Mito Action Call --Autism and Mitochondrial Disease

October 11, 2011

Do you have specific questions about the connection between autism and

mitochondrial disease? Are you looking for support and accurate information?

Please join MitoAction on Tuesday, October 11, 2011 at 12:30 p.m. (Eastern Time)

for an informal discussion where callers will have an opportunity to ask their

questions, meet other families with diagnosed children and gain valuable

information.

If you would like to submit your question(s) for the call in advance, they can

be e-mailed to Autism@....

The following people will be on the call:

Cristy Balcells, the director of MitoAction, a nurse, and mother of a daughter

diagnosed with Leigh's Disease.

Kathy Rivers, a pediatrician and mother of 3 children diagnosed with Mito. Her

son was also diagnosed with autism but he is no longer labeled ASD.

Alyssa Davi, advocate and mother of two boys diagnosed with Mito. Both her

children have caught up developmentally on the " mito cocktail. "

Calls on the link between ASD and mitochondrial disease take place every second

Tuesday of the month at 12:30 pm EST. To participate in this resource-share by

telephone, please call 1- and enter code 017921# at the prompt. For

the most up-to-date topics and to read about past calls, please see the CALLS

link on the left.

This meeting will be recorded and posted on MitoAction along with a summary

following the meeting. To find summaries from other presentations, visit

All are welcome. Please feel free to forward this announcement to other

interested families.

For more information on mitochondrial disease and autism, please visit

Email your questions to:

Autism@...

October 11, 2011

I missed this today...anyway I can get the notes from the call? My 12 yo son's

new doctor was reviewing some old lab tests and discovered something of great

interest to me...

On an Organic Acids test done in 2003, his ACONITIC levels were way high, in

addition to his 2-oxyglutaric acid levels. The doctor mentioned that the

excessive ACONITIC could represent a mitochondrial disease.

Just wondering if anyone else is familiar with this?

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