Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 My dd has been GF/CF/SF for 2 solid years. Quite a lot has happened over this time. The diet was our 'first' intervention, I did see more clarity when we pulled, and her eating did get better. Well, I have to cut back money wise here. I am not Sally Scratch cooker- we eat well here, but the grocery bill is killing me. We now are at my dd's core problem/treatment, Lyme. We will be at it for 2 years, probably. She is 6, and tired of it, too. We have done a lot of bio-med in the 2 years, she has come a long way- in normal school grade 1, etc. What has been your experience going off? The world exploded? All the testing lately has come back gluten 0, of course, she isn't eating any. Furthermore, we have to keep her on digestive enzymes, anyway! $$ I don't know what to do...I have been so militant about it for so long. Of course, I asked our LLMD, he says keep her on the diet. Well, yeah, I expected he would say that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Pls keep her on diet, I even suggest a better one, Gaps, look up Gaps.me Sent from my iPhone My dd has been GF/CF/SF for 2 solid years. Quite a lot has happened over this time. The diet was our 'first' intervention, I did see more clarity when we pulled, and her eating did get better. Well, I have to cut back money wise here. I am not Sally Scratch cooker- we eat well here, but the grocery bill is killing me. We now are at my dd's core problem/treatment, Lyme. We will be at it for 2 years, probably. She is 6, and tired of it, too. We have done a lot of bio-med in the 2 years, she has come a long way- in normal school grade 1, etc. What has been your experience going off? The world exploded? All the testing lately has come back gluten 0, of course, she isn't eating any. Furthermore, we have to keep her on digestive enzymes, anyway! $$ I don't know what to do...I have been so militant about it for so long. Of course, I asked our LLMD, he says keep her on the diet. Well, yeah, I expected he would say that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Thanks for the reply. I've worked and worked on her gut for over 2 years, and have had lots of testing done. We are in pretty good shape except for Lyme and possible mold, which will probably take another 2 years, and everything that goes with that, lots of detox. I am not leaning to another special diet... > > > My dd has been GF/CF/SF for 2 solid years. Quite a lot has happened over this time. The diet was our 'first' intervention, I did see more clarity when we pulled, and her eating did get better. > > > > Well, I have to cut back money wise here. I am not Sally Scratch cooker- we eat well here, but the grocery bill is killing me. > > We now are at my dd's core problem/treatment, Lyme. We will be at it for 2 years, probably. > > She is 6, and tired of it, too. We have done a lot of bio-med in the 2 years, she has come a long way- in normal school grade 1, etc. > > > > What has been your experience going off? The world exploded? > > All the testing lately has come back gluten 0, of course, she isn't eating any. > > Furthermore, we have to keep her on digestive enzymes, anyway! $$ > > > > I don't know what to do...I have been so militant about it for so long. Of course, I asked our LLMD, he says keep her on the diet. Well, yeah, I expected he would say that. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Hi, Try it one food at a time, so you know the effect. We also triedGFCF diet for one and 1/2 years but no positive effect for us. Gave my daughter gluten food at a time so you know how it affects her. In my opinion, gluten first (thinking of a more NIDS diet but not so familiarwith it) then probably later casein. Don't do both at the same time.Let her body adjust. Take notes. Now, my daughter is enjoying some gluten (he-he-he) butprobably our situation is different since we did not have anybig effect from the start. Very good idea to continue yourdigestive enzymes. God bless you and your family. Hoping for your success, MhelTo: mb12valtrex From: sarahsu9@...Date: Wed, 12 Oct 2011 23:50:58 +0000Subject: Re: Going off GF/CF Thanks for the reply. I've worked and worked on her gut for over 2 years, and have had lots of testing done. We are in pretty good shape except for Lyme and possible mold, which will probably take another 2 years, and everything that goes with that, lots of detox. I am not leaning to another special diet... > > > My dd has been GF/CF/SF for 2 solid years. Quite a lot has happened over this time. The diet was our 'first' intervention, I did see more clarity when we pulled, and her eating did get better. > > > > Well, I have to cut back money wise here. I am not Sally Scratch cooker- we eat well here, but the grocery bill is killing me. > > We now are at my dd's core problem/treatment, Lyme. We will be at it for 2 years, probably. > > She is 6, and tired of it, too. We have done a lot of bio-med in the 2 years, she has come a long way- in normal school grade 1, etc. > > > > What has been your experience going off? The world exploded? > > All the testing lately has come back gluten 0, of course, she isn't eating any. > > Furthermore, we have to keep her on digestive enzymes, anyway! $$ > > > > I don't know what to do...I have been so militant about it for so long. Of course, I asked our LLMD, he says keep her on the diet. Well, yeah, I expected he would say that. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 I would suggest you look into organic grains and be very minimal.But there is the NIDS diet that Dr. G uses. He supports white " squishy " bread I think, NOT whole grain.Another thing you could try explaining to her depending on her ability to do so... chew the grain, whatever it is, as much as possible. The digestion of starch begins in the salivary glands and the more you can get her to chew the grain before swallowing, I think that would be best. Thanks for the reply. I've worked and worked on her gut for over 2 years, and have had lots of testing done. We are in pretty good shape except for Lyme and possible mold, which will probably take another 2 years, and everything that goes with that, lots of detox. I am not leaning to another special diet...-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Thanks everyone. I think I will go super slow with enzymes, and see what happens. I certainly know how to go back if we need too- Thanks again. > > > ** > > > > > > Thanks for the reply. I've worked and worked on her gut for over 2 years, > > and have had lots of testing done. We are in pretty good shape except for > > Lyme and possible mold, which will probably take another 2 years, and > > everything that goes with that, lots of detox. > > I am not leaning to another special diet... > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 In our case, my kid had been in GF/CF diet since 2005. Here in México, thos meals are imported, normally from US, but we change some ingredients with local options: - My kid loves corn tortillas (soft and in chips). Here in Mexico is a normal meal, so the price is $4 usd per pound. Also, the tortillas have the calcium required instead the dairy products.- Another local food are beans (boiled and smashed beans). With corn tortilla beans and chips is a good option. (no more than 4 USD per pound).- Grilled beef steaks and chicken. (Here in Mexico, we bought it in 5 USD per package).- My kid also loves meat tacos (fried or soft), of course, without cheese.- Fried fish like tilapia (3 USD per pound).-The rice bread and the corn pasta are the most expansive items that we buy, but for us is neccessary (we can spend almost 100 USD, but we manage that food during a month).- Rice milk is a good substitute. (3 USD per liter).- In some bakeries, we can find corn cookies (1 USD per 4 cookies). Here in Mexico in the local supermarkets we found chicken breast breaded with tapioca flour, is a good substitute in order to have variety in the meals. It´s a little bit expensive (9 USD), but we frozen it and lasts at least 7 days. But I guess that those recipe can be done at home using tapioca flour. I hope that those tips will be usefull for you.De: sarahsu9 Para: mb12valtrex Enviado: Miércoles, octubre 12, 2011 3:50 P.M.Asunto: Going off GF/CF My dd has been GF/CF/SF for 2 solid years. Quite a lot has happened over this time. The diet was our 'first' intervention, I did see more clarity when we pulled, and her eating did get better. Well, I have to cut back money wise here. I am not Sally Scratch cooker- we eat well here, but the grocery bill is killing me. We now are at my dd's core problem/treatment, Lyme. We will be at it for 2 years, probably. She is 6, and tired of it, too. We have done a lot of bio-med in the 2 years, she has come a long way- in normal school grade 1, etc. What has been your experience going off? The world exploded? All the testing lately has come back gluten 0, of course, she isn't eating any. Furthermore, we have to keep her on digestive enzymes, anyway! $$ I don't know what to do...I have been so militant about it for so long. Of course, I asked our LLMD, he says keep her on the diet. Well, yeah, I expected he would say that. Quote Link to comment Share on other sites More sharing options...
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