Chelation, Cognition and Adhd

[Guest guest]

Hi everyone,

we are trying to figure out whether to cheleate or now. My son has progressed

gretaly with everything else we have done ( we have tried almost everything

except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN,

antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to

son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not

permanent.

Has anybody seen any cognitive changes or ADHD changes with the use of

chelation? What affects does it have on the bowel. I am leaning toward meds for

adhd but I hate that option.

Thanks

Selena

[Guest guest]

Have you tried piracetam for ADHD?Sent from my iPhone

Hi everyone,

we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.

Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option.

Thanks

Selena

[Guest guest]

Chelating helped my son in many ways but it did not help with ADHD. We've also done mostly everything and after 5 years, we have come to a point where life has to improve for everyone in the family. His ADHD has really come in the way of his own confidence and our enjoyment of each others' company. I'm always yelling at him and he's always too distracted to care and it always ends in tears. He knows he can't concentrate and it hurts him so much. He doesn't understand why he can't think like everyone else and he always feels like a failure. Unbeknownst to me, the first week of school his teacher asked the class to set goals. His goal was not to make good grades, make lots of friends or even be the line leader. His goal was to concentrate better. Talk about a heart-breaker.We picked up the Ritalin on Friday. We went to our ped for it since my DAN doesn't generally do stimulants. Our ped started him ritalin but he likely will no stay on it. It's the oldest and most well known drug and he wanted to start with something they know the best. For the first month, he stays on normal ritalin (not slow release) because it clears the system fast and if he does have a reaction, we want it out as soon as possible. So for the first week, we just stick with 2 x a day of 5mg each. We watch and report back to the doc a week later. Then we'll adjust the dose again and titrate up as we feel necessary to get to the right dose. Once we get there, we'll consider going to long acting and maybe a newer drug that maybe has fewer side effects.Since we started Saturday, I've noticed that he doesn't sleep very well and has very hard time falling asleep. He already gets 1mg of melatonin at night. I'll be upping his dose to 3 mg and see if that helps. It is a side effect of stimulants.Today was his first day of school on ritalin and his teacher noticed a huge improvement. She said she knew just by looking at his handwriting that he had started (I hadn't told her but she was aware it would happen).My son does not have hyperactivity issues but has severe focus issues.I never wanted to go to meds but biomed just never made a difference. I would never recommend someone try meds first before biomed but for those of us that have been done our due diligence, I'm all for doing what works. I resisted long enough. I've known enough ADHD people personally that have told me how medication has made all the difference in the world for them. How they finally felt normal. I can't and won't deny my son that chance. I put it off as long as I could because I just never felt comfortable putting him on it so young (especially after Dr. G put him on antidepressants when he was 3 to disastrous effects). Now he's 8, I'm still not happy about it but I feel like it's really the only thing left for me to do. I might end up regretting the decision but I can't tell you how easy homework was today. He's outside playing right now because he got done with his homework faster than ever and not a single instance of yelling. There was actually quite a bit of humor involved as he came up to me as "Paper Head" (he put his homework in front of his face and walked around with it until I checked it). Laughing during homework time with him has always been rare.We call it his "thinking medicine" since it's to help him think better. Today I struggled with my NT son and his homework and my ASD son said NT son needed some of his thinking medicine. ;)Don't beat yourself up if you go there. My son is recovered from autism. His ADHD has only gotten worse.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Hi everyone,

we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.

Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option.

Thanks

Selena

[Guest guest]

Cheryl,That's great! I'm so glad you found something that works for him!Sent from my iPhoneChelating helped my son in many ways but it did not help with ADHD. We've also done mostly everything and after 5 years, we have come to a point where life has to improve for everyone in the family. His ADHD has really come in the way of his own confidence and our enjoyment of each others' company. I'm always yelling at him and he's always too distracted to care and it always ends in tears. He knows he can't concentrate and it hurts him so much. He doesn't understand why he can't think like everyone else and he always feels like a failure. Unbeknownst to me, the first week of school

his teacher asked the class to set goals. His goal was not to make good grades, make lots of friends or even be the line leader. His goal was to concentrate better. Talk about a heart-breaker.We picked up the Ritalin on Friday. We went to our ped for it since my DAN doesn't generally do stimulants. Our ped started him ritalin but he likely will no stay on it. It's the oldest and most well known drug and he wanted to start with something they know the best. For the first month, he stays on normal ritalin (not slow release) because it clears the system fast and if he does have a reaction, we want it out as soon as possible. So for the first week, we just stick with 2 x a day of 5mg each. We watch and report back to the doc a week later. Then we'll adjust the dose again and titrate up as we feel necessary to get to the right dose. Once we get there, we'll consider going to long acting and maybe a newer drug that maybe has fewer side

effects.Since we started Saturday, I've noticed that he doesn't sleep very well and has very hard time falling asleep. He already gets 1mg of melatonin at night. I'll be upping his dose to 3 mg and see if that helps. It is a side effect of stimulants.Today was his first day of school on ritalin and his teacher noticed a huge improvement. She said she knew just by looking at his handwriting that he had started (I hadn't told her but she was aware it would happen).My son does not have hyperactivity issues but has severe focus issues.I never wanted to go to meds but biomed just never made a difference. I would never recommend someone try meds first before biomed but for those of us that have been done our due diligence, I'm all for doing what works. I resisted long enough. I've known enough ADHD people personally that have told me how medication has made

all the difference in the world for them. How they finally felt normal. I can't and won't deny my son that chance. I put it off as long as I could because I just never felt comfortable putting him on it so young (especially after Dr. G put him on antidepressants when he was 3 to disastrous effects). Now he's 8, I'm still not happy about it but I feel like it's really the only thing left for me to do. I might end up regretting the decision but I can't tell you how easy homework was today. He's outside playing right now because he got done with his homework faster than ever and not a single instance of yelling. There was actually quite a bit of humor involved as he came up to me as "Paper Head" (he put his homework in front of his face and walked around with it until I checked it). Laughing during homework time with him has always been rare.We call it his "thinking medicine" since it's to help

him think better. Today I struggled with my NT son and his homework and my ASD son said NT son needed some of his thinking medicine. ;)Don't beat yourself up if you go there. My son is recovered from autism. His ADHD has only gotten worse.

<skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Hi everyone,

we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.

Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option.

Thanks

Selena

[Guest guest]

Yayyyy!

I know you're not completely comfortable with the idea, but once you find the right med/dosage combo, and you see the change in him, and he actually ENJOYS being him, you'll feel so much better. You can't say you didn't exhaust every other plausible option. And with the meds, he's at a PERFECT age to start learning strategies. It should take the edge off more than enough for him to be able to apply some new coping skills/strategies. He may not need it forever. But for now, it'll settle his mind. Who knows, maybe after some time of not constantly feeling the pressure, his over all stress level might decrease allowing his body to heal even further.

My son's best friend is ADHD. His grandfather says they know he was properly diagnosed and medicated because by the second day of meds, he was actually THANKING his mother for it. I'm glad you decided to give it a shot. I hope you guys see good things. Keep us posted. xox

-Tammy

To: mb12valtrex Sent: Monday, October 24, 2011 6:38 PMSubject: Re: Chelation, Cognition and Adhd

Chelating helped my son in many ways but it did not help with ADHD. We've also done mostly everything and after 5 years, we have come to a point where life has to improve for everyone in the family. His ADHD has really come in the way of his own confidence and our enjoyment of each others' company. I'm always yelling at him and he's always too distracted to care and it always ends in tears. He knows he can't concentrate and it hurts him so much. He doesn't understand why he can't think like everyone else and he always feels like a failure. Unbeknownst to me, the first week of school his teacher asked the class to set goals. His goal was not to make good grades, make lots of friends or even be the line leader. His goal was to concentrate better. Talk about a heart-breaker.

We picked up the Ritalin on Friday. We went to our ped for it since my DAN doesn't generally do stimulants. Our ped started him ritalin but he likely will no stay on it. It's the oldest and most well known drug and he wanted to start with something they know the best. For the first month, he stays on normal ritalin (not slow release) because it clears the system fast and if he does have a reaction, we want it out as soon as possible. So for the first week, we just stick with 2 x a day of 5mg each. We watch and report back to the doc a week later. Then we'll adjust the dose again and titrate up as we feel necessary to get to the right dose. Once we get there, we'll consider going to long acting and maybe a newer drug that maybe has fewer side effects.

Since we started Saturday, I've noticed that he doesn't sleep very well and has very hard time falling asleep. He already gets 1mg of melatonin at night. I'll be upping his dose to 3 mg and see if that helps. It is a side effect of stimulants.

Today was his first day of school on ritalin and his teacher noticed a huge improvement. She said she knew just by looking at his handwriting that he had started (I hadn't told her but she was aware it would happen).

My son does not have hyperactivity issues but has severe focus issues.

I never wanted to go to meds but biomed just never made a difference. I would never recommend someone try meds first before biomed but for those of us that have been done our due diligence, I'm all for doing what works. I resisted long enough. I've known enough ADHD people personally that have told me how medication has made all the difference in the world for them. How they finally felt normal. I can't and won't deny my son that chance. I put it off as long as I could because I just never felt comfortable putting him on it so young (especially after Dr. G put him on antidepressants when he was 3 to disastrous effects).

Now he's 8, I'm still not happy about it but I feel like it's really the only thing left for me to do. I might end up regretting the decision but I can't tell you how easy homework was today. He's outside playing right now because he got done with his homework faster than ever and not a single instance of yelling. There was actually quite a bit of humor involved as he came up to me as "Paper Head" (he put his homework in front of his face and walked around with it until I checked it). Laughing during homework time with him has always been rare.

We call it his "thinking medicine" since it's to help him think better. Today I struggled with my NT son and his homework and my ASD son said NT son needed some of his thinking medicine.

Don't beat yourself up if you go there. My son is recovered from autism. His ADHD has only gotten worse.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi everyone, we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option. Thanks Selena

[Guest guest]

I meant to tell you that I have an (adult) friend who is ADHD. She is currently not taking meds because she recently had a baby and is bf'ing. I was telling her one day how upset I get with Tom when he hits himself in the head out of frustration when he can't concentrate or focus. She told me that still to this day, there are times it gets so bad she wants to put her head through a wall. literally. There's just no relief. So, imagine how it must be for a kid. I have a special place in my heart for ADD/ADHD kids. So misunderstood, overlooked, and mistaken as behavorial problems. : (

To: mb12valtrex Sent: Monday, October 24, 2011 6:38 PMSubject: Re: Chelation, Cognition and Adhd

Chelating helped my son in many ways but it did not help with ADHD. We've also done mostly everything and after 5 years, we have come to a point where life has to improve for everyone in the family. His ADHD has really come in the way of his own confidence and our enjoyment of each others' company. I'm always yelling at him and he's always too distracted to care and it always ends in tears. He knows he can't concentrate and it hurts him so much. He doesn't understand why he can't think like everyone else and he always feels like a failure. Unbeknownst to me, the first week of school his teacher asked the class to set goals. His goal was not to make good grades, make lots of friends or even be the line leader. His goal was to concentrate better. Talk about a heart-breaker.

We picked up the Ritalin on Friday. We went to our ped for it since my DAN doesn't generally do stimulants. Our ped started him ritalin but he likely will no stay on it. It's the oldest and most well known drug and he wanted to start with something they know the best. For the first month, he stays on normal ritalin (not slow release) because it clears the system fast and if he does have a reaction, we want it out as soon as possible. So for the first week, we just stick with 2 x a day of 5mg each. We watch and report back to the doc a week later. Then we'll adjust the dose again and titrate up as we feel necessary to get to the right dose. Once we get there, we'll consider going to long acting and maybe a newer drug that maybe has fewer side effects.

Since we started Saturday, I've noticed that he doesn't sleep very well and has very hard time falling asleep. He already gets 1mg of melatonin at night. I'll be upping his dose to 3 mg and see if that helps. It is a side effect of stimulants.

Today was his first day of school on ritalin and his teacher noticed a huge improvement. She said she knew just by looking at his handwriting that he had started (I hadn't told her but she was aware it would happen).

My son does not have hyperactivity issues but has severe focus issues.

I never wanted to go to meds but biomed just never made a difference. I would never recommend someone try meds first before biomed but for those of us that have been done our due diligence, I'm all for doing what works. I resisted long enough. I've known enough ADHD people personally that have told me how medication has made all the difference in the world for them. How they finally felt normal. I can't and won't deny my son that chance. I put it off as long as I could because I just never felt comfortable putting him on it so young (especially after Dr. G put him on antidepressants when he was 3 to disastrous effects).

Now he's 8, I'm still not happy about it but I feel like it's really the only thing left for me to do. I might end up regretting the decision but I can't tell you how easy homework was today. He's outside playing right now because he got done with his homework faster than ever and not a single instance of yelling. There was actually quite a bit of humor involved as he came up to me as "Paper Head" (he put his homework in front of his face and walked around with it until I checked it). Laughing during homework time with him has always been rare.

We call it his "thinking medicine" since it's to help him think better. Today I struggled with my NT son and his homework and my ASD son said NT son needed some of his thinking medicine.

Don't beat yourself up if you go there. My son is recovered from autism. His ADHD has only gotten worse.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi everyone, we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option. Thanks Selena

[Guest guest]

Hi Guys, I responded to this thread I posted yesterday but it did not post.

My son is also 8 like Cheryl's son. he presents as very ADHD wit slow cognitive

processing. No I have not tried Pirecitam, but tried the Native Remedies with

no luck. We did a trial of intuniv and it has helped with his mild hyperactivity

and impulsivity ( which I attribute more to immaturity and developmental delay

due to autism) He does have vision processing issues which educationally is

dyslexia. The ability to not be able to focus makes this worse. He suffers

emotionally because of this. He also will decide to quit when things get hard

cause of fear of failure. ADHD is very misunderstood. It saddens me that this

hurdle is here after this battle of autism. I think my sons cognitive issues are

a the effect of the autism damage to his brain. Cheryl would you mind sharing

what made you come to peace with stimulants. Our Dan says he may need to them

for focus. Have you any of you had the cognitive issues as well and if so can

you share what helped? I hate to see him struggle!

thank you,

Selena

>

>

> >Hi everyone,

> >we are trying to figure out whether to cheleate or now. My son has progressed

gretaly with everything else we have done ( we have tried almost everything

except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN,

antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to

son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not

permanent.

> >Has anybody seen any cognitive changes or ADHD changes with the use of

chelation? What affects does it have on the bowel. I am leaning toward meds for

adhd but I hate that option.

> >Thanks

> >Selena

> >

> >

>

[Guest guest]

I'll start with the nootropics. So I was targeting ADHD symptoms while doing biomed and while I was never able to help the focus problems, I was able to help the cognitive processing.-Piracetam/phosphotidyl choline, vinpocetine, SAM-e and an Rx nootropic called hydergine. Awesome combo. You must use the PC though because nootropics are choline depleters and can cause super bad, wanna go to the ER headaches. We still do nootropics as they are sooo wonderful. My husband and I use them, too. For many, these can actually replace ADD meds. It worked for my DH - he said it was as good or better than Adderall. But it didn't work for my son. For me, it helps tremendously. So I'm a huge proponent of nootropics. HUGE. Can't recommend them enough. We've doing them for maybe 2 years now (maybe 3)and I will likely continue them to the day I die. My son's will do what they choose to do when they are adults but I won't give them up. (Although my husband and I only use piracetam and PC since it's all pricey and we just try to give Gryffin the full cocktail. You could even add more, as they work best in conjunction with each other. I know people that are on 7 or more. SAM-e isn't a nootropic but it might as well be when in this combo.)-I did GABA, Attentive Child, L-theanine, 5HTP and while they all helped with slightly with calming, he didn't really need much calming - probably why he went to sleep even at low doses when Dr. G put him on Tenex.-Chelation I thought would be super. It was, just again, not with ADD.Everything I've done I thought would help with ADD along with autism. For some it does. None of it ever did for us. I came to peace with it when school started this year and we spent 2-3 hours after school with him crying, me yelling and both of us hating this time of day. He would read a word problem and instead of reading it, he'd pick out the numbers and guess what he was supposed to do with them because even though he could read it, he couldn't remember what it said from one word to the next. Simple acts like brushing his teeth would have to be reduced to tears just to get him to do it. He needed someone constantly hovering over him just to make sure he didn't start making faces in the mirror or play with the cap once he took it off the toothpaste or set his toothbrush down and decide he wanted to wash his hands which would lead to him deciding he needed to find a towel, that meant he'd walk through the room and discover he just *had* to play with his legos. Or he'd simply just stand there because he forgot why he was there. I couldn't even get myself dressed to take him to school. I was stressed out mess. My typical kid I have to tell maybe 2 or 3 times to do something which is normal. My ASD son, I could tell him 100 times and he'd still forget what he was doing.At some point, you have to look at the situation and see if it's hurting or helping. I've done my homework, I've tried 5 years of biomed and while I continue biomed to maintain recovery from autism, it's time to help him with the ADD with something that will definitely help him, no more hoping and guessing - not that there's much to guess about. There comes a time when you are doing more damage by denying your child what you know will help. We'd reached that point. It was that simple.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Hi Guys, I responded to this thread I posted yesterday but it did not post.

My son is also 8 like Cheryl's son. he presents as very ADHD wit slow cognitive processing. No I have not tried Pirecitam, but tried the Native Remedies with no luck. We did a trial of intuniv and it has helped with his mild hyperactivity and impulsivity ( which I attribute more to immaturity and developmental delay due to autism) He does have vision processing issues which educationally is dyslexia. The ability to not be able to focus makes this worse. He suffers emotionally because of this. He also will decide to quit when things get hard cause of fear of failure. ADHD is very misunderstood. It saddens me that this hurdle is here after this battle of autism. I think my sons cognitive issues are a the effect of the autism damage to his brain. Cheryl would you mind sharing what made you come to peace with stimulants. Our Dan says he may need to them for focus. Have you any of you had the cognitive issues as well and if so can you share what helped? I hate to see him struggle!

thank you,

Selena

>

>

> >Hi everyone,

> >we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.

> >Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option.

> >Thanks

> >Selena

> >

> >

>

[Guest guest]

I know, right? I'm so glad. I wonder what dose he'll end up on. I do know that the dose probably isn't high enough. We are seeing improvement but it's still very much there. Like you can see that he finally "gets it" that it's time to work and he tries but he's still in need of a lot of prompts. 5mg isn't much so I expect we'll be going to 10 next week. I read that the dosage is usually anywhere between 10-60 mg so I hope it doesn't take too long to find the proper dose.He already feels better. I also see his language improving. He has turned into a freaking motor mouth! While he's totally conversational, his sentences always remained short and I had to pry information out of him. It was painful just to get him to tell me 3 things he did in school. I would get, we did recess, we ate lunch and we did math. What kind of math? You know, math. Yes, but what kind of math? Oh, I don't remember. GAH!!!!! He just didn't like to talk and I understand that. It's hard to talk when you can't get your thoughts straight to get the words out when I demanded more actual "conversation" out of him than other kids (kids he never had a problem talking to because they never made him use full sentences or talk about things that weren't interesting).Now he volunteers information. Today he got in the car and said, "Mom! We did social skills today! Mrs. Shirley read a book (and he even told me the name of the book but I can't remember)." So this is a good thing. I'm feeling good about it and hopefully it will continue.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Yayyyy!

I know you're not completely comfortable with the idea, but once you find the right med/dosage combo, and you see the change in him, and he actually ENJOYS being him, you'll feel so much better. You can't say you didn't exhaust every other plausible option. And with the meds, he's at a PERFECT age to start learning strategies. It should take the edge off more than enough for him to be able to apply some new coping skills/strategies. He may not need it forever. But for now, it'll settle his mind. Who knows, maybe after some time of not constantly feeling the pressure, his over all stress level might decrease allowing his body to heal even further.

My son's best friend is ADHD. His grandfather says they know he was properly diagnosed and medicated because by the second day of meds, he was actually THANKING his mother for it. I'm glad you decided to give it a shot. I hope you guys see good things. Keep us posted. xox

-Tammy

To: mb12valtrex Sent: Monday, October 24, 2011 6:38 PMSubject: Re: Chelation, Cognition and Adhd

Chelating helped my son in many ways but it did not help with ADHD. We've also done mostly everything and after 5 years, we have come to a point where life has to improve for everyone in the family. His ADHD has really come in the way of his own confidence and our enjoyment of each others' company. I'm always yelling at him and he's always too distracted to care and it always ends in tears. He knows he can't concentrate and it hurts him so much. He doesn't understand why he can't think like everyone else and he always feels like a failure. Unbeknownst to me, the first week of school his teacher asked the class to set goals. His goal was not to make good grades, make lots of friends or even be the line leader. His goal was to concentrate better. Talk about a heart-breaker.

We picked up the Ritalin on Friday. We went to our ped for it since my DAN doesn't generally do stimulants. Our ped started him ritalin but he likely will no stay on it. It's the oldest and most well known drug and he wanted to start with something they know the best. For the first month, he stays on normal ritalin (not slow release) because it clears the system fast and if he does have a reaction, we want it out as soon as possible. So for the first week, we just stick with 2 x a day of 5mg each. We watch and report back to the doc a week later. Then we'll adjust the dose again and titrate up as we feel necessary to get to the right dose. Once we get there, we'll consider going to long acting and maybe a newer drug that maybe has fewer side effects.

Since we started Saturday, I've noticed that he doesn't sleep very well and has very hard time falling asleep. He already gets 1mg of melatonin at night. I'll be upping his dose to 3 mg and see if that helps. It is a side effect of stimulants.

Today was his first day of school on ritalin and his teacher noticed a huge improvement. She said she knew just by looking at his handwriting that he had started (I hadn't told her but she was aware it would happen).

My son does not have hyperactivity issues but has severe focus issues.

I never wanted to go to meds but biomed just never made a difference. I would never recommend someone try meds first before biomed but for those of us that have been done our due diligence, I'm all for doing what works. I resisted long enough. I've known enough ADHD people personally that have told me how medication has made all the difference in the world for them. How they finally felt normal. I can't and won't deny my son that chance. I put it off as long as I could because I just never felt comfortable putting him on it so young (especially after Dr. G put him on antidepressants when he was 3 to disastrous effects).

Now he's 8, I'm still not happy about it but I feel like it's really the only thing left for me to do. I might end up regretting the decision but I can't tell you how easy homework was today. He's outside playing right now because he got done with his homework faster than ever and not a single instance of yelling. There was actually quite a bit of humor involved as he came up to me as "Paper Head" (he put his homework in front of his face and walked around with it until I checked it). Laughing during homework time with him has always been rare.

We call it his "thinking medicine" since it's to help him think better. Today I struggled with my NT son and his homework and my ASD son said NT son needed some of his thinking medicine.

Don't beat yourself up if you go there. My son is recovered from autism. His ADHD has only gotten worse.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi everyone, we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option. Thanks Selena

[Guest guest]

Cheryl can you give me the dosages and brands for the Nootropics and also the info for the hydergine. OMG, your son sounds like mine, especially with the math and the way he talks and the inability to remember tasks. My son also makes noises all the time, but he is unaware of that he is doing it. he blurts out answers in class that make no sense cause he has no idea what they are on at that time. Your story and advice has helped me greatly. If you dont mind can you keep me updated on what you see with the Ritalin.SelenaTo: mb12valtrex Sent: Tuesday, October 25, 2011 11:23 PMSubject: Re: Chelation, Cognition and Adhd

I'll start with the nootropics. So I was targeting ADHD symptoms while doing biomed and while I was never able to help the focus problems, I was able to help the cognitive processing.-Piracetam/phosphotidyl choline, vinpocetine, SAM-e and an Rx nootropic called hydergine. Awesome combo. You must use the PC though because nootropics are choline depleters and can cause super bad, wanna go to the ER headaches. We still do nootropics as they are sooo wonderful. My husband and I use them, too. For many, these can actually replace ADD meds. It worked for my DH - he said it was as good or better than Adderall. But it didn't work for my son. For me, it helps tremendously. So I'm a huge proponent of nootropics. HUGE. Can't recommend them enough. We've doing them for maybe 2 years now (maybe 3)and I will likely continue them to the day I die. My son's will do what they choose to do when they are adults but I won't

give them up. (Although my husband and I only use piracetam and PC since it's all pricey and we just try to give Gryffin the full cocktail. You could even add more, as they work best in conjunction with each other. I know people that are on 7 or more. SAM-e isn't a nootropic but it might as well be when in this combo.)-I did GABA, Attentive Child, L-theanine, 5HTP and while they all helped with slightly with calming, he didn't really need much calming - probably why he went to sleep even at low doses when Dr. G put him on Tenex.-Chelation I thought would be super. It was, just again, not with ADD.Everything I've done I thought would help with ADD along with autism. For some it does. None of it ever did for us. I came to peace with it when school started this year and we spent 2-3 hours after school with him crying, me yelling and both of us hating this time of day. He would

read a word problem and instead of reading it, he'd pick out the numbers and guess what he was supposed to do with them because even though he could read it, he couldn't remember what it said from one word to the next. Simple acts like brushing his teeth would have to be reduced to tears just to get him to do it. He needed someone constantly hovering over him just to make sure he didn't start making faces in the mirror or play with the cap once he took it off the toothpaste or set his toothbrush down and decide he wanted to wash his hands which would lead to him deciding he needed to find a towel, that meant he'd walk through the room and discover he just *had* to play with his legos. Or he'd simply just stand there because he forgot why he was there. I couldn't even get myself dressed to take him to school. I was stressed out mess. My typical kid I have to tell maybe 2 or 3 times to do something which is normal. My ASD son, I could tell him 100 times

and he'd still forget what he was doing.At some point, you have to look at the situation and see if it's hurting or helping. I've done my homework, I've tried 5 years of biomed and while I continue biomed to maintain recovery from autism, it's time to help him with the ADD with something that will definitely help him, no more hoping and guessing - not that there's much to guess about. There comes a time when you are doing more damage by denying your child what you know will help. We'd reached that point. It was that simple.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Hi Guys, I responded to this thread I posted yesterday but it did not post.

My son is also 8 like Cheryl's son. he presents as very ADHD wit slow cognitive processing. No I have not tried Pirecitam, but tried the Native Remedies with no luck. We did a trial of intuniv and it has helped with his mild hyperactivity and impulsivity ( which I attribute more to immaturity and developmental delay due to autism) He does have vision processing issues which educationally is dyslexia. The ability to not be able to focus makes this worse. He suffers emotionally because of this. He also will decide to quit when things get hard cause of fear of failure. ADHD is very misunderstood. It saddens me that this hurdle is here after this battle of autism. I think my sons cognitive issues are a the effect of the autism damage to his brain. Cheryl would you mind sharing what made you come to peace with stimulants. Our Dan says he may need to them for focus. Have you any of you had the cognitive issues as well and if so can you share what helped? I

hate to see him struggle!

thank you,

Selena

>

>

> >Hi everyone,

> >we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.

> >Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option.

> >Thanks

> >Selena

> >

> >

>

[Guest guest]

I use Source Naturals Vinpocetine 10mg, SAM-e 200 mg (or Jarrow, I can typically find one or the other on sale here), and Phosphatidyl Choline (or Solgar, again, whichever is on sale). Piracetam 800 mg and other racetams I buy from Cognitive Nutrition. Brand absolutely matters here. I've bought piracetam that did absolutely nothing and if I hadn't already bought a brand that worked for me, I would've probably quit thinking it did nothing. Cognitive Nutrition's is reasonably priced and works like a champ. There are more expensive brands that probably work great, too. You usually find that more with the life extension/anti-aging group than in autism, though. I don't see any reason to pay that much.We've also used aniracetam which I love, too. Yasko uses it but she uses a much more expensive brand called Ampamet - again, I don't see any reason to pay that much. While some of the nootropics are non Rx in the US, they are in EU and vice versa. So I only know which ones are Rx here in the US. Hydergine you can't get without an Rx and some of the other racetams (there are 8 different types of racetams, only 4 in the US, I think) you simply can't find here. http://www.nootropics.com/http://www.erowid.org/smarts/If you google you'll find a ton of info. There's also a lot in Pubmed. Nootropics are used a lot in Alzheimer therapy so many many studies with nootropics and Alzheimer's.As for dosage, you should really try it on yourself first so you know what your limits are and then you can kind of figure out where a child's limits might be or if not, at least how high you'd be willing to go. For me, I choose to only give G 1 piracetam, 1 hydergine (1mg), 1 vinpo, 1 PC, 1 SAM-e; all in the morning. I can give him more piracetam but don't simply because I save it for school so I don't have to buy as much since we all take it. PC you really only need to take once a day no matter how much piracetam you take.For me, 3 caps of Piracetam is too much. I start to need multiple things to work on because I focus better on multi-tasking rather than single tasking. 2 caps is much better for just simply staying on task and keeping motivated. So half that is what I give to my son.A nice combo for me has also been 2 caps piracetam and 1 cap aniracetam.Hope that helps. There are some companies that make blends. I can't think of the names off the top of my head right now but there are some that just combine a bunch of nootropics although I don't think they put in any racetams. I never bought them so I can't say one way or another if any worked well.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Cheryl can you give me the dosages and brands for the Nootropics and also the info for the hydergine. OMG, your son sounds like mine, especially with the math and the way he talks and the inability to remember tasks. My son also makes noises all the time, but he is unaware of that he is doing it. he blurts out answers in class that make no sense cause he has no idea what they are on at that time. Your story and advice has helped me greatly. If you dont mind can you keep me updated on what you see with the Ritalin.SelenaTo: mb12valtrex Sent: Tuesday, October 25, 2011 11:23 PMSubject: Re: Chelation, Cognition and Adhd

I'll start with the nootropics. So I was targeting ADHD symptoms while doing biomed and while I was never able to help the focus problems, I was able to help the cognitive processing.-Piracetam/phosphotidyl choline, vinpocetine, SAM-e and an Rx nootropic called hydergine. Awesome combo. You must use the PC though because nootropics are choline depleters and can cause super bad, wanna go to the ER headaches. We still do nootropics as they are sooo wonderful. My husband and I use them, too. For many, these can actually replace ADD meds. It worked for my DH - he said it was as good or better than Adderall. But it didn't work for my son. For me, it helps tremendously. So I'm a huge proponent of nootropics. HUGE. Can't recommend them enough. We've doing them for maybe 2 years now (maybe 3)and I will likely continue them to the day I die. My son's will do what they choose to do when they are adults but I won't

give them up. (Although my husband and I only use piracetam and PC since it's all pricey and we just try to give Gryffin the full cocktail. You could even add more, as they work best in conjunction with each other. I know people that are on 7 or more. SAM-e isn't a nootropic but it might as well be when in this combo.)-I did GABA, Attentive Child, L-theanine, 5HTP and while they all helped with slightly with calming, he didn't really need much calming - probably why he went to sleep even at low doses when Dr. G put him on Tenex.-Chelation I thought would be super. It was, just again, not with ADD.Everything I've done I thought would help with ADD along with autism. For some it does. None of it ever did for us. I came to peace with it when school started this year and we spent 2-3 hours after school with him crying, me yelling and both of us hating this time of day. He would

read a word problem and instead of reading it, he'd pick out the numbers and guess what he was supposed to do with them because even though he could read it, he couldn't remember what it said from one word to the next. Simple acts like brushing his teeth would have to be reduced to tears just to get him to do it. He needed someone constantly hovering over him just to make sure he didn't start making faces in the mirror or play with the cap once he took it off the toothpaste or set his toothbrush down and decide he wanted to wash his hands which would lead to him deciding he needed to find a towel, that meant he'd walk through the room and discover he just *had* to play with his legos. Or he'd simply just stand there because he forgot why he was there. I couldn't even get myself dressed to take him to school. I was stressed out mess. My typical kid I have to tell maybe 2 or 3 times to do something which is normal. My ASD son, I could tell him 100 times

and he'd still forget what he was doing.At some point, you have to look at the situation and see if it's hurting or helping. I've done my homework, I've tried 5 years of biomed and while I continue biomed to maintain recovery from autism, it's time to help him with the ADD with something that will definitely help him, no more hoping and guessing - not that there's much to guess about. There comes a time when you are doing more damage by denying your child what you know will help. We'd reached that point. It was that simple.

<skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

Hi Guys, I responded to this thread I posted yesterday but it did not post.

My son is also 8 like Cheryl's son. he presents as very ADHD wit slow cognitive processing. No I have not tried Pirecitam, but tried the Native Remedies with no luck. We did a trial of intuniv and it has helped with his mild hyperactivity and impulsivity ( which I attribute more to immaturity and developmental delay due to autism) He does have vision processing issues which educationally is dyslexia. The ability to not be able to focus makes this worse. He suffers emotionally because of this. He also will decide to quit when things get hard cause of fear of failure. ADHD is very misunderstood. It saddens me that this hurdle is here after this battle of autism. I think my sons cognitive issues are a the effect of the autism damage to his brain. Cheryl would you mind sharing what made you come to peace with stimulants. Our Dan says he may need to them for focus. Have you any of you had the cognitive issues as well and if so can you share what helped? I

hate to see him struggle!

thank you,

Selena

>

>

> >Hi everyone,

> >we are trying to figure out whether to cheleate or now. My son has progressed gretaly with everything else we have done ( we have tried almost everything except chelation at this point) We have done DAN ( Valtrex, antifungals, LDN, antibacterials, HCH and YASKO and HBOT) and have hesitated on chelation due to son's Hirschsprungs. His adhd symptoms usually susbside with HBot but are not permanent.

> >Has anybody seen any cognitive changes or ADHD changes with the use of chelation? What affects does it have on the bowel. I am leaning toward meds for adhd but I hate that option.

> >Thanks

> >Selena

> >

> >

>