Re: anyone heard from Donna in PA?

[Guest guest]

The appointment is actually this afternoon... I was just getting ready

to let you know that I would let you know what he has to say....

Sure would be nice to stop feeling like my panties are in a twist...

specially when I'm not wearing any!!! LOL

HUGS

|)onna

I

believe she had a neuro appt. today. Anyone hear how it went?

hugs

Sharon

This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and

beauty and in no way are to be considered flaws or defects.

[Guest guest]

I get that panties-in-a-twist feeling too. lol I can't stand the feeling of seams and tags so I always wear mine inside out. hug SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, August 17, 2010 6:59:56 AMSubject: Re: anyone heard from Donna in PA?

The appointment is actually this afternoon... I was just getting ready

to let you know that I would let you know what he has to say....

Sure would be nice to stop feeling like my panties are in a twist...

specially when I'm not wearing any!!! LOL

HUGS

|)onna

I

believe she had a neuro appt. today. Anyone hear how it went?

hugs

Sharon

This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and

beauty and in no way are to be considered flaws or defects.

[Guest guest]

Okie Dokie.. I'm home again home again jiggity-jig...

As I figured.. I caught a bit of guff because I haven't been taking the

Copaxone.. and he was once again Adamant about my being on something...

so.. after much discussion I will be starting Copaxone once again as

soon as the pharmacy gets it shipped in.. at least with the new

insurance company it shouldn't have to be mail-ordered type thing

through "their" pharmacy.. when I see him in January then we'll talk

about the Ampyra.. He immediately nixed the Fingolomoid (sp?).. as he

did the Tysabri.. said I wasn't having a problem with the Copaxone, and

no side-effects type deal.. until I got scared over that strange

reaction (that I thought could have been the start of necrosis).. he

kinda sorta told me that necrosis would be easier to fix than the other

side-effects that could arise.. He didn't suggest Betaseron or Rebif,

because I suffered the flu-like symptoms for 4 years.. (that shouldn't

have been allowed to be ongoing)..

No keepy me, but sent me downstairs to the lab so I could pee in a cup

for them.. I think he figures between most likely having a UTI (I've

got no symptoms, but then with a numb tushy would be a bit difficult to

"feel the burn") and the dentist having me on 1500 mg of Amoxicillin a

day.. until he gets the approval and stuff to get these teeth outta my

mouth and such... that once they get these "infections" (or what he

thinks are infections) cleared... this numb from the waist down will

stop as well...

I hope he's right and that it works and the Copaxone works for me as

well as it did back when I started.. and then I'll be able to park the

power chair and get back to the business of.. well.. walking would be a

good start..unassisted would be an even better thing...

So I is at home.. dealing as best I can.. smelling what Earl is cooking

in the kitchen for dinner.. and my mouth is watering and my belly is

growling..

HUGS

|)onna

I

get that panties-in-a-twist feeling too. lol I can't stand the

feeling of seams and tags so I always wear mine inside out.

hug

Sharon

This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and

beauty and in no way are to be considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue, August 17,

2010 6:59:56 AM

Subject: Re:

anyone heard from Donna in PA?

The appointment is actually this afternoon... I was just getting ready

to let you know that I would let you know what he has to say....

Sure would be nice to stop feeling like my panties are in a twist...

specially when I'm not wearing any!!! LOL

HUGS

|)onna

I

believe she had a neuro appt. today. Anyone hear how it went?

hugs

Sharon

This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and

beauty and in no way are to be considered flaws or defects.

[Guest guest]

Sounds all in all like a pretty good visit, Donna. I'm happy he kind of admonished you about the Copaxone, and that you will be going back on it!Sorry about the numbness; that's a real bummer honey! I hope that resolves soon for you, Donna. Let us know what, if anything the urinalysis shows. Hopefully tis nothing of note. YOu ARE having yoghurt/acidopholus yes, to combat the antibiotics you are taking? This is important to do.Thanks for letting us know what's up with you!hugs, Kate* Re: anyone heard from Donna in PA?> >> >> >> > The appointment is actually this afternoon... I was just > getting ready > > to let you know that I would let you know what he has to say....> >> > Sure would be nice to stop feeling like my panties are in a > twist... > > specially when I'm not wearing any!!! LOL> >> > HUGS> > |)onna> >> > > >> I believe she had a neuro appt. today. Anyone hear how it went?> >>> >> hugs> >> Sharon> >> This email is a natural hand made product. The slight > variations in > >> spelling and grammar enhance its individual character and > beauty and > >> in no way are to be considered flaws or defects.> >>> >>> >>> >> >> >> >> >> > > love and blessings,Kate

Attachment: vcard [not shown]

[Guest guest]

It sounds like you have a very good neuro, Donna! He sounds like he really cares and that's such a nice thing, eh?Take care of yourself! big hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, August 17, 2010 3:38:34 PMSubject: Re: anyone heard from Donna in PA?

Okie Dokie.. I'm home again home again jiggity-jig...

As I figured.. I caught a bit of guff because I haven't been taking the

Copaxone.. and he was once again Adamant about my being on something...

so.. after much discussion I will be starting Copaxone once again as

soon as the pharmacy gets it shipped in.. at least with the new

insurance company it shouldn't have to be mail-ordered type thing

through "their" pharmacy.. when I see him in January then we'll talk

about the Ampyra.. He immediately nixed the Fingolomoid (sp?).. as he

did the Tysabri.. said I wasn't having a problem with the Copaxone, and

no side-effects type deal.. until I got scared over that strange

reaction (that I thought could have been the start of necrosis).. he

kinda sorta told me that necrosis would be easier to fix than the other

side-effects that could arise.. He didn't suggest Betaseron or Rebif,

because I suffered the flu-like symptoms for 4 years.. (that shouldn't

have been allowed to be ongoing)..

No keepy me, but sent me downstairs to the lab so I could pee in a cup

for them.. I think he figures between most likely having a UTI (I've

got no symptoms, but then with a numb tushy would be a bit difficult to

"feel the burn") and the dentist having me on 1500 mg of Amoxicillin a

day.. until he gets the approval and stuff to get these teeth outta my

mouth and such... that once they get these "infections" (or what he

thinks are infections) cleared... this numb from the waist down will

stop as well...

I hope he's right and that it works and the Copaxone works for me as

well as it did back when I started.. and then I'll be able to park the

power chair and get back to the business of.. well.. walking would be a

good start..unassisted would be an even better thing...

So I is at home.. dealing as best I can.. smelling what Earl is cooking

in the kitchen for dinner.. and my mouth is watering and my belly is

growling..

HUGS

|)onna

I

get that panties-in-a-twist feeling too. lol I can't stand the

feeling of seams and tags so I always wear mine inside out.

hug

Sharon

This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and

beauty and in no way are to be considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Tue, August 17,

2010 6:59:56 AM

Subject: Re:

anyone heard from Donna in PA?

The appointment is actually this afternoon... I was just getting ready

to let you know that I would let you know what he has to say....

Sure would be nice to stop feeling like my panties are in a twist...

specially when I'm not wearing any!!! LOL

HUGS

|)onna

I

believe she had a neuro appt. today. Anyone hear how it went?

hugs

Sharon

This email is a natural hand made product. The slight

variations in spelling and grammar enhance its individual character and

beauty and in no way are to be considered flaws or defects.

[Guest guest]

Oh Sharon,

I do wish that I had ignored myself, and the trip to Pittsburgh for a neurologist, way back when my first neurologist left the local practice.. but I didn't.. I stuck with the meuronologist for all those 6 years.. shouldn't have though..

But this guy is fantastic.. He and getting their heads together might not be the best of things.. agreeing that the internet could be a dangerous thing.. you know.. "Just enough knowledge to be dangerous" type deal.. and harassing me over my too much curiosity and becoming a danger to myself from this type of activity.. LOL..

I just have to get used to "blindly" (like that's really going to happen LOL).. following what a neurologist has to say.. but the guy is head of the neurology department at one of the largest teaching hospitals in Pittsburgh, as well as the lead on all this research and testing being done in MS and he specializes in ONLY MS.. so he's definitely "in the know" of what's working, what's working well, what's not working, what's not working well, what's causing the most problems, side-effects and such... But it might be awhile before I trust 'blindly' or completely if ever I do again.. After all.. I am the one living with the MonSter.. So I, personally, think that I need to be informed to make informed decisions.. and I don't think Doc has a problem with my asking questions and such either.. even if he agreed with .. I do believe he prefers a patient who challenges his intellect as well.. and then takes his knowledge, experience an opinions into strong account when making their decisions...

I'd love to get this guy into a sit-me-down situation where he'd have time to just talk.. I'd love to know just how it is that he got into this field to start with.. and how it is after all these years.. he's still the caring person he is.. he's not above pushing the wheelchair the patient is in.. and he's more than willing to reach out and pat a shoulder in comfort and such.. physical contact.. he's not desensitized to patients in the least.. go figure..

Yup, I think I'll keep him for a long long long time..

said the gals in the office were all new.. I thought I recognized some of them.. but I could be wrong.. but he wrote that he wanted to see me in January.. and this 'new' gal got me in for January!!!! go figger.. LOL.. (maybe that's why they are all new gals? LOL)

HUGS

|)onna

Re: anyone heard from Donna in PA?

The appointment is actually this afternoon... I was just getting ready to let you know that I would let you know what he has to say....Sure would be nice to stop feeling like my panties are in a twist... specially when I'm not wearing any!!! LOLHUGS|)onna

I believe she had a neuro appt. today. Anyone hear how it went? hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Meant to reply to this last evening.. but Earl got me sidetracked.. had

a temporary bout of sometimers and forgot to get the yogurt in the

house.. it will be here this evening though.. and I will eat my yogurt

faithfully.. LOL

Thanks Kate

HUGS

|)onna

Sounds all in all

like a pretty good visit, Donna. I'm happy he kind of admonished you

about the Copaxone, and that you will be going back on it!

Sorry about the numbness; that's a real bummer honey! I hope that

resolves soon for you, Donna. Let us know what, if anything the

urinalysis shows. Hopefully tis nothing of note. YOu ARE having

yoghurt/acidopholus yes, to combat the antibiotics you are taking? This

is important to do.

Thanks for letting us know what's up with you!

hugs, Kate

* Re: anyone heard from Donna in PA?

> >

> >

> >

> > The appointment is actually this afternoon... I was just

> getting ready

> > to let you know that I would let you know what he has to

say....

> >

> > Sure would be nice to stop feeling like my panties are in a

> twist...

> > specially when I'm not wearing any!!! LOL

> >

> > HUGS

> > |)onna

> >

> >

> >> I believe she had a neuro appt. today. Anyone hear how it

went?

> >>

> >> hugs

> >> Sharon

> >> This email is a natural hand made product. The slight

> variations in

> >> spelling and grammar enhance its individual character and

> beauty and

> >> in no way are to be considered flaws or defects.

> >>

> >>

> >>

> >

> >

> >

> >

> >

> >

>

love and blessings,

Kate