Cait----numbness, Transverse Myelitis

[Guest guest]

Cait... did your numbness come on quickly? Mine started about 8 a.m. and I was totally numb by 11 a.m. It was the morning after Princess was killed in that car crash. I got up that morning and turned on the news and that's when I saw it. It's odd but attacks of Transverse Myelitis often seem to happen on big holidays or 'events'. At least that's what I heard on the Tranverse Myelitis group TMIC. Weird, huh?You really went through a lot! hugs SharonThis email is a natural hand made product. The slight variations in

spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, January 7, 2011 4:34:58 PMSubject: Re: I)onna----numbness, Transverse Myelitis

Wow Sharon, that's what my first attack was like except the right side. Another thing that I recall beside generally feeling terrible was excessive salivation. There I was with a 6 week old baby, a 2 and 4 year old, and a husband named ... drumroll .... Rob who was never home, said it was just my nerves, "everything will get better", etc ad nauseum. Breastfeeding was so difficult. I was afraid I'd drop her.

Finally when I began speaking gibberish, he agreed to take me to Emergency. I think he was afraid I'd had a stroke. Eventually I was seen by the internal medicine dr I have now but even then he didn't rx steroids, saying it was too late. Weird part is I think that's when my writing 3 for C, 5 for E and backwards began. Yikes, dyslexia is yet another potential side effect of ms .. hugs, Cait

started prednisone and other news (LDN)

I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

It came on quickly Sharon altho I recall feeling kind of fluish for a few days before. With a newborn and 2 under 4, I was on autopilot. I do remember that was the most frightening time of my life ... hugs, Cait

started prednisone and other news (LDN)

I started the Prednisone today. I hope by tomorrow I will be seeing a difference. The numbness spread from my legs/feet up to my ribs, lips and pubic area. Of course, I have had numbing in all those places before so I'm not freaked out or anything. Just being cautious and concerned. I talked to my doc today to let her know what is going on. I am also having some mild optic neuritis pain and some mild face pain. I have decided I will go back on LDN. I was in pretty bad same MS-wise before starting LDN and then after being on LDN for a while I came out of the MS-funk. I was never sure it was the LDN and I quit it because I was having oral surgery and pain pills. I just never restarted the LDN. I felt good for a long, long time but then last summer I had two exacerbations. I concluded it was because of the summer heat. Well there isn't any summer heat now! (13.5 below when this started:) So today I dug out my bottle of LDN and I am going to start it again. I hope it works miracles for me. Of course, there is always a chance my improvement years ago had nothing to do with LDN. I am crossing fingers/eyes and other pieces and parts!hugs to each of you

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.