New Member

Posted October 8, 2010 · October 8, 2010

welcome from SW Oklahoma the gateway to the Wichita Mountains God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there.

To: MSersLife Sent: Fri, October 8, 2010 2:03:05 PMSubject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Posted October 8, 2010 · October 8, 2010

Welcome aboard to our group of "Multiple Surprises!"As is often said of many things, "It's Complicated!"I was diagnosed with MS at the age of 19, in 1956by Roy Swank, M.D. (who lived until 96). He was right,and predicted that although I would have "episodes,"that I would do well.Well, I am still here, at the delicate age of 73!Highest hopes for you, Jen, and do tell us more about how youcame to "join the world of MS!"Love to you, Jen; we do look forward to reading more from you,nTo: MSersLife Sent: Fri, October 8, 2010 12:03:05 PMSubject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Posted October 8, 2010 · October 8, 2010

We are here for you, to support you in any way possible. This is more of a family then a mere yahoo list. WAY more. We talk about anything and everything, nothing is "OT" here. We could not possibly be a more diverse group of people yet we all have at least one thing in common...MS. This group is the silver lining to the disorder. Welcome home.

~*~Hugs~*~

~*~Akiba~*~

-- new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Posted October 8, 2010 · October 8, 2010

How perfectly and wisely said, !I am 'tagging' onto post, as shesaid it so well.Welcome to the group, . We are sorryyou need to be here, but so happy you foundus. Please fill us in more about yourself whenyou feel comfortable.Life with 3 teens must be a challenge. I have5 kids, but only 3 are home--they are 10, 13 and16--so I can relate somewhat.Again, a warm hello from Kate in NY, new member> > > Hi everyone,> > I was just diagnosed with MS and I just don't know what to > think..I have> heard some hopeful stories and some not so hopeful ones....I > hope to connect> with others who are going through the same things.> > I am 35, I am a Health Care Aide at a small nursing home. I have > 3 teenage> children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby > and I have> been together for 6 yrs. We were both previously married. he > has been> really great. but neither of us has any experience with > this........... > Thanks for letting me be a part of your group> > Jen> > > > Kate

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Posted October 8, 2010 · October 8, 2010

Welcome Jen. This is a great group. My husband is the one with MS. He was diagnosed in his middle 60's. He also has diabetes and just had a stent put in. He was having chest pains a few weeks ago. He does pretty good. Some days his walking isn't too great but he manages to get by. I will keep you in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: jenmonroe@...Sent: Fri, 8 Oct 2010 15:03:05 -0400To: mserslife Subject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

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Posted October 8, 2010 · October 8, 2010

Jen Welcome to the group. Please tell us how we can help. Margaret

>Hi everyone,

>

>I was just diagnosed with MS and I just don't know what to think..I have heard

some hopeful stories and some not so hopeful ones....I hope to connect with

others who are going through the same things.

>

>I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage

children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been

together for 6 yrs. We were both previously married. he has been really great.

but neither of us has any experience with this...........

>

>Thanks for letting me be a part of your group

>

>Jen

Posted October 8, 2010 · October 8, 2010

Dear JenWelcome! I am glad you foun SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, October 8, 2010 12:03:05 PMSubject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Posted October 8, 2010 · October 8, 2010

Dang... I hate it when I send before I'm ready! lolAnyway, glad you are here Jen. When did you get the diagnosis? How are you feeling about it? There is a lot of good information in our group files that you may be interested in reading. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, October 8, 2010 12:03:05 PMSubject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Posted October 9, 2010 · October 9, 2010

Hi Jen,Welcome to the list! I am Reb, from Sweden, and I don't have MS, but my wife has. She was diagnosed at around the same age as you are in now (well, to be exact, I think she was 33 going on 34...).MS is a tricky thing in that you can't really predict it's course. But I know that when the diagnosis is new, trying to foresee what the future with it will be is what you do. We did a lot of that too. Here you'll meet a lot of people with many different experiences of/with MS. The good thing is, that whatever you are experiencing MS-wise I can guarantee you that someone here has or has had the same symptoms/problems. And you'll find a lot of community and support beyond the directly MS-related too. Like someone said, this is more lika a family than like a yahoo group, and nothing is OT.I hope you'll find what you are looking for here!love/Reb>> Hi everyone,> > I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.> > I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........> > Thanks for letting me be a part of your group> > Jen>

Posted October 12, 2010 · October 12, 2010

Akiba......

Wow........your post brought tears to my eyes......This is exactly what I need, what I would hope for...but it's that and way more......thank you all for letting me come home

Ok...now if I could stop crying..............................

lol

Jen

Re: new member

We are here for you, to support you in any way possible. This is more of a family then a mere yahoo list. WAY more. We talk about anything and everything, nothing is "OT" here. We could not possibly be a more diverse group of people yet we all have at least one thing in common...MS. This group is the silver lining to the disorder. Welcome home.

Hi

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Posted October 12, 2010 · October 12, 2010

ï»¿

Thank you very much nne.

How old is your husband now? How long have you been married???

I wish him all the best of health as well. You too!!

Jen

RE: new member

Welcome Jen. This is a great group. My husband is the one with MS. He was diagnosed in his middle 60's. He also has diabetes and just had a stent put in. He was having chest pains a few weeks ago. He does pretty good. Some days his walking isn't too great but he manages to get by. I will keep you in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: jenmonroe@...Sent: Fri, 8 Oct 2010 15:03:05 -0400To: mserslife Subject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Share photos & screenshots in seconds...Try FREE IM ToolPack at www.imtoolpack.comWorks in all emails, instant messengers, blogs, forums and social networks.

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Posted October 12, 2010 · October 12, 2010

Oh, thank you ever so much Kate!!

May I ask how old you are? Are you the one in your family with MS??

I'm sorry too that we all need to be here......but I feel as if I lucked out in finding you all, something must have brought you to me, or me to you, whichever.......

I have to say, my kids are awesome!! Naturally there are times that they drive us crazy or do stupid things as we all know...but they are SO good to me, so helpful around the house etc.....

Kate, do you work outside of the home?????

I am really struggling right now......with my job being a physical one, it's so hard for me. When I left early on Saturday (I got the migraine Friday and it sort of left, only to come back again on Saturday morning) from work (my step mom also works with me), I figured I would be fine to go back on Sunday morning..but no....monday...noo..and today no.......I cannot shake this stupid thing. I am not used to this. If I had a migraine, I would take an Axert and it would go away and not come back. I'm not used to the pills not working, or a migraine staying this long at all. Is this something I am going to have to live with all the time?? I sure hope not. I feel terrible , just awful calling in sick for 3 days

This is the first I have been at the computer because I so badly wanted to look at the emails from all of you.......

Jen

Re: new member

How perfectly and wisely said, !I am 'tagging' onto post, as shesaid it so well.Welcome to the group, . We are sorryyou need to be here, but so happy you foundus. Please fill us in more about yourself whenyou feel comfortable.Life with 3 teens must be a challenge. I have5 kids, but only 3 are home--they are 10, 13 and16--so I can relate somewhat.Again, a warm hello from Kate in NY,

Posted October 12, 2010 · October 12, 2010

Thank you so much Margaret, I am so happy to be here with all of you

I know there are different types of MS, but I don't know which type I have

as of right now....

Being here, has already been a great help to me.

I have a doctors appt on Thursday as well....I don't know if anymore can be

done about these migraines...this is the worst I have ever had, lasting the

longest.

I was going to go into the emergency room the other day, my hubby was going

to take me as he was worried...but i just could not move without being sick

In hindsight, I probably should have went.....

Jen

Re: new member

> Jen Welcome to the group. Please tell us how we can help. Margaret

>

>>Hi everyone,

>>

>>I was just diagnosed with MS and I just don't know what to think..I have

>>heard some hopeful stories and some not so hopeful ones....I hope to

>>connect with others who are going through the same things.

>>

>>I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage

>>children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I

>>have been together for 6 yrs. We were both previously married. he has

>>been really great. but neither of us has any experience with

>>this...........

>>

>>Thanks for letting me be a part of your group

>>

>>Jen

>

> ------------------------------------

>

Posted October 12, 2010 · October 12, 2010

ï»¿

Thank you n

Well..I guess it all started a year ago this past April, when I first went to the doctor because I was having a lot of pain in my neck and shoulders etc.....Pinched nerve I was told...in my neck..ok..so I was put on Flexeril as well as Zoloft (to help relax me because the doctor also thought anxiety.......)

Neither helped and the pain got worse and spread out to more of my upper body.....I was in the hospital a few times, with very high blood pressure and head pains. before all this, my BP was perfect, couldn't be any better...now it's still not great and spikes now and then.....Not high enough for me to be put on any BP meds apparantly...

I think during all this I have seen my doctor more than my family.....I had the same doctor from the time I was 17 until I was 33...he got sick and retired..so for the past year and a half I have had a new doctor....I felt like he thought it was all in my head and giving me anti anxiety meds would cure me, which it didn't. Now I am on Cymbalta, for anxiety as well as nerve pain (guess what? it isn't doing anything!!)

Then I moved to Baclofen for the muscle spasms...I totally hate this drug and love it. It helps a lot, i cannot be without it..but yet, it makes me feel terrible, and the eye pain, redness, stys, is crazy!!! is anyone else on Baclofen????

Although I was only diagnosed a couple of weeks ago (so this IS all new to me), I can already tell it IS going to be Multiple Surprises!!!!!!!!!!!!!

Jen

Re: new member

Welcome aboard to our group of "Multiple Surprises!"As is often said of many things, "It's Complicated!"I was diagnosed with MS at the age of 19, in 1956by Roy Swank, M.D. (who lived until 96). He was right,and predicted that although I would have "episodes,"that I would do well.Well, I am still here, at the delicate age of 73!Highest hopes for you, Jen, and do tell us more about how youcame to "join the world of MS!"Love to you, Jen; we do look forward to reading more from you,n

: 10/07/10 14:34:00

Posted October 12, 2010 · October 12, 2010

Chuck is 69 now. We will celebrate our 47th wedding anniversary on the 28th.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: jenmonroe@...Sent: Tue, 12 Oct 2010 09:41:53 -0400To: mserslife Subject: Re: new member

ï»¿ Thank you very much nne.

How old is your husband now? How long have you been married???

I wish him all the best of health as well. You too!!

Jen

RE: new member

Welcome Jen. This is a great group. My husband is the one with MS. He was diagnosed in his middle 60's. He also has diabetes and just had a stent put in. He was having chest pains a few weeks ago. He does pretty good. Some days his walking isn't too great but he manages to get by. I will keep you in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: jenmonroe@...Sent: Fri, 8 Oct 2010 15:03:05 -0400To: mserslife Subject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

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Posted October 12, 2010 · October 12, 2010

ï»¿

oh wow nne, that is amazing!!!!!

Congratulations!!

Jen

RE: new member

Welcome Jen. This is a great group. My husband is the one with MS. He was diagnosed in his middle 60's. He also has diabetes and just had a stent put in. He was having chest pains a few weeks ago. He does pretty good. Some days his walking isn't too great but he manages to get by. I will keep you in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: jenmonroe@...Sent: Fri, 8 Oct 2010 15:03:05 -0400To: mserslife Subject: new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

Share photos & screenshots in seconds...Try FREE IM ToolPack at www.imtoolpack.comWorks in all emails, instant messengers, blogs, forums and social networks.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3183 - Release Date: 10/07/10 14:34:00

Send your photos by email in seconds...Try FREE IM ToolPack at www.imtoolpack.comWorks in all emails, instant messengers, blogs, forums and social networks.

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Posted October 12, 2010 · October 12, 2010

JenI was on Baclofen and, while it worked for me, it really made my fatigue so much worse. Before Baclofen I was on Klonopin. It worked well but is rather sedating. It's a never ending cycle!As a newly diagnosed MSer you are on a brand new road. It's going to be a real learning experience and you will eventually settle in with your MS and things should calm down for you. Have you called your local National Multiple Sclerosis Society chapter to get information? They will mail you a packet of information for newly diagnosed. They also may have an in-person support group for the newly diagnosed.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: Jen

Hunter To: MSersLife Sent: Tue, October 12, 2010 7:11:52 AMSubject: Re: new member

ï»¿

Thank you n

Well..I guess it all started a year ago this past April, when I first went to the doctor because I was having a lot of pain in my neck and shoulders etc.....Pinched nerve I was told...in my neck..ok..so I was put on Flexeril as well as Zoloft (to help relax me because the doctor also thought anxiety.......)

Neither helped and the pain got worse and spread out to more of my upper body.....I was in the hospital a few times, with very high blood pressure and head pains. before all this, my BP was perfect, couldn't be any better...now it's still not great and spikes now and then.....Not high enough for me to be put on any BP meds apparantly...

I think during all this I have seen my doctor more than my family.....I had the same doctor from the time I was 17 until I was 33...he got sick and retired..so for the past year and a half I have had a new doctor....I felt like he thought it was all in my head and giving me anti anxiety meds would cure me, which it didn't. Now I am on Cymbalta, for anxiety as well as nerve pain (guess what? it isn't doing anything!!)

Then I moved to Baclofen for the muscle spasms...I totally hate this drug and love it. It helps a lot, i cannot be without it..but yet, it makes me feel terrible, and the eye pain, redness, stys, is crazy!!! is anyone else on Baclofen????

Although I was only diagnosed a couple of weeks ago (so this IS all new to me), I can already tell it IS going to be Multiple Surprises!!!!!!!!!!!!!

Jen

Re: new member

Welcome aboard to our group of "Multiple Surprises!"As is often said of many things, "It's Complicated!"I was diagnosed with MS at the age of 19, in 1956by Roy Swank, M.D. (who lived until 96). He was right,and predicted that although I would have "episodes,"that I would do well.Well, I am still here, at the delicate age of 73!Highest hopes for you, Jen, and do tell us more about how youcame to "join the world of MS!"Love to you, Jen; we do look forward to reading more from you,n

: 10/07/10 14:34:00

Posted October 12, 2010 · October 12, 2010

Oh, I didn't mean to make you cry! And the longer you are here, the more this group will be home and the members, your extended family.

I am Akiba, BTW, I am 56 now, with a young son about to turn 13. Yes he is an only child. I am divorced, my 14-year marriage ended fairly badly, I won't go into it at this time, we want you to stay lol...

I was diagnosed on April Fool's day 2004. Some joke, huh?

~*~Hugs~*~

~*~Akiba~*~

-- Re: new member

Akiba......

Wow........your post brought tears to my eyes......This is exactly what I need, what I would hope for...but it's that and way more......thank you all for letting me come home

Ok...now if I could stop crying..............................

lol

Jen

Re: new member

We are here for you, to support you in any way possible. This is more of a family then a mere yahoo list. WAY more. We talk about anything and everything, nothing is "OT" here. We could not possibly be a more diverse group of people yet we all have at least one thing in common...MS. This group is the silver lining to the disorder. Welcome home.

Hi

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3183 - Release Date: 10/07/10 14:34:00

Posted October 13, 2010 · October 13, 2010

Hi Reb, thank you for the warm welcome

How old is your wife now? How is her health overall??

Do you remember what her intitial symptoms were, what took her to the doctor originally???

I am just curious on how others came to discover they had MS. Mainly because, I have been back and forth to the doctor, for over a yr now, telling me it's this..it's that...no, it's not that, it's this...etc.....I was just so sick and tired of my doctor making me fee like it was all in my head and that I was "Depressed" even though I swore I was not, then.......Now...depressed??? Yes, somewhat..........

Jen

Re: new member

Hi Jen,

Welcome to the list!

I am Reb, from Sweden, and I don't have MS, but my wife has. She was diagnosed at around the same age as you are in now (well, to be exact, I think she was 33 going on 34...).

MS is a tricky thing in that you can't really predict it's course. But I know that when the diagnosis is new, trying to foresee what the future with it will be is what you do. We did a lot of that too.

Here you'll meet a lot of people with many different experiences of/with MS. The good thing is, that whatever you are experiencing MS-wise I can guarantee you that someone here has or has had the same symptoms/problems. And you'll find a lot of community and support beyond the directly MS-related too. Like someone said, this is more lika a family than like a yahoo group, and nothing is OT.

I hope you'll find what you are looking for here!

love

/Reb

Posted October 13, 2010 · October 13, 2010

Sharon,

I only found out a couple of weeks ago about the MS....there were other thoughts originally..Fibro...Degenerative Disc Disease.....Depression...Anxiety...it was a long journey to get here!!

Jen

new member

Hi everyone,

I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things.

I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this...........

Thanks for letting me be a part of your group

Jen

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Posted October 13, 2010 · October 13, 2010

Hi Jen,She is 37 now (so she hasn't been diagnosed all that very long, although she has probably had MS for quite long). She went to the ER with loss of sensation in one leg some 2 years, I think it may have been, before the actual diagnosis. That didn't lead to much, and eventually she regained sensation in that leg. Before that she had been to the doctor with a loss of sensation in half her face. Then, a couple of years after the first "leg episode", she lost sensation in both her legs (starting in her feet and spreading), and went to the PT, who sent her to the doctor, who sent her to the ER, where she was admitted to the hospital (that whole chain from the PT to the hospital was completed in a few hours actually...). And a couple of weeks (or could have been a month) later she had a definite diagnosis of MS, when all tests (MR and LP etc) had been done, and all the other things ruled out. Those were worrisome weeks, of course, but all in all, I guess she was lucky, I know that for others it has been a process of several years and countless of doctors visits. She is quite well. Suffers a lot from fatigue, and has some cognitive issues. But other symptoms are relatively mild. She has regained sensation and control in her legs, although they can still "act up" at times. And she has had a few episodes of things like minor loss of sensation in limited areas. Nothing big. That was the short answer – have to save that pea soup from the stove now... – do feel free to ask if you wonder about anything else, or if it was too short an answer. love/Reb>> Hi Reb, thank you for the warm welcome > How old is your wife now? How is her health overall??> Do you remember what her intitial symptoms were, what took her to the doctor originally???> I am just curious on how others came to discover they had MS. Mainly because, I have been back and forth to the doctor, for over a yr now, telling me it's this..it's that...no, it's not that, it's this...etc.....I was just so sick and tired of my doctor making me fee like it was all in my head and that I was "Depressed" even though I swore I was not, then.......Now...depressed??? Yes, somewhat..........> > Jen> > Re: new member> > > > > Hi Jen,> > > Welcome to the list! > > > I am Reb, from Sweden, and I don't have MS, but my wife has. She was diagnosed at around the same age as you are in now (well, to be exact, I think she was 33 going on 34...).> > > MS is a tricky thing in that you can't really predict it's course. But I know that when the diagnosis is new, trying to foresee what the future with it will be is what you do. We did a lot of that too. > > > Here you'll meet a lot of people with many different experiences of/with MS. The good thing is, that whatever you are experiencing MS-wise I can guarantee you that someone here has or has had the same symptoms/problems. And you'll find a lot of community and support beyond the directly MS-related too. Like someone said, this is more lika a family than like a yahoo group, and nothing is OT.> > > I hope you'll find what you are looking for here!> > > love> /Reb>

Posted July 13, 2011 · July 13, 2011

Hello All,

I've been really enjoying reading your validating stories and supportive input

for about two weeks and have been trying to post but have thus far been

unsuccessful, so I'm trying again.

I have a Queen/Witch/Waif nada who has bullied, abused, tormented and hurt my

dad, myself and two of my three younger siblings for as long as I've been alive

(She split us so that I was confidante/therapist/competitor, brother 1 was all

bad, brother 2 was ignored and sister was the golden child). She was diagnosed

with BPD/NPD and Munchausen by proxy this year.

I moved out of the house when I was 17 (2 years ago) and about 6 months later my

Dad finally officially got the ball rolling for the divorce. She completely lost

it and her abuse became so over the top, she ended up losing all custody in the

divorce process. It's not over yet, but at least custody of my siblings is

decided. When the sheriff removed her from the house this past November, I can't

even describe the feelings of relief, guilt and fear. It's such a beautiful

thing to have a real home at home for the first time in my life, but I

oftentimes really struggle with the feelings of resentment. Now that I have a

life on my own, going to school full time and working, it's difficult to really

be a part of the family I have now. Even though my Dad and I have talked about

it and I understand he was doing the best he could, but I still wish he could

have saved me from her too instead of making me save myself.

Now, I'm NC with nada and have a restraining order in place so she's legally not

allowed to contact me in any way, but I'm still struggling with the effects of

simply being her kid and trying to make sense of everything. I know I'm in so

much of a better place without her in my life (I'm even in a real, non-abusive

relationship for the first time!) but it's still hard.

I feel so incredibly lucky that things worked out and nada has been removed from

my life and I was given the tools to heal so early in my adult life, but I still

feel like I've been compromised, as if I am the broken one in all of this.

My two younger brothers and I were all diagnosed with complex PTSD this year and

this summer I decided to start actively dealing with all of this instead of just

living day by day pretending these things don't affect me. I've read most of

Walking on Eggshells, Surviving a Borderline Parent and am currently working

through a PTSD workbook.

I'd love to hear how you all adjusted to life further away from a nada and feel

so privileged to find this group full of supportive, lovely people. I look

forward to hearing your stories and getting to know you all on here

Clefairy

P.S. The Pokemon moniker came from the code my siblings and Dad used to talk

about the crazy things we did because of Nada and personified ourselves as

Pokemon. Nada was named Voltorb, a Pokemon whose attacks included electrocute,

explode and self-destruct. I'm Clefairy, a rare pink Pokemon who spends time in

hiding while on a quest for a moonstone to evolve into the next step, a pokemon

named Clefable. It's a peaceful Pokemon but when necessary will protect its own

fiercely. Hopefully that helps for those who aren't familiar with Pokemon.

Posted July 14, 2011 · July 14, 2011

Welcome to the Group Clefairy.

You've found a bunch of other people who understand what you went through and

can relate to the feelings of " broken-ness " that are caused by parental abuse.

But that is so encouraging that you and your younger sibs are now safe, your

home is safe, calm and peaceful, and you all now have a good chance to work

through the damage and heal, and have a joyful, rich, and satisfying adult life,

particularly since you are all so relatively young and you have your non-pd dad

with you.

Be gentle with yourself. It takes time to process trauma, work through it. I

also recommend " Understanding The Borderline Mother. " Its powerful, but

cathartic.

You may be feeling kind of numb for a while, as an aftereffect of all the drama

and chaos, but you will feel safe again eventually, safe to access all your

feelings and to let yourself relax enjoy things again.

Welcome!

-Annie

>

> Hello All,

>

> I've been really enjoying reading your validating stories and supportive input

for about two weeks and have been trying to post but have thus far been

unsuccessful, so I'm trying again.

>

> I have a Queen/Witch/Waif nada who has bullied, abused, tormented and hurt my

dad, myself and two of my three younger siblings for as long as I've been alive

(She split us so that I was confidante/therapist/competitor, brother 1 was all

bad, brother 2 was ignored and sister was the golden child). She was diagnosed

with BPD/NPD and Munchausen by proxy this year.

>

> I moved out of the house when I was 17 (2 years ago) and about 6 months later

my Dad finally officially got the ball rolling for the divorce. She completely

lost it and her abuse became so over the top, she ended up losing all custody in

the divorce process. It's not over yet, but at least custody of my siblings is