Re: started prednisone and other news (LDN)

[Guest guest]

Good for you, Sharon!Love to all of you, and to all parts of you, as well,nTo: Group <mserslife >Sent: Wed, January 5, 2011 7:43:53 PMSubject: started prednisone and other news (LDN)

I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never

sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Sharon prayers that the LDN works for you.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: wobbletowalk@...Sent: Wed, 5 Jan 2011 19:43:53 -0800 (PST)To: mserslife Subject: started prednisone and other news (LDN)

I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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[Guest guest]

Hi Sharon,

Good move....I've been on 4.5mg since 7/8/04.....doing well thankfully.

Best wishes & Regards,

Tom Bayuk

started prednisone and other news (LDN)

I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Sharon,I'm sooooo very sorry to hear that you're having some pretty nasty problems with the MonSter right now.. I only went half numb -- left side, from just under my left breast.. and split right down the center of my body, down to the tips of my toes -- yeah, only half of my pubic area went numb.. but it went numb with the rest of me, from belly button around to the spine.. I hated that feeling.I sure hope that you start feeling better soon. I also really hope that the LDN will work wonders again as well, and if it wasn't the LDN years ago.. I will pray that you have the same results this time as you did years ago, even if it isn't the LDN.. I don't see why it wouldn't, just because there has been no official "studies" or whatever to prove that it does. All the other things that are available to we MSers.. not everything works for everybody, what works for me, might not work for you and vice versa.. Even the CRAB-T meds, don't work the same for all of us.. I haven't been around much lately (got a ton of mail to catch up on the laptop).. but I've also been experiencing loads and loads of fatigue.. I finally got my "approval" letter for the Provigil -- it was approved until the year 2099!! -- so a day or so before Christmas I called , the neuro-nurse, apologized for being a pain, right before they left for the Christmas weekend, but that I'd really like to have a script for the Provigil called in, so that I could enjoy the weekend anyway... I didn't realize that the prescription had changed, though when it was picked up, and I saw what the insurance company was billed for the medication I nearly had a stroke!.. I didn't realize until last week sometime, that he changed the script, from being 1 200mg pill per day, to 2 200mg pills per day.. first in the morning.. second at 1 in the afternoon (and the bottle states that clearly on it).. So there were SIXTY pills in that bottle instead of 30.. Before this, I broke one of the 200 mg in half, took the first half in the morning, and if that didn't do the complete job, I'd take the second half.. I just started to do as told yesterday.. and I was able to stay awake the whole day!!!.. but by 10:30 last night, I was most definitely ready for sleep.. So maybe, I'll be able to get caught up with my email and rejoin the living!HUGS to you Sharon... and I will say at 13.5 below.. I'm certainly glad I'm not where you are.. when the temp drops outside, even though it's 72 in here.. I'm reaching for the thermostat to crank it up, cause I'm freezing!..|)onna

From: Sharon

To: Group

Sent: Wednesday, January 05, 2011 10:43 PM

Subject: started prednisone and other news (LDN)

I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.