Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 Your words/advice/encouragement/prayer has truly touched me in a profound way. I read them smiling and crying, words I so needed to hear, that no one has been able to give to me. Words to get me out of my bed and on my feet and out of a deep clinical depression. Today I filled in some paperwork for some blood tests I had planned to do, took my daughter to the lab. Not a big deal but a step forward again. I had forgotten to stand in gratitude....acknowledge all we had done and how far my daughter had come. The genetic results and gene duplication results had knocked me off my feet completely. I had always been able to get up before and rally but this time it was different. When I had read the little research I googled it all said mental retardation. Even my atheist husband had prayed after these results! The neurologist who is fairly progressive had seemed non-chalant when he delivered the gene results and said there are ways to work around it, but when he delivered the news of the brain malformation he seemed very sorry to be delivering this news. To be frank I still can't remember which gene it was or what the malformation is, probably denial on my part to accept this. However I know if there is a way to improve my daughters health and and give her a fighting chance to speak properly and learn I have to knuckle down and tackle this head on. Please if anyone knows of a group that shares information for genetic healing/protocols please let me know on or offline which ever you prefer. I have done many protocols just from reading this website and using the information you all so lovingly share, my daughter has spoken for the first time and cartwheeled due to all your knowledge so my depth of gratitude is wide and deep. Unfortunately I am not very good at the scientific side as being more of a creative and I struggle with the little scientific details of what to dose for what and when. So I will post what she has and some information and perhaps some of you who are strong in this area can throw around some ideas. My strength is a good intuition and am able to think on my feet and sift through ideas pretty well. Thank you to all those who replied and to to all those who share your information, your sorrow, your joys, your journey I always read them and hold you in my heart even if I dont reply. I did want to give a special thanks to Channa, who I always think, this woman, not matter how hard her journey, always stand in love, in honor and integrity and always knows just what to write no matter how dark the posting may be.....I wish you lived close by so we could ride down a quiet road with the windows rolled down yelling together!!!! I hope to share a big fat cocktail with you in the clouds one day. Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 You brought tears to my eyes so glad u are back up again.. And I wish I too lived near Channa and all three of us could be in that carSent from my iPod Your words/advice/encouragement/prayer has truly touched me in a profound way. I read them smiling and crying, words I so needed to hear, that no one has been able to give to me. Words to get me out of my bed and on my feet and out of a deep clinical depression. Today I filled in some paperwork for some blood tests I had planned to do, took my daughter to the lab. Not a big deal but a step forward again. I had forgotten to stand in gratitude....acknowledge all we had done and how far my daughter had come. The genetic results and gene duplication results had knocked me off my feet completely. I had always been able to get up before and rally but this time it was different. When I had read the little research I googled it all said mental retardation. Even my atheist husband had prayed after these results! The neurologist who is fairly progressive had seemed non-chalant when he delivered the gene results and said there are ways to work around it, but when he delivered the news of the brain malformation he seemed very sorry to be delivering this news. To be frank I still can't remember which gene it was or what the malformation is, probably denial on my part to accept this. However I know if there is a way to improve my daughters health and and give her a fighting chance to speak properly and learn I have to knuckle down and tackle this head on. Please if anyone knows of a group that shares information for genetic healing/protocols please let me know on or offline which ever you prefer. I have done many protocols just from reading this website and using the information you all so lovingly share, my daughter has spoken for the first time and cartwheeled due to all your knowledge so my depth of gratitude is wide and deep. Unfortunately I am not very good at the scientific side as being more of a creative and I struggle with the little scientific details of what to dose for what and when. So I will post what she has and some information and perhaps some of you who are strong in this area can throw around some ideas. My strength is a good intuition and am able to think on my feet and sift through ideas pretty well. Thank you to all those who replied and to to all those who share your information, your sorrow, your joys, your journey I always read them and hold you in my heart even if I dont reply. I did want to give a special thanks to Channa, who I always think, this woman, not matter how hard her journey, always stand in love, in honor and integrity and always knows just what to write no matter how dark the posting may be.....I wish you lived close by so we could ride down a quiet road with the windows rolled down yelling together!!!! I hope to share a big fat cocktail with you in the clouds one day. Leigh = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 oh Leigh... you made me laugh and cry reading your post....im so glad you got your fight on! cant even begin to tell you how happy that makes me....one of the things i always pray for is god to let me always speak the words he wants other people to hear.......but that was a heck of a compliment,...so kind for you to say ...it wasnt me....it was God screamin at me: CHANNA! you better set this lady straight! dang it ! LOL. hey if you get knocked down again...thats ok ...as long as you get back up dust yourself off and pick up your sword... all my love to you...you got it, big fat coctail in the clouds channa To: mb12valtrex Sent: Thursday, March 22, 2012 2:43 PMSubject: Is it time to admit defeat? THANK YOU! Your words/advice/encouragement/prayer has truly touched me in a profound way. I read them smiling and crying, words I so needed to hear, that no one has been able to give to me. Words to get me out of my bed and on my feet and out of a deep clinical depression. Today I filled in some paperwork for some blood tests I had planned to do, took my daughter to the lab. Not a big deal but a step forward again. I had forgotten to stand in gratitude....acknowledge all we had done and how far my daughter had come. The genetic results and gene duplication results had knocked me off my feet completely. I had always been able to get up before and rally but this time it was different. When I had read the little research I googled it all said mental retardation. Even my atheist husband had prayed after these results!The neurologist who is fairly progressive had seemed non-chalant when he delivered the gene results and said there are ways to work around it, but when he delivered the news of the brain malformation he seemed very sorry to be delivering this news. To be frank I still can't remember which gene it was or what the malformation is, probably denial on my part to accept this. However I know if there is a way to improve my daughters health and and give her a fighting chance to speak properly and learn I have to knuckle down and tackle this head on. Please if anyone knows of a group that shares information for genetic healing/protocols please let me know on or offline which ever you prefer. I have done many protocols just from reading this website and using the information you all so lovingly share, my daughter has spoken for the first time and cartwheeled due to all your knowledge so my depth of gratitude is wide and deep.Unfortunately I am not very good at the scientific side as being more of a creative and I struggle with the little scientific details of what to dose for what and when. So I will post what she has and some information and perhaps some of you who are strong in this area can throw around some ideas. My strength is a good intuition and am able to think on my feet and sift through ideas pretty well.Thank you to all those who replied and to to all those who share your information, your sorrow, your joys, your journey I always read them and hold you in my heart even if I dont reply.I did want to give a special thanks to Channa, who I always think, this woman, not matter how hard her journey, always stand in love, in honor and integrity and always knows just what to write no matter how dark the posting may be.....I wish you lived close by so we could ride down a quiet road with the windows rolled down yelling together!!!! I hope to share a big fat cocktail with you in the clouds one day.Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 LOL three ladys sharin a whole lot of crazy! instead of girls gone wild ...we can be warriors gone wild To: "mb12valtrex " <mb12valtrex > Sent: Thursday, March 22, 2012 4:14 PMSubject: Re: Is it time to admit defeat? THANK YOU! You brought tears to my eyes so glad u are back up again.. And I wish I too lived near Channa and all three of us could be in that car Sent from my iPod Your words/advice/encouragement/prayer has truly touched me in a profound way. I read them smiling and crying, words I so needed to hear, that no one has been able to give to me. Words to get me out of my bed and on my feet and out of a deep clinical depression. Today I filled in some paperwork for some blood tests I had planned to do, took my daughter to the lab. Not a big deal but a step forward again. I had forgotten to stand in gratitude....acknowledge all we had done and how far my daughter had come. The genetic results and gene duplication results had knocked me off my feet completely. I had always been able to get up before and rally but this time it was different. When I had read the little research I googled it all said mental retardation. Even my atheist husband had prayed after these results!The neurologist who is fairly progressive had seemed non-chalant when he delivered the gene results and said there are ways to work around it, but when he delivered the news of the brain malformation he seemed very sorry to be delivering this news. To be frank I still can't remember which gene it was or what the malformation is, probably denial on my part to accept this. However I know if there is a way to improve my daughters health and and give her a fighting chance to speak properly and learn I have to knuckle down and tackle this head on. Please if anyone knows of a group that shares information for genetic healing/protocols please let me know on or offline which ever you prefer. I have done many protocols just from reading this website and using the information you all so lovingly share, my daughter has spoken for the first time and cartwheeled due to all your knowledge so my depth of gratitude is wide and deep.Unfortunately I am not very good at the scientific side as being more of a creative and I struggle with the little scientific details of what to dose for what and when. So I will post what she has and some information and perhaps some of you who are strong in this area can throw around some ideas. My strength is a good intuition and am able to think on my feet and sift through ideas pretty well.Thank you to all those who replied and to to all those who share your information, your sorrow, your joys, your journey I always read them and hold you in my heart even if I dont reply.I did want to give a special thanks to Channa, who I always think, this woman, not matter how hard her journey, always stand in love, in honor and integrity and always knows just what to write no matter how dark the posting may be.....I wish you lived close by so we could ride down a quiet road with the windows rolled down yelling together!!!! I hope to share a big fat cocktail with you in the clouds one day.Leigh= Quote Link to comment Share on other sites More sharing options...
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