Just diagnosed looking for help

[Guest guest]

Thanks , Honestly I don't even know what candida means. I will look it up

and the gap site you are talking about. I heard from another to lay off corn and

nuts...wandering now what the heck I can feed my kid...he refuses most whole

foods. Thanks again!

> > > >

> > > > My son is 3 1/2. We are in the beginning stages of treatment- and

research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in

speech therapy but starting ABA and hemispheric integration Therapy next week.

Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set

us on the right path. I wish his doc or teacher would have sooner. We were in

denial I think. Not now. He is non verbal, few stims, sleeps well, little eye

contact, lots of babbling, looking in mirrors and spinning some. I need a yoda,

any out there?

> > > >

> > >

> >

> >

>

[Guest guest]

their is a book called nourishing hope for autism by julie mathews..now that is the book I wish i had in the begining..it goes over all the diffrent diets and explains the benefits ect...

for me i found the perfect diet if their is such a thing with Gaps and low oxylate combined. also no fruit..

so whats left? meat veggies and small amounts beans and squash

To: mb12valtrex Sent: Tuesday, October 11, 2011 7:51 PMSubject: Re: Just diagnosed looking for help

Thanks , Honestly I don't even know what candida means. I will look it up and the gap site you are talking about. I heard from another to lay off corn and nuts...wandering now what the heck I can feed my kid...he refuses most whole foods. Thanks again!> > > >> > > > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow,

already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?> > > >> > >> > > >>

[Guest guest]

Geez Channa you sould like a freaking genius...seriously. I want to be Sherlock

Holmes for my kid too....I have been journaling today, after 2 days with no

dairy and a probiotic I have noticed a small difference. I can't wait to get to

where you are with your boy. I am printing all of this advice and am

considering a mural on my wall because I don't know how else I can see all of

it! Thank you.

>

> well i think we all are  a peice of  the puzzle in this group..i mean we

all have such diffrent ideas  and we all seem to really compliment each

other..this is definitly the baddest biomed group online,thats for sure!

> channa

>

>

> ________________________________

>

> To: " mb12valtrex " <mb12valtrex >

> Sent: Tuesday, October 11, 2011 12:10 AM

> Subject: Re: Just diagnosed looking for help

>

>

>  

>

>

> No!  Not too much!  I would have killed or died for a post like this when I

was first starting out.

>

> -Tammy

>

> ________________________________

>

> To: " mb12valtrex " <mb12valtrex >

> Sent: Tuesday, October 11, 2011 12:03 AM

> Subject: Re: Just diagnosed looking for help

>

>

>  

> biomed is like a puzzle. unfortunatly there is no one clear pathway for any

child.

> in my experience even with all the testing that people find very helpful it

still comes down to old fashion detective work.

> there is no easy way around this..you must become a detective and write down

every clue your child has from the color and smell of his poops to every single

thing he ate to all his behaviors thru the day..that is what i do

> i learned thru very careful journalling what foods made him better worse what

supplements made him better worse..

> i looked at all his symptoms and tried to see if they fit other symptoms

described for metal toxicity ..or parasites..or whatever..

> this is some of the things to look for..

> yeast

> bacteria

> parasite

> viruses

> metals

>  

> GI ISSUES:

> food intolerances including fructose malabsorbtion

> oxylate issues

> sulphur issues

> histamine issues

> i look at my sons diffrent organs and how they can be the cause of his

symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism

issues..sensitive to cold..ect ect..

> just get a simple anatomy chart get familiar with the body..

>  

> I know it seems like a lot but just be aware of  your childs symptoms and

see what  they could be related to if any of these..

> then you start to put the puzzle together..

> there are also many ways to treat all these issues so you have to decide what

are the protocols people use for treating say metals...and find what you feel

comfortable.

> i was gonna erase this post as i feel like it is too much..but maybe if you

just take a couple things a day..

> of course I never went to a docter and did all this on my own..so i had to

learn all this stuff.

> channa

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Sunday, October 9, 2011 7:32 PM

> Subject: Just diagnosed looking for help

>

>

>  

> My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

>

[Guest guest]

Thank you so much Martha, sounds like a great kid...man. I have so much

hope and faith my husband and I can make this happen for Wyatt. We are in

Tampa, FLorida so I dont' know if the NY referrals can do much for us now. But

your story is so inspiring. I have heard this from people with much younger

children. I hope that Wyatt will be one of those success stories. I wish I

could meet your son...it would be awesome to see that. Thanks again! k8 and her

Wyatt

>

>

> I was tpuched by your reply....COL (crying out loud). You

> are an inspiration.

> COD started when I read this .. There were mornings I

> didn't want to get out of bed to face another day

> filled with autism. But then you succeeded. God bless

> you and your family.

>

> I'm so happy for you,

> Mhel

>

> To: k8flyn@...; mb12valtrex

> From: hindssite@...

> Date: Mon, 10 Oct 2011 17:34:27 -0700

> Subject: Re: Just diagnosed looking for help

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> Kate,Where are you located? The good part of your situation (if any of

us in the A-Club can say anything is good about this horrible disease) is that

you got the diagnosis early. As a result you have less to teach to catch him up

after you help him medically. Please know your son can get better with proper

medical treatment and then rehabilitation. Autism is a treatable disease and

not a developmental or a psychiatric disorder. It is a medical condition where

those affected have immune systems that are not working properly. No parent

should accept that their child cannot be helped. My son (now 22) is

living proof that kids can get better. was diagnosed when he was four years

old. A psychiatrist who was the leading authority on autism said my child would

never be okay. According to this expert, was going to end up in an

institution or group home. But she was wrong. The only institution

attended was Santa Clara University where he studied mechanical engineering on a

merit scholarship. He graduated this June and did a paid summer internship with

NASA. They are paying his graduate school too. excels academically and is

in the Engineering Honor Society (top 10% GPA). He`s a member of Sigma Chi

Fraternity and was president of the Jewish Student Association. But more

importantly, is a typical college student who drinks an occasional beer,

goes on dates, stays out too late with friends and then sleeps through eight

o'clock classes. I couldn't be more proud!Unbelievable as it seems, this is the

same child who wanted to spend all day, every day, plugging in a portable radio

into each outlet in the house. Back then, I wasn't sure if I had the strength

to be more stubborn than my son. There were mornings I didn't want to get out

of bed to face another day filled with autism. The worst times were when I

didn't have a direction or a plan. I was hanging onto my sanity by my

fingernails. But, at the end of the day, I was faced with a choice: let

drift off forever into his own world, or drag him kicking and screaming into

ours.After we helped medically, it was possible for him to learn.

Behavioral and educational interventions were used in conjunction with the

medical treatment to catch up on everything he missed. Initially, we used

Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we

moved towards more natural ways of teaching. It took years to correct 's

deficits in speech and social skills. It was almost like taking a stroke victim

and bringing them back. And I am convinced that the ABA would not have worked

as well without the medical component and vice versa. Our story is not about

coping with autism, but rather fighting back and not accepting the

misconceptions associated with this diagnosis. This process is definitely not

for sissies or parents looking for that magic cure. Please email me privately

if you want me to forward you info on the medical and how to get in touch with

Dr. Goldberg, Dr. , or the Northern New York Autism Clinic. Best,Marcia

Hinds

>

[Guest guest]

" with Gaps and low oxylate combined " what does this mean?

> > > > >

> > > > > My son is 3 1/2. We are in the beginning stages of treatment- and

research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in

speech therapy but starting ABA and hemispheric integration Therapy next week.

Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set

us on the right path. I wish his doc or teacher would have sooner. We were in

denial I think. Not now. He is non verbal, few stims, sleeps well, little eye

contact, lots of babbling, looking in mirrors and spinning some. I need a yoda,

any out there?

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

actually im like the crazy homeless guy on the street with momentary lapses of pure genius.

that is what I tell myself and the voices anyway:).

you know doing a mural ..that sounds like a great idea...it would help to see the bigger picture! ..

I am going to do a complete update really soon of everything i have done that has helped my son..it is too much to put in one post..but will put it in like a small book format and send the link to the group...

that is how we learn from each other..

channa

To: mb12valtrex Sent: Tuesday, October 11, 2011 8:08 PMSubject: Re: Just diagnosed looking for help

Geez Channa you sould like a freaking genius...seriously. I want to be Sherlock Holmes for my kid too....I have been journaling today, after 2 days with no dairy and a probiotic I have noticed a small difference. I can't wait to get to where you are with your boy. I am printing all of this advice and am considering a mural on my wall because I don't know how else I can see all of it! Thank you.>> well i think we all are  a peice of  the puzzle in this group..i mean we all have such diffrent ideas  and we all seem to really compliment each other..this is definitly the baddest biomed group online,thats for sure!> channa> > >

________________________________> > To: "mb12valtrex " <mb12valtrex >> Sent: Tuesday, October 11, 2011 12:10 AM> Subject: Re: Just diagnosed looking for help> > >  > > > No! Not too much! I would have killed or died for a post like this when I was first starting out.> > -Tammy> > ________________________________> > To: "mb12valtrex " <mb12valtrex >> Sent: Tuesday, October 11, 2011 12:03 AM> Subject: Re: Just diagnosed looking for help> > >  > biomed is like a puzzle. unfortunatly there is no one clear pathway for any child.> in my experience even with all the testing that people find very helpful it still comes down to old fashion detective work.> there is no easy way around this..you must become a detective and write down every clue your child has from the color and smell of his poops to every single thing he ate to all his behaviors thru the day..that is what i do> i learned thru very careful journalling what foods made him better worse what supplements made him better

worse..> i looked at all his symptoms and tried to see if they fit other symptoms described for metal toxicity ..or parasites..or whatever..> this is some of the things to look for..> yeast> bacteria> parasite> viruses> metals>  > GI ISSUES:> food intolerances including fructose malabsorbtion > oxylate issues> sulphur issues> histamine issues> i look at my sons diffrent organs and how they can be the cause of his symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism issues..sensitive to cold..ect ect..> just get a simple anatomy chart get familiar with the body..>  > I know it seems like a lot but just be aware of  your childs symptoms and see what  they could be related to if any of these..> then you start to put the puzzle together..> there

are also many ways to treat all these issues so you have to decide what are the protocols people use for treating say metals...and find what you feel comfortable.> i was gonna erase this post as i feel like it is too much..but maybe if you just take a couple things a day..> of course I never went to a docter and did all this on my own..so i had to learn all this stuff.> channa> > > ________________________________> > To: mb12valtrex > Sent: Sunday, October 9, 2011 7:32 PM> Subject: Just diagnosed looking for help> > >  > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in

speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?>

[Guest guest]

ha! thank you Channa, please write your book for the layman. There are a lot of

experts here but I'm not one yet.

> >

> > well i think we all are  a peice of  the puzzle in this group..i

mean we all have such diffrent ideas  and we all seem to really

compliment each other..this is definitly the baddest biomed group online,thats

for sure!

> > channa

> >

> >

> > ________________________________

> > From: T Lynn <t.lynn28@>

> > To: " mb12valtrex " <mb12valtrex >

> > Sent: Tuesday, October 11, 2011 12:10 AM

> > Subject: Re: Just diagnosed looking for help

> >

> >

> >  

> >

> >

> > No!  Not too much!  I would have killed or died for a post like this

when I was first starting out.

> >

> > -Tammy

> >

> > ________________________________

> > From: Channa Brennon <channabrennon@>

> > To: " mb12valtrex " <mb12valtrex >

> > Sent: Tuesday, October 11, 2011 12:03 AM

> > Subject: Re: Just diagnosed looking for help

> >

> >

> >  

> > biomed is like a puzzle. unfortunatly there is no one clear pathway for any

child.

> > in my experience even with all the testing that people find very helpful it

still comes down to old fashion detective work.

> > there is no easy way around this..you must become a detective and write down

every clue your child has from the color and smell of his poops to every single

thing he ate to all his behaviors thru the day..that is what i do

> > i learned thru very careful journalling what foods made him better worse

what supplements made him better worse..

> > i looked at all his symptoms and tried to see if they fit other symptoms

described for metal toxicity ..or parasites..or whatever..

> > this is some of the things to look for..

> > yeast

> > bacteria

> > parasite

> > viruses

> > metals

> >  

> > GI ISSUES:

> > food intolerances including fructose malabsorbtion

> > oxylate issues

> > sulphur issues

> > histamine issues

> > i look at my sons diffrent organs and how they can be the cause of his

symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism

issues..sensitive to cold..ect ect..

> > just get a simple anatomy chart get familiar with the body..

> >  

> > I know it seems like a lot but just be aware of  your childs symptoms

and see what  they could be related to if any of these..

> > then you start to put the puzzle together..

> > there are also many ways to treat all these issues so you have to decide

what are the protocols people use for treating say metals...and find what you

feel comfortable.

> > i was gonna erase this post as i feel like it is too much..but maybe if you

just take a couple things a day..

> > of course I never went to a docter and did all this on my own..so i had to

learn all this stuff.

> > channa

> >

> >

> > ________________________________

> > From: Kate <k8flyn@>

> > To: mb12valtrex

> > Sent: Sunday, October 9, 2011 7:32 PM

> > Subject: Just diagnosed looking for help

> >

> >

> >  

> > My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

> >

>

[Guest guest]

This doc is on my list after the one we're seeing Tuesday...Melboure is far for

us but doable. We have read to limit soy in place of dairy but why corn?

thanks,

> > >

> > >

> > > Best thing you can do is get a mentor from generation rescue or TACA.

There is sooo much out there and its hard to filter through it all. Nothing

beats talking one on one with another Mom who's been where you are. I had so

many questions about so many things. TACA also has a journeys guide that talks a

little about why someone might do certain things. I found it extremely helpful.

> > >

> > > Casandra

> > >

> > >

> > > > To: mb12valtrex

> > > > From: k8flyn@

> > > > Date: Sun, 9 Oct 2011 23:32:56 +0000

> > > > Subject: Just diagnosed looking for help

> > > >

> > > > My son is 3 1/2. We are in the beginning stages of treatment- and

research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in

speech therapy but starting ABA and hemispheric integration Therapy next week.

Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set

us on the right path. I wish his doc or teacher would have sooner. We were in

denial I think. Not now. He is non verbal, few stims, sleeps well, little eye

contact, lots of babbling, looking in mirrors and spinning some. I need a yoda,

any out there?

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

[Guest guest]

well kids who have a lot of gut inflammation dont do well with any type of grains period. GAPS diet is no grains in the begginning and you can add later on..what i like about the GAPS diet is they are big on fermented foods..which are healing to the gut.

low oxylate means there are certain veggies and nuts that are hard to digest becuase of the high oxylate content.

if you look up low oxylate foods and try sticking with just those for a while and then see if that makes a diffrence..in your childs mood poop ect..

friut is something i found my son does get loose stool with so i assume he has fructose malabsorbtion problem.

I found this out by slowly adding one food at a time..and noting his reactions..

i did shell out for a IgG food allergie panel which test for delayed food allergies.

this was helpful but must be done with the journaling ,because it is not going to tell you everything.but does help to get a running start on things..

take a deep breath.. make a plan and go after one thing at a time...

diet is the very first thing you want to work on...then note down your kids symptoms and post to the group..and take lots of notes..the other sites that people posted here are great places for info too..

try not to be overwhelmed i know it is hard not too..just think one day you will be an old pro at this helping out another newbie..

channa

To: mb12valtrex Sent: Tuesday, October 11, 2011 8:16 PMSubject: Re: Just diagnosed looking for help

"with Gaps and low oxylate combined" what does this mean?> > > > >> > > > > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?> > > > >> > > >> > > > > >> >>

[Guest guest]

Oh thanks Cathy! I'd love too! Our apt with Dr. Berger is Tuesday...I look

forward to seeing a real pediatrician. thanks , kate

> >

> > > **

> > >

> > >

> > > Hi is! We are in Tampa Florida. We just sent off his stool and blood

> > > today, I honestly dont' know what they are checking for...it didn't say

> > > specifically anywhere on the paper. It was something a chiropractic

> > > neurology person gave us. The only supplements he is on now is Flinstones

> > > vitamins (forever) and calcium chews and a probiotic mix in his juice we

> > > started today with the GFCF diet. I hope we'll know a lot more when we get

> > > the stool and blood tests back. Thanks again!

> > >

> > >

> > > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

[Guest guest]

thanks for the compliment by the way..i will be walking around like a peacock im sure for the next couple days lol.

by the way..i am a raw milk fan...i believe in the healing powers of raw grassfed milk IF you kid can tolerate it.

just FYI..all these things are guidlines not hard fast rules...

To: mb12valtrex Sent: Tuesday, October 11, 2011 8:08 PMSubject: Re: Just diagnosed looking for help

Geez Channa you sould like a freaking genius...seriously. I want to be Sherlock Holmes for my kid too....I have been journaling today, after 2 days with no dairy and a probiotic I have noticed a small difference. I can't wait to get to where you are with your boy. I am printing all of this advice and am considering a mural on my wall because I don't know how else I can see all of it! Thank you.>> well i think we all are  a peice of  the puzzle in this group..i mean we all have such diffrent ideas  and we all seem to really compliment each other..this is definitly the baddest biomed group online,thats for sure!> channa> > >

________________________________> > To: "mb12valtrex " <mb12valtrex >> Sent: Tuesday, October 11, 2011 12:10 AM> Subject: Re: Just diagnosed looking for help> > >  > > > No! Not too much! I would have killed or died for a post like this when I was first starting out.> > -Tammy> > ________________________________> > To: "mb12valtrex " <mb12valtrex >> Sent: Tuesday, October 11, 2011 12:03 AM> Subject: Re: Just diagnosed looking for help> > >  > biomed is like a puzzle. unfortunatly there is no one clear pathway for any child.> in my experience even with all the testing that people find very helpful it still comes down to old fashion detective work.> there is no easy way around this..you must become a detective and write down every clue your child has from the color and smell of his poops to every single thing he ate to all his behaviors thru the day..that is what i do> i learned thru very careful journalling what foods made him better worse what supplements made him better

worse..> i looked at all his symptoms and tried to see if they fit other symptoms described for metal toxicity ..or parasites..or whatever..> this is some of the things to look for..> yeast> bacteria> parasite> viruses> metals>  > GI ISSUES:> food intolerances including fructose malabsorbtion > oxylate issues> sulphur issues> histamine issues> i look at my sons diffrent organs and how they can be the cause of his symptoms..yellow poop bile issues/liver gallbladder...thyriod issues metabolism issues..sensitive to cold..ect ect..> just get a simple anatomy chart get familiar with the body..>  > I know it seems like a lot but just be aware of  your childs symptoms and see what  they could be related to if any of these..> then you start to put the puzzle together..> there

are also many ways to treat all these issues so you have to decide what are the protocols people use for treating say metals...and find what you feel comfortable.> i was gonna erase this post as i feel like it is too much..but maybe if you just take a couple things a day..> of course I never went to a docter and did all this on my own..so i had to learn all this stuff.> channa> > > ________________________________> > To: mb12valtrex > Sent: Sunday, October 9, 2011 7:32 PM> Subject: Just diagnosed looking for help> > >  > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in

speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?>

[Guest guest]

Kate,Let me know privately if you want me to forward what we did medically. There are many families who see the NIDS doctors remotely. You have to go for the first appointment in person and then it can be done by blood tests and telephone appointments. We started with a doctor in California when was five. Back then, we still lived in Minnesota and did for most of ’s medical treatment. Each child with autism has different medical issues. That is what makes this so difficult. Getting well is the hardest thing I have ever done. You said you wished you could meet . I wish you could too, so you know autism is a medical immune mediated disease that can be treated. It is not psychiatric or developmental in nature like many in our medical community believe. We just have to make the whole world realize this, so the needed research happens. That way recovery stories like ’s, will not be the exception, but rather the norm. Our children can get better when you combine the medical with behavioral and educational interventions. And after you treat autism medically, you still have to catch these kids up on what they missed when they were ill. Time is important because the younger your child is when the medical treatment takes effect, the less your kiddo needs to be taught behaviorally and educationally. Instead of introducing you to , I’m sending the next best thing. completed a paid internship with NASA this summer where he was invitedto Washington DC to do a presentation. NASA chose his presentation to be put on their website. Here is a link:

NASA is also paying for his master’s degree this year. My hope for the future is that every doctor on every corner will say when they have a patient with autism, “I know what this is and I know how to treat it.”Hang in there. I know this is all very overwhelming right now. But we all get it because we have lived it and are here for you. Best,Marcia

[Guest guest]

Kate,If you are interested in NIDS protocol after looking at their website, and since you already have an appt with Dr. Berger,just let him know you are interested in NIDS and ask for the workup. Print it out for him if it is still on the website.

Oh here's a link http://www.neuroimmunedr.com/NIDS/Proposed_Work-Up_NIDS/proposed_work-up_nids.html

 

Kate,Let me know privately if you want me to forward what we did medically.  There are many families who see the NIDS doctors remotely.  You have to go for the first appointment in person and then it can be done by blood tests and telephone appointments.  We started with a doctor in California when was five.  Back then, we still lived in Minnesota and did for most of ’s medical treatment.  Each child with autism has different medical issues.  That is what makes this so difficult.  Getting well is the hardest thing I have ever done.

 You said you wished you could meet .  I wish you could too, so you know autism is a medical immune mediated disease that can be treated.   It is not psychiatric or developmental in nature like many in our medical community believe.  We just have to make the whole world realize this, so the needed research happens.  That way recovery stories like ’s, will not be the exception, but rather the norm. 

 Our children can get better  when you combine the medical with behavioral and educational interventions.  And after you treat autism medically, you still have to catch these kids up on what they missed when they were ill.  Time is important because the younger your child is when the medical treatment takes effect, the less your kiddo needs to be taught behaviorally and educationally.   

 Instead of introducing you to , I’m sending the next best thing.  completed a paid internship with NASA this summer where he was invitedto Washington DC to do a presentation.  NASA chose his presentation to be  put on their website. Here is a link:

http://www.youtube.com/watch?v=4-10o3frU1A   NASA is also paying for his master’s degree this year.   

My hope for the future is that every doctor on every corner will say when they have a patient with autism,  “I know what this is and I know how to treat it.”Hang in there.  I know this is all very overwhelming right now.  But we all get it because we have lived it and are here for you.

 Best,Marcia 

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Hi KateCandida simple put is yeast in our kids big problem and is another thing that is toxic to them something else for them to work on detoxing, if u can do go gaps.me and send a few mins Sent from my

their is a book called nourishing hope for autism by julie mathews..now that is the book I wish i had in the begining..it goes over all the diffrent diets and explains the benefits ect...

for me i found the perfect diet if their is such a thing with Gaps and low oxylate combined. also no fruit..

so whats left? meat veggies and small amounts beans and squash

To: mb12valtrex Sent: Tuesday, October 11, 2011 7:51 PMSubject: Re: Just diagnosed looking for help

Thanks , Honestly I don't even know what candida means. I will look it up and the gap site you are talking about. I heard from another to lay off corn and nuts...wandering now what the heck I can feed my kid...he refuses most whole foods. Thanks again!> > > >> > > > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow,

already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?> > > >> > >> > > >>

[Guest guest]

Well put ChannaSent from my iPhone

well kids who have a lot of gut inflammation dont do well with any type of grains period. GAPS diet is no grains in the begginning and you can add later on..what i like about the GAPS diet is they are big on fermented foods..which are healing to the gut.

low oxylate means there are certain veggies and nuts that are hard to digest becuase of the high oxylate content.

if you look up low oxylate foods and try sticking with just those for a while and then see if that makes a diffrence..in your childs mood poop ect..

friut is something i found my son does get loose stool with so i assume he has fructose malabsorbtion problem.

I found this out by slowly adding one food at a time..and noting his reactions..

i did shell out for a IgG food allergie panel which test for delayed food allergies.

this was helpful but must be done with the journaling ,because it is not going to tell you everything.but does help to get a running start on things..

take a deep breath.. make a plan and go after one thing at a time...

diet is the very first thing you want to work on...then note down your kids symptoms and post to the group..and take lots of notes..the other sites that people posted here are great places for info too..

try not to be overwhelmed i know it is hard not too..just think one day you will be an old pro at this helping out another newbie..

channa

To: mb12valtrex Sent: Tuesday, October 11, 2011 8:16 PMSubject: Re: Just diagnosed looking for help

"with Gaps and low oxylate combined" what does this mean?> > > > >> > > > > My son is 3 1/2. We are in the beginning stages of treatment- and research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy but starting ABA and hemispheric integration Therapy next week. Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set us on the right path. I wish his doc or teacher would have sooner. We were in denial I think. Not now. He is non verbal, few stims, sleeps well, little eye contact, lots of babbling, looking in mirrors and spinning some. I need a yoda, any out there?> > > > >> > > >> > > > > >> >>

[Guest guest]

We live in Virginia and see Dr. Rossignol also. We love him. www.rossignolmd.com Pamela

[Guest guest]

>

> My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

>

Kate,

I have blogged about what has helped us:

Here's books that were helpful for us:

http://mrsedsresearchandrecipes.blogspot.com/p/resources-for-autism-diet.html

Here's research that was helpful for us:

http://mrsedsresearchandrecipes.blogspot.com/p/research-guide-for-autismdietgi-t\

ract.html

Our son's gi tract was obviously messed up from day one but he wasn't autistic

till after a month long bout with antibiotics. We had to use the SCD diet, gfcf

just could'nt cut it. But the diet sure made an amazing difference. I think any

diet is so hard at first, but stick with it. Best of luck to you all.

Tracee

[Guest guest]

I will pick it up, thanks so much!

>

>

>

>

> Hi Kate,

> This is a good book to read it helped me a lot. You'll learn so much here too!

I love this group!

> Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The

Groundbreaking Program for the 4-A DisordersÂ

> Bock

> Good luck

> Grace

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Sunday, October 9, 2011 7:32 PM

> Subject: Just diagnosed looking for help

>

>

> Â

> My son is 3 1/2. We are in the beginning stages of treatment- and research.

Trying to get a DAN doc, starting GFCF diet tomorrow, already in speech therapy

but starting ABA and hemispheric integration Therapy next week. Sending off

stool and blood tomorrow. I'm reaching out to see if anyone can set us on the

right path. I wish his doc or teacher would have sooner. We were in denial I

think. Not now. He is non verbal, few stims, sleeps well, little eye contact,

lots of babbling, looking in mirrors and spinning some. I need a yoda, any out

there?

>

[Guest guest]

thank you so much! we see the DAN doc on Tuesday. I am having trouble keeping up

with this group. between work, therapies, cooking (which i suck at) for this new

diet, and wyatt's brother I'm tapped. but i'm going to take it one day at a

time. and write all of these books and ideas down. thanks again!

> > > > > >

> > > > > > My son is 3 1/2. We are in the beginning stages of treatment- and

research. Trying to get a DAN doc, starting GFCF diet tomorrow, already in

speech therapy but starting ABA and hemispheric integration Therapy next week.

Sending off stool and blood tomorrow. I'm reaching out to see if anyone can set

us on the right path. I wish his doc or teacher would have sooner. We were in

denial I think. Not now. He is non verbal, few stims, sleeps well, little eye

contact, lots of babbling, looking in mirrors and spinning some. I need a yoda,

any out there?

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Oh Marcia! I have been trying to find this message. Thanks so much for sharing

the video of . That is so cool! I have so much faith in my boy too. I have

had a lot of trouble keeping up with the outreach in this group. I'm so

overwhelmed. But I wanted to be sure to write back to you. Thank you so much!

We see a DAN doc for the first time on Tuesday. We haven't seen much results

from the diet yet but I can see we need to do a lot of tweeking and journaling

to make it successful. We still have a couple of weeks before our first round of

tests come back. I'm also putting an allergist top on our list. One day at a

time. Much love, Kate

>

> Kate,

>

> Where are you located? The good part of your situation (if any of us in the

> A-Club can say anything is good about this horrible disease) is that you got

> the diagnosis early. As a result you have less to teach to catch him up

> after you help him medically. Please know your son can get better with

> proper medical treatment and then rehabilitation. Autism is a treatable

> disease and not a developmental or a psychiatric disorder. It is a medical

> condition where those affected have immune systems that are not working

> properly. No parent should accept that their child cannot be helped. My

> son (now 22) is living proof that kids can get better.

>

> was diagnosed when he was four years old. A psychiatrist who was the

> leading authority on autism said my child would never be okay. According to

> this expert, was going to end up in an institution or group home. But

> she was wrong. The only institution attended was Santa Clara

> University where he studied mechanical engineering on a merit scholarship.

> He graduated this June and did a paid summer internship with NASA. They are

> paying his graduate school too. excels academically and is in the

> Engineering Honor Society (top 10% GPA). He's a member of Sigma Chi

> Fraternity and was president of the Jewish Student Association. But more

> importantly, is a typical college student who drinks an occasional

> beer, goes on dates, stays out too late with friends and then sleeps through

> eight o'clock classes. I couldn't be more proud!

>

> Unbelievable as it seems, this is the same child who wanted to spend all

> day, every day, plugging in a portable radio into each outlet in the house.

> Back then, I wasn't sure if I had the strength to be more stubborn than my

> son. There were mornings I didn't want to get out of bed to face another

> day filled with autism. The worst times were when I didn't have a direction

> or a plan. I was hanging onto my sanity by my fingernails. But, at the end

> of the day, I was faced with a choice: let drift off forever into his

> own world, or drag him kicking and screaming into ours.

>

> After we helped medically, it was possible for him to learn.

> Behavioral and educational interventions were used in conjunction with the

> medical treatment to catch up on everything he missed. Initially, we

> used Applied Behavior Analysis (ABA) for his rehabilitation and when he was

> ready we moved towards more natural ways of teaching. It took years to

> correct 's deficits in speech and social skills. It was almost like

> taking a stroke victim and bringing them back. And I am convinced that the

> ABA would not have worked as well without the medical component and vice

> versa. Our story is not about coping with autism, but rather fighting back

> and not accepting the misconceptions associated with this diagnosis. This

> process is definitely not for sissies or parents looking for that magic

> cure.

>

>

>

> Please email me privately if you want me to forward you info on the medical

> and how to get in touch with Dr. Goldberg, Dr. , or the Northern New

> York Autism Clinic.

>

>

>

> Best,

>

> Marcia Hinds

>