ARI conference experience! Positives and negatives

[Guest guest]

The biggest file (around 250 mb) has every session. The others are just smaller files by track or without color. The Dana Laake sessions had some really great slides on specific supplements for specific issues. Cheers, mardi

[Guest guest]

Hi is,

I am sorry that you were so sad at the conference. I can totally relate to

being so sad for my son that he has so many illnesses and that I am left mostly

alone to solve this problem. This group, together with a few other groups, have

been a great source of comfort, support and of course exchange of ideas that

have gotten me through the worst times and bring us so much closer to recovery.

I live on Long Island and I cannot imagine relying on any of the drs here. I

suppose she referred to Dr Baker, but I don't like his style. I work with drs

who want my opinion and experiences and collaborate with me. I don't like to be

sold the latest pet project.

And, I started when my son was 11 months old and he is not recovered yet, so

starting early is not the magic bullet. I have actually have several friends (4

that I can think of off hand) with kids that recovered in high school and a

couple of them started really late too. We can all get there, or at least close

to there.)

Regarding gut treatments, I don't believe for a second that there is a gut

illness that is not infectious and probably all are at least partially parasitic

in nature. The kids on the MMS group and shedding biofilm left and right

through the use of MMS enemas. My husband recovered from crohns disease with

antibiotics and antiparasitics.

I personally like AC chelation. My son and I have done both AC chelation and IV

chelation and for us, the AC chelation was a much better experience. By a dozen

IVs my hair started turning grey and I had some memory loss and lots of fatigue.

It was interesting that as they added to my IV one solution at a time that I

could immediately feel the glutatione gave me a die off response that made me

sleepy and then later the vitamin C and NAC solution made me feel instantly

clear, calm and energized. I often wonder it the kids that do well on IV

chelation would not have done equally as well if they received only glutatione

and vitamin C/NAC.

I would be interested in the names of a few DANs that support AC chelation. I

mentor new families thru my local TACA group and it would be helpful to pass

that information on.

If you decide to go to Autism One, definitely let me know so that we can sit

together. You would not cry if you were sitting with me. )

Caryn

>

> Hi everyone,

>

> I have been away from the forum for the last several days because of my son's

condition and some family matters and just came back on the forum yesterday.

During the time that I have been gone, I attended the ARI conference and have

learned a lot. I would love to share all that I have learned with my friends

here. I am trying to make some notes about the important points that I have

learned and then will be posting soon. Overall the experience was good. I

attended the course as the Level I practitioner. The first day was more about

all the research that has been done and it was more like all the presenters were

trying to convince the docs that autism is treatable. Though there was not much

to learn in terms of practical solutions to our kid's problems, it was a very

emotional experience for me. I sat there crying during most of the lectures,

sometimes from feeling extremely hopeful for these kids and then sometimes from

regrets that I have about not getting the right help for my son till he was

almost 6. Second day was busy and the lectures were more geared towards labs and

treatments. I still have to go through my notes several times to have a basic

understanding of several markers. I will share some important points today:

>

> I met the neurologist who has done the study on kids with folate receptor

antibodies and according to him, children who have the antibodies positive,

should not only stay away from cow's milk but also from goat milk and camel

milk. Folinic acid is recommended as it was the form that was studied but 5MTHF

can be tried but dose should be half of the dose of folinic acid. Children who

are suspected to have seizures should have a 23 hour EEG or a video EEG to rule

out silent seizures.

>

> I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need to

take my child to him or his practice for an evaluation.

>

> Most of the dans strongly recommended sacch boulardii for clostridia. Nobody

was aware of the immune dysfunction that I had heard of.

>

> Met some dans who strongly recommended AC chelation and they have had amazing

results on a huge percentage of kids who completed the AC chelation.

>

> I will be posting some important links once I have everything organized. I am

available to answer any questions that any of you may have. I know that there

are several moms here who know a lot more than me and I still have a lot to

learn but I will be happy to share anything that I have learned.

>

> Although this conference was a great learning experience for me, I had some

interesting experiences there too. I met a doctor mom with a child on spectrum,

who asked me how old my kid was. Then she went on to tell me " Oh my God! he is

still not recovered?? He is too old to be recovered. " Then she went on and on

and how I should have paid more attention and googled the autism treatments 6

years ago. She feels great about herself that her daughter is 3 years old and

she is already seeing the best and the most expensive dan doctor available in

Long Island. And since it takes me several bad experiences to argue or fight

with anyone, I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is relatively

new to the biomed world and was just trying to make another mom feel horrible

about herself. Since I was already dealing with some serious family issues, I

spent the weekend after the conference crying even though I knew that it didn't

matter what she said. I personally feel that a lot of us moms are already

broken. We seem strong and have to act strong for our kids but we all know that

on and off, we blame ourselves for any failures. We are all fighting for our

kids with whatever strength we have. This forum has been my best friend for the

last ten months. And not a single parent on this forum has been discouraging to

me. There have been a lot of nights that when I was up late at night worried

about my son's treatments and one of you was there to support me. I wish this

young mom that I met will try to get some maturity and have a smooth road ahead.

Anyways, this was just one silly experience that I had and wanted to share with

my buddies.

>

> is

>

[Guest guest]

Hi Caryn,

Thanks for your support. I would love to meet you in person. I am trying my best

to make arrangements to attend the autism one conference. I will let you know as

soon as my trip is finalized.

Yes the other doc was talking about Sid Baker. She has just seen him once and

they havn't started any treatments yet. She just needs to grow a little bit and

I hope that she will learn soon as most of us have a difficult path.

I will email you the name of dan that loves AC chelation.

is

> >

> > Hi everyone,

> >

> > I have been away from the forum for the last several days because of my

son's condition and some family matters and just came back on the forum

yesterday. During the time that I have been gone, I attended the ARI conference

and have learned a lot. I would love to share all that I have learned with my

friends here. I am trying to make some notes about the important points that I

have learned and then will be posting soon. Overall the experience was good. I

attended the course as the Level I practitioner. The first day was more about

all the research that has been done and it was more like all the presenters were

trying to convince the docs that autism is treatable. Though there was not much

to learn in terms of practical solutions to our kid's problems, it was a very

emotional experience for me. I sat there crying during most of the lectures,

sometimes from feeling extremely hopeful for these kids and then sometimes from

regrets that I have about not getting the right help for my son till he was

almost 6. Second day was busy and the lectures were more geared towards labs and

treatments. I still have to go through my notes several times to have a basic

understanding of several markers. I will share some important points today:

> >

> > I met the neurologist who has done the study on kids with folate receptor

antibodies and according to him, children who have the antibodies positive,

should not only stay away from cow's milk but also from goat milk and camel

milk. Folinic acid is recommended as it was the form that was studied but 5MTHF

can be tried but dose should be half of the dose of folinic acid. Children who

are suspected to have seizures should have a 23 hour EEG or a video EEG to rule

out silent seizures.

> >

> > I thoroughly enjoyed Dr Buie's teleconference and am convinced that I need

to take my child to him or his practice for an evaluation.

> >

> > Most of the dans strongly recommended sacch boulardii for clostridia. Nobody

was aware of the immune dysfunction that I had heard of.

> >

> > Met some dans who strongly recommended AC chelation and they have had

amazing results on a huge percentage of kids who completed the AC chelation.

> >

> > I will be posting some important links once I have everything organized. I

am available to answer any questions that any of you may have. I know that there

are several moms here who know a lot more than me and I still have a lot to

learn but I will be happy to share anything that I have learned.

> >

> > Although this conference was a great learning experience for me, I had some

interesting experiences there too. I met a doctor mom with a child on spectrum,

who asked me how old my kid was. Then she went on to tell me " Oh my God! he is

still not recovered?? He is too old to be recovered. " Then she went on and on

and how I should have paid more attention and googled the autism treatments 6

years ago. She feels great about herself that her daughter is 3 years old and

she is already seeing the best and the most expensive dan doctor available in

Long Island. And since it takes me several bad experiences to argue or fight

with anyone, I didn't give her a piece of my mind and was just astonished at her

arrogance. I could not believe that she was just another mom who is relatively

new to the biomed world and was just trying to make another mom feel horrible

about herself. Since I was already dealing with some serious family issues, I

spent the weekend after the conference crying even though I knew that it didn't

matter what she said. I personally feel that a lot of us moms are already

broken. We seem strong and have to act strong for our kids but we all know that

on and off, we blame ourselves for any failures. We are all fighting for our

kids with whatever strength we have. This forum has been my best friend for the

last ten months. And not a single parent on this forum has been discouraging to

me. There have been a lot of nights that when I was up late at night worried

about my son's treatments and one of you was there to support me. I wish this

young mom that I met will try to get some maturity and have a smooth road ahead.

Anyways, this was just one silly experience that I had and wanted to share with

my buddies.

> >

> > is

> >

>

[Guest guest]

carmen.....i love this post! it was the same for me....i had so much bitterness in me....( i still have some) but it was when I found acceptance in what God had given us....when I knew that God was good and no suffering would last forever....when I stopped askin God to recover my son and asked God to just give me strength to survive what was ahead for us.....that is when things got better...

I think autism taught me so much...it was a really hard lessons...i learned how bad it is to judge another person....how we can never ever know what someone has been thru to have the right to judge them. rich or poor. I learned that I was not such a terrible person after all(even aftr all those years hangin upside down from a pole)....but that I could be better....and that is what I try to do every day is be better then yesterday....kinder...stronger....serving God more...forgiving others...grrr. forgiving myself..grrrrrrrr.......i still have so far to go....but my inner healing is with out a doubt connected to my sons.....I wish I could do some intense therapy...but for now I lean on my faith...I believe God is the greatest healer of all..

channa

To: mb12valtrex Sent: Tuesday, May 1, 2012 11:07 AMSubject: Re: ARI conference experience! Positives and negatives

Hi is and All Great Moms and Dads on this forum,I have not participated on this forum for many years but felt the needto now. My son, 15 is not recovered yet either. In some areas he ismuch better. But we still have our one step forward two back days.The feelings of guilt, regrets, would'ves, should'ves, could'ves can'teven begin to express the roller coaster of emotions I've experienced inmore than a decade. What made things worse was my DH's denial of thesituation and the trauma and drama that ensued in the house because ofthat. At times I felt so defeated and alone that I wanted stopeverything.Fastforward to now, I am still working on recovering my son and will notgive up until he becomes independent. It will take as long as it takes.It took me many years to be okay about him not being recovered yet. The one incident that helped me come to feel this way was the

following:I was seeing a holistic psycotherapist and he was showing me how I couldliterally get out of "being" in the "fear" mode that I was always in andstepping into "love." My eyes were closed and I got up from one chair(the fear) to sit into the other. I suddenly had a vision of my son, athis current age (13 at the time) who was waving to me to jump in. I wasseeing myself at the edge of a cliff and he was in a clear blue lagoon. He was telling me to let go of the fear and join him because he was in astate of bliss. Hi message to me was that no matter how he appeared tobe on the outside, inside he was this happy, loving kid in a constantstate of bliss and that I should release the fear and join him in thisstate.Not only was I blown away but so was the therapist when I told him whatI saw. I guess my point in all of this is that we're all as muchstudents and teachers simultaneosly just as our

kids are to us.What has helped me in releasing some family entanglements has beenFamily Constellation Work that I have done with this therapist. Klinghardt is a big proponent of this therapy as part of his 4 levels ofhealing. I'm on the east coast and I'm trying to bring this work to theASD community. I've found that the more I've healed, the more my sonhas healed as well.God Bless to all of you angels. In many ways, we are the lucky ones.Carmen>>>> Although this conference was a great learning experience for me, I hadsome interesting experiences there too. I met a doctor mom with a childon spectrum, who asked me how old my kid was. Then she went on to tellme

"Oh my God! he is still not recovered?? He is too old to berecovered." Then she went on and on and how I should have paid moreattention and googled the autism treatments 6 years ago. She feels greatabout herself that her daughter is 3 years old and she is already seeingthe best and the most expensive dan doctor available in Long Island. Andsince it takes me several bad experiences to argue or fight with anyone,I didn't give her a piece of my mind and was just astonished at herarrogance. I could not believe that she was just another mom who isrelatively new to the biomed world and was just trying to make anothermom feel horrible about herself. Since I was already dealing with someserious family issues, I spent the weekend after the conference cryingeven though I knew that it didn't matter what she said. I personallyfeel that a lot of us moms are already broken. We seem strong and haveto act strong for

our kids but we all know that on and off, we blameourselves for any failures. We are all fighting for our kids withwhatever strength we have. This forum has been my best friend for thelast ten months. And not a single parent on this forum has beendiscouraging to me. There have been a lot of nights that when I was uplate at night worried about my son's treatments and one of you was thereto support me. I wish this young mom that I met will try to get somematurity and have a smooth road ahead. Anyways, this was just one sillyexperience that I had and wanted to share with my buddies.>> is>

[Guest guest]

is, I forgot to say thank you for sharing what you learned at the conference!

I always said it would be great if we had doctors and parents sharing together instead of having seperate teams like some groups ......

we can learn twice more by combining all our heads together.....and in turn heal our kids qiucker.....their was a old quote from some old doctor....cant remember....maybe you heard it alexis....it went something like....always listen to the peasents ,gypsys and farmers as they all have some great wisdom to impart..

i cant remember ...but it was a old doc who was saying that he got many a great info from many diffrent sources and people.....that makes a great doc....to think outside the box.....to accept wisdom from all places...

channa

To: mb12valtrex Sent: Tuesday, May 1, 2012 8:56 AMSubject: Re: Re: ARI conference experience! Positives and negatives

Awesome Heidi! There needs to be a book published with all moms with recovered kids and their stories!

Cristine

Re: ARI conference experience! Positives and negatives

One of mine was 14 when I started recovery treatments on him. In just one year, he went from special needs schooling to regular schooling. Shame on her for blaming you. I took my son to specialists for 12 years before I found out about recovery and biomed. All those docs didn't help him, except for the speech therapist. I would like to put your big mouth doc in the same room with my son's old specialists so she can tell them that they should have payed more attention.Love and prayers,Heidi N

[Guest guest]

Channa,

Even though I learned a lot at the conference, it was not even close to what I

have learned from parents here. I thought several times during lectures that a

lot of dans didn't pay attention to details like moms do. When I asked about

phenol sensitivity, none of them knew more than me about the subject. There are

only few dans who actually have kids on spectrum who are more flexible and open

to suggestions and do give weight to what parents have to say.

I have learned so much from you Channa and I thank you for that. Together we all

will recover our kids.

Blessings

is

>

> is, I forgot to say thank you for sharing what you learned at the

conference!

> Â Â Â Â Â Â Â Â Â Â I always said it would be great if we had doctors and

parents sharing together instead of having seperate teams like some groups

.......

> we can learn twice more by combining all our heads together.....and in turn

heal our kids qiucker.....their was a old quote from some old doctor....cant

remember....maybe you heard it alexis....it went something like....always listen

to the peasents ,gypsys and farmers as they all have some great wisdom to

impart..

> Â

> i cant remember ...but it was a old doc who was saying that he got many a

great info from many diffrent sources and people.....that makes a great

doc....to think outside the box.....to accept wisdom from all places...

> channa

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Tuesday, May 1, 2012 8:56 AM

> Subject: Re: Re: ARI conference experience! Positives and

negatives

>

>

> Â

> Awesome Heidi! There needs to be a book published with all moms with recovered

kids and their stories!

> Cristine

>

> Re: ARI conference experience! Positives and negatives

> >

> >Â

> >One of mine was 14 when I started recovery treatments on him. In just

> >one year, he went from special needs schooling to regular schooling.

> >Shame on her for blaming you. I took my son to specialists for 12 years

> >before I found out about recovery and biomed. All those docs didn't

> >help him, except for the speech therapist. I would like to put your big

> >mouth doc in the same room with my son's old specialists so she can tell

> >them that they should have payed more attention.

> >

> >Love and prayers,

> >

> >Heidi N

> >

>

[Guest guest]

Hi Heidi,Do you mind me asking had your son speech at this stage I know its only part of recovery but its my holy grail, my son is 8 and still non verbal despite 6 years of biomed,and trying so many approaches over the years,I am still determined to recover him,but just having bad day here and need positive stories.ThanksLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Thu, 03 May 2012 13:20:09 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: ARI conference experience! Positives and negatives Channa,Even though I learned a lot at the conference, it was not even close to what I have learned from parents here. I thought several times during lectures that a lot of dans didn't pay attention to details like moms do. When I asked about phenol sensitivity, none of them knew more than me about the subject. There are only few dans who actually have kids on spectrum who are more flexible and open to suggestions and do give weight to what parents have to say. I have learned so much from you Channa and I thank you for that. Together we all will recover our kids. Blessingsis>> is,  I forgot to say thank you for sharing what you learned at the conference!>            I always said it would be great if we had doctors and parents sharing together instead of having seperate teams like some groups ......> we can learn twice more by combining all our heads together.....and in turn heal our kids qiucker.....their was a old quote from some old doctor....cant remember....maybe you heard it alexis....it went something like....always listen to the peasents ,gypsys and farmers as they all have some great wisdom to impart..>  > i cant remember ...but it was a old doc who was saying that he got many a great info from many diffrent sources and people.....that makes a great doc....to think outside the box.....to accept wisdom from all places...> channa> > > ________________________________> > To: mb12valtrex > Sent: Tuesday, May 1, 2012 8:56 AM> Subject: Re: Re: ARI conference experience! Positives and negatives> > >   > Awesome Heidi! There needs to be a book published with all moms with recovered kids and their stories!> Cristine> > Re: ARI conference experience! Positives and negatives> >> >  > >One of mine was 14 when I started recovery treatments on him. In just > >one year, he went from special needs schooling to regular schooling. > >Shame on her for blaming you. I took my son to specialists for 12 years > >before I found out about recovery and biomed. All those docs didn't > >help him, except for the speech therapist. I would like to put your big > >mouth doc in the same room with my son's old specialists so she can tell > >them that they should have payed more attention.> >> >Love and prayers,> >> >Heidi N> >>

[Guest guest]

A super smart mom!

> >

> >

> >

> > Although this conference was a great learning experience for me, I had

> some interesting experiences there too. I met a doctor mom with a child

> on spectrum, who asked me how old my kid was. Then she went on to tell

> me " Oh my God! he is still not recovered?? He is too old to be

> recovered. " Then she went on and on and how I should have paid more

> attention and googled the autism treatments 6 years ago. She feels great

> about herself that her daughter is 3 years old and she is already seeing

> the best and the most expensive dan doctor available in Long Island. And

> since it takes me several bad experiences to argue or fight with anyone,

> I didn't give her a piece of my mind and was just astonished at her

> arrogance. I could not believe that she was just another mom who is

> relatively new to the biomed world and was just trying to make another

> mom feel horrible about herself. Since I was already dealing with some

> serious family issues, I spent the weekend after the conference crying

> even though I knew that it didn't matter what she said. I personally

> feel that a lot of us moms are already broken. We seem strong and have

> to act strong for our kids but we all know that on and off, we blame

> ourselves for any failures. We are all fighting for our kids with

> whatever strength we have. This forum has been my best friend for the

> last ten months. And not a single parent on this forum has been

> discouraging to me. There have been a lot of nights that when I was up

> late at night worried about my son's treatments and one of you was there

> to support me. I wish this young mom that I met will try to get some

> maturity and have a smooth road ahead. Anyways, this was just one silly

> experience that I had and wanted to share with my buddies.

> >

> > is

> >

>

[Guest guest]

My daughter had some speech but just echolalia. I would call her non verbal because she couldn't say what she wanted. But we started chelation with Andy Cutler's protocol and she now is starting to have independent thoughts. She is more aware. She actually shows that she cares what we think. She is not all blank and non interested.She is 19. We use DMSA and ALA. It is also very inexpensive. Virginia 341-22nd Street West Owen Sound ON N4K 4E9 To: mb12valtrex Sent: Thursday, May 3, 2012 10:20:43 AM Subject: Re: Re: ARI conference experience! Positives and negatives

Hi Heidi,Do you mind me asking had your son speech at this stage I know its only part of recovery but its my holy grail, my son is 8 and still non verbal despite 6 years of biomed,and trying so many approaches over the years,I am still determined to recover him,but just having bad day here and need positive stories.ThanksLet your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Thu, 03 May 2012 13:20:09 -0000To: <mb12valtrex >ReplyTo: mb12valtrex

Subject: Re: ARI conference experience! Positives and negatives

Channa,

Even though I learned a lot at the conference, it was not even close to what I have learned from parents here. I thought several times during lectures that a lot of dans didn't pay attention to details like moms do. When I asked about phenol sensitivity, none of them knew more than me about the subject. There are only few dans who actually have kids on spectrum who are more flexible and open to suggestions and do give weight to what parents have to say.

I have learned so much from you Channa and I thank you for that. Together we all will recover our kids.

Blessings

is

>

> is, I forgot to say thank you for sharing what you learned at the conference!

> Â Â Â Â Â Â Â Â Â Â I always said it would be great if we had doctors and parents sharing together instead of having seperate teams like some groups ......

> we can learn twice more by combining all our heads together.....and in turn heal our kids qiucker.....their was a old quote from some old doctor....cant remember....maybe you heard it alexis....it went something like....always listen to the peasents ,gypsys and farmers as they all have some great wisdom to impart..

> Â

> i cant remember ...but it was a old doc who was saying that he got many a great info from many diffrent sources and people.....that makes a great doc....to think outside the box.....to accept wisdom from all places...

> channa

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Tuesday, May 1, 2012 8:56 AM

> Subject: Re: Re: ARI conference experience! Positives and negatives

>

>

> Â

> Awesome Heidi! There needs to be a book published with all moms with recovered kids and their stories!

> Cristine

>

> Re: ARI conference experience! Positives and negatives

> >

> >Â

> >One of mine was 14 when I started recovery treatments on him. In just

> >one year, he went from special needs schooling to regular schooling.

> >Shame on her for blaming you. I took my son to specialists for 12 years

> >before I found out about recovery and biomed. All those docs didn't

> >help him, except for the speech therapist. I would like to put your big

> >mouth doc in the same room with my son's old specialists so she can tell

> >them that they should have payed more attention.

> >

> >Love and prayers,

> >

> >Heidi N

> >

>

[Guest guest]

Channa you are so right! God is the greatest healer. I read recently

that Jesus healed simply by seeing God in everyone. Imagine that!

I think one of our biggest challenges and at the same time, the biggest

lesson we are learning is forgiveness: of ourselves, our community,

educational, medical, political institutions. Holy cow, it's a daunting

challenge. I try to remind myself that I must take it moment by moment,

otherwise I'll drown. It's the only way to get through this tsunami

that's wreacked havoc in our lives.

Even if you still want to " hang upside down from a pole " you're still

divine essence and are loved for just being.

Big hugs! Carmen

> >

> >

> >

> > Although this conference was a great learning experience for me, I

had

> some interesting experiences there too. I met a doctor mom with a

child

> on spectrum, who asked me how old my kid was. Then she went on to tell

> me " Oh my God! he is still not recovered?? He is too old to be

> recovered. " Then she went on and on and how I should have paid more

> attention and googled the autism treatments 6 years ago. She feels

great

> about herself that her daughter is 3 years old and she is already

seeing

> the best and the most expensive dan doctor available in Long Island.

And

> since it takes me several bad experiences to argue or fight with

anyone,

> I didn't give her a piece of my mind and was just astonished at her

> arrogance. I could not believe that she was just another mom who is

> relatively new to the biomed world and was just trying to make another

> mom feel horrible about herself. Since I was already dealing with some

> serious family issues, I spent the weekend after the conference crying

> even though I knew that it didn't matter what she said. I personally

> feel that a lot of us moms are already broken. We seem strong and have

> to act strong for our kids but we all know that on and off, we blame

> ourselves for any failures. We are all fighting for our kids with

> whatever strength we have. This forum has been my best friend for the

> last ten months. And not a single parent on this forum has been

> discouraging to me. There have been a lot of nights that when I was up

> late at night worried about my son's treatments and one of you was

there

> to support me. I wish this young mom that I met will try to get some

> maturity and have a smooth road ahead. Anyways, this was just one

silly

> experience that I had and wanted to share with my buddies.

> >

> > is

> >

>

[Guest guest]

LOL....bless you Carmen:)

To: mb12valtrex Sent: Thursday, May 3, 2012 5:03 PMSubject: Re: ARI conference experience! Positives and negatives

Channa you are so right! God is the greatest healer. I read recentlythat Jesus healed simply by seeing God in everyone. Imagine that!I think one of our biggest challenges and at the same time, the biggestlesson we are learning is forgiveness: of ourselves, our community,educational, medical, political institutions. Holy cow, it's a dauntingchallenge. I try to remind myself that I must take it moment by moment,otherwise I'll drown. It's the only way to get through this tsunamithat's wreacked havoc in our lives.Even if you still want to "hang upside down from a pole" you're stilldivine essence and are loved for just being.Big hugs! Carmen> >> >> >> > Although this conference was a great learning experience for me, Ihad> some interesting experiences there too. I met a doctor mom with achild> on spectrum, who asked me how old my kid was. Then she went on to tell>

me "Oh my God! he is still not recovered?? He is too old to be> recovered." Then she went on and on and how I should have paid more> attention and googled the autism treatments 6 years ago. She feelsgreat> about herself that her daughter is 3 years old and she is alreadyseeing> the best and the most expensive dan doctor available in Long Island.And> since it takes me several bad experiences to argue or fight withanyone,> I didn't give her a piece of my mind and was just astonished at her> arrogance. I could not believe that she was just another mom who is> relatively new to the biomed world and was just trying to make another> mom feel horrible about herself. Since I was already dealing with some> serious family issues, I spent the weekend after the conference crying> even though I knew that it didn't matter what she said. I personally> feel that a lot of

us moms are already broken. We seem strong and have> to act strong for our kids but we all know that on and off, we blame> ourselves for any failures. We are all fighting for our kids with> whatever strength we have. This forum has been my best friend for the> last ten months. And not a single parent on this forum has been> discouraging to me. There have been a lot of nights that when I was up> late at night worried about my son's treatments and one of you wasthere> to support me. I wish this young mom that I met will try to get some> maturity and have a smooth road ahead. Anyways, this was just onesilly> experience that I had and wanted to share with my buddies.> >> > is> >>

[Guest guest]

well....sadly it is hard to break patterns in people....you can be one of the pioneers in a new way of treating our sick kids.....we need to bring in the new thinking along with the new way of medicine....I am sure you will be learning things that I or the moms on the group dont know about....and then you can share wit us:)

i always knew you would become our secret spy

To: mb12valtrex Sent: Thursday, May 3, 2012 9:20 AMSubject: Re: ARI conference experience! Positives and negatives

Channa,Even though I learned a lot at the conference, it was not even close to what I have learned from parents here. I thought several times during lectures that a lot of dans didn't pay attention to details like moms do. When I asked about phenol sensitivity, none of them knew more than me about the subject. There are only few dans who actually have kids on spectrum who are more flexible and open to suggestions and do give weight to what parents have to say. I have learned so much from you Channa and I thank you for that. Together we all will recover our kids. Blessingsis>> is, I forgot to say thank you for sharing what you learned at the conference!>

          I always said it would be great if we had doctors and parents sharing together instead of having seperate teams like some groups ......> we can learn twice more by combining all our heads together.....and in turn heal our kids qiucker.....their was a old quote from some old doctor....cant remember....maybe you heard it alexis....it went something like....always listen to the peasents ,gypsys and farmers as they all have some great wisdom to impart..>  > i cant remember ...but it was a old doc who was saying that he got many a great info from many diffrent sources and people.....that makes a great doc....to think outside the box.....to accept wisdom from all places...> channa> > > ________________________________> > To: mb12valtrex > Sent: Tuesday, May 1, 2012 8:56 AM> Subject: Re: Re: ARI conference experience! Positives and negatives> > >  > Awesome Heidi! There needs to be a book published with all moms with recovered kids and their stories!> Cristine> > Re: ARI conference experience! Positives and negatives> >> > > >One of mine was 14 when I started recovery treatments on him. In just >

>one year, he went from special needs schooling to regular schooling. > >Shame on her for blaming you. I took my son to specialists for 12 years > >before I found out about recovery and biomed. All those docs didn't > >help him, except for the speech therapist. I would like to put your big > >mouth doc in the same room with my son's old specialists so she can tell > >them that they should have payed more attention.> >> >Love and prayers,> >> >Heidi N> >>