Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. Here is what we have done and are doing so far: - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. - 1.5 large scoops of Custom Probiotics/day - Building up dose on Enhansa - Vitamin D3 - Selenium - Buffered C - MB12 injections - transdermal glutathione - EPA/DHA supplement - folinic acid So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. Just wanted to get everyone's thoughts on whether there is anything else that you would do. This just makes me sick to my stomach! Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Oh...we are also doing NAET treatments. I forgot about that one. > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > Here is what we have done and are doing so far: > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > - 1.5 large scoops of Custom Probiotics/day > - Building up dose on Enhansa > - Vitamin D3 > - Selenium > - Buffered C > - MB12 injections > - transdermal glutathione > - EPA/DHA supplement > - folinic acid > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > This just makes me sick to my stomach! > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 It sounds like you are on the ball with biomed. I also encourage you to continue to engage him with fun,playful interactions. Model gesturing and facial expressions, as well as lots of labelling. You may need to be a bit exaggerated. This will greatly support his language system. Sounds like you have really good instincts. Be kind to yourself. You are doing all you can and this is not your fault. Your kids have a great mom. RuthSent from my iPhone My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and "all done"). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very "on the go" like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. Here is what we have done and are doing so far: - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. - 1.5 large scoops of Custom Probiotics/day - Building up dose on Enhansa - Vitamin D3 - Selenium - Buffered C - MB12 injections - transdermal glutathione - EPA/DHA supplement - folinic acid So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. Just wanted to get everyone's thoughts on whether there is anything else that you would do. This just makes me sick to my stomach! Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 My son's ADHD seems related to B6 and other B vits. We started him on high dose B6 after a year of biomed, just because our OAT showed low B6. Anyway, his ADHD has cleared up since we started on a bunch of B vits, with magnesium. I am kicking myself for not trying more basic things first LOL b/c we were going all over the place with supplements and regular old B6 + magnesium are making a difference... we just didn't have a good dose before. Also, you might want to check cu/zn levels. Magnesium, zinc and melatonin might make a huge difference in the sleep anddaily mood. Â My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. Here is what we have done and are doing so far: - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. - 1.5 large scoops of Custom Probiotics/day - Building up dose on Enhansa - Vitamin D3 - Selenium - Buffered C - MB12 injections - transdermal glutathione - EPA/DHA supplement - folinic acid So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. Just wanted to get everyone's thoughts on whether there is anything else that you would do. This just makes me sick to my stomach! Thanks, -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Get as much Early Intervention services as you can before your kid turns 3. You still have time. Find out which agency implements Early Intervention in your area. Fight for a lot of hours. We were only given 2.5 hours a week at the beginning, which after we complained, was increased to 21 hours a week, which is a huge jump. By the time we went for Early Intervention, my daughter was 2.5, and she was delayed in all areas more than 50%. Early Intervention folks told us your kid only needs to be delayed 20% in any one area to qualify. They observe your kid and determine this. I didn't even know something like Early Intervention existed. I saw an article in the newspaper is how I found out. Neither the daycare people nor the pediatrician told us and they all knew about Early Intervention and that my daughter was delayed. With early intervention, my daughter has made a ton of progress. She is 3 years 3 months old now. Last night watching her therapies, and seeing her answer questions like " show me something we wear " , " show me something that keeps our food cold " , etc. all accurately almost made me cry with happiness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Oh yeah, for sure definitely get these services! Don't try to do everything with biomed!!! I believe in it 100% but OMG I wish we had not waited on trying to get him screened for speech. Now his speech is " only a year behind " they say and he's super smart so we can't get the school to give us therapies he needs. PITA! Â Get as much Early Intervention services as you can before your kid turns 3. You still have time. Find out which agency implements Early Intervention in your area. Fight for a lot of hours. We were only given 2.5 hours a week at the beginning, which after we complained, was increased to 21 hours a week, which is a huge jump. By the time we went for Early Intervention, my daughter was 2.5, and she was delayed in all areas more than 50%. Early Intervention folks told us your kid only needs to be delayed 20% in any one area to qualify. They observe your kid and determine this. I didn't even know something like Early Intervention existed. I saw an article in the newspaper is how I found out. Neither the daycare people nor the pediatrician told us and they all knew about Early Intervention and that my daughter was delayed. With early intervention, my daughter has made a ton of progress. She is 3 years 3 months old now. Last night watching her therapies, and seeing her answer questions like " show me something we wear " , " show me something that keeps our food cold " , etc. all accurately almost made me cry with happiness. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 We just added zinc too. I forgot that one too. He mouths things a lot too so we are hoping it will help with that. Will consider magnesium. Thanks! > > > ** > > > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old > > boy) has mild autism (actually he probably wouldn't qualify for diagnosis > > any more). We have done biomed since he was just under 3 and he has made > > slow but sure progress. He is now mainstreamed in Kindergarten with no IEP > > and no accomodations. He still shows signs of ADD and a bit of anxiety but > > we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural > > delivery with no drugs at all. No pitocin, no epidural, nothing. He has not > > been vaccinated at all. We eat as clean of a diet as possible and organic > > when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had > > appendicitis and had to have an emergency appendectomy. I was nursing and > > had to pump/dump the milk for 1.5 days. I followed what the doctor told me > > to do and did the best that I could. DS got frozen milk until it ran out and > > then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still > > seemed good. Then around 8-9 months we started getting concerned that his > > gross motor development wasn't where it should be. We went ahead and made an > > appointment with our DAN and got started on a few things. I think we were > > still in denial at that point that there was really a problem and didn't act > > very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems > > ok (walked at 13 months) and fine motor seems fine but speech is delayed. He > > only says 2 words (dada and " all done " ). Sleep is still a problem. He goes > > to sleep easily but then wakes multiple times at night. He is fussy during > > the day (probably due to lack of good sleep). He is VERY picky with eating. > > He is not pointing or clapping and only very rarely waves. He does engage > > and has good eye contact but is very " on the go " like my oldest son was at > > this age. He has a hard time sitting with you to do something and doesn't > > want to be held long. He will come up to want to be held but as soon as we > > pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I > > worry that I have lost precious time. I think I was just in denial that > > things could go wrong when I did everything right. That damn surgery! I > > really think something went wrong there. Not sure if the antibiotics that I > > received got in my milk and caused gut dysbiosis or what. Or maybe the > > formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no > > change in behavior/development. We just started a course of Diflucan so we > > will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for > > his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else > > that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > > > > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 EI is a waste of time in our county. They have cut back more and more each year. Every child only gets one hour of in-home therapy total (ST, OT, PT) regardless of level of disability. It is very hard to qualify too. My 3 year old daughter who has Down syndrome only got one hour despite our trying to fight for more. We would be better just going for private services. > > > ** > > > > > > Get as much Early Intervention services as you can before your kid turns 3. > > You still have time. Find out which agency implements Early Intervention in > > your area. Fight for a lot of hours. We were only given 2.5 hours a week at > > the beginning, which after we complained, was increased to 21 hours a week, > > which is a huge jump. By the time we went for Early Intervention, my > > daughter was 2.5, and she was delayed in all areas more than 50%. Early > > Intervention folks told us your kid only needs to be delayed 20% in any one > > area to qualify. They observe your kid and determine this. I didn't even > > know something like Early Intervention existed. I saw an article in the > > newspaper is how I found out. Neither the daycare people nor the > > pediatrician told us and they all knew about Early Intervention and that my > > daughter was delayed. With early intervention, my daughter has made a ton of > > progress. She is 3 years 3 months old now. Last night watching her > > therapies, and seeing her answer questions like " show me something we wear " , > > " show me something that keeps our food cold " , etc. all accurately almost > > made me cry with happiness. > > > > > > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Your apendicitis, the timing of his regression, and his night wakings speak largely of parasites. Looking for/treating for parasites is one thing that I don't see in what you are already doing. Parasites are more active between 2 and 4 in the morning. During this time also, histamine release resulting from the parasite activity is highest. Histamine is an excitatory neurotransmitter. Histamine and the other neurotransmitters released from gut lining (and brain, lung, and bladder) cells cause daytime irritability and the hyperactivity typically associated with ADHD. If you also have noticed a drop in 'loving' behavior- cuddling, wanting to be held, walking up without prompting to give hugs, this is another symptom we have found to be typically associated with parasite flares. Add in aggressively not wanting to share toys, craving just carbs and protein for food, and growing tactile sensitivity, and the whole suite really speaks parasites. The best test the we had for parasites was Metamatrix Stool effects. This looks for the DNA for parasites. It is an excellent and very respected stool sample test and any Naturopath should be happy to order it. http://www.metametrix.com/test-menu/profiles/gastrointestinal-function/dna-stool\ -analysis-gi-effects Our daughter's test showed up 'parasite of unknown taxonomy' repeatedly. We did not take this as seriously as we should have (notr did her doctor) and she eventually had significant cognitive regressions. The more we treat for parasites, the better she gets. There seem to be a plethora of options when treating for parasites. We started with just an herbal treatment because of significant allergies. We used Wormwood and Chanca Piedra. Please dive into research yourself, but just as a head's up while doing parasite cleanses it is also important to support the detox pathways by drinking a lot, making sure your child has daily BM's, and adding in at least silymarin (milk thistle). Great threads have been ongoing here about success with Humaworm, an herbal product from a small but dedicated company. This can be found online. There are also infant and children's syrup at Old Fashioned Spices- also online. We have found these not as effective, but gentler on our youngest daughter. For some reason, the significant effect of parasites on gut dysbiosis, and gut/neurological/bladder health in Autism has been underrecognized by many DAN doctors and ND's. In our experience, once we corrected any obvious atrocities in our food/environment/lifestyle, we were left in this painful in between world where our daughter had significant improvement, and even at times was neurotypical for brief fleeting moments, but would get snatched away at regular intervals. We could keep her in somewhat good shape with intensively limited diets, manual/physical/occupational therapies (including NAET) and a complex supplement regimen. But it was like walking on eggshells and going broke at the same time. Recognizing the role of parasites and viruses in Autism and all neurodegenerative disorders has been life changing for us. And while on our first round of Humaworm, we even got Mia back- to completely normal- for the longest period yet- 3 weeks. So our path has turned and we are going to focus solely on parasite and viral management now- supported by cleansing and supporting the detox pathways of the body (including chelating, but in a particular order). Of course we will continue to do the things that have been our crutches for years now, but I honestly see and feel that the path out is in addressing parasites and viruses. There have been recent threads on the work of Dr. Klinghardt, who is a pioneer in the most natural methods (although he does make us of some prescription meds) of doing this. I tried to Google 'parasite appendicitis' and to pull out one good article to post here, but there were so many I couldn't narrow it down. The first two listed were from NIH. So this is not far out science. Good luck!!!!!!! > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > Here is what we have done and are doing so far: > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > - 1.5 large scoops of Custom Probiotics/day > - Building up dose on Enhansa > - Vitamin D3 > - Selenium > - Buffered C > - MB12 injections > - transdermal glutathione > - EPA/DHA supplement > - folinic acid > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > This just makes me sick to my stomach! > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 I forgot to say also that our youngest, 22 months, started a few months ago with regression- stumbling all of the time, loss of the words she had started saying, aggression and metldowns, wanting to be held but getting angry at the feeling of being held- this came along with bowel problems so I (after losing my mind, please don't take another child!), started doing stool tests at home with a microscope and found all sorts of parasites. This is what led us to finding Humaworm. We treated her and besides some lingering gut issues, she is back to 'normal' and progressing. . . I can't say enough about treating parasites quickly and as a first measure. This is not a back burner issue. > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 - this is very interesting information. It got me thinking so I went and pulled out all of the 1st round of testing that we did after my son's 1st visit with our DAN. We actually ran a " Comprehensive Stool Analysis / Parasitology x3 " test from Doctor's Data and it showed no parasites. If parasites were an issue, would they have shown up on this test? Thanks, > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Tony, As it relates to my older son, this is very interesting. We actually took him off ALL B vitamins except for HB12 injections because we thought that the B vitamins were contributing to his hyperactivity. We started using Lee Silsby ASD multi with no B's. Just very recently we went back to the regular ASD multi. Could it be that he is actually too low in B6? My husband seems to remember that we may have tried B6 a long time ago but I don't remember. We've never done magnesium other than Epsom salt baths. Can I ask what does you use of B6 and magnesium? Oh...and right now my oldest son really seems to struggle with ADD...not so much the " H " . Focus and attention are really a problem. Thanks! > > > ** > > > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old > > boy) has mild autism (actually he probably wouldn't qualify for diagnosis > > any more). We have done biomed since he was just under 3 and he has made > > slow but sure progress. He is now mainstreamed in Kindergarten with no IEP > > and no accomodations. He still shows signs of ADD and a bit of anxiety but > > we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural > > delivery with no drugs at all. No pitocin, no epidural, nothing. He has not > > been vaccinated at all. We eat as clean of a diet as possible and organic > > when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had > > appendicitis and had to have an emergency appendectomy. I was nursing and > > had to pump/dump the milk for 1.5 days. I followed what the doctor told me > > to do and did the best that I could. DS got frozen milk until it ran out and > > then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still > > seemed good. Then around 8-9 months we started getting concerned that his > > gross motor development wasn't where it should be. We went ahead and made an > > appointment with our DAN and got started on a few things. I think we were > > still in denial at that point that there was really a problem and didn't act > > very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems > > ok (walked at 13 months) and fine motor seems fine but speech is delayed. He > > only says 2 words (dada and " all done " ). Sleep is still a problem. He goes > > to sleep easily but then wakes multiple times at night. He is fussy during > > the day (probably due to lack of good sleep). He is VERY picky with eating. > > He is not pointing or clapping and only very rarely waves. He does engage > > and has good eye contact but is very " on the go " like my oldest son was at > > this age. He has a hard time sitting with you to do something and doesn't > > want to be held long. He will come up to want to be held but as soon as we > > pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I > > worry that I have lost precious time. I think I was just in denial that > > things could go wrong when I did everything right. That damn surgery! I > > really think something went wrong there. Not sure if the antibiotics that I > > received got in my milk and caused gut dysbiosis or what. Or maybe the > > formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no > > change in behavior/development. We just started a course of Diflucan so we > > will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for > > his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else > > that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > > > > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 mb12 makes my son pretty scary. His bloodwork shows high b12 levels. He doesn't absorb it, has to do with intrinsic factor, etc. Stuff I don't completely understand. But basically we have him on a B vitamin cocktail that is high in everything but b12. It stinks b/c it is costly. I started writing a post on a new blog I made just to refer to our current protocol for him, because I have been telling everyone about how well he is doing. Let me see if I can type it up and post it. Â Tony, As it relates to my older son, this is very interesting. We actually took him off ALL B vitamins except for HB12 injections because we thought that the B vitamins were contributing to his hyperactivity. We started using Lee Silsby ASD multi with no B's. Just very recently we went back to the regular ASD multi. Could it be that he is actually too low in B6? My husband seems to remember that we may have tried B6 a long time ago but I don't remember. We've never done magnesium other than Epsom salt baths. Can I ask what does you use of B6 and magnesium? Oh...and right now my oldest son really seems to struggle with ADD...not so much the " H " . Focus and attention are really a problem. Thanks! > > > ** > > > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old > > boy) has mild autism (actually he probably wouldn't qualify for diagnosis > > any more). We have done biomed since he was just under 3 and he has made > > slow but sure progress. He is now mainstreamed in Kindergarten with no IEP > > and no accomodations. He still shows signs of ADD and a bit of anxiety but > > we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural > > delivery with no drugs at all. No pitocin, no epidural, nothing. He has not > > been vaccinated at all. We eat as clean of a diet as possible and organic > > when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had > > appendicitis and had to have an emergency appendectomy. I was nursing and > > had to pump/dump the milk for 1.5 days. I followed what the doctor told me > > to do and did the best that I could. DS got frozen milk until it ran out and > > then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still > > seemed good. Then around 8-9 months we started getting concerned that his > > gross motor development wasn't where it should be. We went ahead and made an > > appointment with our DAN and got started on a few things. I think we were > > still in denial at that point that there was really a problem and didn't act > > very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems > > ok (walked at 13 months) and fine motor seems fine but speech is delayed. He > > only says 2 words (dada and " all done " ). Sleep is still a problem. He goes > > to sleep easily but then wakes multiple times at night. He is fussy during > > the day (probably due to lack of good sleep). He is VERY picky with eating. > > He is not pointing or clapping and only very rarely waves. He does engage > > and has good eye contact but is very " on the go " like my oldest son was at > > this age. He has a hard time sitting with you to do something and doesn't > > want to be held long. He will come up to want to be held but as soon as we > > pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I > > worry that I have lost precious time. I think I was just in denial that > > things could go wrong when I did everything right. That damn surgery! I > > really think something went wrong there. Not sure if the antibiotics that I > > received got in my milk and caused gut dysbiosis or what. Or maybe the > > formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no > > change in behavior/development. We just started a course of Diflucan so we > > will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for > > his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else > > that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > > > > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 You know, I am so glad you shared this. The 3rd DAN doctor we saw, an MD in Denver, did the Doctor's Data test and parasites did not show up on ours. I could not get him to consider our history of tests. I stepped away from parasite treatment for a few months and we started on LDN. Fast forward about 6 months and our youngest, as I said, started with regression and bowel issues. I did the microscope samples in home. I found so many things in her stool. Then I did my Asperger's daughter, then the rest of us. Our stool samples were literally riddled with ascaris (roundworm) eggs and tapeworm eggs, among other things (we did all pass tapeworms). I did daily stool samples through Humaworm and for a couple of weeks after. Now I do it when I have the time, or there is an issue (behavioral or in eating or bowel habits), or when everything is going really well. I have noticed that definitely there are times when there is not sign of parasite in our stool. Then two days later there is a large egg laying event. I am talking a significant event, hundreds of eggs. Just before laying events there are often candida bursts as well. I have always heard that stool sample testing for parasites can be unreliable, and I can see why, from our experience. I do think personally that the Metamatrix test is better with parasite detection. Also, parasites tend to lay eggs within 4 days surrounding the full moon (honestly, this is not fairy magic talk. There is something physiological going on). So if you do want to do a test again, collect in this time frame. If you just want to do a 'try it and see' test of a good single supplement (to not confuse beneficial effects of other herbs or medications in a parasite cleanse that may not be related to treating the parasite), wormwood all on its own would be a good one to use. You should notice cognitive gains and less aggressive/hyperactive/sensory seeking within a few weeks. I know this is not as much of a 'known' as testing provides, but it is a more affordable approach. Whe we started on wormwood alone, my daughter immediately stopped 'mirror writing' and for the first time wrote the three letters she held onto through her regression, her name-Mia, in the right direction. > > > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > > > Here is what we have done and are doing so far: > > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > > - 1.5 large scoops of Custom Probiotics/day > > > - Building up dose on Enhansa > > > - Vitamin D3 > > > - Selenium > > > - Buffered C > > > - MB12 injections > > > - transdermal glutathione > > > - EPA/DHA supplement > > > - folinic acid > > > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > > > This just makes me sick to my stomach! > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Hmmm. Too late to try wormwood this full moon (since it just passed?)We've tried wormwood before but I didn't notice anything specifically, but I wasn't looking closely for things... Â You know, I am so glad you shared this. The 3rd DAN doctor we saw, an MD in Denver, did the Doctor's Data test and parasites did not show up on ours. I could not get him to consider our history of tests. I stepped away from parasite treatment for a few months and we started on LDN. Fast forward about 6 months and our youngest, as I said, started with regression and bowel issues. I did the microscope samples in home. I found so many things in her stool. Then I did my Asperger's daughter, then the rest of us. Our stool samples were literally riddled with ascaris (roundworm) eggs and tapeworm eggs, among other things (we did all pass tapeworms). I did daily stool samples through Humaworm and for a couple of weeks after. Now I do it when I have the time, or there is an issue (behavioral or in eating or bowel habits), or when everything is going really well. I have noticed that definitely there are times when there is not sign of parasite in our stool. Then two days later there is a large egg laying event. I am talking a significant event, hundreds of eggs. Just before laying events there are often candida bursts as well. I have always heard that stool sample testing for parasites can be unreliable, and I can see why, from our experience. I do think personally that the Metamatrix test is better with parasite detection. Also, parasites tend to lay eggs within 4 days surrounding the full moon (honestly, this is not fairy magic talk. There is something physiological going on). So if you do want to do a test again, collect in this time frame. If you just want to do a 'try it and see' test of a good single supplement (to not confuse beneficial effects of other herbs or medications in a parasite cleanse that may not be related to treating the parasite), wormwood all on its own would be a good one to use. You should notice cognitive gains and less aggressive/hyperactive/sensory seeking within a few weeks. I know this is not as much of a 'known' as testing provides, but it is a more affordable approach. Whe we started on wormwood alone, my daughter immediately stopped 'mirror writing' and for the first time wrote the three letters she held onto through her regression, her name-Mia, in the right direction. > > > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > > > Here is what we have done and are doing so far: > > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > > - 1.5 large scoops of Custom Probiotics/day > > > - Building up dose on Enhansa > > > - Vitamin D3 > > > - Selenium > > > - Buffered C > > > - MB12 injections > > > - transdermal glutathione > > > - EPA/DHA supplement > > > - folinic acid > > > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > > > This just makes me sick to my stomach! > > > > > > Thanks, > > > > > > > > > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Oh, since you've done an OAT, maybe send it to ARI researcher Owens - lwo@... so she can interpret it using her spreadsheet/database. She's got some specific formulas that were able to indicate the oxidative stress my kids were under and the severe B6 deficiency (that Great Plains completely missed) Her interpretation of that OAT has made the hugest difference in my kids thus far. :-) My son's ADHD seems related to B6 and other B vits. We started him on high dose B6 after a year of biomed, just because our OAT showed low B6. Anyway, his ADHD has cleared up since we started on a bunch of B vits, with magnesium. I am kicking myself for not trying more basic things first LOL b/c we were going all over the place with supplements and regular old B6 + magnesium are making a difference... we just didn't have a good dose before. Also, you might want to check cu/zn levels. Magnesium, zinc and melatonin might make a huge difference in the sleep anddaily mood. Â My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. Here is what we have done and are doing so far: - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. - 1.5 large scoops of Custom Probiotics/day - Building up dose on Enhansa - Vitamin D3 - Selenium - Buffered C - MB12 injections - transdermal glutathione - EPA/DHA supplement - folinic acid So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. Just wanted to get everyone's thoughts on whether there is anything else that you would do. This just makes me sick to my stomach! Thanks, -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 I give to my 18 month years old some B vitamins, Cod liver oil (nordic naturals sells one for baby) and transfer factor... Our DAN doctor told us that every children should get transfer factor. Take care Grace To: mb12valtrex Sent: Thursday, October 13, 2011 5:14 PMSubject: 15 month old showing signs of autism. What would you do? My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it.That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc.Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula.After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement.Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and "all done"). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very "on the go" like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again.I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know.Here is what we have done and are doing so far:- Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes.- 1.5 large scoops of Custom Probiotics/day- Building up dose on Enhansa- Vitamin D3- Selenium- Buffered C- MB12 injections- transdermal glutathione- EPA/DHA supplement- folinic acidSo we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month.Just wanted to get everyone's thoughts on whether there is anything else that you would do.This just makes me sick to my stomach! :(Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 I have to disagree. I don't know where you live but I live in Westchester county, NY. The school district that we live in is very small. My son has issues with speech and hyperactivity. He now goes to a special ed preschool. Comparing other kids in the school with autism, I can fairly say that my son has mild autism. When he was in EI, he got 15 hours of ABA, 3x45min of Speech at home and 3x30 mins of OT at the facility.Our service co-ordinator and now social worker working with us has strongly recommended us to stick around in this school district so that he keeps getting services. Living in this neighborhood is very very expensive and honestly, we can't afford it (as we almost end up making ends meet) but if its going to get our son services, so be it. Last week, there was a visit from the school district to my son's school to check on how he is doing, if he is in right program etc etc. After the visit, I got a call from the school district telling me that they are happy with his progress and the program he is in, plus to get in touch with them if I feel, my son needs more services,, I feel, at the end of the day, it all depends where you live and how well funded is your school district. If I drive down 5 miles from where I live, the school district is a disaster. May be you would like to check around if there are any good neighboring school districts or in extreme case.... move../ Noel  EI is a waste of time in our county. They have cut back more and more each year. Every child only gets one hour of in-home therapy total (ST, OT, PT) regardless of level of disability. It is very hard to qualify too. My 3 year old daughter who has Down syndrome only got one hour despite our trying to fight for more. We would be better just going for private services. > > > ** > > > > > > Get as much Early Intervention services as you can before your kid turns 3. > > You still have time. Find out which agency implements Early Intervention in > > your area. Fight for a lot of hours. We were only given 2.5 hours a week at > > the beginning, which after we complained, was increased to 21 hours a week, > > which is a huge jump. By the time we went for Early Intervention, my > > daughter was 2.5, and she was delayed in all areas more than 50%. Early > > Intervention folks told us your kid only needs to be delayed 20% in any one > > area to qualify. They observe your kid and determine this. I didn't even > > know something like Early Intervention existed. I saw an article in the > > newspaper is how I found out. Neither the daycare people nor the > > pediatrician told us and they all knew about Early Intervention and that my > > daughter was delayed. With early intervention, my daughter has made a ton of > > progress. She is 3 years 3 months old now. Last night watching her > > therapies, and seeing her answer questions like " show me something we wear " , > > " show me something that keeps our food cold " , etc. all accurately almost > > made me cry with happiness. > > > > > > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 The crazy thing is that we are in an excellent rated school district and services at preschool level and beyond are good. It is just EI that sucks. > > > > > > > ** > > > > > > > > > > > > > > Get as much Early Intervention services as you can before your kid > > turns 3. > > > > You still have time. Find out which agency implements Early > > Intervention in > > > > your area. Fight for a lot of hours. We were only given 2.5 hours a > > week at > > > > the beginning, which after we complained, was increased to 21 hours a > > week, > > > > which is a huge jump. By the time we went for Early Intervention, my > > > > daughter was 2.5, and she was delayed in all areas more than 50%. Early > > > > Intervention folks told us your kid only needs to be delayed 20% in any > > one > > > > area to qualify. They observe your kid and determine this. I didn't > > even > > > > know something like Early Intervention existed. I saw an article in the > > > > newspaper is how I found out. Neither the daycare people nor the > > > > pediatrician told us and they all knew about Early Intervention and > > that my > > > > daughter was delayed. With early intervention, my daughter has made a > > ton of > > > > progress. She is 3 years 3 months old now. Last night watching her > > > > therapies, and seeing her answer questions like " show me something we > > wear " , > > > > " show me something that keeps our food cold " , etc. all accurately > > almost > > > > made me cry with happiness. > > > > > > > > > > > > > > > > > > > > > > > > -- > > > Toni > > > > > > ------ > > > Mind like a steel trap... > > > Rusty and illegal in 37 states. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 I always say appendicitis is from parasites. It does not respond to antibiotics well and the appendix is part of the lymphatic system, a favorite pace for parasites and spirochetes to hide. > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 No. I have heard most parasites live outside of the digestive tract. > > > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and " all done " ). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very " on the go " like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > > > Here is what we have done and are doing so far: > > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > > - 1.5 large scoops of Custom Probiotics/day > > > - Building up dose on Enhansa > > > - Vitamin D3 > > > - Selenium > > > - Buffered C > > > - MB12 injections > > > - transdermal glutathione > > > - EPA/DHA supplement > > > - folinic acid > > > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > > > This just makes me sick to my stomach! > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 When my son was 17 months old we moved from Florida where my son received 1 hour of therapy a week to long island ny where he immediately got 40 hours of therapy a week through EI. It was worth moving for us. > > > > > > > > > ** > > > > > > > > > > > > > > > > > > Get as much Early Intervention services as you can before your kid > > > turns 3. > > > > > You still have time. Find out which agency implements Early > > > Intervention in > > > > > your area. Fight for a lot of hours. We were only given 2.5 hours a > > > week at > > > > > the beginning, which after we complained, was increased to 21 hours a > > > week, > > > > > which is a huge jump. By the time we went for Early Intervention, my > > > > > daughter was 2.5, and she was delayed in all areas more than 50%. Early > > > > > Intervention folks told us your kid only needs to be delayed 20% in any > > > one > > > > > area to qualify. They observe your kid and determine this. I didn't > > > even > > > > > know something like Early Intervention existed. I saw an article in the > > > > > newspaper is how I found out. Neither the daycare people nor the > > > > > pediatrician told us and they all knew about Early Intervention and > > > that my > > > > > daughter was delayed. With early intervention, my daughter has made a > > > ton of > > > > > progress. She is 3 years 3 months old now. Last night watching her > > > > > therapies, and seeing her answer questions like " show me something we > > > wear " , > > > > > " show me something that keeps our food cold " , etc. all accurately > > > almost > > > > > made me cry with happiness. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > -- > > > > Toni > > > > > > > > ------ > > > > Mind like a steel trap... > > > > Rusty and illegal in 37 states. > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Dontcha love Florida? :-( Â When my son was 17 months old we moved from Florida where my son received 1 hour of therapy a week to long island ny where he immediately got 40 hours of therapy a week through EI. It was worth moving for us. > > The crazy thing is that we are in an excellent rated school district and services at preschool level and beyond are good. It is just EI that sucks. >Â Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 I was just thinking that it may not be a bad idea to test for bacteria/viruses now. Like parasites, these are things that can be passed between family members and cause problems in all. In our family, this has certainly been the case and although they manifest differently in each, each person has developed some kind of health issues from these things. Ruth I forgot to say also that our youngest, 22 months, started a few months ago with regression- stumbling all of the time, loss of the words she had started saying, aggression and metldowns, wanting to be held but getting angry at the feeling of being held- this came along with bowel problems so I (after losing my mind, please don't take another child!), started doing stool tests at home with a microscope and found all sorts of parasites. This is what led us to finding Humaworm. We treated her and besides some lingering gut issues, she is back to 'normal' and progressing. . . I can't say enough about treating parasites quickly and as a first measure. This is not a back burner issue. > > > > My 3rd child (15 month old boy) has us concerned. My oldest (5 year old boy) has mild autism (actually he probably wouldn't qualify for diagnosis any more). We have done biomed since he was just under 3 and he has made slow but sure progress. He is now mainstreamed in Kindergarten with no IEP and no accomodations. He still shows signs of ADD and a bit of anxiety but we are still working on it. > > > > That being said...we knew the risks. So with baby #3, I had a natural delivery with no drugs at all. No pitocin, no epidural, nothing. He has not been vaccinated at all. We eat as clean of a diet as possible and organic when possible. All organics for cleaning products, personal care, etc. > > > > Things were going great until he was about 3 months old and I had appendicitis and had to have an emergency appendectomy. I was nursing and had to pump/dump the milk for 1.5 days. I followed what the doctor told me to do and did the best that I could. DS got frozen milk until it ran out and then had two bottles of formula. > > > > After that, he stopped sleeping as well at night. Otherwise, things still seemed good. Then around 8-9 months we started getting concerned that his gross motor development wasn't where it should be. We went ahead and made an appointment with our DAN and got started on a few things. I think we were still in denial at that point that there was really a problem and didn't act very aggressively with treatement. > > > > Fast forward to 15 months and now we are very concerned. Gross motor seems ok (walked at 13 months) and fine motor seems fine but speech is delayed. He only says 2 words (dada and "all done"). Sleep is still a problem. He goes to sleep easily but then wakes multiple times at night. He is fussy during the day (probably due to lack of good sleep). He is VERY picky with eating. He is not pointing or clapping and only very rarely waves. He does engage and has good eye contact but is very "on the go" like my oldest son was at this age. He has a hard time sitting with you to do something and doesn't want to be held long. He will come up to want to be held but as soon as we pick him up, he is squirming to get down again. > > > > I could just kick myself for not taking this more seriously sooner and I worry that I have lost precious time. I think I was just in denial that things could go wrong when I did everything right. That damn surgery! I really think something went wrong there. Not sure if the antibiotics that I received got in my milk and caused gut dysbiosis or what. Or maybe the formula triggered an allergy? I just don't know. > > > > Here is what we have done and are doing so far: > > - Did OAT which showed gut dysbiosis. Tried Nystatin at 9 months with no change in behavior/development. We just started a course of Diflucan so we will see how that goes. > > - 1.5 large scoops of Custom Probiotics/day > > - Building up dose on Enhansa > > - Vitamin D3 > > - Selenium > > - Buffered C > > - MB12 injections > > - transdermal glutathione > > - EPA/DHA supplement > > - folinic acid > > > > So we are getting going on things. We have follow up bloodwork to do for his DAN once he has been on Diflucan a month. > > > > Just wanted to get everyone's thoughts on whether there is anything else that you would do. > > > > This just makes me sick to my stomach! > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
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