Re: Never ending fatigue/ and hot, damp weather

[Guest guest]

I was born in Detroit, Michigan--very high humidity andrelatively high heat--all summer long--even at camp.I love cool to cold DRY weather--so I used to ski andsnowboard.However, for most of us wMS, this is definitely not an option--and in the Southwest, usually not an option in summer.My mother used to fill me up with iced tea--helped a bit.Love and compassion to you all,nFrom: Anne Whitworth

To: MSersLife Sent: Thu, July 15, 2010 11:47:45 AMSubject: Re: Never ending fatigue

my heart sister lives in Camp Verde - it takes a lot out of her

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue

I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;)

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue

it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue

LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie

down in the

afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> DÂ 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> > Â > Where

do you

get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/ Â

> > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin and>

amino

acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> >

[Guest guest]

I didn't realize that the weather was like that inDetroit, n. That must have been a realchallenge!Cool, that you used to ski and snowboard. Was thatalso in Michigan?We're having quite a high humidity day here, and itis wiping me out.Keep cool everyone!love to all,KateTo: MSersLife Sent: Thu, July 15, 2010 3:06:35 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I was born in Detroit, Michigan--very high humidity andrelatively high heat--all summer long--even at camp.I love cool to cold DRY weather--so I used to ski andsnowboard.However, for most of us wMS, this is definitely not an option--and in the Southwest, usually not an option in summer.My mother used to fill me up with iced tea--helped a bit.Love and compassion to you all,nFrom: Anne Whitworth

<reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 11:47:45 AMSubject: Re: Never ending fatigue

my heart sister lives in Camp Verde - it takes a lot out of her

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue

I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;)

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue

it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue

LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie

down in the

afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> DÂ 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> > Â > Where

do you

get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/ Â

> > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin

and>

amino

acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> >

[Guest guest]

I would love to be skiing or snowboarding today here....It's supposed to be the hottest day we have had in 3 years....102 or better with heat advisories out.....Me, I am staying in....I went out to my garden early this morning and won't be back outside till around 8 or 9 pm to check on the veggies again.....I am having a very hard time with the heat this year and didn't know why till I got my dx 3 weeks ago.Subject: Re: Never ending fatigue/ and hot, damp weatherTo: MSersLife Date: Thursday, July 15, 2010, 4:02 PM

I didn't realize that the weather was like that inDetroit, n. That must have been a realchallenge!Cool, that you used to ski and snowboard. Was thatalso in Michigan?We're having quite a high humidity day here, and itis wiping me out.Keep cool everyone!love to all,KateFrom: marion j rojas <marionjrojas2002@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 3:06:35 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I was born in Detroit, Michigan--very high humidity andrelatively high heat--all summer long--even at camp.I love cool to cold DRY weather--so I used to ski andsnowboard.However, for most of us wMS, this is definitely not an option--and in the Southwest, usually not an option in summer.My mother used to fill me up with iced tea--helped a bit.Love and compassion to you all,nFrom: Anne Whitworth

<reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 11:47:45 AMSubject: Re: Never ending fatigue

my heart sister lives in Camp Verde - it takes a lot out of her

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue

I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;)

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue

it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue

LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie

down in the

afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> DÂ 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >

 > Where

do you

get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/ Â

> > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin

and>

amino

acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> >

[Guest guest]

Whoa, Kim. We've been having days like that as well.Brutal, isn't it? Hopefully, you have ACs and can keepit on and cool off. Put a fan on too if you have one.I forget where you live?love to you, KateTo: MSersLife Sent: Thu, July 15, 2010 4:06:14 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I would love to be skiing or snowboarding today here....It's supposed to be the hottest day we have had in 3 years....102 or better with heat advisories out.....Me, I am staying in....I went out to my garden early this morning and won't be back outside till around 8 or 9 pm to check on the veggies again.....I am having a very hard time with the heat this year and didn't know why till I got my dx 3 weeks ago.From: Kate Rothschild <rothschildkate@ yahoo.com>Subject: Re: Never ending fatigue/ and hot, damp weatherTo: MSersLife@yahoogrou ps.comDate: Thursday, July 15,

2010, 4:02 PM

I didn't realize that the weather was like that inDetroit, n. That must have been a realchallenge!Cool, that you used to ski and snowboard. Was thatalso in Michigan?We're having quite a high humidity day here, and itis wiping me out.Keep cool everyone!love to all,KateFrom: marion j rojas <marionjrojas2002@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 3:06:35 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I was born in Detroit, Michigan--very high humidity andrelatively high heat--all summer long--even at camp.I love cool to cold DRY weather--so I used to ski andsnowboard.However, for most of us wMS, this is definitely not an option--and in the Southwest, usually not an option in summer.My mother used to fill me up with iced tea--helped a bit.Love and compassion to you all,nFrom: Anne Whitworth

<reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 11:47:45 AMSubject: Re: Never ending fatigue

my heart sister lives in Camp Verde - it takes a lot out of her

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue

I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;)

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue

it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue

LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie

down in the

afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> DÂ 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >

 > Where

do you

get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/ Â

> > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin

and>

amino

acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> >

[Guest guest]

We lived, or I did, outside of Detroit until I was nearly ten.My school was several miles away--no buses then. So,usually we walked to school. When it snowed, the roads were plowed and we often could walk to school; otherwise,we did cross-country skiing. If there was solid ice on top ofthe snow or the road, we ice-skated to school, using skatesmore or less like modern hockey skates.Then we moved to the L.A. Basin near Los Angeles, nearthe beach--we were at the beach every day; so, I learnedto surf and to body surf--my mother had made certain thatwe each learned to swim--and well--as she had been terrifiedof the water--my father used to say that watching our motherswim side-stroke made it appear that her main attempt wasto keep as much

of her OUT of the water as possible.Then we moved to Portland, Oregon and lived on a lake,Lake Oswego; I was in ecstacy, and discovered the joysof downhill skiing on Mt. Hood, about 70 miles outside ofPortland.I went to college and began graduate school in Portland,met my husband-to-be---whose main aim in life was to moveto Berkeley, California, which we did. I still live about 75yards immediately south of Berkeley just above the S.F.Bay.I could take up a lot ot space here describing all the athleticactivities I got into--including fishing, boating--all of it.In part because I have Cystic Fibrosis (We do not all dropdead before 25, though sadly, many do.), and in part becauseI developed MS while living in humid Portland--nice muggysummers--I just have no tolerance for either heat or humidity--but I would choose cold and rain over muggy any day.I think that the

hottest cities that I, myself have experiencedhave been New York City and Chicago, though now LosAngeles (along with the rest of the planet) is far warmer thanit was when I lived there.Love to you, Kate, and to all of you,nP.S. I now have severe peripheral neuropathy from myfeet to above my knees, so am no longer doing athleticthings--just watching what I eat--very carefully! M.~To: MSersLife Sent: Thu, July 15, 2010 1:02:58 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I didn't realize that the weather was like that inDetroit, n. That must have been a realchallenge!Cool, that you used to ski and snowboard. Was thatalso in Michigan?We're having quite a high humidity day here, and itis wiping me out.Keep cool everyone!love to all,Kate

[Guest guest]

Tir lives in Traverse City, MI - we are running similar humidity

the weather can be difficult - too cold in the winter for me to try it

To: MSersLife Sent: Thu, July 15, 2010 3:02:58 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I didn't realize that the weather was like that inDetroit, n. That must have been a realchallenge!Cool, that you used to ski and snowboard. Was thatalso in Michigan?We're having quite a high humidity day here, and itis wiping me out.Keep cool everyone!love to all,Kate

From: marion j rojas <marionjrojas2002@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 3:06:35 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I was born in Detroit, Michigan--very high humidity andrelatively high heat--all summer long--even at camp.I love cool to cold DRY weather--so I used to ski andsnowboard.However, for most of us wMS, this is definitely not an option--and in the Southwest, usually not an option in summer.My mother used to fill me up with iced tea--helped a bit.Love and compassion to you all,n

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 11:47:45 AMSubject: Re: Never ending fatigue

my heart sister lives in Camp Verde - it takes a lot out of her

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue

I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;)

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue

it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue

LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie down in the

afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> DÂ 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> > Â > Where do you

get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/Â

 > > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take

vitamin and> amino acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> >

[Guest guest]

Hi KimThe heat really does affect us MSers, doesn't it? And our families and friends just don't understand that usually. The last time I looked at the thermometer it was 97 here. I am dyin'! But we have clouds building and will hopefully get a nice monsoon storm out of it. So you have a vegetable garden? What do you grow in it? We have a huge garden that is just starting to produce. We ate swiss chard a couple of days ago and have been getting spinach and chives. We had late cold weather and couldn't plant until Memorial Day and later. I've only been able to work in the garden twice so far and that was to do a little bit of weeding. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, July 15, 2010 1:06:14 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I would love to be skiing or snowboarding today here....It's supposed to be the hottest day we have had in 3 years....102 or better with heat advisories out.....Me, I am staying in....I went out to my garden early this morning and won't be back outside till around 8 or 9 pm to check on the veggies again.....I am having a very hard time with the heat this year and didn't know why till I got my dx 3 weeks ago.Subject: Re: Never ending fatigue/ and hot, damp weatherTo: MSersLife Date: Thursday, July 15, 2010, 4:02 PM

I didn't realize that the weather was like that inDetroit, n. That must have been a realchallenge!Cool, that you used to ski and snowboard. Was thatalso in Michigan?We're having quite a high humidity day here, and itis wiping me out.Keep cool everyone!love to all,KateFrom: marion j rojas <marionjrojas2002@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 3:06:35 PMSubject: Re: Never ending fatigue/ and hot, damp weather

I was born in Detroit, Michigan--very high humidity andrelatively high heat--all summer long--even at camp.I love cool to cold DRY weather--so I used to ski andsnowboard.However, for most of us wMS, this is definitely not an option--and in the Southwest, usually not an option in summer.My mother used to fill me up with iced tea--helped a bit.Love and compassion to you all,nFrom: Anne Whitworth

<reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 11:47:45 AMSubject: Re: Never ending fatigue

my heart sister lives in Camp Verde - it takes a lot out of her

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 1:33:31 PMSubject: Re: Never ending fatigue

I know how bad the humidity is and I feel for anyone dealing with it. I spent awhile with my uncle in Georgia when I was 14 and I thought I was gonna DIE! lol But I have to say when it's 115+ for days/weeks on end... well that's pretty hard to deal with too;)

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: Anne Whitworth <reikiladyinswok@ att.net>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 8:05:02 AMSubject: Re: Never ending fatigue

it's not so much the heat - it is the humidity that hits you like a wall - it was worse in St Louis - but then I was 6 blocks north of the Missouri River

From: Sharon <wobbletowalk@ yahoo.com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 10:01:37 AMSubject: Re: Never ending fatigue

LizAre you in Texas? I'll bet the heat plays a big part in your fatigue. What do you do to stay cool? I used to live in Phoenix so I "get" the heat. Oh, man, I SO get the heat! lol

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

From: eglad2001 <egl@.... com>To: MSersLife@yahoogrou ps.comSent: Thu, July 15, 2010 4:50:12 AMSubject: Re: Never ending fatigueThanks guys,I do love my neurologist. I take Mycellized D, B Complex, Magnesium, IH ONE, Omega, Adrenal Support and Tyrosine. I also take Copaxone which has well controlled my inflammations. I can't figure out if my current step up in fatigue is a result of heat, latest round of steroids, stress, or one of a thousand other reasons. It's probably a combo of all of them. So I will just continue to try and make adjustments in lifestyle, and get some extra rest (apparently 9 hours a night and a lie

down in the

afternoon isn't enough). Thanks for all your support. I often feel like other people just think I'm lazy and whiny for constantly feeling too tired to do things. I know you all understand.Liz>> DÂ 3 at least 2000 mg per day> > there is a super B complex tablet that is good> > > > > ____________ _________ _________ __> From: Sharon <wobbletowalk@ ...>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 10:54:18 PM> Subject: Re: Never ending fatigue> >

 > Where

do you

get your B6? Just wondering if you use a special brand?> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>  >  > > > > > ____________ _________ _________ __> From: ~SC~ <count5 (AT) echoes (DOT) net>> To: MSersLife@yahoogrou ps.com> Sent: Wed, July 14, 2010 6:10:23 PM> Subject: RE: Never ending fatigue> > That has to be so frustrating. Do you take any vitamins? I have started my> husband on B6 and will add D as well. I take b6 and find it really helps.> > > http://countermanfa milynews. blogspot. com/ Â

> > Never ending fatigue> > Hi all,> I cannot shake this ongoing fatigue. I was diagnosed in 2002 and have had a> lesion in my spinal chord that resolved with nasty iv steroids. I also have> a lesion in my parietal lobe that is pretty large and has been there since> 2004. It acted up again in the spring and I did iv steroids in April. I> got steroid myopathy (not fun)and never returned to feeling myself since> then. I can function well for about four or five hours at the front end of> the day, but when the fatigue hits, it is overwhelming. I take vitamin

and>

amino

acid supplements and this helps, and I just started Nuvigil which> helps on and off. I would love it if anyone has any other tips I might try.> I hate dragging around just when I get to see my kids after school or my> husband in the evening. I don't expect a miracle, but I would sure love a> little bit more energy to spend on my family!> Liz> > > > ------------ --------- --------- ------> >