Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Thanks for the bulletin. It has some information that could be of use esp. difference between lecithin and PC. My only concern is the author may have financial interest with BodyBio and in such conflict of interest, I take information with a pinch of salt. Plus, Pubmed search gives loads of articles on PC but majority of them talk on cell lines and there is very little patient study. The bulletin gives examples of different patients but someone can argue as isolated cases. The only papers/clinical trials that I came across were conducted for indication of ulcerative colitis and hence my interest in this product increased. AFAIK, no such studies are performed on any other indication. PC is a component of cell membrane and what you said sounds perfect in theory but the question is, does taking PC supplement really work in practice, taking into account the fact that hypothesis is postulated when all works in harmony. Here are our kids, where practically (IMO) we don't know whats wrong and we are taking different approaches. Before someone comes up and says, something helped my child and they can show me 100 more kids with similar cases, may be true but unless we 'prove' it, I find it difficult to digest. (and yes, there are few studies where autism is linked to certain issues with good level of confidence) A parent may not need a proof but I need it. I am not going to make my child a guinea pig (and honestly that is whole case that is putting me on the fence with BioMed and I am cherry picking the information you folks offer. THANKS for all info all the time).. That brings to a second question, if excess of PC is administered, does anyone know of toxicity or any ill effects? How does the body handle it? With BodyBio, the formulation is 4:1 ratio of Omega 6 to Omega 3. My reading tells me that we should have less of Omega 6 which is pro-inflmmatory. There is much research that is pointing autism towards inflammation. If that holds true, should we administer a preparation that is high in Omega 6 (plus the kids gets omega 6 from other sources) for the sake of PC? It does state on the website that other formulation are 12:1 proportion. There is no proof to that. I am going to write to the companies I will short list to verify this information. PhosChol also trumps to be the best form of PC but their method of extraction is probably different (I read it but its not on top of my head at the moment) @ Sylvia,Does your doc have any recommendation for the brand? If yes, does he have any reasoning behind it? How much does he recommend daily? If I am wrong anywhere, pls correct me. I don't intend to create any uproar. My only point is, my child (or any child for that matter) will and should not be a guinea pig. I am looking at Pubmed just as a pointer (I honestly don't trust all papers either) I belong to that clan and I know there are people that do bad science. Noel My understanding is that phosphatidylcholine (PC) is one of the primary phospholipids that make up the cell membrane. Cell membrane function is crucial and can be disrupted by toxicity (organophosphates, metals etc..). I'm attaching a flyer from Kane Ph.D. She writes a lot on fatty acid metabolism and cell membrane function in a variety of neurological disorders, including autism. My doc feels that providing an abundance of PC can help " wash " cell membranes, providing them with new substrate to repair damage and making sure that new cells that are formed (cells that turn over frequently like immune and blood cells) have enough substrate to form properly. Sylvia Wondering if anyone here using Phosphatidylcholine. If yes, - What is the purpose (told to you by your DAN! or what you understood)?- What brand have you tried or using? - Did you see any noticeable change? If yes, what is it? Pls report even if you didn't see any change and you discontinued (after x months of use.) Thanks in advance.Noel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Can this be added to IV Glutathione? I believe this is the thing that my daughter's DAN said he was going to add into her next Glutathione push. Anyone ever get this treatment? > My understanding is that phosphatidylcholine (PC) is one of the primary phospholipids that make up the cell membrane. Cell membrane function is crucial and can be disrupted by toxicity (organophosphates, metals etc..). I'm attaching a flyer from Kane Ph.D. She writes a lot on fatty acid metabolism and cell membrane function in a variety of neurological disorders, including autism. My doc feels that providing an abundance of PC can help " wash " cell membranes, providing them with new substrate to repair damage and making sure that new cells that are formed (cells that turn over frequently like immune and blood cells) have enough substrate to form properly. > Sylvia > > <BodyBio Bulletin - Phosphatidylcholine Life's Designer Molecule.pdf> > > > > >> >> Wondering if anyone here using Phosphatidylcholine. If yes, >> - What is the purpose (told to you by your DAN! or what you understood)? >> - What brand have you tried or using? >> - Did you see any noticeable change? If yes, what is it? Pls report even if you didn't see any change and you discontinued (after x months of use.) >> >> Thanks in advance. >> Noel >> > Quote Link to comment Share on other sites More sharing options...
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