Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their " right " position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Get him tested for PANDAS. OCD and clinging/ separation anxiety are symptoms. Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Hi all, does anyone know if grapefruit seed extract fights strep/pandas bacteria or clostridia? We started it for yeast symptoms but I think it has helped both ocd and anxiety so I am wondering if this sudden onset flare that started in jan and looked alot like pandas could actually have been a yeast flare???...he didn't show positive on the strep tests but his yeast was high (and also high clostridia but not as high as yeast) on the oat test we did in jan. His symptoms improved with sporanox and flagyl and then most recently with candidase and grapefruit seed extract...the last one got him off of his obsession with playing with letters all day and he is back to interacting with his sister and other toys....any thoughts?-- Sent from my Palm Pre Get him tested for PANDAS. OCD and clinging/ separation anxiety are symptoms. Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Sorry carolyn!! I didn't mean to barge into your thread!! Your symptoms you are describing sound similar to what we have been seeing...i originally tthougt pandas and now I am wondering about yeast...but I would definitely look into pandas too if I were you! -- Sent from my Palm Pre Hi all, does anyone know if grapefruit seed extract fights strep/pandas bacteria or clostridia? We started it for yeast symptoms but I think it has helped both ocd and anxiety so I am wondering if this sudden onset flare that started in jan and looked alot like pandas could actually have been a yeast flare???...he didn't show positive on the strep tests but his yeast was high (and also high clostridia but not as high as yeast) on the oat test we did in jan. His symptoms improved with sporanox and flagyl and then most recently with candidase and grapefruit seed extract...the last one got him off of his obsession with playing with letters all day and he is back to interacting with his sister and other toys....any thoughts?-- Sent from my Palm Pre Get him tested for PANDAS. OCD and clinging/ separation anxiety are symptoms. Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Definitely sounds like PANDAS. Sent from my iPhone Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Those symptoms scream PANDAS.....go to www.pandasnetwork.org To: mb12valtrex Sent: Sunday, March 18, 2012 5:54 PM Subject: Increase in clinging and OCD Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Hi Noura, We r dealing with a similar picture. We had a similar episode in december and dan treated with vancomycin. Symptoms improved significantly. Then he had a upper respiratory infection 2 1/2 weeks ago and then his stimming actually turned into tics, repetitive movements, his fingers are always moving like he is playing piano. He is extremely anxious, has bad mood swings, happy one minute and then screaming and crying the next. He gets anxious if I ask him any question or say lets go eat dinner. He wants dinner and even asks for it but anxiety is so severe that when he gets food, he cannot overcome his anxiety to eat food. He is walking on his heels, bending his fingers and has vocal stims/tics??? We finally started azithromycin today and also getting workup for PANDAS. I am pretty sure he fits the picture of PANS and needs to be treated for that. I will see how his symptoms get. Last few days have been hell. I can actually see your son's symptoms in my son also as how small changes or anticipation of changes triggers anxiety attack. Did your son have a flu/respiratory infection in the last few weeks? In my son's case it could be a respiratory source but I am very suspicious about gut bugs as he has a new onset constipation and has a history of clostridia also. But I am pretty sure this time it is not clostridia as symptoms are different and he has more motor tics and more severe anxiety, almost debilitating. Let me know if you want to communicate via email also as whatever I learn from other parents on the forum and other websites, I can share with you also. is > > Hi, > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their " right " position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. > > For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. > He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! > > We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. > Any idea what is causing this new troubling behavior? > > He's taking: > Probiotics > Digestive enzymes > Acetyl L-Carnitine > Selenium > Vit C > Multi vitms and minrls > MTHF > L-Taurine > MgSulfate cream > Reduced L-Glutathione lotion > MB12 injections > TMG > Vit D > Cod Liver Oil > Biotin > Zinc > > Thank you! > Noura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 , I am not an expert on naturals but when I was trying to learn more about the possible treatments of pandas/pans, I found that some parents had good results with GSE also as it has antibacterial properties also. So maybe it did get rid of the bacteria that was causing the Pandas symptoms in your kid??? I definitely need to learn a lot about pandas/pans and different forms of treatments as I didn't find all the info on the pandas websites. is > > > > > > > > > > > > > > > > > & nbsp; > > > > > > > > Hi, > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their " right " position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. > > > > For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. > > He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! > > > > We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. > > Any idea what is causing this new troubling behavior? > > > > He's taking: > > Probiotics > > Digestive enzymes > > Acetyl L-Carnitine > > Selenium > > Vit C > > Multi vitms and minrls > > MTHF > > L-Taurine > > MgSulfate cream > > Reduced L-Glutathione lotion > > MB12 injections > > TMG > > Vit D > > Cod Liver Oil > > Biotin > > Zinc > > > > Thank you! > > Noura > > > > > > > > > > > > > > > > > = > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2012 Report Share Posted March 18, 2012 Hi Noura:Here is an article that I just read about PANDAS that you may find helpful. I just posted it on another thread:http://www.health.harvard.edu/blog/can-an-infection-suddenly-cause-ocd-201202274417 To: mb12valtrex Sent: Sunday, March 18, 2012 5:54 PM Subject: Increase in clinging and OCD Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Hi, Please specify what is the test for PANDAS called, a " PANDAS " test? I'm in Syria, maybe we don't even have this test. lol we'll have to ask around. Maybe I'll ask for your help to treat this on my own if the symptoms continue through the week. Thank you for all the replies. Noura > > > Hi, > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Just been on Pandasnetwork.org, is the test called Strep titers " ASO-titer and D-nase B titer " ? Noura > > > > > Hi, > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Yes, the strep test is called ASO and DNASE titers.....but 50% of the PANDAS kids do not have high titers.....you need to treat based on symptoms To: mb12valtrex Sent: Monday, March 19, 2012 5:00 AM Subject: Re: Increase in clinging and OCD Just been on Pandasnetwork.org, is the test called Strep titers "ASO-titer and D-nase B titer"? Noura > > > > > Hi, > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 My daughter had the high titers along with the symptoms. I can send you a copy of what the lab order looks like for PANDAS if you want to show it to your child's doctor. A few of my friends have experienced great resistance from their child's pedi when it comes to PANDAS and testing for it. I was lucky to have a doctor in my area who tests and treats for it so I went directly to him. Let me know if you want me to email you the lab. Yes, the strep test is called ASO and DNASE titers.....but 50% of the PANDAS kids do not have high titers.....you need to treat based on symptoms To: mb12valtrex Sent: Monday, March 19, 2012 5:00 AM Subject: Re: Increase in clinging and OCD Just been on Pandasnetwork.org, is the test called Strep titers "ASO-titer and D-nase B titer"? Noura > > > > > Hi, > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Hi, my daughter also sufers from severe OCD at times, has always had separation anxiety.....drs have told me it can't be PANDAS since it's not so sudden, although it has come and gone with varying intensity over the years. I have then just assumed it is another characteristic of my ASD child. we do biomed, and treat for anxiety quite successfully with theanine and gaba, but ocd, well, a whole different ballgame. we have no idea what to do with that one, and it drives us all mad when it appears. now i'm confused as to whether it coiuld be pandas after all..... > > Hi Noura: > Here is an article that I just read about PANDAS that you may find helpful.  I just posted it on another thread: > http://www.health.harvard.edu/blog/can-an-infection-suddenly-cause-ocd-201202274\ 417 > > > > ________________________________ > > To: mb12valtrex > Sent: Sunday, March 18, 2012 5:54 PM > Subject: Increase in clinging and OCD > > >  > Hi, > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their " right " position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. > > For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. > He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! > > We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. > Any idea what is causing this new troubling behavior? > > He's taking: > Probiotics > Digestive enzymes > Acetyl L-Carnitine > Selenium > Vit C > Multi vitms and minrls > MTHF > L-Taurine > MgSulfate cream > Reduced L-Glutathione lotion > MB12 injections > TMG > Vit D > Cod Liver Oil > Biotin > Zinc > > Thank you! > Noura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I would be interested in seeing the lab order for that. Thanks! > > > > > > > > > Hi, > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > Fate of Obama's law rests with GOP justices > > The president's health care overhaul could be quashed by four key Supreme Court members. > > Privacy Policy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Yes, GSE helped our son with his irrational fears.Sent from my iPhone Hi all, does anyone know if grapefruit seed extract fights strep/pandas bacteria or clostridia? We started it for yeast symptoms but I think it has helped both ocd and anxiety so I am wondering if this sudden onset flare that started in jan and looked alot like pandas could actually have been a yeast flare???...he didn't show positive on the strep tests but his yeast was high (and also high clostridia but not as high as yeast) on the oat test we did in jan. His symptoms improved with sporanox and flagyl and then most recently with candidase and grapefruit seed extract...the last one got him off of his obsession with playing with letters all day and he is back to interacting with his sister and other toys....any thoughts?-- Sent from my Palm Pre Get him tested for PANDAS. OCD and clinging/ separation anxiety are symptoms. Hi, Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in their present position ,even if it's not their "right" position. And gets very upset even tantrums if we didn't do what he wants. He cried for a total of half an hour today over such things. For example, he cries if I took a blanket to the other room, and after a few hours he also cries out loud if I brought the blanket back from that room! If I took the TV remote control to flip channels, then put it on the other side of the table he would take it back to original place. He's anxious observing changes around him, gives tantrums if we changed his dirty socks or a piece of his clothes to wash... Sometimes tries to put OUR arms in a certain position.. He's usually a happy and reasonably easy kid, but today he's generally anxious and constantly nagging to get stuff or do things in a certain way. He used to like certain clothes or toys and gets very attached to some of them in the past, but it's suddenly a wider and more intense problem now. It was a difficult day for sure! We started intensive biomedical since two months, and added TMG and MTHF ten days ago, all without any issues except for gains in speech and awareness, and a little increase in stubbornness. Any idea what is causing this new troubling behavior? He's taking: Probiotics Digestive enzymes Acetyl L-Carnitine Selenium Vit C Multi vitms and minrls MTHF L-Taurine MgSulfate cream Reduced L-Glutathione lotion MB12 injections TMG Vit D Cod Liver Oil Biotin Zinc Thank you! Noura = TODAY(Beta) • Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Please! Btw, about half of the symptoms in the articles apply to my son. Is it Vancomycin what you treated PANDAS with? How long did you need to give it to your daughter? Thank you, Noura > > > > > > > > > Hi, > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > Fate of Obama's law rests with GOP justices > > The president's health care overhaul could be quashed by four key Supreme Court members. > > Privacy Policy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Oral vancomycin is not systemic and is only good for gut bugs mainly clostridia. The usual antibiotics used are azithromycin and augmentin and some others. I think a lot of us need education on PANDAS/PANS prescription and natural treatments. I am hoping more parents who have experience with pandas, will share their experience in terms of the treatments used, how long did it take to see the first improvement, maintenance therapy and other alternate treatments. Thanks is > > > > > > > > > > > Hi, > > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > Fate of Obama's law rests with GOP justices > > > The president's health care overhaul could be quashed by four key Supreme Court members. > > > Privacy Policy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 I will email you the script directly.My daughter's doctor is treating her with bicillin IM injections every 2 weeks. Sometimes 3 weeks depending on scheduling. We started last Aug. and are still doing it. I will be getting repeat titers soon and then will determine whether to stick with the injections or not. I am currently researching the more natural treatments as well since I am aware of the negative impact of extended antiB treatment. But I do have to say it has majorly helped her and I have my daughter back. If you are on Facebook there is a group called "Parents of Kids with Pandas" that is a great resource.To learn more of the symptoms: Mar 19, 2012, at 11:55 AM, "Noura" wrote: Please! Btw, about half of the symptoms in the articles apply to my son. Is it Vancomycin what you treated PANDAS with? How long did you need to give it to your daughter? Thank you, Noura > > > > > > > > > Hi, > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > Fate of Obama's law rests with GOP justices > > The president's health care overhaul could be quashed by four key Supreme Court members. > > Privacy Policy > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Here are 2 blogs I follow. I believe both moms are currently using natural treatments for PANDAS.http://www.regardingcaroline.com/http://grayson-youarewhatyoueat.blogspot.com/On Mar 19, 2012, at 12:18 PM, "alexis_d3378" wrote: Oral vancomycin is not systemic and is only good for gut bugs mainly clostridia. The usual antibiotics used are azithromycin and augmentin and some others. I think a lot of us need education on PANDAS/PANS prescription and natural treatments. I am hoping more parents who have experience with pandas, will share their experience in terms of the treatments used, how long did it take to see the first improvement, maintenance therapy and other alternate treatments. Thanks is > > > > > > > > > > > Hi, > > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > Fate of Obama's law rests with GOP justices > > > The president's health care overhaul could be quashed by four key Supreme Court members. > > > Privacy Policy > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 is - There also are a few Facebook groups that have many experienced parents on there. To: mb12valtrex Sent: Monday, March 19, 2012 12:18:43 PMSubject: Re: Increase in clinging and OCD Oral vancomycin is not systemic and is only good for gut bugs mainly clostridia. The usual antibiotics used are azithromycin and augmentin and some others. I think a lot of us need education on PANDAS/PANS prescription and natural treatments. I am hoping more parents who have experience with pandas, will share their experience in terms of the treatments used, how long did it take to see the first improvement, maintenance therapy and other alternate treatments. Thanks is > > > > > > > > > > > Hi, > > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > Fate of Obama's law rests with GOP justices > > > The president's health care overhaul could be quashed by four key Supreme Court members. > > > Privacy Policy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Thanks Carolyn for sharing the blogs. This is really helpful. I have a few questions though. If the symptoms that the child gets are related to the antibodies and not the infection itself, then why do we use antibiotic during the episode? What else could be done in an acute episose before resorting to IVIG? If the child has already started using azithromycin, is it ok to draw the blood for ASO and DnaseB titers? Thanks is > > > > > > > > > > > > > > > Hi, > > > > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo! > > > > > Fate of Obama's law rests with GOP justices > > > > > The president's health care overhaul could be quashed by four key Supreme Court members. > > > > > Privacy Policy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Is it an option to try to give your daughter Azithromycin for a couple of weeks and see what happens?Just a thought..Noura Re: Increase in clinging and OCD Posted by: " mamadelfi " guadalupemillan@... mamadelfi Mon Mar 19, 2012 7:04 am (PDT) Hi,my daughter also sufers from severe OCD at times, has always had separation anxiety.....drs have told me it can't be PANDAS since it's not so sudden, although it has come and gone with varying intensity over the years.I have then just assumed it is another characteristic of my ASD child. we do biomed, and treat for anxiety quite successfully with theanine and gaba, but ocd, well, a whole different ballgame. we have no idea what to do with that one, and it drives us all mad when it appears. now i'm confused as to whether it coiuld be pandas after all..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2012 Report Share Posted April 6, 2012 these are awesome blogs! in the you are what you eat blog she talks about using camel milk in replacment for IVIG To: mb12valtrex Sent: Monday, March 19, 2012 1:44 PMSubject: Re: Increase in clinging and OCD Thanks Carolyn for sharing the blogs. This is really helpful. I have a few questions though. If the symptoms that the child gets are related to the antibodies and not the infection itself, then why do we use antibiotic during the episode? What else could be done in an acute episose before resorting to IVIG? If the child has already started using azithromycin, is it ok to draw the blood for ASO and DnaseB titers?Thanksis> > > > > > > > > > > > > > > Hi,> > > > > > > > Three days ago, my 7 yo son is showing a noticeable increase in clinging to stuff, clothes, routines, wanting to mentain things in> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > TODAY(Beta) • Powered by Yahoo!> > > > > Fate of Obama's law rests with GOP justices> > > > > The president's health care overhaul could be quashed by four key Supreme Court members.> > > > > Privacy Policy> > > >> > >> > > >> Quote Link to comment Share on other sites More sharing options...
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