ARI conference experience! Positives and negatives

[Guest guest]

Hi everyone,

I have been away from the forum for the last several days because of my son's

condition and some family matters and just came back on the forum yesterday.

During the time that I have been gone, I attended the ARI conference and have

learned a lot. I would love to share all that I have learned with my friends

here. I am trying to make some notes about the important points that I have

learned and then will be posting soon. Overall the experience was good. I

attended the course as the Level I practitioner. The first day was more about

all the research that has been done and it was more like all the presenters were

trying to convince the docs that autism is treatable. Though there was not much

to learn in terms of practical solutions to our kid's problems, it was a very

emotional experience for me. I sat there crying during most of the lectures,

sometimes from feeling extremely hopeful for these kids and then sometimes from

regrets that I have about not getting the right help for my son till he was

almost 6. Second day was busy and the lectures were more geared towards labs and

treatments. I still have to go through my notes several times to have a basic

understanding of several markers. I will share some important points today:

I met the neurologist who has done the study on kids with folate receptor

antibodies and according to him, children who have the antibodies positive,

should not only stay away from cow's milk but also from goat milk and camel

milk. Folinic acid is recommended as it was the form that was studied but 5MTHF

can be tried but dose should be half of the dose of folinic acid. Children who

are suspected to have seizures should have a 23 hour EEG or a video EEG to rule

out silent seizures.

I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to

take my child to him or his practice for an evaluation.

Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was

aware of the immune dysfunction that I had heard of.

Met some dans who strongly recommended AC chelation and they have had amazing

results on a huge percentage of kids who completed the AC chelation.

I will be posting some important links once I have everything organized. I am

available to answer any questions that any of you may have. I know that there

are several moms here who know a lot more than me and I still have a lot to

learn but I will be happy to share anything that I have learned.

Although this conference was a great learning experience for me, I had some

interesting experiences there too. I met a doctor mom with a child on spectrum,

who asked me how old my kid was. Then she went on to tell me " Oh my God! he is

still not recovered?? He is too old to be recovered. " Then she went on and on

and how I should have paid more attention and googled the autism treatments 6

years ago. She feels great about herself that her daughter is 3 years old and

she is already seeing the best and the most expensive dan doctor available in

Long Island. And since it takes me several bad experiences to argue or fight

with anyone, I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is relatively

new to the biomed world and was just trying to make another mom feel horrible

about herself. Since I was already dealing with some serious family issues, I

spent the weekend after the conference crying even though I knew that it didn't

matter what she said. I personally feel that a lot of us moms are already

broken. We seem strong and have to act strong for our kids but we all know that

on and off, we blame ourselves for any failures. We are all fighting for our

kids with whatever strength we have. This forum has been my best friend for the

last ten months. And not a single parent on this forum has been discouraging to

me. There have been a lot of nights that when I was up late at night worried

about my son's treatments and one of you was there to support me. I wish this

young mom that I met will try to get some maturity and have a smooth road ahead.

Anyways, this was just one silly experience that I had and wanted to share with

my buddies.

is

[Guest guest]

Aw is, you're awesome!

Forgive that mom...some people are very young souls without a clue. Half the time they don't even realize their own arrogance. With that said, I would love love love to introduce her to one mom I know who didn't start biomed until her daughter was 42 years old! They are living proof that it is NEVER too late.

Anyway, glad you're back!

Tammy

Sent from my Kindle Fire

[Guest guest]

Thanks is for sharing this testimony. Are you a physician? May I ask how old your son is?

Yes, arrogance on that mom's part was uncalled for. I am sorry you had to experience that. I would have been po'd and don't think I could have kept my Italian/Irish temper mixed in with sarcasm, to myself. My heart sank when I read what she said about him being too old to be recovered. My son will be 11(he was diagnosed at 1 with developmental delays and 4.5 with PDDNOS) and we are just starting biomedical therapies. I just got the DDI hair test, have been reading so much, am doing the GFCF/some Feingold, and some supps, but that is all.

When I read her comment I felt totally discouraged and was thinking to myself again, " I wish I knew back then what I know now", but unfortunately the traditional medical docs that we have dealt with for the past 9.5 years never said anything (or knew anything). ***ARGGGGGGGGHHHHH*** I look to this group, and the few other groups I am part of for encouragement. It is uplifting to hear stories of those who have improved. I just hope it is not too late for my son. My husband and I are not looking for perfection, but anything would be a blessing.

I look forward to your notes!

Blessings,

Cristine

mom of 5

mom to 10 year old (HF PDD-NOS, ADHD, mild Tourette Syndrome, severe cognitive delays, great social skills, anxiety) who is an extra special blessing to our family

ARI conference experience! Positives and negatives

Hi everyone,I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets that I have about not getting the right help for my son till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures. I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation. Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of. Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned. Although this conference was a great learning experience for me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the conference c rying even though I knew that it didn't matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies. is

[Guest guest]

I already forgave her Tammy. Hopefully she will join a forum and will get

support and help from other parents. I just felt horrible as I was already

struggling with my kid and always feel guilty as I can't fix his pain despite

being in health care. Today was a much better day for me and I am trying to get

back on track and putting behind all the crazy family issues and crazy comments.

is

>

> Aw is, you're awesome!

> Forgive that mom...some people are very young souls without a clue. Half the

time they don't even realize their own arrogance. With that said, I would love

love love to introduce her to one mom I know who didn't start biomed until her

daughter was 42 years old! They are living proof that it is NEVER too late.

>

> Anyway, glad you're back!

>

> Tammy

>

> Sent from my Kindle Fire

>

[Guest guest]



42? WOW! Thanks for sharing this Tammy! I needed to hear this as you can see from my last post!

Cristine

Re: ARI conference experience! Positives and negatives

Aw is, you're awesome!Forgive that mom...some people are very young souls without a clue. Half the time they don't even realize their own arrogance. With that said, I would love love love to introduce her to one mom I know who didn't start biomed until her daughter was 42 years old! They are living proof that it is NEVER too late.

Anyway, glad you're back!

Tammy

Sent from my Kindle Fire

[Guest guest]

Thank you is for the update!! And never mind that silly arrogant mom -- she is obviously too narcissistic to notice anyone else's feelings so not worth your time. You are way ahead of many, many mom's who never try biomed and I am sure it is not too late for your child. Think about the progress he has made in the last 10months. I know it can get tough -- i sometimes question myself and my decisions in all of this too...are we on the right track, he is getting better or worse, have we seen all the "specialists" etc...I have finally come to the realization that I need to slow down a little, give more hugs/dont worry so much if they are getting the supplements on time, and take time to breath outside biomed....this isn't a sprint, it's a marathon....keep your chin up! He will get

there! To: mb12valtrex Sent: Monday, April 30, 2012 9:59 PM Subject: ARI conference experience! Positives and negatives

Hi everyone,

I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets that I have about not

getting the right help for my son till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:

I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures.

I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation.

Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of.

Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.

I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned.

Although this conference was a great learning experience for me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the

conference crying even though I knew that it didn't matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies.

is

[Guest guest]



More great words that I am needing to hear, Meghan. Especially since I am just barely starting my LONG marathon!

Cristine

ARI conference experience! Positives and negatives

Hi everyone,I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets that I have about not getting the right help for my son till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures. I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation. Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of. Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned. Although this conference was a great learning experience for me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the conference crying even though I knew that it didn't matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies. is

[Guest guest]

Oh ! I am crying again but this time these are tears of happiness. I feel

so much stronger already. I know that together we will get our kids to have a

better life. And , it is definitely not too late and we are all here to

support you in any way possible. Yes, I am a physician but have taken some time

off for my kid. Even though I am in the medical field, my knowledge in biomed

does not even come close to the skill moms have on this forum. I am learning

every day and it is my dream to share all my knowledge with all the parents here

and to be able to help in any way possible.

is

>

> Thank you is for the update!!  And never mind that silly arrogant mom

 -- she is obviously too narcissistic to notice anyone else's feelings so not

worth your time.  You are way ahead of many, many mom's who never try biomed

and I am sure it is not too late for your child.  Think about the progress he

has made in the last 10months.  I know it can get tough -- i sometimes question

myself and my decisions in all of this too...are we on the right track, he is

getting better or worse, have we seen all the " specialists " etc...I have finally

come to the realization that I need to slow down a little, give more hugs/dont

worry so much if they are getting the supplements on time, and take time to

breath outside biomed....this isn't a sprint, it's a marathon....keep your chin

up!  He will get there!

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Monday, April 30, 2012 9:59 PM

> Subject: ARI conference experience! Positives and negatives

>

>

>  

> Hi everyone,

>

> I have been away from the forum for the last several days because of my son's

condition and some family matters and just came back on the forum yesterday.

During the time that I have been gone, I attended the ARI conference and have

learned a lot. I would love to share all that I have learned with my friends

here. I am trying to make some notes about the important points that I have

learned and then will be posting soon. Overall the experience was good. I

attended the course as the Level I practitioner. The first day was more about

all the research that has been done and it was more like all the presenters were

trying to convince the docs that autism is treatable. Though there was not much

to learn in terms of practical solutions to our kid's problems, it was a very

emotional experience for me. I sat there crying during most of the lectures,

sometimes from feeling extremely hopeful for these kids and then sometimes from

regrets that I have about not

> getting the right help for my son till he was almost 6. Second day was busy

and the lectures were more geared towards labs and treatments. I still have to

go through my notes several times to have a basic understanding of several

markers. I will share some important points today:

>

> I met the neurologist who has done the study on kids with folate receptor

antibodies and according to him, children who have the antibodies positive,

should not only stay away from cow's milk but also from goat milk and camel

milk. Folinic acid is recommended as it was the form that was studied but 5MTHF

can be tried but dose should be half of the dose of folinic acid. Children who

are suspected to have seizures should have a 23 hour EEG or a video EEG to rule

out silent seizures.

>

> I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to

take my child to him or his practice for an evaluation.

>

> Most of the dans strongly recommended sacch boulardii for clostridia. Nobody

was aware of the immune dysfunction that I had heard of.

>

> Met some dans who strongly recommended AC chelation and they have had amazing

results on a huge percentage of kids who completed the AC chelation.

>

> I will be posting some important links once I have everything organized. I am

available to answer any questions that any of you may have. I know that there

are several moms here who know a lot more than me and I still have a lot to

learn but I will be happy to share anything that I have learned.

>

> Although this conference was a great learning experience for me, I had some

interesting experiences there too. I met a doctor mom with a child on spectrum,

who asked me how old my kid was. Then she went on to tell me " Oh my God! he is

still not recovered?? He is too old to be recovered. " Then she went on and on

and how I should have paid more attention and googled the autism treatments 6

years ago. She feels great about herself that her daughter is 3 years old and

she is already seeing the best and the most expensive dan doctor available in

Long Island. And since it takes me several bad experiences to argue or fight

with anyone, I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is relatively

new to the biomed world and was just trying to make another mom feel horrible

about herself. Since I was already dealing with some serious family issues, I

spent the weekend after the

> conference crying even though I knew that it didn't matter what she said. I

personally feel that a lot of us moms are already broken. We seem strong and

have to act strong for our kids but we all know that on and off, we blame

ourselves for any failures. We are all fighting for our kids with whatever

strength we have. This forum has been my best friend for the last ten months.

And not a single parent on this forum has been discouraging to me. There have

been a lot of nights that when I was up late at night worried about my son's

treatments and one of you was there to support me. I wish this young mom that I

met will try to get some maturity and have a smooth road ahead. Anyways, this

was just one silly experience that I had and wanted to share with my buddies.

>

> is

>

[Guest guest]

oh alexis!!!!!!!!!! you are sucha wonderful mom and human being....you deserve so much good for you and your boy.....I said it before and I will say it again dang it......God can heal in any time in any way.

channa

To: mb12valtrex Sent: Monday, April 30, 2012 10:32 PMSubject: Re: ARI conference experience! Positives and negatives

 More great words that I am needing to hear, Meghan. Especially since I am just barely starting my LONG marathon!

Cristine

ARI conference experience! Positives and negatives

Hi everyone,I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets

that I have about not getting the right help for my son till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures. I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation. Most of the dans

strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of. Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned. Although this conference was a great learning experience for me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism

treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the conference crying even though I knew that it didn't matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten

months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies. is

[Guest guest]

One of mine was 14 when I started recovery treatments on him. In just

one year, he went from special needs schooling to regular schooling.

Shame on her for blaming you. I took my son to specialists for 12 years

before I found out about recovery and biomed. All those docs didn't

help him, except for the speech therapist. I would like to put your big

mouth doc in the same room with my son's old specialists so she can tell

them that they should have payed more attention.

Love and prayers,

Heidi N

[Guest guest]

Hi is,

Thank you for this email. My child is 5 and we still have a LONG way to go.

I am curious about "the neurologist who has done the study on kids with folate receptor antibodies."

How do I test for that?

Also Dr. Buie.... his name pops up time and time again as someone with great gastro knowledge. What made you think he is worth a visit?

Hang in there...

To: mb12valtrex Sent: Tuesday, May 1, 2012 5:42 AMSubject: Re: ARI conference experience! Positives and negatives

Oh ! I am crying again but this time these are tears of happiness. I feel so much stronger already. I know that together we will get our kids to have a better life. And , it is definitely not too late and we are all here to support you in any way possible. Yes, I am a physician but have taken some time off for my kid. Even though I am in the medical field, my knowledge in biomed does not even come close to the skill moms have on this forum. I am learning every day and it is my dream to share all my knowledge with all the parents here and to be able to help in any way possible. is>> Thank you is for the update!!  And never mind that silly arrogant mom  -- she is obviously too

narcissistic to notice anyone else's feelings so not worth your time. Â You are way ahead of many, many mom's who never try biomed and I am sure it is not too late for your child. Â Think about the progress he has made in the last 10months. Â I know it can get tough -- i sometimes question myself and my decisions in all of this too...are we on the right track, he is getting better or worse, have we seen all the "specialists" etc...I have finally come to the realization that I need to slow down a little, give more hugs/dont worry so much if they are getting the supplements on time, and take time to breath outside biomed....this isn't a sprint, it's a marathon....keep your chin up! Â He will get there!> > > ________________________________> > To: mb12valtrex > Sent: Monday, April 30, 2012 9:59 PM> Subject: ARI conference experience! Positives and negatives> > > Â > Hi everyone,> > I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there

was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets that I have about not> getting the right help for my son till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:> > I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children

who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures. > > I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation. > > Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of. > > Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.> > I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned. > > Although this conference was a great learning experience for

me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the> conference crying even though I knew that it didn't

matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies. > > is>

[Guest guest]

is,U my good lady always touch on issues that worry me too... We all ve the same regrets of my we did not see it sooner. But I ve come to look at it this way... I did not give birth to my baby to look for defaults I did it so I could love him and keep him safe and as many of us mums know when we look at our kid they are perfek.. Unfortunately even the health visitors and paediatricians I saw till he was three did not pick any up either!!!That lady u meat I bet she kicks herself left right and centre as to why it too her three yrs to too... Am sure we all wish that we know from day one not a yr later or to or three..My words to u is not when u knew but what u did when u knew and what u ate doing now and reading uo post I know there is no stone u are living unturned to get him well so all I can say if u are a praying person is pray!!! Be grateful u ve uo little boy and the education to understand how to help him and above all the courage and the strength to do so...And when u get tired and lost, uncertain pray even more and then of cause there is this forum...Thank u re the AC chelation many times ve read Channa and others mention it but ve held back as was sticking wth Gaps...but ve to return to work now so would consider other ways of getting the aluminium out of my son apart from juicing...Will read more on what others ve said b4 I ask u however if u can pls post what u know re AC chelation Sending u all my best wishes and prayer Sent from my iPod

Hi everyone,

I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets that I have about not getting the right help for my son till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:

I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures.

I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation.

Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of.

Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.

I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned.

Although this conference was a great learning experience for me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the conference crying even though I knew that it didn't matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies.

is

[Guest guest]

Thank you for the information! ((hugs))

[Guest guest]

Awesome Heidi! There needs to be a book published with all moms with recovered kids and their stories!

Cristine

Re: ARI conference experience! Positives and negatives

One of mine was 14 when I started recovery treatments on him. In just one year, he went from special needs schooling to regular schooling. Shame on her for blaming you. I took my son to specialists for 12 years before I found out about recovery and biomed. All those docs didn't help him, except for the speech therapist. I would like to put your big mouth doc in the same room with my son's old specialists so she can tell them that they should have payed more attention.Love and prayers,Heidi N

[Guest guest]

Hi is and All Great Moms and Dads on this forum,

I have not participated on this forum for many years but felt the need

to now. My son, 15 is not recovered yet either. In some areas he is

much better. But we still have our one step forward two back days.

The feelings of guilt, regrets, would'ves, should'ves, could'ves can't

even begin to express the roller coaster of emotions I've experienced in

more than a decade. What made things worse was my DH's denial of the

situation and the trauma and drama that ensued in the house because of

that. At times I felt so defeated and alone that I wanted stop

everything.

Fastforward to now, I am still working on recovering my son and will not

give up until he becomes independent. It will take as long as it takes.

It took me many years to be okay about him not being recovered yet.

The one incident that helped me come to feel this way was the following:

I was seeing a holistic psycotherapist and he was showing me how I could

literally get out of " being " in the " fear " mode that I was always in and

stepping into " love. " My eyes were closed and I got up from one chair

(the fear) to sit into the other. I suddenly had a vision of my son, at

his current age (13 at the time) who was waving to me to jump in. I was

seeing myself at the edge of a cliff and he was in a clear blue lagoon.

He was telling me to let go of the fear and join him because he was in a

state of bliss. Hi message to me was that no matter how he appeared to

be on the outside, inside he was this happy, loving kid in a constant

state of bliss and that I should release the fear and join him in this

state.

Not only was I blown away but so was the therapist when I told him what

I saw. I guess my point in all of this is that we're all as much

students and teachers simultaneosly just as our kids are to us.

What has helped me in releasing some family entanglements has been

Family Constellation Work that I have done with this therapist.

Klinghardt is a big proponent of this therapy as part of his 4 levels of

healing. I'm on the east coast and I'm trying to bring this work to the

ASD community. I've found that the more I've healed, the more my son

has healed as well.

God Bless to all of you angels. In many ways, we are the lucky ones.

Carmen

>

>

>

> Although this conference was a great learning experience for me, I had

some interesting experiences there too. I met a doctor mom with a child

on spectrum, who asked me how old my kid was. Then she went on to tell

me " Oh my God! he is still not recovered?? He is too old to be

recovered. " Then she went on and on and how I should have paid more

attention and googled the autism treatments 6 years ago. She feels great

about herself that her daughter is 3 years old and she is already seeing

the best and the most expensive dan doctor available in Long Island. And

since it takes me several bad experiences to argue or fight with anyone,

I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is

relatively new to the biomed world and was just trying to make another

mom feel horrible about herself. Since I was already dealing with some

serious family issues, I spent the weekend after the conference crying

even though I knew that it didn't matter what she said. I personally

feel that a lot of us moms are already broken. We seem strong and have

to act strong for our kids but we all know that on and off, we blame

ourselves for any failures. We are all fighting for our kids with

whatever strength we have. This forum has been my best friend for the

last ten months. And not a single parent on this forum has been

discouraging to me. There have been a lot of nights that when I was up

late at night worried about my son's treatments and one of you was there

to support me. I wish this young mom that I met will try to get some

maturity and have a smooth road ahead. Anyways, this was just one silly

experience that I had and wanted to share with my buddies.

>

> is

>

[Guest guest]

I wish i had known you were there! would have loved to meet up in person.

I left the conference thinking, holy crap, if we don't get our act together as a

society, we are not going to be around much longer. One of the nutritionists

was talking about the effects of GMO on mice. After 3 generations of an

exclusive GMO diet, the mice were sterile and some were growing hair in their

mouth.

the link to the conference slides can be found here:

https://www.yousendit.com/transfer.php?action=batch_download & send_id=1472099169 & \

email=893abd8ac36d6d95d5fc84ca00a43ade

It's a huge file...might need to let your computer run for hours.

cheers, mardi

[Guest guest]

There are a list of files, all are related, or someone in special?, thanks! De: mardella Para: mb12valtrex Enviado: Martes 1 de Mayo de 2012 22:50 Asunto: Re: ARI conference experience! Positives and negatives

I wish i had known you were there! would have loved to meet up in person.

I left the conference thinking, holy crap, if we don't get our act together as a society, we are not going to be around much longer. One of the nutritionists was talking about the effects of GMO on mice. After 3 generations of an exclusive GMO diet, the mice were sterile and some were growing hair in their mouth.

the link to the conference slides can be found here:

https://www.yousendit.com/transfer.php?action=batch_download & send_id=1472099169 & email=893abd8ac36d6d95d5fc84ca00a43ade

It's a huge file...might need to let your computer run for hours.

cheers, mardi

[Guest guest]

Hi Heidi,

Your childs recovery always encourages me. I think most of us have stories where

we were discouraged by mainstream docs and were specifically told not to try

anything that comes from " Quacks " . Well, it seems like I have become one and

really proud of it . Thanks for your support.

is

[Guest guest]

Thanks for support ! I am so grateful to all of you for your encouraging

words. I feel much stronger now.

And yes, I was a little surprised to learn that one of the leading dan docs uses

AC chelation protocols and loves it. She states that among all the treatments

she has tried, AC chelation is the most successful. I hope I will get ready to

try it soon.

is

>

> is,

> U my good lady always touch on issues that worry me too... We all ve the same

regrets of my we did not see it sooner. But I ve come to look at it this way...

I did not give birth to my baby to look for defaults I did it so I could love

him and keep him safe and as many of us mums know when we look at our kid they

are perfek.. Unfortunately even the health visitors and paediatricians I saw

till he was three did not pick any up either!!!

> That lady u meat I bet she kicks herself left right and centre as to why it

too her three yrs to too... Am sure we all wish that we know from day one not a

yr later or to or three..

> My words to u is not when u knew but what u did when u knew and what u ate

doing now and reading uo post I know there is no stone u are living unturned to

get him well so all I can say if u are a praying person is pray!!! Be grateful u

ve uo little boy and the education to understand how to help him and above all

the courage and the strength to do so...

> And when u get tired and lost, uncertain pray even more and then of cause

there is this forum...

> Thank u re the AC chelation many times ve read Channa and others mention it

but ve held back as was sticking wth Gaps...but ve to return to work now so

would consider other ways of getting the aluminium out of my son apart from

juicing...

> Will read more on what others ve said b4 I ask u however if u can pls post

what u know re AC chelation

> Sending u all my best wishes and prayer

>

>

> >

> >

>

[Guest guest]

I agree with you Carmen, we are actually more blessed in some ways. We have

learned to cherish every single blessing in life and that is a gift too. I look

around me and see a lot of parents whining about non-issues with their kids.

Some whine about not being able to buy a mansion and don't even look at the

beautiful healthy kids God gave them. Every day I thank God for my son. He makes

me a better person. Even though we are all going through a lot with our kids, we

are all here trying to help each other even if it is just emotional support.

Thanks for sharing your experience with us.

is

[Guest guest]

Carmen, thank you so much for sharing a beautiful post!

Tammy

Sent from my Kindle Fire

[Guest guest]

, you are one beautiful lady. I love this post.

Tammy

Sent from my Kindle Fire

Sent: Tue May 01 03:35:34 EDT 2012

To: " mb12valtrex " <mb12valtrex >

Subject: Re: ARI conference experience! Positives and negatives

is,U my good lady always touch on issues that worry me too... We all ve the same regrets of my we did not see it sooner. But I ve come to look at it this way... I did not give birth to my baby to look for defaults I did it so I could love him and keep him safe and as many of us mums know when we look at our kid they are perfek.. Unfortunately even the health visitors and paediatricians I saw till he was three did not pick any up either!!!That lady u meat I bet she kicks herself left right and centre as to why it too her three yrs to too... Am sure we all wish that we know from day one not a yr later or to or three..My words to u is not when u knew but what u did when u knew and what u ate doing now and reading uo post I know there is no stone u are living unturned to get him well so all I can say if u are a praying person is pray!!! Be grateful u ve uo little boy and the education to understand how to help him and above all the

courage and the strength to do so...And when u get tired and lost, uncertain pray even more and then of cause there is this forum...Thank u re the AC chelation many times ve read Channa and others mention it but ve held back as was sticking wth Gaps...but ve to return to work now so would consider other ways of getting the aluminium out of my son apart from juicing...Will read more on what others ve said b4 I ask u however if u can pls post what u know re AC chelation Sending u all my best wishes and prayer Sent from my iPod

Hi everyone,

I have been away from the forum for the last several days because of my son's condition and some family matters and just came back on the forum yesterday. During the time that I have been gone, I attended the ARI conference and have learned a lot. I would love to share all that I have learned with my friends here. I am trying to make some notes about the important points that I have learned and then will be posting soon. Overall the experience was good. I attended the course as the Level I practitioner. The first day was more about all the research that has been done and it was more like all the presenters were trying to convince the docs that autism is treatable. Though there was not much to learn in terms of practical solutions to our kid's problems, it was a very emotional experience for me. I sat there crying during most of the lectures, sometimes from feeling extremely hopeful for these kids and then sometimes from regrets that I have about not getting the right help for my son

till he was almost 6. Second day was busy and the lectures were more geared towards labs and treatments. I still have to go through my notes several times to have a basic understanding of several markers. I will share some important points today:

I met the neurologist who has done the study on kids with folate receptor antibodies and according to him, children who have the antibodies positive, should not only stay away from cow's milk but also from goat milk and camel milk. Folinic acid is recommended as it was the form that was studied but 5MTHF can be tried but dose should be half of the dose of folinic acid. Children who are suspected to have seizures should have a 23 hour EEG or a video EEG to rule out silent seizures.

I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to take my child to him or his practice for an evaluation.

Most of the dans strongly recommended sacch boulardii for clostridia. Nobody was aware of the immune dysfunction that I had heard of.

Met some dans who strongly recommended AC chelation and they have had amazing results on a huge percentage of kids who completed the AC chelation.

I will be posting some important links once I have everything organized. I am available to answer any questions that any of you may have. I know that there are several moms here who know a lot more than me and I still have a lot to learn but I will be happy to share anything that I have learned.

Although this conference was a great learning experience for me, I had some interesting experiences there too. I met a doctor mom with a child on spectrum, who asked me how old my kid was. Then she went on to tell me "Oh my God! he is still not recovered?? He is too old to be recovered." Then she went on and on and how I should have paid more attention and googled the autism treatments 6 years ago. She feels great about herself that her daughter is 3 years old and she is already seeing the best and the most expensive dan doctor available in Long Island. And since it takes me several bad experiences to argue or fight with anyone, I didn't give her a piece of my mind and was just astonished at her arrogance. I could not believe that she was just another mom who is relatively new to the biomed world and was just trying to make another mom feel horrible about herself. Since I was already dealing with some serious family issues, I spent the weekend after the conference crying even though

I knew that it didn't matter what she said. I personally feel that a lot of us moms are already broken. We seem strong and have to act strong for our kids but we all know that on and off, we blame ourselves for any failures. We are all fighting for our kids with whatever strength we have. This forum has been my best friend for the last ten months. And not a single parent on this forum has been discouraging to me. There have been a lot of nights that when I was up late at night worried about my son's treatments and one of you was there to support me. I wish this young mom that I met will try to get some maturity and have a smooth road ahead. Anyways, this was just one silly experience that I had and wanted to share with my buddies.

is

[Guest guest]

Thanks for sharing that, is. My son was thirteen before anyone even said ASD. He is sixteen now. For years I knew he was not well, but had no idea what to do ,except address diet and allergies. I have beat myself up many times for not being a early interventionist, thinking he would be well by now if only I had known what I know now. I am like you, grateful for this group, so I may be encouraged to persevere in love. Best wishes for your son's recovery. It is never too late. Bettina

Hi is and All Great Moms and Dads on this forum,

I have not participated on this forum for many years but felt the need

to now. My son, 15 is not recovered yet either. In some areas he is

much better. But we still have our one step forward two back days.

The feelings of guilt, regrets, would'ves, should'ves, could'ves can't

even begin to express the roller coaster of emotions I've experienced in

more than a decade. What made things worse was my DH's denial of the

situation and the trauma and drama that ensued in the house because of

that. At times I felt so defeated and alone that I wanted stop

everything.

Fastforward to now, I am still working on recovering my son and will not

give up until he becomes independent. It will take as long as it takes.

It took me many years to be okay about him not being recovered yet.

The one incident that helped me come to feel this way was the following:

I was seeing a holistic psycotherapist and he was showing me how I could

literally get out of "being" in the "fear" mode that I was always in and

stepping into "love." My eyes were closed and I got up from one chair

(the fear) to sit into the other. I suddenly had a vision of my son, at

his current age (13 at the time) who was waving to me to jump in. I was

seeing myself at the edge of a cliff and he was in a clear blue lagoon.

He was telling me to let go of the fear and join him because he was in a

state of bliss. Hi message to me was that no matter how he appeared to

be on the outside, inside he was this happy, loving kid in a constant

state of bliss and that I should release the fear and join him in this

state.

Not only was I blown away but so was the therapist when I told him what

I saw. I guess my point in all of this is that we're all as much

students and teachers simultaneosly just as our kids are to us.

What has helped me in releasing some family entanglements has been

Family Constellation Work that I have done with this therapist.

Klinghardt is a big proponent of this therapy as part of his 4 levels of

healing. I'm on the east coast and I'm trying to bring this work to the

ASD community. I've found that the more I've healed, the more my son

has healed as well.

God Bless to all of you angels. In many ways, we are the lucky ones.

Carmen

>

>

>

> Although this conference was a great learning experience for me, I had

some interesting experiences there too. I met a doctor mom with a child

on spectrum, who asked me how old my kid was. Then she went on to tell

me "Oh my God! he is still not recovered?? He is too old to be

recovered." Then she went on and on and how I should have paid more

attention and googled the autism treatments 6 years ago. She feels great

about herself that her daughter is 3 years old and she is already seeing

the best and the most expensive dan doctor available in Long Island. And

since it takes me several bad experiences to argue or fight with anyone,

I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is

relatively new to the biomed world and was just trying to make another

mom feel horrible about herself. Since I was already dealing with some

serious family issues, I spent the weekend after the conference crying

even though I knew that it didn't matter what she said. I personally

feel that a lot of us moms are already broken. We seem strong and have

to act strong for our kids but we all know that on and off, we blame

ourselves for any failures. We are all fighting for our kids with

whatever strength we have. This forum has been my best friend for the

last ten months. And not a single parent on this forum has been

discouraging to me. There have been a lot of nights that when I was up

late at night worried about my son's treatments and one of you was there

to support me. I wish this young mom that I met will try to get some

maturity and have a smooth road ahead. Anyways, this was just one silly

experience that I had and wanted to share with my buddies.

>

> is

>

=

[Guest guest]

Oh Mardi! I would have loved that too. I meant to tell everyone that I was going

to be at the conference but for the last few weeks, I was not really active on

the forum because of some family situation. I registered at the last minute as I

was not even sure I would be able to arrange babysitting. Will hopefully meet

some day

is

>

> I wish i had known you were there! would have loved to meet up in person.

>

> I left the conference thinking, holy crap, if we don't get our act together as

a society, we are not going to be around much longer. One of the nutritionists

was talking about the effects of GMO on mice. After 3 generations of an

exclusive GMO diet, the mice were sterile and some were growing hair in their

mouth.

>

> the link to the conference slides can be found here:

>

>

https://www.yousendit.com/transfer.php?action=batch_download & send_id=1472099169 & \

email=893abd8ac36d6d95d5fc84ca00a43ade

>

> It's a huge file...might need to let your computer run for hours.

>

> cheers, mardi

>

[Guest guest]

Hi ,

Folate antibody test can be done by sending the serum to the lab of Dr Quadros

in NY. I am attaching a link for the details of this study:

http://www.nature.com/mp/journal/vaop/ncurrent/full/mp2011175a.html

I received the requisition thru our dan but I think you can call Dr Quadros lab

and they may be able to guide you as to how you can get it done directly. I

couldn't locate the contact no but if I find it, I will email it to you.

I just have a good feeling about Dr Buie. My son has reflux and some gastritis

and never had any GI evaluation. I have been thinking of taking him to a

gastroenterologist but was nervous as I don't want to take him to any biomed

haters. Dr Buie has been taking care of children on the spectrum. Seemed kind. I

havn't called his office yet to get more details.

is

> >

> > Thank you is for the update!!  And never mind that silly arrogant mom

 -- she is obviously too narcissistic to notice anyone else's feelings so not

worth your time.  You are way ahead of many, many mom's who never try biomed

and I am sure it is not too late for your child.  Think about the progress he

has made in the last 10months.  I know it can get tough -- i sometimes

question myself and my decisions in all of this too...are we on the right track,

he is getting better or worse, have we seen all the " specialists " etc...I have

finally come to the realization that I need to slow down a little, give more

hugs/dont worry so much if they are getting the supplements on time, and take

time to breath outside biomed....this isn't a sprint, it's a marathon....keep

your chin up!  He will get there!

> >

> >

> > ________________________________

> > From: alexis_d3378 <alexis_d3378@>

> > To: mb12valtrex

> > Sent: Monday, April 30, 2012 9:59 PM

> > Subject: ARI conference experience! Positives and negatives

> >

> >

> > ÂÂ

> > Hi everyone,

> >

> > I have been away from the forum for the last several days because of my

son's condition and some family matters and just came back on the forum

yesterday. During the time that I have been gone, I attended the ARI conference

and have learned a lot. I would love to share all that I have learned with my

friends here. I am trying to make some notes about the important points that I

have learned and then will be posting soon. Overall the experience was good. I

attended the course as the Level I practitioner. The first day was more about

all the research that has been done and it was more like all the presenters were

trying to convince the docs that autism is treatable. Though there was not much

to learn in terms of practical solutions to our kid's problems, it was a very

emotional experience for me. I sat there crying during most of the lectures,

sometimes from feeling extremely hopeful for these kids and then sometimes from

regrets that I have about not

> > getting the right help for my son till he was almost 6. Second day was busy

and the lectures were more geared towards labs and treatments. I still have to

go through my notes several times to have a basic understanding of several

markers. I will share some important points today:

> >

> > I met the neurologist who has done the study on kids with folate receptor

antibodies and according to him, children who have the antibodies positive,

should not only stay away from cow's milk but also from goat milk and camel

milk. Folinic acid is recommended as it was the form that was studied but 5MTHF

can be tried but dose should be half of the dose of folinic acid. Children who

are suspected to have seizures should have a 23 hour EEG or a video EEG to rule

out silent seizures.

> >

> > I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need

to take my child to him or his practice for an evaluation.

> >

> > Most of the dans strongly recommended sacch boulardii for clostridia. Nobody

was aware of the immune dysfunction that I had heard of.

> >

> > Met some dans who strongly recommended AC chelation and they have had

amazing results on a huge percentage of kids who completed the AC chelation.

> >

> > I will be posting some important links once I have everything organized. I

am available to answer any questions that any of you may have. I know that there

are several moms here who know a lot more than me and I still have a lot to

learn but I will be happy to share anything that I have learned.

> >

> > Although this conference was a great learning experience for me, I had some

interesting experiences there too. I met a doctor mom with a child on spectrum,

who asked me how old my kid was. Then she went on to tell me " Oh my God! he is

still not recovered?? He is too old to be recovered. " Then she went on and on

and how I should have paid more attention and googled the autism treatments 6

years ago. She feels great about herself that her daughter is 3 years old and

she is already seeing the best and the most expensive dan doctor available in

Long Island. And since it takes me several bad experiences to argue or fight

with anyone, I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is relatively

new to the biomed world and was just trying to make another mom feel horrible

about herself. Since I was already dealing with some serious family issues, I

spent the weekend after the

> > conference crying even though I knew that it didn't matter what she said. I

personally feel that a lot of us moms are already broken. We seem strong and

have to act strong for our kids but we all know that on and off, we blame

ourselves for any failures. We are all fighting for our kids with whatever

strength we have. This forum has been my best friend for the last ten months.

And not a single parent on this forum has been discouraging to me. There have

been a lot of nights that when I was up late at night worried about my son's

treatments and one of you was there to support me. I wish this young mom that I

met will try to get some maturity and have a smooth road ahead. Anyways, this

was just one silly experience that I had and wanted to share with my buddies.

> >

> > is

> >

>