Re: Noel//Has anyone used amitriptyline for their child

[Guest guest]

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds). I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~

My apologies. I should have read the whole thread before responding.My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.April 2011 - Discontinued topamax, started VerapamilJune 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)I wish your son good luck.

/ Noel

My son is 16 and nonverbal so it is awful because he can't tell me how he is feeling. The neurologist when she first saw him put him on 350 mgs of magnesium and for about three weeks he was doing great, I thought we were out of the woods but this weekend he started taking my hand and pushing it into his forehead and his neck and he's been miserable.Thanks for the info, when I saw it was an anti-depressant I got a little alarmed myself.Dianne

To: mb12valtrex

Sent: Tuesday, October 25, 2011 10:05:19 AMSubject: Re: Has anyone used amitriptyline for their childI would personally avoid it because it's an anti-depressant. But I've also suffered from debilitating migraines (mine were hormone induced and I had them all through puberty until about 24). I wouldn't want to see any child go through what I went through so I would also weigh that in and consider it because anything that works...

But antidepressants did horrible, horrible things to my son. If he doesn't actually need antidepressants, it might go wrong and it doesn't always go wrong fast. Ours was gradual and then one day it was awful. I can see it now looking back, but it was so slow at the time that it was hard to connect the two until he was psychotic.

How old is your son and is he verbal enough to tell you how he's feeling and what he's thinking and how the medication is reacting? That would be another consideration. If he can talk thoroughly about it with you then I would be likely to consider it more.

<skullsignatureb & wsepiahandcoloredsmall.png>

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi,my son's neurologist wants to prescribe amitripytline for headaches for my son. Has anyone ever used this medication for their child or does anyone have any opinions about the use of this med.Thanks

Dianne

[Guest guest]

I might try Feverfew, I knew I saw it in a post so I went back and looked. I would rather try something natural than put him through hell on a medicine that might not work or could make him feel worse. My heart breaks for him because he gets so frustrated because he can't tell me how he's feeling

To: mb12valtrex Sent: Tuesday, October 25, 2011 5:54:40 PMSubject: Re: Noel//Has anyone used amitriptyline for their child

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds).

I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

My apologies. I should have read the whole thread before responding.

My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.

Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.

March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.

April 2011 - Discontinued topamax, started Verapamil

June 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).

Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)

I wish your son good luck.

/ Noel

My son is 16 and nonverbal so it is awful because he can't tell me how he is feeling. The neurologist when she first saw him put him on 350 mgs of magnesium and for about three weeks he was doing great, I thought we were out of the woods but this weekend he started taking my hand and pushing it into his forehead and his neck and he's been miserable.

Thanks for the info, when I saw it was an anti-depressant I got a little alarmed myself.

Dianne

To: mb12valtrex Sent: Tuesday, October 25, 2011 10:05:19 AMSubject: Re: Has anyone used amitriptyline for their child

I would personally avoid it because it's an anti-depressant. But I've also suffered from debilitating migraines (mine were hormone induced and I had them all through puberty until about 24). I wouldn't want to see any child go through what I went through so I would also weigh that in and consider it because anything that works...

But antidepressants did horrible, horrible things to my son. If he doesn't actually need antidepressants, it might go wrong and it doesn't always go wrong fast. Ours was gradual and then one day it was awful. I can see it now looking back, but it was so slow at the time that it was hard to connect the two until he was psychotic.

How old is your son and is he verbal enough to tell you how he's feeling and what he's thinking and how the medication is reacting? That would be another consideration. If he can talk thoroughly about it with you then I would be likely to consider it more.

<skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi,my son's neurologist wants to prescribe amitripytline for headaches for my son. Has anyone ever used this medication for their child or does anyone have any opinions about the use of this med.ThanksDianne

[Guest guest]

What about some kind of communication device? I assume you've already exhausted that but thought i'd bring it up anyway. You never know...Sent from my Palm Pre - These are not the typos you are looking for... I might try Feverfew, I knew I saw it in a post so I went back and looked. I would rather try something natural than put him through hell on a medicine that might not work or could make him feel worse. My heart breaks for him because he gets so frustrated because he can't tell me how he's feeling

To: mb12valtrex Sent: Tuesday, October 25, 2011 5:54:40 PMSubject: Re: Noel//Has anyone used amitriptyline for their child

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds).

I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

My apologies. I should have read the whole thread before responding.

My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.

Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.

March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.

April 2011 - Discontinued topamax, started Verapamil

June 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).

Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)

I wish your son good luck.

/ Noel

My son is 16 and nonverbal so it is awful because he can't tell me how he is feeling. The neurologist when she first saw him put him on 350 mgs of magnesium and for about three weeks he was doing great, I thought we were out of the woods but this weekend he started taking my hand and pushing it into his forehead and his neck and he's been miserable.

Thanks for the info, when I saw it was an anti-depressant I got a little alarmed myself.

Dianne

To: mb12valtrex Sent: Tuesday, October 25, 2011 10:05:19 AMSubject: Re: Has anyone used amitriptyline for their child

I would personally avoid it because it's an anti-depressant. But I've also suffered from debilitating migraines (mine were hormone induced and I had them all through puberty until about 24). I wouldn't want to see any child go through what I went through so I would also weigh that in and consider it because anything that works...

But antidepressants did horrible, horrible things to my son. If he doesn't actually need antidepressants, it might go wrong and it doesn't always go wrong fast. Ours was gradual and then one day it was awful. I can see it now looking back, but it was so slow at the time that it was hard to connect the two until he was psychotic.

How old is your son and is he verbal enough to tell you how he's feeling and what he's thinking and how the medication is reacting? That would be another consideration. If he can talk thoroughly about it with you then I would be likely to consider it more.

<skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi,my son's neurologist wants to prescribe amitripytline for headaches for my son. Has anyone ever used this medication for their child or does anyone have any opinions about the use of this med.ThanksDianne

1 of 1 Photo(s)

[Guest guest]

I wish I would have an answer for you but whatever I have read, the etiology of headache/migraine is out of a wide gamut of issues so unless someone finds out what chemical reaction(s) triggers headache, it will be difficult to treat.

From my knowledge, triptans are exclusively designed for headaches and work like charm on many folks and for the meds I mentioned, may be their primary indication is not headache but its probably the other way around treatment. Before I decided to become a guinea pig, that one year of 2006, I did a lot of stuff like meditation, wide variety of stress relieving techniques, ayurveda, change in diet, white sound, acupressure, physical therapy but none worked. At that point my reaction was, I really don't care what drug I am taking as long as I don't have to face these debilitating attacks (You can easily guess where its coming from)

There are wide theories of headache / migraine, exclusively classified on gender and very few are proved. My strong suspicion is, some kind of inflammation but again its a theory, I don't have any data to prove it, except that fact that NSAID and prednisone works in my case. Why no one makes migraine medicine when there is such a large market, we need some insider info in pharma.

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds). 

I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

 

My apologies. I should have read the whole thread before responding.My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.April 2011 - Discontinued topamax, started VerapamilJune 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)I wish your son good luck.

/ Noel

[Guest guest]

Let us know if Feverfew works and for the meds, its a trial and error with high probability of getting headache under control but its your call. Keep us posted, I am very much interested in knowing the progress.

Whatever you do, I really don't want this young man to feel the headache hell, as cheryl said, I wouldn't wish it even for my enemy.

I might try Feverfew, I knew I saw it in a post so I went back and looked.  I would rather try something natural than put him through hell on a medicine that might not work or could make him feel worse.  My heart breaks for him because he gets so frustrated because he can't tell me how he's feeling

To: mb12valtrex

Sent: Tuesday, October 25, 2011 5:54:40 PMSubject: Re: Noel//Has anyone used amitriptyline for their child

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds). 

I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

 

My apologies. I should have read the whole thread before responding.

My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.

Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.

March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.

April 2011 - Discontinued topamax, started Verapamil

June 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).

Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)

I wish your son good luck.

/ Noel

My son is 16 and nonverbal so it is awful because he can't tell me how he is feeling.  The neurologist when she first saw him put him on 350 mgs of magnesium and for about three weeks he was doing great, I thought we were out of the woods but this weekend he started taking my hand and pushing it into his forehead and his neck and he's been miserable.

Thanks for the info, when I saw it was an anti-depressant I got a little alarmed myself.

Dianne

To: mb12valtrex

Sent: Tuesday, October 25, 2011 10:05:19 AMSubject: Re: Has anyone used amitriptyline for their child

I would personally avoid it because it's an anti-depressant. But I've also suffered from debilitating migraines (mine were hormone induced and I had them all through puberty until about 24). I wouldn't want to see any child go through what I went through so I would also weigh that in and consider it because anything that works... 

But antidepressants did horrible, horrible things to my son. If he doesn't actually need antidepressants, it might go wrong and it doesn't always go wrong fast. Ours was gradual and then one day it was awful. I can see it now looking back, but it was so slow at the time that it was hard to connect the two until he was psychotic.

How old is your son and is he verbal enough to tell you how he's feeling and what he's thinking and how the medication is reacting? That would be another consideration. If he can talk thoroughly about it with you then I would be likely to consider it more.

<skullsignatureb & wsepiahandcoloredsmall.png>

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

 

Hi,my son's neurologist wants to prescribe amitripytline for headaches for my son. Has anyone ever used this medication for their child or does anyone have any opinions about the use of this med.Thanks

Dianne

[Guest guest]

I didn't know at the time that my migraines were hormonal. I had CTscans, MRIs all kinds of testing to find out if there was a tumor in my brain because it was so ridiculously painful. Imagine being 13 and told your brain is "unremarkable" - lol!I had been given drug after drug after drug and none of them worked. I suffered for years with them and people actually thought I was faking it. Friends thought I was using it to get out of doing things, trying to get sympathy, etc. Even my husband. Strangely, when I stopped getting them, I hadn't even noticed. I just woke up one day and realized I hadn't had a migraine in a bout a year. It was pretty crazy. That's when I started thinking that it must have been hormones.That was confirmed when I got pregnant and they came back. And then promptly went away after giving birth.And then confirmed again when I got pregnant a second time. And then again promptly went away.So while there's still no "proof" what caused my migraines, it's pretty clear to me that it's having way too many hormones running around in my body. Considering my hormones are now all too low and I have zero migraines... Hormones do so many crazy things to people that I don't understand why it's not looked at more in migraines. There probably still wouldn't have been anything that could be done since it's puberty, you can't stop hormones, but at least I wouldn't have been a neurotic mess thinking I had a brain tumor that was hiding and one of these days I really would die during one of my migraines

[Guest guest]

migrain history here as well (with 11 years of tests now have linked it to lymne just another direction to also look into) I am finding taurine to help here and the script meds never touched it BUT excedrine migrain at the start gets it under control most of the time like nothing else will in 20 min with a dark room with no noise or white quiet noise like a fan. gfcf makes a difference as well for me, caffine greatly effects it (in a good way as well) which is WHY the excedrine works so great. I Have had 3 speicalist tell me in testing the excedrine scored better with results then the scripts stuff as well in like a 1 to 3 ratio

From: cheryl biomed.mom

Sent: Tuesday, October 25, 2011 5:54 PM

To: mb12valtrex

Subject: Re: Noel//Has anyone used amitriptyline for their child

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds).

I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

My apologies. I should have read the whole thread before responding.

My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.

Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.

March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.

April 2011 - Discontinued topamax, started Verapamil

June 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).

Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)

I wish your son good luck.

/ Noel

My son is 16 and nonverbal so it is awful because he can't tell me how he is feeling. The neurologist when she first saw him put him on 350 mgs of magnesium and for about three weeks he was doing great, I thought we were out of the woods but this weekend he started taking my hand and pushing it into his forehead and his neck and he's been miserable.

Thanks for the info, when I saw it was an anti-depressant I got a little alarmed myself.

Dianne

To: mb12valtrex Sent: Tuesday, October 25, 2011 10:05:19 AMSubject: Re: Has anyone used amitriptyline for their child

I would personally avoid it because it's an anti-depressant. But I've also suffered from debilitating migraines (mine were hormone induced and I had them all through puberty until about 24). I wouldn't want to see any child go through what I went through so I would also weigh that in and consider it because anything that works...

But antidepressants did horrible, horrible things to my son. If he doesn't actually need antidepressants, it might go wrong and it doesn't always go wrong fast. Ours was gradual and then one day it was awful. I can see it now looking back, but it was so slow at the time that it was hard to connect the two until he was psychotic.

How old is your son and is he verbal enough to tell you how he's feeling and what he's thinking and how the medication is reacting? That would be another consideration. If he can talk thoroughly about it with you then I would be likely to consider it more.

<skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi,my son's neurologist wants to prescribe amitripytline for headaches for my son. Has anyone ever used this medication for their child or does anyone have any opinions about the use of this med.ThanksDianne

[Guest guest]

migrain history here as well (with 11 years of tests now have linked it to lymne just another direction to also look into) I am finding taurine to help here and the script meds never touched it BUT excedrine migrain at the start gets it under control most of the time like nothing else will in 20 min with a dark room with no noise or white quiet noise like a fan. gfcf makes a difference as well for me, caffine greatly effects it (in a good way as well) which is WHY the excedrine works so great. I Have had 3 speicalist tell me in testing the excedrine scored better with results then the scripts stuff as well in like a 1 to 3 ratio

From: cheryl biomed.mom

Sent: Tuesday, October 25, 2011 5:54 PM

To: mb12valtrex

Subject: Re: Noel//Has anyone used amitriptyline for their child

None of the medicines you've mentioned are actually meant for migraines. None of the meds you listed would've worked for me either (I started them when I was 12 and got migraines until I was around 24 so I went through a bunch of meds).

I don't understand why no one gets migraine medicine anymore. I must be missing something or it's just been too many years since I've had them. I curled up in the fetal position on my bed with a vomit bucket for 3 days of hell praying for death. I wouldn't wish that on anyone which is why I'm just amazed that none of you have ever actually had migraine medicine.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

My apologies. I should have read the whole thread before responding.

My migraines are exactly as your son describes. I feel for the fella. Ask him if he sees something different in front of his eyes, if he sees colored flashes, sparkles. (Don't know how you are going to do it but you know your son better than me) Does he press his eyes when he has headahce? I hit my head on the wall all the time I am in the attack as I am yet to find an abortive that relives me of the pain. Ibuprofen and Neproxen (NSAIDs) works like charm but I am ulcerative colitis patient too. I have 'abused' NSAIDs in effort to 'treat' my migraine and now I can not use them. So as mentioned above, start with these meds and see if they help, most likely they will and if they do, keep alternating between these meds. For neck pain, Use muscle relaxants with caution. I asked for it and I was refused, don't remember the reason.

At the same time, talk to the neurologist about putting him on Topamax (again expensive drug). If he does go on Topamax, make a habit that he drinks loads of fluids (water preferred) in regular intervals. About 2-3% of Topamax users have reported kidney stone as a side effect (including me after use of 6 months)

Most likely, Verapamil could also be an option at 16, I am not too sure. Talk to the neurologist. I would prefer Verapamil over Topamax.

Just to give an idea, how I went through, so that you can articulate your request with the neurologist.

Aug 2005 - Migraine started once a week. Ignored for a year. Symptoms - Pulsating pain in the forehead, aura (flashes in front of the eyes), pain at the base of the neck, occasional throw-ups. Average episode lasted for 8 hours.

Dec. 2006 - Neurologist diagnosed it as classical migraine, Rx me with Zomig Nasal 5mg as and when required. Had to 'abuse' it as migraine went to twice a week. Asked to discontinue. It wasn't helping anyways.

May 2007 - Neproxen 220mg, worked like charm. 'Abused' for 3 years. Now my headaches are every alternate day.

March 2010 - Changed the neurologist. The new one Rx me with Paracetamol 1mg 4X a day, failed, switched to diclofenac sodium 20mg, failed, Imitrex, failed, Paracetamol and caffeine combination, failed. Metaprolol 200mg failed. Neproxen started bleeding. Switched to Ibuprofen 400mg (200mg won't work)

Oct 2010 - Topamax, gradually increased to 100mg. Felt like it was helping in the beginning but in retrospect, it didn't work. I was too busy with work and popping Ibuprofen to notice any change. (Quit job for my son in Dec. 2010)

Feb 2011 - ER admission due to kidney stone, still on topamax.

April 2011 - Discontinued topamax, started Verapamil

June 2011 - Another ER admission for kidney stone, this time got it removed with surgery.

Sept 2011 - Standardized Verapamil to 240mg a day (80mg x 3times).

Current status, migraine stabilized, current frequency once a month, not as debilitating as before, just dull headache, enough to mess up the whole day but don't have to hit my head on the wall. Yet to find an alternative abortive. Percocet, Oxycodone 15mg, Dolgic Plus failed, nothing new on radar at the moment. Last time, Pracetamol 500mg worked as super early onset of headache (for the first time)

May be little too much info but I just don't want your son to go through what I went through over 5 years. The guy is in real pain (but you be strong)

I wish your son good luck.

/ Noel

My son is 16 and nonverbal so it is awful because he can't tell me how he is feeling. The neurologist when she first saw him put him on 350 mgs of magnesium and for about three weeks he was doing great, I thought we were out of the woods but this weekend he started taking my hand and pushing it into his forehead and his neck and he's been miserable.

Thanks for the info, when I saw it was an anti-depressant I got a little alarmed myself.

Dianne

To: mb12valtrex Sent: Tuesday, October 25, 2011 10:05:19 AMSubject: Re: Has anyone used amitriptyline for their child

I would personally avoid it because it's an anti-depressant. But I've also suffered from debilitating migraines (mine were hormone induced and I had them all through puberty until about 24). I wouldn't want to see any child go through what I went through so I would also weigh that in and consider it because anything that works...

But antidepressants did horrible, horrible things to my son. If he doesn't actually need antidepressants, it might go wrong and it doesn't always go wrong fast. Ours was gradual and then one day it was awful. I can see it now looking back, but it was so slow at the time that it was hard to connect the two until he was psychotic.

How old is your son and is he verbal enough to tell you how he's feeling and what he's thinking and how the medication is reacting? That would be another consideration. If he can talk thoroughly about it with you then I would be likely to consider it more.

<skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101

~ gryffinstail.wordpress.com/ ~

~ @Gryffins_Tail ~

Hi,my son's neurologist wants to prescribe amitripytline for headaches for my son. Has anyone ever used this medication for their child or does anyone have any opinions about the use of this med.ThanksDianne