Guest guest Posted July 22, 2010 Report Share Posted July 22, 2010 My dr. is starting me on this in a couple of weeks - I am so nervous and scared to death. Would like to hear from anyone who takes this. I have been diagnosed in May 09 and have been on betaseron and copaxone and my MS is still active so he sai this is my resort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Hi,I'd been on Tysabri from June of 2007 til March of2010. I had very good success from it. I don't thinkit is as scary as many think. If you have any questions,please feel free to post them.hugs, Kate in NY TysabriTo: MSersLife > My dr. is starting me on this in a couple of weeks - I am so > nervous and scared to death. Would like to hear from anyone who > takes this. I have been diagnosed in May 09 and have been on > betaseron and copaxone and my MS is still active so he sai this > is my resort.> > love and blessings,Kate Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Kate, why did you stop the Ty? I'm aware of my body getting worse ... my balance and gait and terrible back pain, etc. Ty was the only thing my dr would rx but the PML possibility scares the bejeezus out of me! ... hugs, Cait TysabriTo: MSersLife > My dr. is starting me on this in a couple of weeks - I am so > nervous and scared to death. Would like to hear from anyone who > takes this. I have been diagnosed in May 09 and have been on > betaseron and copaxone and my MS is still active so he sai this > is my resort.> > love and blessings,Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2010 Report Share Posted July 24, 2010 Hi Cait,They say the longer you use it, the higher the chances ofPML are. Also, loses efficacy after 2 years. The recommendationis to use it only for about 2 yrs. It helped me tremendously. I nolonger use a cane.hugs to you, Kate Tysabri> To: MSersLife > > > My dr. is starting me on this in a couple of weeks - I am so > > nervous and scared to death. Would like to hear from anyone > who > > takes this. I have been diagnosed in May 09 and have been on > > betaseron and copaxone and my MS is still active so he sai > this > > is my resort.> > > > > > love and blessings,> Kate> > > > > love and blessings,Kate Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
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