Guest guest Posted October 22, 2011 Report Share Posted October 22, 2011 Dear listmates, My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working? She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view. Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance, Tetty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2011 Report Share Posted October 22, 2011 I am pretty sure Cheryl and others who have used antivirals will respond. But I think the 2x/day a day is a problem, and that the frequency of the Valtrex should be increased. Sara > > Dear listmates, > > My daughter started valtrex since early Sept so it has been nearly 2 months now. > The dosage is 500 mg twice a day. > > I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! > > I did not see any positive, no rashes..does this mean it is not working? > > She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! > > from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view. > > Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? > > We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? > > I really don't know what to do now, your opinion really matters!! > > thanks in advance, > Tetty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 I would think if she is getting worse since starting HBOT on top of the valtrex, that the HBOT would be to blame. I know some kids don't always get better with it. We have done neither so I am not drawing on personal experience. :::hugs::: Dear listmates, My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working? She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view. Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance, Tetty-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 I have heard that strep can become worse with HBOT. Any history with strep? I am just a mom, no expert, but maybe this could be the cause.To: mb12valtrex Sent: Sunday, October 23, 2011 5:29 AMSubject: Re: I am loosing my hope! I would think if she is getting worse since starting HBOT on top of the valtrex, that the HBOT would be to blame. I know some kids don't always get better with it. We have done neither so I am not drawing on personal experience. :::hugs::: Dear listmates, My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working? She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view. Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance, Tetty-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 How old is your son? What's the weight? Thanks, MhelTo: mb12valtrex From: vegascurls@...Date: Sun, 23 Oct 2011 07:58:40 -0700Subject: Re: I am loosing my hope! I have heard that strep can become worse with HBOT. Any history with strep? I am just a mom, no expert, but maybe this could be the cause.To: mb12valtrex Sent: Sunday, October 23, 2011 5:29 AMSubject: Re: I am loosing my hope! I would think if she is getting worse since starting HBOT on top of the valtrex, that the HBOT would be to blame. I know some kids don't always get better with it. We have done neither so I am not drawing on personal experience. :::hugs::: Dear listmates, My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working? She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view. Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance, Tetty-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 Comments within: ~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~ Dear listmates, My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. Dosage is probably too low. A lot of people find problems and they get better when the dosage is 3x a day. But I can't say for sure that that is your problem. There's too much going on to be sure of anything. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working? She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! She needs to stay on an antifungal for as long as she is on the antiviral. A round of it isn't going to help and GSE is useless while on antivirals. I don't know how old your daughter is so I don't know if this is an issue but 75mg might not be enough, either. I dunno. My son was started on 100mg when he was 5 years old. But the difference between 75mg and 100mg might be negligible - I don't know, I'm not a doctor or a pharmacist. from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! Then why did you start HBOT? If it was such a problem before, why did you add to it by starting something else? I can't say this enough: Don't start new things when you aren't finished getting settled on something else. My next appointment is in Dec, i really appreciate your view. Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever?Of course the symptoms are going to go away if you stop. But that's not going to help you. You have to do it right nor not at all because this isn't going to get better unless you do or quit (quitting isn't going to help you to know if this would help or not).No, if you stop, it does not mean you have to stop forever. But you can't abuse it, either. Just like antibiotics, these can cause resistance. We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? Yes, it very well can be the cause. At the very least, it's definitely a part of the problem. You should never try two new things at the same time. If you weren't finished with die off from the Valtrex, going right into a new therapy that causes it's own set of issues is not the best thing to do. It will only make the problem worse. There are people on both but they aren't going through die off when they start. Also, if you have a PANDAS kid, sometimes (not all PANDAS kids but some) HBOT is the worse thing you can do. Also, if bacteria is an issue, you'll want to find out if it's anaerobic bacteria because HBOT will only make that worse. It can also increase yeast. If yeast is your problem on the antiviral, then it probably got compounded. I really don't know what to do now, your opinion really matters!! I don't know what to tell you. I would probably start by getting on an antifungal and stopping HBOT. But I don't know. Does your doctor know that you started HBOT so soon after starting valtrex? And that you were still going through die off? Did s/he recommend that you do this? Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 My son went thru some terrible regressive behaviors for about six weeks after we started anti-virals. Maybe the anti-virals, anti-fungals,and HBOT were too much to introduce in a short period of time . How old is your son? What's the weight? Thanks, MhelTo: mb12valtrex From: vegascurls@...Date: Sun, 23 Oct 2011 07:58:40 -0700Subject: Re: I am loosing my hope! I have heard that strep can become worse with HBOT. Any history with strep? I am just a mom, no expert, but maybe this could be the cause.To: mb12valtrex Sent: Sunday, October 23, 2011 5:29 AMSubject: Re: I am loosing my hope! I would think if she is getting worse since starting HBOT on top of the valtrex, that the HBOT would be to blame. I know some kids don't always get better with it. We have done neither so I am not drawing on personal experience.:::hugs::: Dear listmates,My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working?She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view.Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever?We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance,Tetty-- Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 Hi! The antivirals never worked for my daugther either. So do testing and maybe there are other things you can try? We have sucsess with colesterol and secretin these days. LH To: mb12valtrex From: candice@...Date: Sun, 23 Oct 2011 10:40:31 -0500Subject: Re: I am loosing my hope! My son went thru some terrible regressive behaviors for about six weeks after we started anti-virals. Maybe the anti-virals, anti-fungals,and HBOT were too much to introduce in a short period of time . How old is your son? What's the weight? Thanks, Mhel To: mb12valtrex From: vegascurls@...Date: Sun, 23 Oct 2011 07:58:40 -0700Subject: Re: I am loosing my hope! I have heard that strep can become worse with HBOT. Any history with strep? I am just a mom, no expert, but maybe this could be the cause. To: mb12valtrex Sent: Sunday, October 23, 2011 5:29 AMSubject: Re: I am loosing my hope! I would think if she is getting worse since starting HBOT on top of the valtrex, that the HBOT would be to blame. I know some kids don't always get better with it. We have done neither so I am not drawing on personal experience.:::hugs::: Dear listmates,My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working?She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view.Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever?We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance,Tetty-- Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011 Thank you all for your comments and thoughts. I really appreciate it. My daughter is almost 8 years old, and weigh 50 lbs. We started valtrex beginning of September and that also when we have no longer seen the die off from antifungal ketoconazole (which took 1 1/2 month alone ). After starting valtrex, my daughter starting to hit her head and screaming 'eeee' while stomping her foot. I gave her brufen and it did help. Then after a month it seems ok and i started hbot, which we did initially in August followed by a break for a month. I guess I did not realize that I put too much in her body! when we did hbot in August (along with ketoconazole) i saw good things. This is why i thought i can continue. My daughter did not have strep (historically) but did encounter aerobic bacterial overgrowth in the past. I think I know where to go from here and thanks to your input. I'll end the hbot and continue with valtrex for a while. Btw, would you think that LDM 100 is good to counteract the bacterial overgrowth? Or can you recommend something? Many thanks, Tetty > > > Dear listmates, > > > > My daughter started valtrex since early Sept so it has been nearly 2 months now. > > The dosage is 500 mg twice a day. > > > Dosage is probably too low. A lot of people find problems and they get better when the dosage is 3x a day. But I can't say for sure that that is your problem. There's too much going on to be sure of anything. > > > > I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! > > > > I did not see any positive, no rashes..does this mean it is not working? > > > > She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! > > > She needs to stay on an antifungal for as long as she is on the antiviral. A round of it isn't going to help and GSE is useless while on antivirals. I don't know how old your daughter is so I don't know if this is an issue but 75mg might not be enough, either. I dunno. My son was started on 100mg when he was 5 years old. But the difference between 75mg and 100mg might be negligible - I don't know, I'm not a doctor or a pharmacist. > > > from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! > > > Then why did you start HBOT? If it was such a problem before, why did you add to it by starting something else? I can't say this enough: Don't start new things when you aren't finished getting settled on something else. > > > My next appointment is in Dec, i really appreciate your view. > > > > Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? > > > Of course the symptoms are going to go away if you stop. But that's not going to help you. You have to do it right nor not at all because this isn't going to get better unless you do or quit (quitting isn't going to help you to know if this would help or not). > > No, if you stop, it does not mean you have to stop forever. But you can't abuse it, either. Just like antibiotics, these can cause resistance. > > > > We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? > > > Yes, it very well can be the cause. At the very least, it's definitely a part of the problem. You should never try two new things at the same time. If you weren't finished with die off from the Valtrex, going right into a new therapy that causes it's own set of issues is not the best thing to do. It will only make the problem worse. There are people on both but they aren't going through die off when they start. Also, if you have a PANDAS kid, sometimes (not all PANDAS kids but some) HBOT is the worse thing you can do. Also, if bacteria is an issue, you'll want to find out if it's anaerobic bacteria because HBOT will only make that worse. It can also increase yeast. If yeast is your problem on the antiviral, then it probably got compounded. > > > > I really don't know what to do now, your opinion really matters!! > > > I don't know what to tell you. I would probably start by getting on an antifungal and stopping HBOT. But I don't know. Does your doctor know that you started HBOT so soon after starting valtrex? And that you were still going through die off? Did s/he recommend that you do this? > > Cheryl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 hbot was fabo with us and we have PANDAS in all 3 of us, BUT we were on antibiotics and antifugals WHILE doing it, MASSIVE diet off, the BIGGEST die of we have gotten from anything From: Greenberg Sent: Sunday, October 23, 2011 10:58 AM To: mb12valtrex Subject: Re: I am loosing my hope! I have heard that strep can become worse with HBOT. Any history with strep? I am just a mom, no expert, but maybe this could be the cause. To: mb12valtrex Sent: Sunday, October 23, 2011 5:29 AMSubject: Re: I am loosing my hope! I would think if she is getting worse since starting HBOT on top of the valtrex, that the HBOT would be to blame. I know some kids don't always get better with it. We have done neither so I am not drawing on personal experience.:::hugs::: Dear listmates,My daughter started valtrex since early Sept so it has been nearly 2 months now. The dosage is 500 mg twice a day. I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! I did not see any positive, no rashes..does this mean it is not working?She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view.Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever?We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? I really don't know what to do now, your opinion really matters!! thanks in advance,Tetty-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2011 Report Share Posted November 2, 2011 I just can tell you from our experience that (hard) HBOT flared yeast up to it's highest. My son turned into an tazmanien devil and so did I because I went with him. My husband ended up finishing the treatment with him. Anyhow, our mistake was that we were inpatient. Make sure his channels are open, so his body is ableu Caroline Voice of I am pretty sure Cheryl and others who have used antivirals will respond. But I think the 2x/day a day is a problem, and that the frequency of the Valtrex should be increased. Sara > > Dear listmates, > > My daughter started valtrex since early Sept so it has been nearly 2 months now. > The dosage is 500 mg twice a day. > > I posted earlier but it is just getting worse now. in the last 2 weeks she has been scratching people around her and hitting her head a lot. It makes me very frustrated ! > > I did not see any positive, no rashes..does this mean it is not working? > > She took ketoconazole 75 mg/day and GSE 125 mg twicw a day, i think the yeast should be taken care of ?! > > from my last phone consult i had, i was advised to go through but it is really worsen now..i can't handle this anymore! My next appointment is in Dec, i really appreciate your view. > > Can I stop for a while to see if these symptoms go away and do again in the future or if i stop means stop forever? > > We are trying out mild hbot starting this month, can it be the cause? Has anyone tried antiviral and hbot at the same time? > > I really don't know what to do now, your opinion really matters!! > > thanks in advance, > Tetty > Quote Link to comment Share on other sites More sharing options...
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