Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 That has to be so frustrating. Do you take any vitamins? I have started my husband on B6 and will add D as well. I take b6 and find it really helps. http://countermanfamilynews.blogspot.com/ Never ending fatigue Hi all, I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a lesion in my spinal chord that resolved with nasty iv steroids. I also have a lesion in my parietal lobe that is pretty large and has been there since 2004. It acted up again in the spring and I did iv steroids in April. I got steroid myopathy (not fun)and never returned to feeling myself since then. I can function well for about four or five hours at the front end of the day, but when the fatigue hits, it is overwhelming. I take vitamin and amino acid supplements and this helps, and I just started Nuvigil which helps on and off. I would love it if anyone has any other tips I might try. I hate dragging around just when I get to see my kids after school or my husband in the evening. I don't expect a miracle, but I would sure love a little bit more energy to spend on my family! Liz ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Liz, have you ever tried Avonex; it helped me for many years.Love and hope,n, w MS since 1956; I am now 73To: MSersLife Sent: Wed, July 14, 2010 6:03:44 PMSubject: Never ending fatigue Hi all, I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a lesion in my spinal chord that resolved with nasty iv steroids. I also have a lesion in my parietal lobe that is pretty large and has been there since 2004. It acted up again in the spring and I did iv steroids in April. I got steroid myopathy (not fun)and never returned to feeling myself since then. I can function well for about four or five hours at the front end of the day, but when the fatigue hits, it is overwhelming. I take vitamin and amino acid supplements and this helps, and I just started Nuvigil which helps on and off. I would love it if anyone has any other tips I might try. I hate dragging around just when I get to see my kids after school or my husband in the evening. I don't expect a miracle, but I would sure love a little bit more energy to spend on my family! Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Dear LizFatigue is one of the hardest symptoms for us MSers to deal with. I have never taken Nuvigil but I hear it's the improved form of Provigil. I took Provigil for awhile but it raised my blood pressure. This is what has helped me. I quit drinking coffee, tea and soda because of a severely dry mouth. I was surprised when I discovered my fatigue improved a little. It's not a drastic improvement but every little bit helps. Have you had your B12 level checked? I am grasping at straws here, Liz. I feel for you. big hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, July 14, 2010 6:03:44 PMSubject: Never ending fatigue Hi all,I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a lesion in my spinal chord that resolved with nasty iv steroids. I also have a lesion in my parietal lobe that is pretty large and has been there since 2004. It acted up again in the spring and I did iv steroids in April. I got steroid myopathy (not fun)and never returned to feeling myself since then. I can function well for about four or five hours at the front end of the day, but when the fatigue hits, it is overwhelming. I take vitamin and amino acid supplements and this helps, and I just started Nuvigil which helps on and off. I would love it if anyone has any other tips I might try. I hate dragging around just when I get to see my kids after school or my husband in the evening. I don't expect a miracle, but I would sure love a little bit more energy to spend on my family!Liz------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Where do you get your B6? Just wondering if you use a special brand? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, July 14, 2010 6:10:23 PMSubject: RE: Never ending fatigue That has to be so frustrating. Do you take any vitamins? I have started myhusband on B6 and will add D as well. I take b6 and find it really helps.http://countermanfamilynews.blogspot.com/ -----Original Message-----From: MSersLife [mailto:MSersLife ] On BehalfOf eglad2001Sent: Wednesday, July 14, 2010 9:04 PMTo: MSersLife Subject: Never ending fatigueHi all,I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had alesion in my spinal chord that resolved with nasty iv steroids. I also havea lesion in my parietal lobe that is pretty large and has been there since2004. It acted up again in the spring and I did iv steroids in April. Igot steroid myopathy (not fun)and never returned to feeling myself sincethen. I can function well for about four or five hours at the front end ofthe day, but when the fatigue hits, it is overwhelming. I take vitamin andamino acid supplements and this helps, and I just started Nuvigil whichhelps on and off. I would love it if anyone has any other tips I might try.I hate dragging around just when I get to see my kids after school or myhusband in the evening. I don't expect a miracle, but I would sure love alittle bit more energy to spend on my family!Liz------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 D 3 at least 2000 mg per day there is a super B complex tablet that is good To: MSersLife Sent: Wed, July 14, 2010 10:54:18 PMSubject: Re: Never ending fatigue Where do you get your B6? Just wondering if you use a special brand? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: ~SC~ <count5 (AT) echoes (DOT) net>To: MSersLife@yahoogrou ps.comSent: Wed, July 14, 2010 6:10:23 PMSubject: RE: Never ending fatigueThat has to be so frustrating. Do you take any vitamins? I have started myhusband on B6 and will add D as well. I take b6 and find it really helps.http://countermanfa milynews. blogspot. com/ Never ending fatigueHi all,I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had alesion in my spinal chord that resolved with nasty iv steroids. I also havea lesion in my parietal lobe that is pretty large and has been there since2004. It acted up again in the spring and I did iv steroids in April. Igot steroid myopathy (not fun)and never returned to feeling myself sincethen. I can function well for about four or five hours at the front end ofthe day, but when the fatigue hits, it is overwhelming. I take vitamin andamino acid supplements and this helps, and I just started Nuvigil whichhelps on and off. I would love it if anyone has any other tips I might try.I hate dragging around just when I get to see my kids after school or myhusband in the evening. I don't expect a miracle, but I would sure love alittle bit more energy to spend on my family!Liz------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Thanks guys, I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand. Liz > > D 3 at least 2000 mg per day > > there is a super B complex tablet that is good > > > > > ________________________________ > > To: MSersLife > Sent: Wed, July 14, 2010 10:54:18 PM > Subject: Re: Never ending fatigue > >  > Where do you get your B6? Just wondering if you use a special brand? > > > Sharon > This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects. >  >  > > > > > ________________________________ > From: ~SC~ <count5 (AT) echoes (DOT) net> > To: MSersLife@yahoogrou ps.com > Sent: Wed, July 14, 2010 6:10:23 PM > Subject: RE: Never ending fatigue > > That has to be so frustrating. Do you take any vitamins? I have started my > husband on B6 and will add D as well. I take b6 and find it really helps. > > > http://countermanfa milynews. blogspot. com/  > > Never ending fatigue > > Hi all, > I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a > lesion in my spinal chord that resolved with nasty iv steroids. I also have > a lesion in my parietal lobe that is pretty large and has been there since > 2004. It acted up again in the spring and I did iv steroids in April. I > got steroid myopathy (not fun)and never returned to feeling myself since > then. I can function well for about four or five hours at the front end of > the day, but when the fatigue hits, it is overwhelming. I take vitamin and > amino acid supplements and this helps, and I just started Nuvigil which > helps on and off. I would love it if anyone has any other tips I might try. > I hate dragging around just when I get to see my kids after school or my > husband in the evening. I don't expect a miracle, but I would sure love a > little bit more energy to spend on my family! > Liz > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 I just staeted 1 teaspoon of Cod Liver Oil in the mornings - before breakfast - a lot of D and other stuff - it also works on the immune system - chug it and eat a piece of bread or something - I was told that it does help blood pressure and cholesteral and tri something didn't really have a taste to it - a bottle about the size of a fifth is $8.99 at Walgreens I quite going to Wal Mart for vitamins - they change it monthly and I wasn't able to get what I was used to - don't want to get out of whack stress and heat are major - we do not have internal thermostats and you could die with too much sun - you don't realize it To: MSersLife Sent: Thu, July 15, 2010 6:50:12 AMSubject: Re: Never ending fatigue Thanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> D 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ________________________________> > To: MSersLife > Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >  > Where do you get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ________________________________> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/  > > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin and> amino acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Hi Liz,I'm not sure what neck of the woods you live in, butperhaps heat is also exacerbating the fatigue as well?I know it does for me. So, keeping cool would be important.For me, an antidepressant helps somewhat with the fatigue,but I too, get what I call 'crushing' fatigue; so hard to function.I really, really feel for you.We are here for you!blessings and hugs, Kate Never ending fatigueTo: MSersLife > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 > and have had a lesion in my spinal chord that resolved with > nasty iv steroids. I also have a lesion in my parietal lobe > that is pretty large and has been there since 2004. It acted up > again in the spring and I did iv steroids in April. I got > steroid myopathy (not fun)and never returned to feeling myself > since then. I can function well for about four or five hours at > the front end of the day, but when the fatigue hits, it is > overwhelming. I take vitamin and amino acid supplements and > this helps, and I just started Nuvigil which helps on and off. > I would love it if anyone has any other tips I might try. I > hate dragging around just when I get to see my kids after school > or my husband in the evening. I don't expect a miracle, but I > would sure love a little bit more energy to spend on my family!> Liz> > love and blessings,Kate Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigue Thanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> D 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ________________________________> > To: MSersLife > Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >  > Where do you get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ________________________________> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/  > > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin and> amino acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River To: MSersLife Sent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> D 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >  > Where do you get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/  > > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin and> amino acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River To: MSersLife Sent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> D 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >  > Where do you get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/  > > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin and> amino acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 my heart sister lives in Camp Verde - it takes a lot out of her To: MSersLife Sent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> D 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >  > Where do you get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/  > > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin and> amino acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> > Quote Link to comment Share on other sites More sharing options...
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