Guest guest Posted September 23, 2011 Report Share Posted September 23, 2011 Does anyone have any experience with Valtrex making a difference for a tic disorder? My 8-year-old has had periodic bouts with tics for the last three years. The tics consist of a grunting/throat clearing noise, banging with his hands, stomping his feet, etc. In the past week he has changed from grunting to saying, " Too-tee. " The episodes tend to last 2-3 months at a time, and are accompanied by decreased focus and emotional control. He is currently in one of his tic cycles, which started at the end of July. In the past couple of weeks the tics have been severe - to the point where he looks like he has full-blown Tourette's. Also some OCD behaviors are present. The last 2 weeks of school have been awful for him. We ran a stool test in Mid August and did some bloodwork at the beginning of September. No markers for strep or yeast in the stool, but low Secretory IgA and general inflammation. Bloodwork revealed no EBV, no CMV, and strep antibodies were negative (this was 5 weeks after the tics started). He did have high HHV-6 titers. (HHV-6 titers were also high the last time they were checked at age 4.5). Overall IgG was low as well. We are on a GFCFSF, artificial/preservative free diet. Our daily supplements are CLO, Magnesium, Zinc, Compounded Mito support, L5MTHF, B12 injections, Vitamin D, Vitamin E, probiotic/prebiotic, CoQ10. We started Valtrex/Diflucan a week ago to knock out the HHV-6. I had noticed a decrease in the frequency of tics the night before we started the valtrex, so it's hard to say if the new meds are the cause. The tics were much lower over last weekend and have started to increase again. He had a slight rash around his mouth the other day. This is similar to a rash I have seen come and go over the last 2 months. Would appreciate any experience with Valtrex specifically for tics, or other ideas to pursue for testing/treatment. Thank you, Jenna Quote Link to comment Share on other sites More sharing options...
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