Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I'm so sorry to hear of your numbness especially right after the ON . I'm glad you're on the prednisone and especially back on LDN. But is taking such a high dose so quickly alright? I thought you had to start at 1.5 and build up gradually? Thank you so much for the card, it really perked me up. I've been AWOL because my left side went all prickly and then numb. I could barely manage the stairs so I stayed at 's til after Christmas. I'm surprised one of us didn't have a stroke <g>. What scared me the most was the diagnosis of spms .. I was afraid the feeling wouldn't come back which it did. Sometimes I really question diagnoses! Anyway home I went to a dead computer (got a partial fix cause it needs a $200+overhaul and I"d rather get a laptop) and pneumonia of all things. Yes I went to the dr and thank goodness it was viral so I didn't have to take the antibiotics he prescribed. I'm still a bit draggy but for the last 10 days or so I've had the best and longest sleeps I can remember! Good to be back ... hugs, Cait started prednisone and other news (LDN) I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Cait! You have surely been missed! Pneumonia...what a drag! I've had it about 9 times over the last 5 or 6 years. I have a proclivity for it and obviously a weakness in my lungs...probably from being a heavy smoker for 10 years.A laptop would be grand; I'm enjoying mine, but periodically go back to the desktop.I hope your left sided numbness has since resolved. Scary stuff when it happens.Anyway, welcome back!love, KateFrom: xstitcher To: MSersLife Sent: Thu, January 6, 2011 10:21:34 PMSubject: Sharon I'm so sorry to hear of your numbness especially right after the ON . I'm glad you're on the prednisone and especially back on LDN. But is taking such a high dose so quickly alright? I thought you had to start at 1.5 and build up gradually? Thank you so much for the card, it really perked me up. I've been AWOL because my left side went all prickly and then numb. I could barely manage the stairs so I stayed at 's til after Christmas. I'm surprised one of us didn't have a stroke <g>. What scared me the most was the diagnosis of spms .. I was afraid the feeling wouldn't come back which it did. Sometimes I really question diagnoses! Anyway home I went to a dead computer (got a partial fix cause it needs a $200+overhaul and I"d rather get a laptop) and pneumonia of all things. Yes I went to the dr and thank goodness it was viral so I didn't have to take the antibiotics he prescribed. I'm still a bit draggy but for the last 10 days or so I've had the best and longest sleeps I can remember! Good to be back ... hugs, Cait started prednisone and other news (LDN) I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Cait sorry to hear you are sick. You are in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: xstitcher@...Sent: Thu, 6 Jan 2011 22:21:34 -0500To: mserslife Subject: Sharon I'm so sorry to hear of your numbness especially right after the ON . I'm glad you're on the prednisone and especially back on LDN. But is taking such a high dose so quickly alright? I thought you had to start at 1.5 and build up gradually? Thank you so much for the card, it really perked me up. I've been AWOL because my left side went all prickly and then numb. I could barely manage the stairs so I stayed at 's til after Christmas. I'm surprised one of us didn't have a stroke <g>. What scared me the most was the diagnosis of spms .. I was afraid the feeling wouldn't come back which it did. Sometimes I really question diagnoses! Anyway home I went to a dead computer (got a partial fix cause it needs a $200+overhaul and I"d rather get a laptop) and pneumonia of all things. Yes I went to the dr and thank goodness it was viral so I didn't have to take the antibiotics he prescribed. I'm still a bit draggy but for the last 10 days or so I've had the best and longest sleeps I can remember! Good to be back ... hugs, Cait started prednisone and other news (LDN) I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Send any screenshot to your friends in seconds... Works in all emails, instant messengers, blogs, forums and social networks. Try IM ToolPack at www.imtoolpack.com for FREE Quote Link to comment Share on other sites More sharing options...
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