Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Yesterday the Beta nurse was out to teach us how to prepare the Betaseron injections. It was not that bad and we did fine. did get terribly ill last night though. He got a high fever and had severe joint pain. I was so hoping he wouldn’t have a reaction. And to think this is only ¼ of the dosage. He did take Tylenol and Motrin. I actually had a frozen bag of peas on his neck. He was really burning up. The fever finally broke and he is feeling better today. His next injection is tomorrow night. I hope it goes better. http://countermanfamilynews.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Hi ,Did you inform the nurse and/or neurologist as to his reaction to the Betaseron? I think some folks take the Motrin prior prophylacticly to prevent the fever. Just a thought.I hope the next injection is better.Send my good wishes to ,hugs, Kate First Beteseron injection....To: ~SC~ > Yesterday the Beta nurse was out to teach us how to prepare the > Betaseroninjections. It was not that bad and we did fine. > did get terribly ill> last night though. He got a high fever and had severe joint > pain. I was so> hoping he wouldn’t have a reaction. And to think this is only ¼ > of the> dosage. He did take Tylenol and Motrin. I actually had a > frozen bag of> peas on his neck. He was really burning up. The fever finally > broke and he> is feeling better today. His next injection is tomorrow night. > I hope it> goes better.> > > > > > http://countermanfamilynews.blogspot.com/ > > > > love and blessings,Kate Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Kate, Thank you. did take Tylenol before the injection. Finally gave him Motrin which did break the fever. He did call the nurse this morning. She said it’s normal and should get better. I sure hope it does. http://countermanfamilynews.blogspot.com/ From: MSersLife [mailto:MSersLife ] On Behalf Of katelloydkidz@... Sent: Tuesday, August 17, 2010 2:49 PM To: MSersLife Subject: Re: First Beteseron injection.... Hi , Did you inform the nurse and/or neurologist as to his reaction to the Betaseron? I think some folks take the Motrin prior prophylacticly to prevent the fever. Just a thought. I hope the next injection is better. Send my good wishes to , hugs, Kate First Beteseron injection.... To: ~SC~ > Yesterday the Beta nurse was out to teach us how to prepare the > Betaseroninjections. It was not that bad and we did fine. > did get terribly ill > last night though. He got a high fever and had severe joint > pain. I was so > hoping he wouldn’t have a reaction. And to think this is only ¼ > of the > dosage. He did take Tylenol and Motrin. I actually had a > frozen bag of > peas on his neck. He was really burning up. The fever finally > broke and he > is feeling better today. His next injection is tomorrow night. > I hope it > goes better. > > > > > > http://countermanfamilynews.blogspot.com/ > > > > love and blessings, Kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 In many cases the side effects kind of wears off after a while, when the body is getting more used to it. And – like Kate mentioned – taking some kind of pain and/or fever medication (such as Tylenol) before the shot is also a quite common strategy. takes 2 x 400 mg of paracetamol (the non-us name for the active ingredient in Tylenol, I don't remember the US name right now) about 30 minutes before the shot, to prevent reactions. And that usually works well. She stopped taking it for a while, because she wasn't having any reactions to the shots, but the reactions came back, and so the neuro recommended that she went back on the prescribed preventive dosis of paracetamol. In any case, best of luck!love/Reb ---original message---Yesterday the Beta nurse was out to teach us how to prepare the Betaseron injections. It was not that bad and we did fine. did get terribly ill last night though. He got a high fever and had severe joint pain. I was so hoping he wouldn’t have a reaction. And to think this is only ¼ of the dosage. He did take Tylenol and Motrin. I actually had a frozen bag of peas on his neck. He was really burning up. The fever finally broke and he is feeling better today. His next injection is tomorrow night. I hope it goes better. http://countermanfamilynews.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Did you call your nurse? She should know what happened with .Betaseron is similar to Avonex. When I was on Avonex (for 5 years) I would take tylenol an hour before my shot. I would also drink a lot of water before hand. Well, actually I was advised to drink a lot of water for a day before but I don't know how that would work since Betaseron is more often. Avonex is once a week. I would always take my shot before bedtime so I could sleep through the worst of the side effects. Good luck to you both. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: ~SC~ Sent: Tue, August 17, 2010 11:43:17 AMSubject: First Beteseron injection.... Yesterday the Beta nurse was out to teach us how to prepare the Betaseron injections. It was not that bad and we did fine. did get terribly ill last night though. He got a high fever and had severe joint pain. I was so hoping he wouldn’t have a reaction. And to think this is only ¼ of the dosage. He did take Tylenol and Motrin. I actually had a frozen bag of peas on his neck. He was really burning up. The fever finally broke and he is feeling better today. His next injection is tomorrow night. I hope it goes better. http://countermanfamilynews.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I started out on Betaseron in 1998. Since I never had the flu, the 'flu like symptoms' caught me totally by surprise. Fever and chills so bad it took me 10 minutes to even get out of bed to get a blanket around me and to take something (I was single at the time)! I finally hit on alternating ibuprofen and generic tylenol. Usually ibuprogen before bed and tylenol during the night if I needed it, and then in the morning as well. I couldn't handle giving myself those shots, almost had panic attacks about them, and finally gave up on the betaseron. (I know, I'm a wimp! LOL) After I got married (2002), hubby insisted I try Avonex and he learned to give me my shots. Those side affects have eased up although I do wake up with the chills sometimes if I forget the ibuprofen before bed. Anyway, hope that helps! Dee > > Yesterday the Beta nurse was out to teach us how to prepare the Betaseron > injections. It was not that bad and we did fine. did get terribly ill > last night though. He got a high fever and had severe joint pain. I was so > hoping he wouldn't have a reaction. And to think this is only ¼ of the > dosage. He did take Tylenol and Motrin. I actually had a frozen bag of > peas on his neck. He was really burning up. The fever finally broke and he > is feeling better today. His next injection is tomorrow night. I hope it > goes better. > > > > > > http://countermanfamilynews.blogspot.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 , We haven't been introduced.. I've been kinda out of it working on music for the largest part of the summer.. BUT... I have a bit of advice.. take it with a grain of salt.. but know that it is well intentioned.. I was on Avonex for 4 years.. and I had the flu-like symptoms every week of those 4 years (except the first couple of weeks when I started)... I'm not suggesting that you overdo, like I did, with the Advil... But if you're going to inject at say 9:00 p.m... I would start at around 2 p.m... I definitely over did.. so don't do what I did exactly.. find what works for him.. but at 2, 4 6 & 8 p.m... I took 4 Advil (again don't do this.. at least not exactly this.. it's way way way way way way too much advil, and can damage kidneys at this dosage - I didn't know that at the time I was doing it).. maybe try 2 Advil spaced 4 hours apart up until an hour before the injection.. drink a good 16 ounces of water with each set of Advil.. it's important to keep thoroughly thoroughly hydrated before the injection and after.. seems to help cut back on the flu crap.. I drank about a gallon of water on injection day.. and started, as I said.. (I way way overdid).. 4 Advil at 2, 4, 6, 8, injected at 9 and at 10 took another 4 Advil.. didn't run a high fever, was only slightly warm and did ache a bit during the night but by morning was able to function on the 2 Advil every 4 hours.. But DO get the approximately gallon of water during the day prior to the injection.. and some Tylenol or Advil a couple hours before the injection.. and possibly another dose (even if you have to break the single dose of 2 pills to 1 before and 1 after) into him before injecting.. I'm pretty sure that Dr. also said that it was important to fully hydrate on injection dates too (when I told him about how I got through those 4 years of side-effects.. he was appalled that my old neurologist allowed me to continue all that time having them).. These side effects ARE supposed to subside within THREE months of starting.. so don't let him get discouraged (I was sick for 6 days a week until I found the hydrate Advil system that worked for me..)... And one other little hint.. Amantadine, which is usually the first thing prescribed for our fatigue.. make sure he's got a script for that as well.. Amantadine was originally designed to combat flu symptoms.. they found that it worked for MS fatigue.. So that stuff might help some in combating his side-effects... Hope this helps.. HUGS |)onna Yesterday the Beta nurse was out to teach us how to prepare the Betaseron injections. It was not that bad and we did fine. did get terribly ill last night though. He got a high fever and had severe joint pain. I was so hoping he wouldn’t have a reaction. And to think this is only ¼ of the dosage. He did take Tylenol and Motrin. I actually had a frozen bag of peas on his neck. He was really burning up. The fever finally broke and he is feeling better today. His next injection is tomorrow night. I hope it goes better. http://countermanfamilynews.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
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