Re: / reply to 'spost to group

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, I found Copaxone very helpful, having succeeded withRebif, Betaseron, Avonex. But, it turned out that Copaxone hasan INactive ingredient to which I am wildly allergic, a small cellsignalling sugar called Mannitol; had to give it up. I have peripheral neuropathy and some intermittent cramping, but can manage.I wish you every success so that you can be home!Love to you and to all of us here coping with our "Multiple Surprises!"n, diagnosed at age 19 by Roy Swank, M.D.--still here at 73. . .To: MSersLife Sent: Thu, August 5, 2010 7:49:47 AMSubject: Re:

As usual, the docs are sitting there scratching their heads. For example, I have no reflexes, yet spasms that are driving me nuts. This is definitely an MS episode...probably from the C6-7 lesion that I have, among others. It doesn't help the TM though, since that was basically a symp t om of MS...everything that I had gained over a year is now gone. I can get a bit of tow movement on a good day, but that's all.

They are doing physio with me. They asked me today what my goals were (must have been chatting with ppl at the rehab hospital) and I told them that I needed to transfer and bed mobility...the minimum to get home and the rest I can work out with homecare.

My neuro send another neuro for a second opinion. She thinks that my diabetes is playing a part, but the spasms aren't only in the feet, they are also in my thighs. I'm going to go onto Copaxone after discharge. Tried Betaseron and it didn't work. To be able to get onto Tysabri, I have to have also tried Copaxone, so told my neuro that I wanted to get it over with so that I could get onto Tysabri.

Join us on our homeschooling adventure! http://www.practica l-homeschooling. org

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I'm so sorry you've been having such a difficult time lately. So glad your dad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier.

How bout after you feel well enough, we temporarily move to Sask? How I wish we really could ... hugs, Cait