Is it time to admit defeat?

[Guest guest]

I was wondering if your doctor prescribed all this for you, my son has a severe apraxia and based on test he does not have parasites but i know that test is not accurate . But i just want to know how to convience our Dan to do treatment for parasites,ThanksLili

From:

cotter.mary1@... ;

To:

<mb12valtrex >;

Subject:

Re: Re: Is it time to admit defeat?

Sent:

Wed, Mar 21, 2012 3:30:45 PM

Wow that's a lot of stuff,could you let me know what u started with and moved on to ,if our sons apraxia improved it would make this battle so much easier,you have given me hope againThanksLet your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Wed, 21 Mar 2012 15:24:04 -0000To: <mb12valtrex >ReplyTo: mb12valtrex

Subject: Re: Is it time to admit defeat?

Alinia, then ivermectin and pyrantel pomoate, then albenza, then mebendazole. We have also used mepron, flagyl, tindamax all at different times. We also have used artemisiae and also mimosa pudica. We have been working on parasites constantly for the last year.

> >

> > As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She

also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore.

> >

> > To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together.

> >

> > I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.

> >

> > Leigh

> >

>

[Guest guest]

Hi Leigh,

There is definitely hope. The fact that your daughter has so much understanding

and can communicate her thoughts to you is a big achievement itself. My son is 8

1/2 and only talks when spoken too and that only about very simple stuff.

Sometimes when kids reach puberty, they rapidly recover also. And I agree with

other moms that genetic mutation could be a manifestation of what is going on

with your daughter and not the cause. You have been a great warrior mom and

don't give up now. All you need is a little break and some support. Definitely

visit the forum every day and you will not feel so lonely. We are all here to

support you even if it is just via messages.

is

[Guest guest]

I would think all DANs would know that parasites are a leading problem

in autism; and there are reports that those with autism have a protozoa

that those without autism do not. So. . . .

Love and prayers,

Heidi N

I was wondering if your doctor prescribed all this for you, my son has a

severe apraxia and based on test he does not have parasites but i know

that test is not accurate . But i just want to know how to convience our

Dan to do treatment for parasites,

Thanks

Lili

[Guest guest]

This dialogue is amazing, what a wonderful group of supportive and educated people. I learn so much from you every day. This thread really struck a chord with me was it undermines my fears and confidence of recovering my 5yo from autism. Going down the biomed approach, I feel like I see the light at the end of a tunnel but then some days I fear that light is a train. xoxo

[Guest guest]

All of the meds are rx. LLMDs are usually more open to antiparsitic meds than

DANs. Our DAN rxed some. But he was open to meds I had success with.

>

> I would think all DANs would know that parasites are a leading problem

> in autism; and there are reports that those with autism have a protozoa

> that those without autism do not. So. . . .

>

> Love and prayers,

>

> Heidi N

>

>

> I was wondering if your doctor prescribed all this for you, my son has a

> severe apraxia and based on test he does not have parasites but i know

> that test is not accurate . But i just want to know how to convience our

> Dan to do treatment for parasites,

>

> Thanks

> Lili

>

[Guest guest]

Leigh,

This might provide a different perspective than the doctors you are dealing

with:

http://health.groups.yahoo.com/group/frequent-dose-chelation/message/83417

Ellen

>

> As a mother of a 7 year old daughter who has been doing biomedical et al since

3 and worrying for my child for 7 years I feel like I have come to the end of

the road. I dont want to get out of bed in the morning. Pathetic yes but after

all this hope and prayer and hard work we have recently found out my daughter

has a gene duplication 22 blocks speech and motor. We have have done everything

under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc

and we just cant recover her. She is now stuck in this limbo of not in the

completely non- functional world and and not the typical world and the worst

part is she knows it! This is the part that kills me. I cant protect from the

world. I can't make the kids be friends with her because her speech is poor and

her ability to articulate her thoughts is so blocked. She asks me everyday when

is she going to talk like the kids, when will she have friends and I dont want

to lie. She also is excited to grow up and have a family and children of her own

and my heart breaks. She is screwed! And there is not a single thing I can do

anymore.

>

> To make matters worse they have just found on her MRI i malformation which

will give her a 90% chance of getting seizures. The could be huge and they might

not be treatable with meds...we wont know till they happen. I believe in prayer

but am now not naive enough to know the possibility of fully recovering my child

is pretty slim. How do I live? When I thought i could heal her I had hope and

now that is stolen from us I need to come to accept this reality but for some

reason I cannot. I am weak and watching her suffer everyday seems too much for

me. I know intellectually I should be there for her but I don't seem to be able

to pull it together.

>

> I know there are mom's out there with children in the worst possible

conditions and am wondering how you pull it together for child and other people.

I cant even socialize anymore as I am no longer able to fake for the rest of the

people. We do not have other children as we had put our focus on recovering her

thinking we could.

>

> Leigh

>

[Guest guest]

I feel the pain in your email and want you to know that at the very least I am praying for you. good news she is still SHE! you still love her, she hasn't changed and recovery or not she is still amazing! she still has hopes and dreams! you job focus now may shift to helping her still acheieve those. helping her work on what you CAN change. you can still offer her as much health as you can, you can help her avoid triggers for seizers, you can research what she has and find resources on it, and you can help get her to drs that are more refinded in her areas to help her be the healthiest HER! different road then you hoped yes, the end of the road no! don't EVER give up! its what I love about amy yasko. she is a dr who works around gene issue and has found you can turn them off and on and assist them in functioning like healthy genes even with right nutrition. you have a step up in that. they may be the new direction to look in and see if there is something on that road that can help you

From: schnuppit@...

Sent: Tuesday, March 20, 2012 4:25 PM

To: mb12valtrex

Subject: Is it time to admit defeat?

As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore. To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together. I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.Leigh

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

[Guest guest]

Our son 8 non verbal and like that feel worn out we are broke and not seen much progress with 6 years of biomed and everything tried.just joined facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 months,def worth a shot,maybe look into it. Its so hard to keep hope alive but I know he is in there so have to keep looking to find the wayLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Sun, 8 Apr 2012 18:13:17 -0400To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Is it time to admit defeat? I feel the pain in your email and want you to know that at the very least I am praying for you. good news she is still SHE! you still love her, she hasn't changed and recovery or not she is still amazing! she still has hopes and dreams! you job focus now may shift to helping her still acheieve those. helping her work on what you CAN change. you can still offer her as much health as you can, you can help her avoid triggers for seizers, you can research what she has and find resources on it, and you can help get her to drs that are more refinded in her areas to help her be the healthiest HER! different road then you hoped yes, the end of the road no! don't EVER give up! its what I love about amy yasko. she is a dr who works around gene issue and has found you can turn them off and on and assist them in functioning like healthy genes even with right nutrition. you have a step up in that. they may be the new direction to look in and see if there is something on that road that can help you From: schnuppit@... Sent: Tuesday, March 20, 2012 4:25 PMTo: mb12valtrex Subject: Is it time to admit defeat? As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore. To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together. I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.LeighNo virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

[Guest guest]

?? Mms is it safe to give while on homeopathic remedies??Sent from my iPod

Our son 8 non verbal and like that feel worn out we are broke and not seen much progress with 6 years of biomed and everything tried.just joined facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 months,def worth a shot,maybe look into it. Its so hard to keep hope alive but I know he is in there so have to keep looking to find the wayLet your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Sun, 8 Apr 2012 18:13:17 -0400To: <mb12valtrex >ReplyTo: mb12valtrex

Subject: Re: Is it time to admit defeat?

I feel the pain in your email and want you to know that at the very least I am praying for you. good news she is still SHE! you still love her, she hasn't changed and recovery or not she is still amazing! she still has hopes and dreams! you job focus now may shift to helping her still acheieve those. helping her work on what you CAN change. you can still offer her as much health as you can, you can help her avoid triggers for seizers, you can research what she has and find resources on it, and you can help get her to drs that are more refinded in her areas to help her be the healthiest HER! different road then you hoped yes, the end of the road no! don't EVER give up! its what I love about amy yasko. she is a dr who works around gene issue and has found you can turn them off and on and assist them in functioning like healthy genes even with right nutrition. you have a step up in that. they may be the new direction to look in and see if there is something on that road that can help you

From: schnuppit@...

Sent: Tuesday, March 20, 2012 4:25 PM

To: mb12valtrex

Subject: Is it time to admit defeat?

As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore. To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together. I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.Leigh

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

[Guest guest]

I pursume so,as long as you give them away from each other

 

?? Mms is it safe to give while on homeopathic remedies??Sent from my iPod

 

Our son 8 non verbal and like that feel worn out we are broke and not seen much progress with 6 years of biomed and everything tried.just joined facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 months,def worth a shot,maybe look into it. Its so hard to keep hope alive but I know he is in there so have to keep looking to find the way

Let your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Sun, 8 Apr 2012 18:13:17 -0400

To: <mb12valtrex >

ReplyTo: mb12valtrex

Subject: Re: Is it time to admit defeat?

 

I feel the pain in your email and want you to know that at the very least I am praying for you. good news she is still SHE!  you still love her, she hasn't changed and recovery or not she is still amazing! she still has hopes and dreams! you job focus now may shift to helping her still acheieve those.  helping her work on what you CAN change. you can still offer her as much health as you can, you can help her avoid triggers for seizers, you can research what she has and find resources on it, and you can help get her to drs that are more refinded in her areas to help her be the healthiest HER!  different road then you hoped yes, the end of the road no!  don't EVER give up!  its what I love about amy yasko.  she is a dr who works around gene issue and has found you can turn them off and on and assist them in functioning like healthy genes even with right nutrition. you have a step up in that.  they may be the new direction to look in and see if there is something on that road that can help you

 

From: schnuppit@...

Sent: Tuesday, March 20, 2012 4:25 PM

To: mb12valtrex

Subject: Is it time to admit defeat?

 

As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore.

To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together.

I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.

Leigh

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

[Guest guest]

Thanks Sent from my iPod

I pursume so,as long as you give them away from each other

?? Mms is it safe to give while on homeopathic remedies??Sent from my iPod

Our son 8 non verbal and like that feel worn out we are broke and not seen much progress with 6 years of biomed and everything tried.just joined facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 months,def worth a shot,maybe look into it. Its so hard to keep hope alive but I know he is in there so have to keep looking to find the way

Let your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Sun, 8 Apr 2012 18:13:17 -0400

To: <mb12valtrex >

ReplyTo: mb12valtrex

Subject: Re: Is it time to admit defeat?

I feel the pain in your email and want you to know that at the very least I am praying for you. good news she is still SHE! you still love her, she hasn't changed and recovery or not she is still amazing! she still has hopes and dreams! you job focus now may shift to helping her still acheieve those. helping her work on what you CAN change. you can still offer her as much health as you can, you can help her avoid triggers for seizers, you can research what she has and find resources on it, and you can help get her to drs that are more refinded in her areas to help her be the healthiest HER! different road then you hoped yes, the end of the road no! don't EVER give up! its what I love about amy yasko. she is a dr who works around gene issue and has found you can turn them off and on and assist them in functioning like healthy genes even with right nutrition. you have a step up in that. they may be the new direction to look in and see if there is something on that road that can help you

From: schnuppit@...

Sent: Tuesday, March 20, 2012 4:25 PM

To: mb12valtrex

Subject: Is it time to admit defeat?

As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore.

To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together.

I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.

Leigh

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

[Guest guest]

I have felt just like you. My daughter is 19 and has closed up over the years. We could never afford much but we tried all kinds of therapy but never really had good results.Never verbal but she is starting to have some independent language.We are having some progress with low dose chelation, Andy cutler way. We have done maybe 20 rounds of chelation. From the beginning there was more awareness in her face. It is also very cheap. We have bought one bottle of DMSA and ALA which has lasted 1 year. I also started thinking I wasn't giving her

enough but giving her more actually was worse. You need to go very slow and low dose.Try to be encouraged by others. It is a different life but it actually suits me. I need to be happy with who I am and that goes for my family as well. How else can I be happy. Virginia 341-22nd Street West Owen Sound ON N4K 4E9 To: "mb12valtrex " <mb12valtrex > Sent:

Friday, April 13, 2012 11:32:29 AM Subject: Re: Is it time to admit defeat?

?? Mms is it safe to give while on homeopathic remedies??Sent from my iPod

Our son 8 non verbal and like that feel worn out we are broke and not seen much progress with 6 years of biomed and everything tried.just joined facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 months,def worth a shot,maybe look into it. Its so hard to keep hope alive but I know he is in there so have to keep looking to find the wayLet your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Sun, 8 Apr 2012 18:13:17 -0400To: <mb12valtrex >ReplyTo: mb12valtrex

Subject: Re: Is it time to admit defeat?

I feel the pain in your email and want you to know that at the very least I am praying for you. good news she is still SHE! you still love her, she hasn't changed and recovery or not she is still amazing! she still has hopes and dreams! you job focus now may shift to helping her still acheieve those. helping her work on what you CAN change. you can still offer her as much health as you can, you can help her avoid triggers for seizers, you can research what she has and find resources on it, and you can help get her to drs that are more refinded in her areas to help her be the healthiest HER! different road then you hoped yes, the end of the road no! don't EVER give up! its what I love about amy yasko. she is a dr who works around gene issue and has found you can turn them off and on and assist them in functioning like healthy genes even with right nutrition. you have a step up in that. they may be the new direction to look in and see if there is something on that road that can help you

From: schnuppit@...

Sent: Tuesday, March 20, 2012 4:25 PM

To: mb12valtrex

Subject: Is it time to admit defeat?

As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore. To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together. I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.Leigh

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

[Guest guest]

Hi, We are in the same boat, my daughter is also goingto be seven this coming May. We also did a lot of biomed.She is still spinning a lot of things....could say 2 wordse.g. pink computer, blue blanket. Many times, I'm worriedabout her too just like you are...thinking about her future.On top of it, my husband was diagnosed with colorectal CA,Stage 4 that metastasize to the lung (had left lung lobectomy),now it metastasize to the right scapula and last Dec. 14, 2011had a stroke and stayed in a hospital from Dec. 14 to Jan.5and was transferred to another hospital for stay-in rehab for20 more days (up to Jan. 26, 2012). Then home rehab. and

now outpatient rehab. I know what you feel, you are really trying hard torecover your kid and sometimes the end of the road isa blessing in disguise. For me, I needed to be frustatedover and over again just to know that I cannot heal mychild and my husband but someone could....JESUS. I needed to learn this the hard way. Many times, I carry everythingin my shoulder and at the end I feel so low and a failure.Many times, I'm too excited that I always thought "thisis it", this is the one that will help but it didn't. I'm still

learning thid " In evrything acknowledge Him and He will

direct your path. We love you and we know how you

feel. Joining this group is so wonderful...we could be true

to one another and could cry for each other. God bless

us all.

Love,

Mhel

From: schnuppit@...

Sent: Tuesday, March 20, 2012 4:25 PM

To: mb12valtrex

Subject: Is it time to admit defeat?

As a mother of a 7 year old daughter who has been doing biomedical et al since 3 and worrying for my child for 7 years I feel like I have come to the end of the road. I dont want to get out of bed in the morning. Pathetic yes but after all this hope and prayer and hard work we have recently found out my daughter has a gene duplication 22 blocks speech and motor. We have have done everything under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck in this limbo of not in the completely non- functional world and and not the typical world and the worst part is she knows it! This is the part that kills me. I cant protect from the world. I can't make the kids be friends with her because her speech is poor and her ability to articulate her thoughts is so blocked. She asks me everyday when is she going to talk like the kids, when will she have friends and I dont want to lie. She also is excited to grow up and have a family and children of her own and my heart breaks. She is screwed! And there is not a single thing I can do anymore. To make matters worse they have just found on her MRI i malformation which will give her a 90% chance of getting seizures. The could be huge and they might not be treatable with meds...we wont know till they happen. I believe in prayer but am now not naive enough to know the possibility of fully recovering my child is pretty slim. How do I live? When I thought i could heal her I had hope and now that is stolen from us I need to come to accept this reality but for some reason I cannot. I am weak and watching her suffer everyday seems too much for me. I know intellectually I should be there for her but I don't seem to be able to pull it together. I know there are mom's out there with children in the worst possible conditions and am wondering how you pull it together for child and other people. I cant even socialize anymore as I am no longer able to fake for the rest of the people. We do not have other children as we had put our focus on recovering her thinking we could.Leigh

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

[Guest guest]

Mhel,

I just wanted to thank you and all the others who have replied to my post. They

have been an inspiration to me in more ways imaginable and made me realize I am

not alone in this journey. I even printed out a few to carry with me in my purse

so I can remind myself not to give up as well as stand in gratitude for what I

have.

As I read your post and hear what you are dealing with it really tugged at my

heart. So I send blessings to you and your family in your very difficult time

and journey of healing for your daughter and husband.

Leigh

>

>

> Hi,

> We are in the same boat, my daughter is also going

> to be seven this coming May. We also did a lot of biomed.

> She is still spinning a lot of things....could say 2 words

> e.g. pink computer, blue blanket. Many times, I'm worried

> about her too just like you are...thinking about her future.

> On top of it, my husband was diagnosed with colorectal CA,

> Stage 4 that metastasize to the lung (had left lung lobectomy),

> now it metastasize to the right scapula and last Dec. 14, 2011

> had a stroke and stayed in a hospital from Dec. 14 to Jan.5

> and was transferred to another hospital for stay-in rehab for

> 20 more days (up to Jan. 26, 2012). Then home rehab. and

> now outpatient rehab.

> I know what you feel, you are really trying hard to

> recover your kid and sometimes the end of the road is

> a blessing in disguise. For me, I needed to be frustated

> over and over again just to know that I cannot heal my

> child and my husband but someone could....JESUS. I needed

> to learn this the hard way. Many times, I carry everything

> in my shoulder and at the end I feel so low and a failure.

> Many times, I'm too excited that I always thought " this

> is it " , this is the one that will help but it didn't. I'm still

> learning thid " In evrything acknowledge Him and He will

> direct your path. We love you and we know how you

> feel. Joining this group is so wonderful...we could be true

> to one another and could cry for each other. God bless

> us all.

> Love,

> Mhel

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> From: schnuppit@...

> Sent: Tuesday, March 20, 2012 4:25 PM

> To: mb12valtrex

> Subject: Is it time to admit defeat?

>

>

>

> As a mother of a 7 year old daughter who has been doing biomedical et al since

3 and worrying for my child for 7 years I feel like I have come to the end of

the road. I dont want to get out of bed in the morning. Pathetic yes but after

all this hope and prayer and hard work we have recently found out my daughter

has a gene duplication 22 blocks speech and motor. We have have done everything

under the sun from naturals...diets all protocols NIDS, ac chelation, etc etc

and we just cant recover her. She is now stuck in this limbo of not in the

completely non- functional world and and not the typical world and the worst

part is she knows it! This is the part that kills me. I cant protect from the

world. I can't make the kids be friends with her because her speech is poor and

her ability to articulate her thoughts is so blocked. She asks me everyday when

is she going to talk like the kids, when will she have friends and I dont want

to lie. She also is excited to grow up and have a family and children of her own

and my heart breaks. She is screwed! And there is not a single thing I can do

anymore.

>

> To make matters worse they have just found on her MRI i malformation which

will give her a 90% chance of getting seizures. The could be huge and they might

not be treatable with meds...we wont know till they happen. I believe in prayer

but am now not naive enough to know the possibility of fully recovering my child

is pretty slim. How do I live? When I thought i could heal her I had hope and

now that is stolen from us I need to come to accept this reality but for some

reason I cannot. I am weak and watching her suffer everyday seems too much for

me. I know intellectually I should be there for her but I don't seem to be able

to pull it together.

>

> I know there are mom's out there with children in the worst possible

conditions and am wondering how you pull it together for child and other people.

I cant even socialize anymore as I am no longer able to fake for the rest of the

people. We do not have other children as we had put our focus on recovering her

thinking we could.

>

> Leigh

>

>

> No virus found in this message.

> Checked by AVG - www.avg.com

> Version: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

>

[Guest guest]

Do they interfere with each other? The reason I'm asking is because homeopathy

is based on law of similars. It aggravates the root cause and teherby the body

gets the message of starting the repair meachnism to address the root cause. But

MMS seems to act opposite to that - it acts against the root cause.

> >

> >

> >

> > Our son 8 non verbal and like that feel worn out we are broke and not seen

> > much progress with 6 years of biomed and everything tried.just joined

> > facebook MMS group run by kerri Riviera she has had 39 recoveries in 20

> > months,def worth a shot,maybe look into it. Its so hard to keep hope alive

> > but I know he is in there so have to keep looking to find the way

> > Let your email find you with BlackBerry® from Vodafone

> > ------------------------------

> > *

> > *Sender: *mb12valtrex

> > *Date: *Sun, 8 Apr 2012 18:13:17 -0400

> > *To: *<mb12valtrex >

> > *ReplyTo: *mb12valtrex

> > *Subject: *Re: Is it time to admit defeat?

> >

> >

> >

> > I feel the pain in your email and want you to know that at the very least

> > I am praying for you. good news she is still SHE! you still love her, she

> > hasn't changed and recovery or not she is still amazing! she still has

> > hopes and dreams! you job focus now may shift to helping her still acheieve

> > those. helping her work on what you CAN change. you can still offer her as

> > much health as you can, you can help her avoid triggers for seizers, you

> > can research what she has and find resources on it, and you can help get

> > her to drs that are more refinded in her areas to help her be the

> > healthiest HER! different road then you hoped yes, the end of the road

> > no! don't EVER give up! its what I love about amy yasko. she is a dr who

> > works around gene issue and has found you can turn them off and on and

> > assist them in functioning like healthy genes even with right nutrition.

> > you have a step up in that. they may be the new direction to look in and

> > see if there is something on that road that can help you

> >

> >

> > *From:* schnuppit@...

> > *Sent:* Tuesday, March 20, 2012 4:25 PM

> > *To:* mb12valtrex

> > *Subject:* Is it time to admit defeat?

> >

> >

> >

> > As a mother of a 7 year old daughter who has been doing biomedical et al

> > since 3 and worrying for my child for 7 years I feel like I have come to

> > the end of the road. I dont want to get out of bed in the morning. Pathetic

> > yes but after all this hope and prayer and hard work we have recently found

> > out my daughter has a gene duplication 22 blocks speech and motor. We have

> > have done everything under the sun from naturals...diets all protocols

> > NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck

> > in this limbo of not in the completely non- functional world and and not

> > the typical world and the worst part is she knows it! This is the part that

> > kills me. I cant protect from the world. I can't make the kids be friends

> > with her because her speech is poor and her ability to articulate her

> > thoughts is so blocked. She asks me everyday when is she going to talk like

> > the kids, when will she have friends and I dont want to lie. She also is

> > excited to grow up and have a family and children of her own and my heart

> > breaks. She is screwed! And there is not a single thing I can do anymore.

> >

> > To make matters worse they have just found on her MRI i malformation which

> > will give her a 90% chance of getting seizures. The could be huge and they

> > might not be treatable with meds...we wont know till they happen. I believe

> > in prayer but am now not naive enough to know the possibility of fully

> > recovering my child is pretty slim. How do I live? When I thought i could

> > heal her I had hope and now that is stolen from us I need to come to accept

> > this reality but for some reason I cannot. I am weak and watching her

> > suffer everyday seems too much for me. I know intellectually I should be

> > there for her but I don't seem to be able to pull it together.

> >

> > I know there are mom's out there with children in the worst possible

> > conditions and am wondering how you pull it together for child and other

> > people. I cant even socialize anymore as I am no longer able to fake for

> > the rest of the people. We do not have other children as we had put our

> > focus on recovering her thinking we could.

> >

> > Leigh

> >

> > No virus found in this message.

> > Checked by AVG - www.avg.com

> > Version: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12

> >

> >

> >

>

>

>

> --

> Cotter

> 4 Pollerton Manor

> Carlow

> 059 9134964

> 087 2637921

>

[Guest guest]

My son is on remedies and MMS ,if you are concerned talk to your homeopath ,my son is on constitutional remedies ,my homeopath does not see conflictLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 22 May 2012 18:41:41 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Is it time to admit defeat? Do they interfere with each other? The reason I'm asking is because homeopathy is based on law of similars. It aggravates the root cause and teherby the body gets the message of starting the repair meachnism to address the root cause. But MMS seems to act opposite to that - it acts against the root cause.> >> >> >> > Our son 8 non verbal and like that feel worn out we are broke and not seen> > much progress with 6 years of biomed and everything tried.just joined> > facebook MMS group run by kerri Riviera she has had 39 recoveries in 20> > months,def worth a shot,maybe look into it. Its so hard to keep hope alive> > but I know he is in there so have to keep looking to find the way> > Let your email find you with BlackBerry® from Vodafone> > ------------------------------> > *> > *Sender: *mb12valtrex > > *Date: *Sun, 8 Apr 2012 18:13:17 -0400> > *To: *<mb12valtrex >> > *ReplyTo: *mb12valtrex > > *Subject: *Re: Is it time to admit defeat?> >> >> >> > I feel the pain in your email and want you to know that at the very least> > I am praying for you. good news she is still SHE! you still love her, she> > hasn't changed and recovery or not she is still amazing! she still has> > hopes and dreams! you job focus now may shift to helping her still acheieve> > those. helping her work on what you CAN change. you can still offer her as> > much health as you can, you can help her avoid triggers for seizers, you> > can research what she has and find resources on it, and you can help get> > her to drs that are more refinded in her areas to help her be the> > healthiest HER! different road then you hoped yes, the end of the road> > no! don't EVER give up! its what I love about amy yasko. she is a dr who> > works around gene issue and has found you can turn them off and on and> > assist them in functioning like healthy genes even with right nutrition.> > you have a step up in that. they may be the new direction to look in and> > see if there is something on that road that can help you> >> >> > *From:* schnuppit@...> > *Sent:* Tuesday, March 20, 2012 4:25 PM> > *To:* mb12valtrex > > *Subject:* Is it time to admit defeat?> >> >> >> > As a mother of a 7 year old daughter who has been doing biomedical et al> > since 3 and worrying for my child for 7 years I feel like I have come to> > the end of the road. I dont want to get out of bed in the morning. Pathetic> > yes but after all this hope and prayer and hard work we have recently found> > out my daughter has a gene duplication 22 blocks speech and motor. We have> > have done everything under the sun from naturals...diets all protocols> > NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck> > in this limbo of not in the completely non- functional world and and not> > the typical world and the worst part is she knows it! This is the part that> > kills me. I cant protect from the world. I can't make the kids be friends> > with her because her speech is poor and her ability to articulate her> > thoughts is so blocked. She asks me everyday when is she going to talk like> > the kids, when will she have friends and I dont want to lie. She also is> > excited to grow up and have a family and children of her own and my heart> > breaks. She is screwed! And there is not a single thing I can do anymore.> >> > To make matters worse they have just found on her MRI i malformation which> > will give her a 90% chance of getting seizures. The could be huge and they> > might not be treatable with meds...we wont know till they happen. I believe> > in prayer but am now not naive enough to know the possibility of fully> > recovering my child is pretty slim. How do I live? When I thought i could> > heal her I had hope and now that is stolen from us I need to come to accept> > this reality but for some reason I cannot. I am weak and watching her> > suffer everyday seems too much for me. I know intellectually I should be> > there for her but I don't seem to be able to pull it together.> >> > I know there are mom's out there with children in the worst possible> > conditions and am wondering how you pull it together for child and other> > people. I cant even socialize anymore as I am no longer able to fake for> > the rest of the people. We do not have other children as we had put our> > focus on recovering her thinking we could.> >> > Leigh> >> > No virus found in this message.> > Checked by AVG - www.avg.com> > Version: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12> >> > > >> > > > -- > Cotter> 4 Pollerton Manor> Carlow> 059 9134964> 087 2637921>