i have a daughter, 18yo, w/charge

[Guest guest]

I have a daughter, 18yo w/charge. She goes to deaf school. She has

some additional problems. I worry about her future. She is aware of

some things but will always have problems with others. If anyone has

an older child it would be great for me. She has some brain damage

from birth,it affects all her math abilities(money, bills...) she is

prof deaf, has a cochlear implant, it gives her hearing, but no

useable speech, she takes meds for hormones, and she will need another

open heart surg. this spring for tet. any info would be greatly

appreciated. thanks so much

[Guest guest]

Hi, welcome to the list! Glad you found us; I look forward to hearing more

about your daughter. My daughter is only 8 so we haven't encountered the

adult issues yet, but I know there are many on the list who are very

interested in them. There was a paper published recently about Adult Issues

in CHARGE Syndrome. Please email at kawfolks@... and I'll send you a

copy.

http://www.chargesyndrome.info

>

> I have a daughter, 18yo w/charge. She goes to deaf school. She has

> some additional problems. I worry about her future. She is aware of

> some things but will always have problems with others. If anyone has

> an older child it would be great for me. She has some brain damage

> from birth,it affects all her math abilities(money, bills...) she is

> prof deaf, has a cochlear implant, it gives her hearing, but no

> useable speech, she takes meds for hormones, and she will need another

> open heart surg. this spring for tet. any info would be greatly

> appreciated. thanks so much

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Hiya!

My name is Chip Dixon, I'm 27 yrs old mild CHARGEr from Los Angeles,

California. I got a couple of friends that went to/still goes tot the deaf

school of Riverside, and half of them got CHARGE too!

I also got Growth Hormone Defiency, slow weight gain, and also slow puberty

too! (I'm around 5.6 ft tall, currently weighing around 85 lbs, more or less.

But, I look more like a teenager than an adult). I'm hard of hearing and near

sighted too. What is your name and your daughter name? What is the name of that

deaf school? Which states are you guys from?

I also got the same problems with math and bill skills too! I don't know if I

got some kind of learning disability or not, but I do know there are stuff I'm

not good at (like math for example), I also like to draw and color (most of my

drawings looks like children or cartoon drawings, lol), I like reading and

typing stories too!

You can email me at: k9_Charger@... and also at:

K9_Charger@... Keep in touch, take care!

Chip

dolphinp24 wrote:

I have a daughter, 18yo w/charge. She goes to deaf school. She has

some additional problems. I worry about her future. She is aware of

some things but will always have problems with others. If anyone has

an older child it would be great for me. She has some brain damage

from birth,it affects all her math abilities(money, bills...) she is

prof deaf, has a cochlear implant, it gives her hearing, but no

useable speech, she takes meds for hormones, and she will need another

open heart surg. this spring for tet. any info would be greatly

appreciated. thanks so much

---------------------------------

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

i am 21 one year old charger does ru daughter have msn or yahoo messanger

coz i guess your saying that older chargers could help her with friend

making im ellenhowe@... is msn and ;yahoo is howeellen xxxxxxxx

>

> Hiya!

> My name is Chip Dixon, I'm 27 yrs old mild CHARGEr from Los Angeles,

> California. I got a couple of friends that went to/still goes tot the deaf

> school of Riverside, and half of them got CHARGE too!

> I also got Growth Hormone Defiency, slow weight gain, and also slow

> puberty too! (I'm around 5.6 ft tall, currently weighing around 85 lbs,

> more or less. But, I look more like a teenager than an adult). I'm hard of

> hearing and near sighted too. What is your name and your daughter name? What

> is the name of that deaf school? Which states are you guys from?

> I also got the same problems with math and bill skills too! I don't know

> if I got some kind of learning disability or not, but I do know there are

> stuff I'm not good at (like math for example), I also like to draw and color

> (most of my drawings looks like children or cartoon drawings, lol), I like

> reading and typing stories too!

> You can email me at: k9_Charger@... <k9_Charger%40yahoo.com> and

> also at: K9_Charger@... <K9_Charger%40e-garfield.com> Keep in

> touch, take care!

> Chip

> dolphinp24 <dolphinp24@... <dolphinp24%40yahoo.com>> wrote:

> I have a daughter, 18yo w/charge. She goes to deaf school. She has

> some additional problems. I worry about her future. She is aware of

> some things but will always have problems with others. If anyone has

> an older child it would be great for me. She has some brain damage

> from birth,it affects all her math abilities(money, bills...) she is

> prof deaf, has a cochlear implant, it gives her hearing, but no

> useable speech, she takes meds for hormones, and she will need another

> open heart surg. this spring for tet. any info would be greatly

> appreciated. thanks so much

>

>

> ---------------------------------

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone call

> rates.

>

>