Guest guest Posted April 29, 2012 Report Share Posted April 29, 2012 Hi Kim, This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 Hi is, AllI have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to a point till he is completely exhausted.So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist?Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NYRegardsAalok To: mb12valtrex Sent: Sunday, April 29, 2012 8:40 PM Subject: Re: gcmaf- Now phenol sensitivity Hi Kim, This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Hi AalokVe not read other replys from uo post... Personally I would remove him from the supplement and try uo best to avoid foods wth phenols...My son also has hyperactity issues and have GABA and magnesium to be a huge help...Ourkids.com have cream that is a combo of both.... When I run out I tend to do Epsom salt baths in the morning and give GABA three times a day...Sent from my iPod Hi is, AllI have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to a point till he is completely exhausted.So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist?Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NYRegardsAalok To: mb12valtrex Sent: Sunday, April 29, 2012 8:40 PM Subject: Re: gcmaf- Now phenol sensitivity Hi Kim, This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Hi Aalok, I was using no phenol and it only helped a bit in the beginning and I was still dealing w anxiety and hyperactivity. What helped the most is magnesium sulfate cream which I apply on his back 3 times a day. I am still giving him magnesium glycinate 100 mg twice a day orally. Before I was using epsom salt foot soaks which would help a bit but since my son doesn't want to sit in the bath, I felt that the soak's effects were not sufficient for him. So I started the cream and it is helping a lot. Anxiety is much better but he is still very giggly. I actually just purchased phenol assist thinking that it may give me better results as a lot of parents recommended that. I will be receiving it tomorrow. I think using just the enzymes is not enough. Till you provide body sulfate, the Phenolsulfotransferase pathway doesn't function well and cannot remove the phenols and other toxins. So my recommendation is to get kirkman magnesium sulfate cream and start using it also. There are recipes available on net to make your own magnesium sulfate cream with epsom salt. I saw a couple on dana's view. Another supplement that may help is molybdenum. I havn't started it yet but that helps with the phenolsulfotransferase pathway also. If your child tolerates baths then u can start w epsom salt baths as suggested. is > > Hi is, All > > > I have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to > a point till he is completely exhausted. > > So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist? > > Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NY > > > Regards > Aalok > > > > ________________________________ > > To: mb12valtrex > Sent: Sunday, April 29, 2012 8:40 PM > Subject: Re: gcmaf- Now phenol sensitivity > > > Â > Hi Kim, > > This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol > sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. > > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Hi Aalok, I live on Long Island too. If you are interested in joining Talking About Curing Autism, we are meeting tomorrow night at 7:15 at Nu Life Foods in Islandia, just off the LIE. I am the groups' librarian and I also mentor new families and give shopping tours of Whole Foods and Trader Joes for families beginning a diet. Hope to see you there. Caryn > > Hi is, All > > > I have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to > a point till he is completely exhausted. > > So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist? > > Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NY > > > Regards > Aalok > > > > ________________________________ > > To: mb12valtrex > Sent: Sunday, April 29, 2012 8:40 PM > Subject: Re: gcmaf- Now phenol sensitivity > > > Â > Hi Kim, > > This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol > sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. > > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Hi isWe already apply Kirkman's magnesium sulphate cream twice a day. Will increase to thrice a day. We also give him epsom salt baths but usually once or twice a week.My DAN has also given molybdenum so we might look to start giving him that as well.Now a question to all parents. My kid fights a lot to have his medicines and therefore biomed was something my wife was not willing to try. He is about 55 lbs and puts all his strength not to have the medicine. It always take 2 people to give him any medicine. Also he is a very very picky eater. So if we mix it in his food and if the taste alters even a fraction he will not eat it. So therefore mixing the medicines in food or drink is out of question. So is it ok if i give 2-3 medicines mixed together (molybdenum, phenol assist and calcium-magnesium powder) in a small shot glass with water?RegardsAalok To: mb12valtrex Sent: Thursday, May 3, 2012 9:02 AM Subject: Re: gcmaf- Now phenol sensitivity Hi Aalok, I was using no phenol and it only helped a bit in the beginning and I was still dealing w anxiety and hyperactivity. What helped the most is magnesium sulfate cream which I apply on his back 3 times a day. I am still giving him magnesium glycinate 100 mg twice a day orally. Before I was using epsom salt foot soaks which would help a bit but since my son doesn't want to sit in the bath, I felt that the soak's effects were not sufficient for him. So I started the cream and it is helping a lot. Anxiety is much better but he is still very giggly. I actually just purchased phenol assist thinking that it may give me better results as a lot of parents recommended that. I will be receiving it tomorrow. I think using just the enzymes is not enough. Till you provide body sulfate, the Phenolsulfotransferase pathway doesn't function well and cannot remove the phenols and other toxins. So my recommendation is to get kirkman magnesium sulfate cream and start using it also. There are recipes available on net to make your own magnesium sulfate cream with epsom salt. I saw a couple on dana's view. Another supplement that may help is molybdenum. I havn't started it yet but that helps with the phenolsulfotransferase pathway also. If your child tolerates baths then u can start w epsom salt baths as suggested. is > > Hi is, All > > > I have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to > a point till he is completely exhausted. > > So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist? > > Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NY > > > Regards > Aalok > > > > ________________________________ > > To: mb12valtrex > Sent: Sunday, April 29, 2012 8:40 PM > Subject: Re: gcmaf- Now phenol sensitivity > > > Â > Hi Kim, > > This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol > sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. > > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 my sons phenol issues went away with low frequent dose chelation....si think metal is a factor in the phenol issues To: mb12valtrex Sent: Thursday, May 3, 2012 9:02 AMSubject: Re: gcmaf- Now phenol sensitivity Hi Aalok,I was using no phenol and it only helped a bit in the beginning and I was still dealing w anxiety and hyperactivity. What helped the most is magnesium sulfate cream which I apply on his back 3 times a day. I am still giving him magnesium glycinate 100 mg twice a day orally. Before I was using epsom salt foot soaks which would help a bit but since my son doesn't want to sit in the bath, I felt that the soak's effects were not sufficient for him. So I started the cream and it is helping a lot. Anxiety is much better but he is still very giggly. I actually just purchased phenol assist thinking that it may give me better results as a lot of parents recommended that. I will be receiving it tomorrow. I think using just the enzymes is not enough. Till you provide body sulfate, the Phenolsulfotransferase pathway doesn't function well and cannot remove the phenols and other toxins. So my recommendation is to get kirkman magnesium sulfate cream and start using it also. There are recipes available on net to make your own magnesium sulfate cream with epsom salt. I saw a couple on dana's view. Another supplement that may help is molybdenum. I havn't started it yet but that helps with the phenolsulfotransferase pathway also. If your child tolerates baths then u can start w epsom salt baths as suggested. is>> Hi is, All> > > I have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to> a point till he is completely exhausted.> > So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist?> > Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NY> > > Regards> Aalok> > > > ________________________________> > To: mb12valtrex > Sent: Sunday, April 29, 2012 8:40 PM> Subject: Re: gcmaf- Now phenol sensitivity> > > Â > Hi Kim,> > This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol> sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. > > is> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2012 Report Share Posted May 3, 2012 Channa, Considering all you've learned since the very first rounds of AC chelation you did, what what you do different? I know binders will be somewhere in the answer but I'd love to hear your thoughts. Tammy Sent from my Kindle Fire Sent: Thu May 03 18:54:25 EDT 2012 To: " mb12valtrex " <mb12valtrex > Subject: Re: Re: gcmaf- Now phenol sensitivity my sons phenol issues went away with low frequent dose chelation....si think metal is a factor in the phenol issues To: mb12valtrex Sent: Thursday, May 3, 2012 9:02 AMSubject: Re: gcmaf- Now phenol sensitivity Hi Aalok,I was using no phenol and it only helped a bit in the beginning and I was still dealing w anxiety and hyperactivity. What helped the most is magnesium sulfate cream which I apply on his back 3 times a day. I am still giving him magnesium glycinate 100 mg twice a day orally. Before I was using epsom salt foot soaks which would help a bit but since my son doesn't want to sit in the bath, I felt that the soak's effects were not sufficient for him. So I started the cream and it is helping a lot. Anxiety is much better but he is still very giggly. I actually just purchased phenol assist thinking that it may give me better results as a lot of parents recommended that. I will be receiving it tomorrow. I think using just the enzymes is not enough. Till you provide body sulfate, the Phenolsulfotransferase pathway doesn't function well and cannot remove the phenols and other toxins. So my recommendation is to get kirkman magnesium sulfate cream and start using it also. There are recipes available on net to make your own magnesium sulfate cream with epsom salt. I saw a couple on dana's view. Another supplement that may help is molybdenum. I havn't started it yet but that helps with the phenolsulfotransferase pathway also. If your child tolerates baths then u can start w epsom salt baths as suggested. is>> Hi is, All> > > I have a 5 yr old son who is high on the Autism spectrum. He is completely non verbal though he does a lot of babbling. One of his major issue which i feel is stopping him from making any progress is his serious hyperactivity and absolutely no attention or focus. He cannot sit still for more than 90-120 seconds at one place. Even while sitting for his food, he will have no eye contact and will be lost in his own world. After some testing, we came to know that he has issues like heavy metals, food allergies, etc. Though we have not done any testing for phenol sensitivity but we feel that he is also sensitive to Phenol. So our DAN prescribed him with Phenol Assist. We started giving him Phenol Assist (1/2 capsule everyday) from Kirkman Labs. Now after one week, we see that his screaming, running, jumping has increased significantly. Yesterday we took him to the park and he was running and screaming all over the place. He keeps jumping on the Trampoline to> a point till he is completely exhausted.> > So anyone has seen any negative effects with Phenol Assist? Is this temporary and should we continue or stop? Should we try with No Phenol instead of Phenol Assist?> > Also are there any tests for Phenol Sensitivity and where it can be done? We live on Long Island, NY> > > Regards> Aalok> > > > ________________________________> > To: mb12valtrex > Sent: Sunday, April 29, 2012 8:40 PM> Subject: Re: gcmaf- Now phenol sensitivity> > > Â > Hi Kim,> > This phenol sensitivity is definitely worse with the allergy season and I am grateful to some moms on another forum who pointed me in this direction. Other than no phenol/phenol assist and avoidance of phenol rich food, magnesium sulfate cream has been the most amazing for my son. I just started it last week and I am applying 3 times a day. I got the kirkman brand. On friday, I was not home and my husband forgot to put it on and my son had a bad day. Molybdenum has been known to help and I am about to start my son on that this week as I am trying to add one thing at a time. I am making notes on all the material that is available on the net regarding phenol sensitivity and as soon as I have my notes ready, I will post. I know that a lot of parents may already know this info, but it may help some other parents like me who are just beginning to learn about the phenol issues. I strongly recommend magnesium sulfate cream. As you may already know, phenol> sensitivity is a result of deficiency of phenolsulfotransferase activity and also from lack of sulfate available for the proper enzyme activity. So we are trying to avoid a phenol load on the body by reducing the intake of phenols and using no phenol to help digest the phenolic compounds and at the same time we are trying to supply body with the sulfate. These children have difficulty with sulfur oxidation also and providing sulfur in the diet doesn't help but when they get the ready sulfate, it is available for the PST enzyme to be used right away and then the PST functions better at getting rid of the phenolic products and toxins which cause all the crazy symptoms. Vitamin B6 in the P5P form should be avoided as it further affects PST but if it needs to be given, magnesium dose should be increased. There are some other supps ideas that I am working on and I will let everyone know once I have everything collected. > > is> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Aalok You may want to ask your DAN to check for clostridia. There is a resistant clostridia popping up a lot at least in NY area. And it's causing hyperactivity. Also Send the group a list of foods he eats and we will help you pick out the foods highest in phenols. The best way to test for phenol sensitivity is an elimination diet. Also if you have done a stool test with your DAN doc check if he has enzyme deficiency. These are the kids that usually have phenol sensitivity. Carla Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Carla, I agree with you that this could be clostridia. I am dealing with similar symptoms and we just finished a course of alinia. While he was on alinia, I didn't see any improvements and he actually worsened in behavior like was more angry and anxious. Then after a couple of days after stopping alinia, he had two extremely good days. I believe that it could be his reaction to the red dye in alinia but alinia may have actually worked. He got his zithromax yesterday and today the anxiety has come back. We are still trying to maintain a low phenol diet. Magnesium sulfate cream is helping. But if it is clostridia, he should be back on the antibiotic now as we need repeated cycles to get clostridia under control. I was wondering if you have any experience with alinia tablets? If not, what do you use to control clostridia? His anxiety and hyperactivity has drained me completely. We have tried vancomycin in the past with good results but after using it for a couple of months in cycles, it kinda lost its efficacy. My son is on 3 caps of culturelle(30 billion cells)daily. My dan wants to keep probiotic simple for now as my son may have small intestinal bacterial overgrowth. I am too scared to even try flagyl as not many kids tolerate it. I will appreciate your help. is > > Aalok > You may want to ask your DAN to check for clostridia. There is a resistant clostridia popping up a lot at least in NY area. And it's causing hyperactivity. > > Also Send the group a list of foods he eats and we will help you pick out the foods highest in phenols. The best way to test for phenol sensitivity is an elimination diet. Also if you have done a stool test with your DAN doc check if he has enzyme deficiency. These are the kids that usually have phenol sensitivity. > Carla > > Sent from my iPhone > Quote Link to comment Share on other sites More sharing options...
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