Just diagnosed looking for help

[Guest guest]

My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

[Guest guest]

http://www.autismsolutioncenter.com/

This lady helps folks all over the world. She is amazing! A natural dr can also help. That is the route we went. You can find me on Facebook if you ever want to chat:} There are many online support groups with good info! Blessings

Always Call

Christie Gravatt

We are not human beings having a spiritual experience, we are spiritual beings having a human experience!

Subject: Just diagnosed looking for helpTo: mb12valtrex Date: Sunday, October 9, 2011, 6:32 PM

My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

www.tacanow.org Pamela From: mb12valtrex [mailto:mb12valtrex ] On Behalf Of KateSent: Sunday, October 09, 2011 7:33 PMTo: mb12valtrex Subject: Just diagnosed looking for help My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

Which state are you in? Even before you find the dan doc, you can start with

simple workup including CBC, Comprehensive Metabolic Panel, Serum Zinc and

copper, 25-OH vitamin D level. That way you can atleast start giving him basic

supplements like a good multivitamin and zinc. This is the workup that even a

mainstream pediatrician will agree with. I did a lot of research about different

dan docs recently so let me know which state u are looking in.

is

>

> My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

>

[Guest guest]

Best thing you can do is get a mentor from generation rescue or TACA. There is sooo much out there and its hard to filter through it all. Nothing beats talking one on one with another Mom who's been where you are. I had so many questions about so many things. TACA also has a journeys guide that talks a little about why someone might do certain things. I found it extremely helpful.

Casandra

> To: mb12valtrex > Date: Sun, 9 Oct 2011 23:32:56 +0000> Subject: Just diagnosed looking for help> > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?> > > > ------------------------------------> >

[Guest guest]

OMG! I am so grateful for your responses! I just checked and am in the midst of

dinner and baths but I will respond to each of you if I can figure out how this

works. Overwhelmed...more answers than I've received in a year...love, hope,

tears. thank you thank you thank you!

>

> My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

>

[Guest guest]

Thank you ! I will be checking this website. and friending you on fb,

I've been posting things but nobody gets it or knows what to say...kind of a

lonely place to be. thanks again!

>

>

>

> Subject: Just diagnosed looking for help

> To: mb12valtrex

> Date: Sunday, October 9, 2011, 6:32 PM

>

>

>

> Â

>

>

>

> My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

>

[Guest guest]

Hi is! We are in Tampa Florida. We just sent off his stool and blood today,

I honestly dont' know what they are checking for...it didn't say specifically

anywhere on the paper. It was something a chiropractic neurology person gave

us. The only supplements he is on now is Flinstones vitamins (forever) and

calcium chews and a probiotic mix in his juice we started today with the GFCF

diet. I hope we'll know a lot more when we get the stool and blood tests back.

Thanks again!

> >

> > My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

> >

>

[Guest guest]

Thank you Casandra! I will be getting the journeys guide although I'm not sure

what that is...lol...I hate being a newbie at anything! and a mentor soon I

hope. (: Kate

>

>

> Best thing you can do is get a mentor from generation rescue or TACA. There is

sooo much out there and its hard to filter through it all. Nothing beats talking

one on one with another Mom who's been where you are. I had so many questions

about so many things. TACA also has a journeys guide that talks a little about

why someone might do certain things. I found it extremely helpful.

>

> Casandra

>

>

> > To: mb12valtrex

> > From: k8flyn@...

> > Date: Sun, 9 Oct 2011 23:32:56 +0000

> > Subject: Just diagnosed looking for help

> >

> > My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Hi Kate,

This is a good book to read it helped me a lot. You'll learn so much here too! I love this group!

Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders

Bock

Good luck

Grace

To: mb12valtrex Sent: Sunday, October 9, 2011 7:32 PMSubject: Just diagnosed looking for help

My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

Hi Kate,

This is a good book to read it helped me a lot. You'll learn so much here too! I love this group!

Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders

Bock

Good luck

Grace

To: mb12valtrex Sent: Sunday, October 9, 2011 7:32 PMSubject: Just diagnosed looking for help

My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

Kate,I'm in Lakeland. We use Dr. Berger. He is a very sweet man. We have needed to move beyond him for some things because he is conservative in my opinion but he is not bad.Dr. Rossignol is on the east coast of Florida. We have considered him but haven't made the leap yet.

 

Hi is! We are in Tampa Florida. We just sent off his stool and blood today, I honestly dont' know what they are checking for...it didn't say specifically anywhere on the paper. It was something a chiropractic neurology person gave us. The only supplements he is on now is Flinstones vitamins (forever) and calcium chews and a probiotic mix in his juice we started today with the GFCF diet. I hope we'll know a lot more when we get the stool and blood tests back. Thanks again!

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Dr. Bock's book is excellent! If I were going to buy just one, it would be this one.

 

Hi Kate,

This is a good book to read it helped me a lot. You'll learn so much here too! I love this group!

Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders 

Bock

Good luck

Grace

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Kate,Where are you located? The good part of your situation (if any of us in the A-Club can say anything is good about this horrible disease) is that you got the diagnosis early. As a result you have less to teach to catch him up after you help him medically. Please know your son can get better with proper medical treatment and then rehabilitation. Autism is a treatable disease and not a developmental or a psychiatric disorder. It is a medical condition where those affected have immune systems that are not working properly. No parent should accept that their child cannot be helped. My son (now 22) is living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. But she was wrong. The only institution attended was Santa Clara University where he studied mechanical engineering on a merit scholarship. He graduated this June and did a paid summer internship with NASA. They are paying his graduate school too. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. And I am convinced that the ABA would not have worked as well without the medical component and vice versa. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. Please email me privately if you want me to forward you info on the medical and how to get in touch with Dr. Goldberg, Dr. , or the Northern New York Autism Clinic. Best,Marcia Hinds

[Guest guest]

I also recommend Dr. in Tampa. He is a great resource. He will guide

you, but he will also let you have as much say as you want. He never makes you

feel like you have to do something if you don't feel it is the right decision at

the time. I am in Sarasota. Us Florida girls ought to meet up somewhere

sometime!!

Welcome to the group, Kate!

Cathy

>

> > **

> >

> >

> > Hi is! We are in Tampa Florida. We just sent off his stool and blood

> > today, I honestly dont' know what they are checking for...it didn't say

> > specifically anywhere on the paper. It was something a chiropractic

> > neurology person gave us. The only supplements he is on now is Flinstones

> > vitamins (forever) and calcium chews and a probiotic mix in his juice we

> > started today with the GFCF diet. I hope we'll know a lot more when we get

> > the stool and blood tests back. Thanks again!

> >

> >

> > --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

[Guest guest]

biomed is like a puzzle. unfortunatly there is no one clear pathway for any child.

in my experience even with all the testing that people find very helpful it still comes down to old fashion detective work.

there is no easy way around this..you must become a detective and write down every clue your child has from the color and smell of his poops to every single thing he ate to all his behaviors thru the day..that is what i do

i learned thru very careful journalling what foods made him better worse what supplements made him better worse..

i looked at all his symptoms and tried to see if they fit other symptoms described for metal toxicity ..or parasites..or whatever..

this is some of the things to look for..

yeast

bacteria

parasite

viruses

metals

GI ISSUES:

food intolerances including fructose malabsorbtion

oxylate issues

sulphur issues

histamine issues

i look at my sons diffrent organs and how they can be the cause of his symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism issues..sensitive to cold..ect ect..

just get a simple anatomy chart get familiar with the body..

I know it seems like a lot but just be aware of your childs symptoms and see what they could be related to if any of these..

then you start to put the puzzle together..

there are also many ways to treat all these issues so you have to decide what are the protocols people use for treating say metals...and find what you feel comfortable.

i was gonna erase this post as i feel like it is too much..but maybe if you just take a couple things a day..

of course I never went to a docter and did all this on my own..so i had to learn all this stuff.

channa

To: mb12valtrex Sent: Sunday, October 9, 2011 7:32 PMSubject: Just diagnosed looking for help

My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

No! Not too much! I would have killed or died for a post like this when I was first starting out.

-Tammy

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, October 11, 2011 12:03 AMSubject: Re: Just diagnosed looking for help

biomed is like a puzzle. unfortunatly there is no one clear pathway for any child.

in my experience even with all the testing that people find very helpful it still comes down to old fashion detective work.

there is no easy way around this..you must become a detective and write down every clue your child has from the color and smell of his poops to every single thing he ate to all his behaviors thru the day..that is what i do

i learned thru very careful journalling what foods made him better worse what supplements made him better worse..

i looked at all his symptoms and tried to see if they fit other symptoms described for metal toxicity ..or parasites..or whatever..

this is some of the things to look for..

yeast

bacteria

parasite

viruses

metals

GI ISSUES:

food intolerances including fructose malabsorbtion

oxylate issues

sulphur issues

histamine issues

i look at my sons diffrent organs and how they can be the cause of his symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism issues..sensitive to cold..ect ect..

just get a simple anatomy chart get familiar with the body..

I know it seems like a lot but just be aware of your childs symptoms and see what they could be related to if any of these..

then you start to put the puzzle together..

there are also many ways to treat all these issues so you have to decide what are the protocols people use for treating say metals...and find what you feel comfortable.

i was gonna erase this post as i feel like it is too much..but maybe if you just take a couple things a day..

of course I never went to a docter and did all this on my own..so i had to learn all this stuff.

channa

To: mb12valtrex Sent: Sunday, October 9, 2011 7:32 PMSubject: Just diagnosed looking for help

My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

well i think we all are a peice of the puzzle in this group..i mean we all have such diffrent ideas and we all seem to really compliment each other..this is definitly the baddest biomed group online,thats for sure!

channa

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, October 11, 2011 12:10 AMSubject: Re: Just diagnosed looking for help

No! Not too much! I would have killed or died for a post like this when I was first starting out.

-Tammy

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, October 11, 2011 12:03 AMSubject: Re: Just diagnosed looking for help

biomed is like a puzzle. unfortunatly there is no one clear pathway for any child.

in my experience even with all the testing that people find very helpful it still comes down to old fashion detective work.

there is no easy way around this..you must become a detective and write down every clue your child has from the color and smell of his poops to every single thing he ate to all his behaviors thru the day..that is what i do

i learned thru very careful journalling what foods made him better worse what supplements made him better worse..

i looked at all his symptoms and tried to see if they fit other symptoms described for metal toxicity ..or parasites..or whatever..

this is some of the things to look for..

yeast

bacteria

parasite

viruses

metals

GI ISSUES:

food intolerances including fructose malabsorbtion

oxylate issues

sulphur issues

histamine issues

i look at my sons diffrent organs and how they can be the cause of his symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism issues..sensitive to cold..ect ect..

just get a simple anatomy chart get familiar with the body..

I know it seems like a lot but just be aware of your childs symptoms and see what they could be related to if any of these..

then you start to put the puzzle together..

there are also many ways to treat all these issues so you have to decide what are the protocols people use for treating say metals...and find what you feel comfortable.

i was gonna erase this post as i feel like it is too much..but maybe if you just take a couple things a day..

of course I never went to a docter and did all this on my own..so i had to learn all this stuff.

channa

To: mb12valtrex Sent: Sunday, October 9, 2011 7:32 PMSubject: Just diagnosed looking for help

My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

[Guest guest]

Hi KateJust to say when we did GFCF in June we made mistake of increase cakes, biscuits and high carbohydrate foods which made the candida issue worse for our son(the diet and all issue wth autism new to us at the time).Am aware how overwhelming it all is, there is a lot of information and it takes a while to get a handle of it all also u might want to look at Gaps.me website, I am finding this diet a lot more helpful for my son.Good luck u r in the right place to learn it's what has bin getting us through. Learning and ving hope there is something pistons and good that can be done. Sent from my bliPhoneh

Hi is! We are in Tampa Florida. We just sent off his stool and blood today, I honestly dont' know what they are checking for...it didn't say specifically anywhere on the paper. It was something a chiropractic neurology person gave us. The only supplements he is on now is Flinstones vitamins (forever) and calcium chews and a probiotic mix in his juice we started today with the GFCF diet. I hope we'll know a lot more when we get the stool and blood tests back. Thanks again!

> >

> > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

> >

>

[Guest guest]

And oh, Kate take uo time do not rush into everything learn as much as u can then decide what's best for him!! (another mistake I made)Sent from my iPhone

Hi is! We are in Tampa Florida. We just sent off his stool and blood today, I honestly dont' know what they are checking for...it didn't say specifically anywhere on the paper. It was something a chiropractic neurology person gave us. The only supplements he is on now is Flinstones vitamins (forever) and calcium chews and a probiotic mix in his juice we started today with the GFCF diet. I hope we'll know a lot more when we get the stool and blood tests back. Thanks again!

> >

> > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?

> >

>

[Guest guest]

Kate,

I read a post saying you are in FL. That's great news as Dr. Rossignol is in FL. If I were you I'd make an appt. today. If your not sure make it anyways and you can cancel. He's in Melbourne FL. We come from VA to see him. The problem with autism is it is usually a multi system breakdown but not all kids have the same issues. He will run all the tests, explain them to you and get you son on the right path. He's a pediatrician that also has children with autism. He knows what he's talking about medically and his office is set up perfectly for our kids. They don't deal with insurance but we've gotten all of his stuff covered.

Also if you are doing the GF/CF diet it's also important to remove soy and corn.

Casandra

> To: mb12valtrex > Date: Mon, 10 Oct 2011 23:47:01 +0000> Subject: Re: Just diagnosed looking for help> > Thank you Casandra! I will be getting the journeys guide although I'm not sure what that is...lol...I hate being a newbie at anything! and a mentor soon I hope. (: Kate> > > >> > > > Best thing you can do is get a mentor from generation rescue or TACA. There is sooo much out there and its hard to filter through it all. Nothing beats talking one on one with another Mom who's been where you are. I had so many questions about so many things. TACA also has a journeys guide that talks a little about why someone might do certain things. I found it extremely helpful.> > > > Casandra> > > > > > > To: mb12valtrex > > > > > Date: Sun, 9 Oct 2011 23:32:56 +0000> > > Subject: Just diagnosed looking for help> > > > > > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?> > > > > > > > > > > > ------------------------------------> > > > > >

[Guest guest]

When I called his office, the procedure for making an appt was to download all the forms, fill them out, fax them, and then you could call for a first available. I have called on two separate occasions and gotten this response, when trying to find out when they had availablility. Maybe it works differently when you are out of state. :-)

 

Kate,

 

I read a post saying you are in FL. That's great news as Dr. Rossignol is in FL. If I were you I'd make an appt. today. If your not sure make it anyways and you can cancel. He's in Melbourne FL. We come from VA to see him. The problem with autism is it is usually a multi system breakdown but not all kids have the same issues. He will run all the tests, explain them to you and get you son on the right path. He's a pediatrician that also has children with autism. He knows what he's talking about medically and his office is set up perfectly for our kids. They don't deal with insurance but we've gotten all of his stuff covered.

 

Also if you are doing the GF/CF diet it's also important to remove soy and corn.

 

 

Casandra -- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I was tpuched by your reply....COL (crying out loud). Youare an inspiration.COD started when I read this .. There were mornings I didn’t want to get out of bed to face another day filled with autism. But then you succeeded. God blessyou and your family. I'm so happy for you, MhelTo: k8flyn@...; mb12valtrex From: hindssite@...Date: Mon, 10 Oct 2011 17:34:27 -0700Subject: Re: Just diagnosed looking for help

Kate,Where are you located? The good part of your situation (if any of us in the A-Club can say anything is good about this horrible disease) is that you got the diagnosis early. As a result you have less to teach to catch him up after you help him medically. Please know your son can get better with proper medical treatment and then rehabilitation. Autism is a treatable disease and not a developmental or a psychiatric disorder. It is a medical condition where those affected have immune systems that are not working properly. No parent should accept that their child cannot be helped. My son (now 22) is living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. But she was wrong. The only institution attended was Santa Clara University where he studied mechanical engineering on a merit scholarship. He graduated this June and did a paid summer internship with NASA. They are paying his graduate school too. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. And I am convinced that the ABA would not have worked as well without the medical component and vice versa. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. Please email me privately if you want me to forward you info on the medical and how to get in touch with Dr. Goldberg, Dr. , or the Northern New York Autism Clinic. Best,Marcia Hinds

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Yes, you need to fill out forms but you can still cancel? Is that bad?

Casandra

To: mb12valtrex From: bellbaby@...Date: Tue, 11 Oct 2011 09:09:53 -0400Subject: Re: Re: Just diagnosed looking for help

When I called his office, the procedure for making an appt was to download all the forms, fill them out, fax them, and then you could call for a first available. I have called on two separate occasions and gotten this response, when trying to find out when they had availablility. Maybe it works differently when you are out of state. :-)

Kate, I read a post saying you are in FL. That's great news as Dr. Rossignol is in FL. If I were you I'd make an appt. today. If your not sure make it anyways and you can cancel. He's in Melbourne FL. We come from VA to see him. The problem with autism is it is usually a multi system breakdown but not all kids have the same issues. He will run all the tests, explain them to you and get you son on the right path. He's a pediatrician that also has children with autism. He knows what he's talking about medically and his office is set up perfectly for our kids. They don't deal with insurance but we've gotten all of his stuff covered. Also if you are doing the GF/CF diet it's also important to remove soy and corn. Casandra -- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Hey Toni! We're neighbors! We have an apt with Dr. Berger on Tuesday. What do

you think he is conservative with? And what have you ventured out for and to

whom? The east coast is quite a leap. We are just now trying to figure out how

we are going to make it to all of these therapies w two full time

jobs...whatever it takes though. k8

>

> > **

> >

> >

> > Hi is! We are in Tampa Florida. We just sent off his stool and blood

> > today, I honestly dont' know what they are checking for...it didn't say

> > specifically anywhere on the paper. It was something a chiropractic

> > neurology person gave us. The only supplements he is on now is Flinstones

> > vitamins (forever) and calcium chews and a probiotic mix in his juice we

> > started today with the GFCF diet. I hope we'll know a lot more when we get

> > the stool and blood tests back. Thanks again!

> >

> >

> > --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>