Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!! Any thoughts,questions,suggestions shoot!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 Isn't it possible that now that things have calmed down, you might go into complete remission? I had my first major exacerbation over 30 years ago ... right side paralysis, couldn't speak properly, etc. I wasn't given any drugs and all my symptoms went away except a slight l'hermite's whenever I went my head forward. I diagnosed myself and the dr said no ... even though he had the scan showing the lesions. There just was no treatment then. If I had known about LDN I would have attempted to get that. Have you considered giving it a try? ... hugs, Cait I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!!Any thoughts,questions,suggestions shoot!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 I used Tysabri and I feel it helped me. I used to use a cane, and shortly after I began Ty, I no longer needed it. My walking has greatly improved, though there are days my left foot drags a bit. I'm off the tysabri now, and back on Copaxone. You can only be on ty for 3 or so years. Basically, I've had no flares for 4 years now. If having a baby is your desire, follow your heart.Take care of yourself, and keep posting!hugs, KateFrom: CHOC KISS To: MSersLife Sent: Thu, January 6, 2011 11:11:10 PMSubject: I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!! Any thoughts,questions,suggestions shoot!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 I am sorry you had a flare. You will be in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: londa925@...Sent: Fri, 07 Jan 2011 04:11:10 -0000To: mserslife Subject: I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!!Any thoughts,questions,suggestions shoot!! Try FREE IM ToolPack at www.imtoolpack.com Capture screenshots, upload images, edit and send them to your friends through IMs, post on Twitter®, Facebook®, MySpace™, LinkedIn® – FAST! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Dear LondaDid you see the email from me telling I had read that you can be pregnant on Copaxone? I just can't remember exactly where I read it but the mags I get are Momentum, MSQR, Neurology Now, the United Spinal publication and one that comes from Great Britain (can't think of the name right now). I have always heard that Tysabri should not be a first choice. If I was you I would first go with Copaxone. (((Big hugs to you as you make this very important decision))) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, January 6, 2011 9:11:10 PMSubject: I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!!Any thoughts,questions,suggestions shoot!! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 thanks marianne. hugs.......... SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: RE: I had drs. exam....To: mserslife Date: Friday, January 7, 2011, 8:42 AM I am sorry you had a flare. You will be in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: londa925@...Sent: Fri, 07 Jan 2011 04:11:10 -0000To: mserslife Subject: I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!!Any thoughts,questions,suggestions shoot!! Try FREE IM ToolPack at www.imtoolpack.com Capture screenshots, upload images, edit and send them to your friendsthrough IMs, post on Twitter®, Facebook®, MySpace™, LinkedIn® – FAST! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 My dr is firmly behind tysabri. for a few yrs the the copaxone too. i swear i live w/MimSy everyday but i forgot how to have it. Ive had to think about more this month than iu have since i was diagnosed.wowsers! Im lost,crying,change my mind about everything every hour. im not like this, this is nuts. I know im gonna get through this cuz giving up isnt a option. did u have any side effects after the iv's? hugs......... SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: Re: I had drs. exam....To: MSersLife Date: Friday, January 7, 2011, 7:53 AM I used Tysabri and I feel it helped me. I used to use a cane, and shortly after I began Ty, I no longer needed it. My walking has greatly improved, though there are days my left foot drags a bit. I'm off the tysabri now, and back on Copaxone. You can only be on ty for 3 or so years. Basically, I've had no flares for 4 years now. If having a baby is your desire, follow your heart.Take care of yourself, and keep posting!hugs, Kate To: MSersLife Sent: Thu, January 6, 2011 11:11:10 PMSubject: I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!!Any thoughts,questions,suggestions shoot!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 I took benadryl to ward off some of the side effects I hadfrom the infusion. I would at times feel dizzy and my heartwould race. Also, very low BP, but sometimes the benadrylwould contribute to that. Are you by any chance on steroidsnow, Shalonda? As that can have you coming and going.I recall when I was on prednisone that my moods were allover the place.I hope you get through this time quickly, my friend!hugs, KateFrom: shalonda frederick To: MSersLife Sent: Mon, January 10, 2011 12:47:37 AMSubject: Re: I had drs. exam.... My dr is firmly behind tysabri. for a few yrs the the copaxone too. i swear i live w/MimSy everyday but i forgot how to have it. Ive had to think about more this month than iu have since i was diagnosed.wowsers! Im lost,crying,change my mind about everything every hour. im not like this, this is nuts. I know im gonna get through this cuz giving up isnt a option. did u have any side effects after the iv's? hugs......... SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: Re: I had drs. exam....To: MSersLife Date: Friday, January 7, 2011, 7:53 AM I used Tysabri and I feel it helped me. I used to use a cane, and shortly after I began Ty, I no longer needed it. My walking has greatly improved, though there are days my left foot drags a bit. I'm off the tysabri now, and back on Copaxone. You can only be on ty for 3 or so years. Basically, I've had no flares for 4 years now. If having a baby is your desire, follow your heart.Take care of yourself, and keep posting!hugs, Kate To: MSersLife Sent: Thu, January 6, 2011 11:11:10 PMSubject: I had drs. exam.... I have to go on some form of drug therapy. Theres 3 options tysabri,guylana?-pill,copaxone,so ill be reading and probing forever. My ms is being called relasping secondary. I did bloodwork to see if i carry jv virus which is cause of PML on tysabri. Other than balance issues and hand tremors as usual im actually pretty damn good, i passed all the test. I have to up my vitamin D levels so i have in my hands those pills and muscle relaxers. I am officially no longer drug free. I honestly don't know how i feel bout it right now but it is what it is. Me,Drs had phone conference about the whole situation,im choosing to leave it alone. I finally read my lab results im capable of conceiving,having,carrying a baby thats proof if it was meant to be it would. My legs locking up was a flare thing,falling downstairs was a save princess issue im fine. The drs determined yes i had a total flare-brought on by stress and anxiety....so in my terms the bs,drama of moving was too much and my system went bananas! MimSy is such a treat!!Any thoughts,questions,suggestions shoot!! Quote Link to comment Share on other sites More sharing options...
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