Re: Kane and the PK Protocol

[Guest guest]

Hi,I am currently residing in Asia and my biomed doctor here has suggested the PK protocol for my 9.5 year old son with autism. He mentioned that there has been noticeable or dramatic improvements in some of the autistic children who had undergone the protocol. As we have to ravel 18 hours to the United States for this treatment, I would sincerely like to have first hand account of parents who had their children seen by Dr Kane and their experience. Looking forward to all the feedbacks. Thank youRegardsRegina

[Guest guest]

Hi Regina,We are working with Kane currently and are doing her oral protocol for about 3 weeks now. We are seeing some really nice gains (my son is almost 4 with ASD). We've had improved stools, less brain fog, more language and more engagement. The language and stool changes have been the most impressive. We did a bunch of blood work before we started including a red blood cell fatty acid analysis from s Hopkins. We also went our blood to a lab in the UK called Acumen, which showed mitochondrial dysfunction, lots of cellular oxidative damage and metals bound to both DNA and certain enzymes. I think ultimately Kane is very smart and really really knows fatty acid metabolism and metabolism in general. She has a good heart and is sincere about wanting to help people. People have concerns about her sometimes b/c she does not publish in mainstream science journals (mostly in textbooks and publications from her organization--the neurolipid research foundation). She doesn't talk much about negative outcomes or folks for whom the protocol doesn't work. That said, I think she has recovered a number of people with various neurological illnesses. And, most importantly, I think her treatments are quite safe. Mostly supplementation with oral phosphatidylcholine (specially formulated), various fatty acids, supplements and a very low inflammatory, nutrient-dense diet (almost a modified ketogenic diet). We are going to start the IV portion of the protocol very soon. This will start with IV phosphatidylcholine (PC), folinic acid and glutathione. She also sometimes uses phenylbuterate (which is receiving a lot of attention in mainstream science for the treatment of alzheimers, parkinsons and other neuro disorders). Her main treatment principal is that cellular and mitochondrial membranes get injured from various toxins, viruses etc.. Fatty acid metabolism and indeed other metabolic aspects of the cell also become impaired. Stabilizing cell membrane function and fatty acid metabolism can help reverse cell damage, hence the supplementation with PC and other lipids. I'll keep you all posted. We have tried a number of other interventions over the past 18 months. Often with absolutely intolerable die-off or side effects (now I know why--the mito issues and ATP production are compromised). We would sometimes see brief gains only to lose them again. Our MD felt that our son was somewhat refractory, which is why we went this route. She also worried that the body stress from die-off could lead to more regression, as he was very fragile. The gains we have seen recently have been sustained and impressive. We'll see. We are certainly not out of the woods and nowhere near recovered. BTW, we also do the GAPS diet (however we use various supplements and so aren't following it to the letter) and other supps (carntine, Co-Q10, MB12 injections, MTHF, other B vitamins, probiotics, etc...).Email me off list if you have more questions or want to speak by phone.Best,Sylvia

Hi,I am currently residing in Asia and my biomed doctor here has suggested the PK protocol for my 9.5 year old son with autism. He mentioned that there has been noticeable or dramatic improvements in some of the autistic children who had undergone the protocol. As we have to ravel 18 hours to the United States for this treatment, I would sincerely like to have first hand account of parents who had their children seen by Dr Kane and their experience. Looking forward to all the feedbacks. Thank youRegardsRegina