents who have used antivirals had similar

experiences and if they are related to viral die off. You kind of confirmed my

suspicion of serotonin/bh4 issue. I had read on another forum that some people

were taking supps to help in that area also while on gcmaf. Other people take

antihistamines, both H1 and H2 blockers. Coincidentally, my son has a flu and

his cough was just getting worse. I was using a homeopathic remedy and other

home remedies as I wanted to stay away from meds. But finally, I did a search on

antihistamines while on gcmaf and I found that some doctors actually recommend

antihistamines with it. So I went ahead and used benadryl at night. Can't say if

it helped or not. But last time he was on the current dose of gcmaf, he had

worse mood swings and screaming tantrums and this time it seems more like

depression and very frequent crying and he is complaining of pain. I have

discussed the symptoms with the dan but till the last appointment, we were also

dealing with clostridia and all these symptoms were attributed to clostridia.

But now that the ocd, anxiety and fear have almost gone, I feel all this is

related to gcmaf and the timing of symptoms confirms that as well. , if

you have some information on BH4, please share. My son definitely needs some

form of help with the serotonin but he did'nt do great on 5tp and tryptophan can

lead to neurotoxin production. Let me know if there are any tests that can be

done. I am going to explore all the links you sent me and I am really grateful

to you for doing the search for me. I may find something that I had overlooked.

Thanks again.

is

> >

> > Hi everyone,

> > As you all know that we are using gcmaf for my son. I have been maintaining

a strict log of what he is getting and what symptoms I observe every day. I have

come to a conclusion that every time I give him gcmaf shot, he is miserable at

least for 48-72 hours. He gets crying episodes, tantrums, complains of chest

pain, tummy pain, becomes sound sensitive, aggressive, has some low grade fever

maybe for a couple of hours, and seems like having mood swings, increased

stimming, sometimes petechial rash which goes away in a couple of days. From

what I understand, gcmaf is helping vitamin D function better and at the same

time helping his immune system namely macrophages do a better job at ridding

viruses. So could it be viral die off or maybe immune reconstitution? I

personally feel like it is die off. What helps is charcoal, motrin and sometimes

just waiting for 2-3 days to pass. Now my question is for expert moms who have

used valtrex or other antiviral treatments, do you agree that my son's symptoms

sound like viral die off? I do see some improvements in his ability to answer

questions and he acts more responsible and transitions from one activity to

another smoothly once the bad days are over. If anyone has any ideas what I can

use other than activated charcoal, ibuprofen and epsom salt foot soaks(can't

tolerate baths) to deal with his die off symptoms, please share. My son is

currently dealing with flu which is much better now. I have taken out a lot of

factors which were confusing me as to what was going on like the listening

therapy, eggs (high in leucine and Alberta suggested Leucine meltdowns). And he

is not behaving like a clostridia kid as there is no ocd and anxiety. He mostly

points to his left chest for pain exactly at the heart level but the pain seems

more superficial. He also discovered his nipples and keeps pulling his shirt

away from skin to either look at them and is more focused on the left one. He

called them booboos but I told him that they are a type of belly button so now

he shows me the nipples and says belly button. Sometimes says there is pain in

them especially in the left one and sometimes laughs at them. I am sure there is

pain as this has been going on for a while and he asks us to rub on the left

nipple. There is no obvious rash. Please advise as to what could be going on.

> > Thanks

> > is

> >

>

[Guest guest]

I was on gcmaf (adult with CFIDS). I quit on my doctor's advice because of the

inflammation...first it was achey legs then I took a break, dropped the dose,

went back on, got brain inflammation which was bad.

Doctor (a professor for what it's worth) said the gcmaf was activating

macrophages abnormally cos of my coinfections. (I suspect I have many. I know I

have ebv & h pylori.)

he said to work on coinfections and come back to gcmaf later.

Another CFS doctor says he sees a lot of cytokine storms..and patients with low

gsh and poor adrenal function seem to regress after intial improvement.

he has a long list of suggested therapies to take the edge off...(email me off

list for more info.)

Not knocking Gcmaf. Some seem to do fabulously well. I personally know 2 doing

pretty well...but not me alas. Hope to circle back to it later.

Cheers

L.

> >

> > Hi everyone,

> > As you all know that we are using gcmaf for my son. I have been maintaining

a strict log of what he is getting and what symptoms I observe every day. I have

come to a conclusion that every time I give him gcmaf shot, he is miserable at

least for 48-72 hours. He gets crying episodes, tantrums, complains of chest

pain, tummy pain, becomes sound sensitive, aggressive, has some low grade fever

maybe for a couple of hours, and seems like having mood swings, increased

stimming, sometimes petechial rash which goes away in a couple of days. From

what I understand, gcmaf is helping vitamin D function better and at the same

time helping his immune system namely macrophages do a better job at ridding

viruses. So could it be viral die off or maybe immune reconstitution? I

personally feel like it is die off. What helps is charcoal, motrin and sometimes

just waiting for 2-3 days to pass. Now my question is for expert moms who have

used valtrex or other antiviral treatments, do you agree that my son's symptoms

sound like viral die off? I do see some improvements in his ability to answer

questions and he acts more responsible and transitions from one activity to

another smoothly once the bad days are over. If anyone has any ideas what I can

use other than activated charcoal, ibuprofen and epsom salt foot soaks(can't

tolerate baths) to deal with his die off symptoms, please share. My son is

currently dealing with flu which is much better now. I have taken out a lot of

factors which were confusing me as to what was going on like the listening

therapy, eggs (high in leucine and Alberta suggested Leucine meltdowns). And he

is not behaving like a clostridia kid as there is no ocd and anxiety. He mostly

points to his left chest for pain exactly at the heart level but the pain seems

more superficial. He also discovered his nipples and keeps pulling his shirt

away from skin to either look at them and is more focused on the left one. He

called them booboos but I told him that they are a type of belly button so now

he shows me the nipples and says belly button. Sometimes says there is pain in

them especially in the left one and sometimes laughs at them. I am sure there is

pain as this has been going on for a while and he asks us to rub on the left

nipple. There is no obvious rash. Please advise as to what could be going on.

> > Thanks

> > is

> >

>

[Guest guest]

drbradstreet.org always has positive stories on GcMAF, he also gives some

insight on what he thinks may be happening. I'm not sure we know exactly what it

is doing to ASD kids

>

> Hi everyone,

> As you all know that we are using gcmaf for my son. I have been maintaining a

strict log of what he is getting and what symptoms I observe every day. I have

come to a conclusion that every time I give him gcmaf shot, he is miserable at

least for 48-72 hours. He gets crying episodes, tantrums, complains of chest

pain, tummy pain, becomes sound sensitive, aggressive, has some low grade fever

maybe for a couple of hours, and seems like having mood swings, increased

stimming, sometimes petechial rash which goes away in a couple of days. From

what I understand, gcmaf is helping vitamin D function better and at the same

time helping his immune system namely macrophages do a better job at ridding

viruses. So could it be viral die off or maybe immune reconstitution? I

personally feel like it is die off. What helps is charcoal, motrin and sometimes

just waiting for 2-3 days to pass. Now my question is for expert moms who have

used valtrex or other antiviral treatments, do you agree that my son's symptoms

sound like viral die off? I do see some improvements in his ability to answer

questions and he acts more responsible and transitions from one activity to

another smoothly once the bad days are over. If anyone has any ideas what I can

use other than activated charcoal, ibuprofen and epsom salt foot soaks(can't

tolerate baths) to deal with his die off symptoms, please share. My son is

currently dealing with flu which is much better now. I have taken out a lot of

factors which were confusing me as to what was going on like the listening

therapy, eggs (high in leucine and Alberta suggested Leucine meltdowns). And he

is not behaving like a clostridia kid as there is no ocd and anxiety. He mostly

points to his left chest for pain exactly at the heart level but the pain seems

more superficial. He also discovered his nipples and keeps pulling his shirt

away from skin to either look at them and is more focused on the left one. He

called them booboos but I told him that they are a type of belly button so now

he shows me the nipples and says belly button. Sometimes says there is pain in

them especially in the left one and sometimes laughs at them. I am sure there is

pain as this has been going on for a while and he asks us to rub on the left

nipple. There is no obvious rash. Please advise as to what could be going on.

> Thanks

> is

>