Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 I hope all is well w/everyone!! I need help,we doing a walk ms team this year. Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see if anyone wanted to walk and boom-bam i had 7ppl. Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna go with tysabri,im nervous but if the bloodwork comes out negative theres no way i can ever get pml. so im praying. hugs to all.. shalonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Hey Shalonda....Good luck on the walk! I've never done one of those but I sure do wish you all kinds of luck. I think Debbi has done the walks for breast cancer perhaps.Let us know how your blood work turns out. Hopefully the Tysabri will turn the disease around for you like it did for Kate.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, January 27, 2011 6:21:52 PMSubject: hey everybody!! I hope all is well w/everyone!! I need help,we doing a walk ms team this year. Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see if anyone wanted to walk and boom-bam i had 7ppl. Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna go with tysabri,im nervous but if the bloodwork comes out negative theres no way i can ever get pml. so im praying. hugs to all..shalonda------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Thanks sharon! Im hoping so too. Im excited about walk too. Im getting out house..we're meeting up w/ old friends,trying to start support group for mid-agers living w/ ms. there's no support for us here. and how about MimSy is running rampart through the area i grew up in--its amazing!! I'll def keep you updated....hugs!!! SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: Re: hey everybody!!To: MSersLife Date: Thursday, January 27, 2011, 10:19 PM Hey Shalonda....Good luck on the walk! I've never done one of those but I sure do wish you all kinds of luck. I think Debbi has done the walks for breast cancer perhaps.Let us know how your blood work turns out. Hopefully the Tysabri will turn the disease around for you like it did for Kate.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, January 27, 2011 6:21:52 PMSubject: hey everybody!!I hope all is well w/everyone!! I need help,we doing a walk ms team this year. Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see if anyone wanted to walk and boom-bam i had 7ppl.Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna go with tysabri,im nervous but if the bloodwork comes out negative theres no way i can ever get pml. so im praying. hugs to all..shalonda------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Hey Shalonda, great to see you! I think it's fantasticyou're doing the walk. I don't know if you belong toa church, but that's where I got a lot of financialsupport when I kayaked across the Hudson for NMSS.Don't worry about Ty, it worked quite well for me, andI was on it for nearly 3 years. The only side effect I'dhave during the infusion was some chest tightening andmy BP would drop, but it really wasn't cause for alarm.You may not have ANY side effects at all; think I was inthe minority of having them.If you have any other questions about Tysabri or the MSwalk--ask away!love to you, KateTo: MSersLife Sent: Thu, January 27, 2011 8:21:52 PMSubject: hey everybody!! I hope all is well w/everyone!! I need help,we doing a walk ms team this year. Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see if anyone wanted to walk and boom-bam i had 7ppl. Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna go with tysabri,im nervous but if the bloodwork comes out negative theres no way i can ever get pml. so im praying. hugs to all.. shalonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 HEY KATE!! how r u & the family? You def played in my choice then when it got to the final min. tysabri is 38/mth & copax is 965/mth!! Really?? lol but my dr stands firmly by TY and i love him/ Im so excited about walk its bananas...ill def hit some churches-i dont have a church home,my mom is mtg. w/ her job vp now. far as i got was asking ppl if they were intrested,reg team name(WE ROCK MS),and purple shirts--lol! we're having mtg w/ppl sat. so besides that i nned any tips you have cuz i have no clue what im doin...hahaha SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: Re: hey everybody!!To: MSersLife Date: Friday, January 28, 2011, 8:12 AM Hey Shalonda, great to see you! I think it's fantasticyou're doing the walk. I don't know if you belong toa church, but that's where I got a lot of financialsupport when I kayaked across the Hudson for NMSS.Don't worry about Ty, it worked quite well for me, andI was on it for nearly 3 years. The only side effect I'dhave during the infusion was some chest tightening andmy BP would drop, but it really wasn't cause for alarm.You may not have ANY side effects at all; think I was inthe minority of having them.If you have any other questions about Tysabri or the MSwalk--ask away!love to you, Kate To: MSersLife Sent: Thu, January 27, 2011 8:21:52 PMSubject: hey everybody!! I hope all is well w/everyone!! I need help,we doing a walk ms team this year. Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see if anyone wanted to walk and boom-bam i had 7ppl.Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna go with tysabri,im nervous but if the bloodwork comes out negative theres no way i can ever get pml. so im praying. hugs to all..shalonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 If it's through the MS Society, there is a way to set up your own pledge page. It's really cool, and folks from far and wide can see your page. Just ask at the MSS. That is one way I got a lot of pledges; folks were able to view my 'mission', i.e. that I have MS and that is one big reason I kayaked the Hudson, to bring awareness. Just another thought.I like your team slogan, and purple shirts, well that's just cool!When you talk about the #s in regards to the meds, are you talking costs? Cuz Tysabri was well into the thousands for me. Plus the infusion suite where they do it, has charges as well. Hope like me, you have good insurance!love ya girl,KateTo: MSersLife Sent: Fri, January 28, 2011 10:13:59 AMSubject: Re: hey everybody!! HEY KATE!! how r u & the family? You def played in my choice then when it got to the final min. tysabri is 38/mth & copax is 965/mth!! Really?? lol but my dr stands firmly by TY and i love him/ Im so excited about walk its bananas...ill def hit some churches-i dont have a church home,my mom is mtg. w/ her job vp now. far as i got was asking ppl if they were intrested,reg team name(WE ROCK MS),and purple shirts--lol! we're having mtg w/ppl sat. so besides that i nned any tips you have cuz i have no clue what im doin...hahaha SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: Re: hey everybody!!To: MSersLife Date: Friday, January 28, 2011, 8:12 AM Hey Shalonda, great to see you! I think it's fantasticyou're doing the walk. I don't know if you belong toa church, but that's where I got a lot of financialsupport when I kayaked across the Hudson for NMSS.Don't worry about Ty, it worked quite well for me, andI was on it for nearly 3 years. The only side effect I'dhave during the infusion was some chest tightening andmy BP would drop, but it really wasn't cause for alarm.You may not have ANY side effects at all; think I was inthe minority of having them.If you have any other questions about Tysabri or the MSwalk--ask away!love to you, Kate To: MSersLife Sent: Thu, January 27, 2011 8:21:52 PMSubject: hey everybody!! I hope all is well w/everyone!! I need help,we doing a walk ms team this year. Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see if anyone wanted to walk and boom-bam i had 7ppl.Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna go with tysabri,im nervous but if the bloodwork comes out negative theres no way i can ever get pml. so im praying. hugs to all..shalonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 Hi-I am newly on Tysabri. I am curious about the " bloodtest " that can tell u that u are not at risk to " ever get PML? ty Sherri > > Hey Shalonda, great to see you! I think it's fantastic > you're doing the walk. I don't know if you belong to > a church, but that's where I got a lot of financial > support when I kayaked across the Hudson for NMSS. > Don't worry about Ty, it worked quite well for me, and > I was on it for nearly 3 years. The only side effect I'd > have during the infusion was some chest tightening and > my BP would drop, but it really wasn't cause for alarm. > You may not have ANY side effects at all; think I was in > the minority of having them. > If you have any other questions about Tysabri or the MS > walk--ask away! > love to you, Kate > > > > > > ________________________________ > > To: MSersLife > Sent: Thu, January 27, 2011 8:21:52 PM > Subject: hey everybody!! > > > I hope all is well w/everyone!! I need help,we doing a walk ms team this year. > Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see > if anyone wanted to walk and boom-bam i had 7ppl. > Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna > go with tysabri,im nervous but if the bloodwork comes out negative theres no way > i can ever get pml. so im praying. hugs to all.. > shalonda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 Hi SherriHow's it going with the Tysabri? When did you start it? How are your symptoms? hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sat, January 29, 2011 11:42:45 AMSubject: Re: hey everybody!! Hi-I am newly on Tysabri. I am curious about the "bloodtest" that can tell u that u are not at risk to "ever get PML? ty Sherri>> Hey Shalonda, great to see you! I think it's fantastic> you're doing the walk. I don't know if you belong to> a church, but that's where I got a lot of financial> support when I kayaked across the Hudson for NMSS.> Don't worry about Ty, it worked quite well for me, and> I was on it for nearly 3 years. The only side effect I'd> have during the infusion was some chest tightening and> my BP would drop, but it really wasn't cause for alarm.> You may not have ANY side effects at all; think I was in> the minority of having them.> If you have any other questions about Tysabri or the MS> walk--ask away!> love to you, Kate> > > > > > ________________________________> > To: MSersLife > Sent: Thu, January 27, 2011 8:21:52 PM> Subject: hey everybody!!> > > I hope all is well w/everyone!! I need help,we doing a walk ms team this year. > Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see > if anyone wanted to walk and boom-bam i had 7ppl.> Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna > go with tysabri,im nervous but if the bloodwork comes out negative theres no way > i can ever get pml. so im praying. hugs to all..> shalonda>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 hi sherri! Apparently PML is caued by jc or jv virus(cant recall letters-sorry) Most ppl have virus haskids its treated and goes away. but sometimes just the sysptoms do. If the bloodtest shows you have no trace of virus then per my dr & the tysabri ppl you can never get PML. I think its a specific bloodtest cuz tysabri is paying for like 10,000?. SHALONDA "Me + God's grace & forgiveness can overcome any & everything" Subject: Re: hey everybody!!To: MSersLife Date: Saturday, January 29, 2011, 1:42 PM Hi-I am newly on Tysabri. I am curious about the "bloodtest" that can tell u that u are not at risk to "ever get PML? ty Sherri>> Hey Shalonda, great to see you! I think it's fantastic> you're doing the walk. I don't know if you belong to> a church, but that's where I got a lot of financial> support when I kayaked across the Hudson for NMSS.> Don't worry about Ty, it worked quite well for me, and> I was on it for nearly 3 years. The only side effect I'd> have during the infusion was some chest tightening and> my BP would drop, but it really wasn't cause for alarm.> You may not have ANY side effects at all; think I was in> the minority of having them.> If you have any other questions about Tysabri or the MS> walk--ask away!> love to you, Kate> > > > > > ________________________________> > To: MSersLife > Sent: Thu, January 27, 2011 8:21:52 PM> Subject: hey everybody!!> > > I hope all is well w/everyone!! I need help,we doing a walk ms team this year. > Its april 30th in akron,oh. Has anyone done this? I posted question on FB to see > if anyone wanted to walk and boom-bam i had 7ppl.> Any hints,tips,suggestion would be greatly appreciated! OOhh...im probably gonna > go with tysabri,im nervous but if the bloodwork comes out negative theres no way > i can ever get pml. so im praying. hugs to all..> shalonda> Quote Link to comment Share on other sites More sharing options...
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