Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Hi all. My son was on SCD for about 14 months before I realised he Was in pain. We've been just gfcf now for about 6 months and he is Always rubbing his thighs like he Is in Pain and wants us to massage His legs hard. He also jumps from heights and lands on his knees So I know he's in pain. He lost his language so he can't tell me. What suggestions do you have for helping him? Also would Anybody have bethanecol, LDN, valtrex/fluconazole all Going on at the same time? Is that a good idea?we have a doc but Just checking. Thanks in advance. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 I know this doesn't answer your question about oxalates, but this thought popped in my head so I thought I would ask...Has he had his thyroid hormone levels checked recently? My thyroid is messed up right now and muscle pain and joint pain are two big symptoms for me. I hope you figure out how to help him and the pain goes away soon! Cathy > > Hi all. > My son was on SCD for about 14 months before I realised he > Was in pain. We've been just gfcf now for about 6 months and he is > Always rubbing his thighs like he Is in Pain and wants us to massage > His legs hard. He also jumps from heights and lands on his knees > So I know he's in pain. He lost his language so he can't tell me. > What suggestions do you have for helping him? > Also would Anybody have bethanecol, LDN, valtrex/fluconazole all > Going on at the same time? Is that a good idea?we have a doc but > Just checking. > Thanks in advance. > Debbie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 I'm with . Try some magnesium, too! Tammy Sent from my Kindle Fire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 > > Hi all. > My son was on SCD for about 14 months before I realised he > Was in pain. We've been just gfcf now for about 6 months and he is > Always rubbing his thighs like he Is in Pain and wants us to massage > His legs hard. He also jumps from heights and lands on his knees > So I know he's in pain. He lost his language so he can't tell me. > What suggestions do you have for helping him? > Also would Anybody have bethanecol, LDN, valtrex/fluconazole all > Going on at the same time? Is that a good idea?we have a doc but > Just checking. > Thanks in advance. > Debbie > Had u test his vitamin d, my 5 yol was complaining of pain in her legs to the point that we have to stop doimg a lot of fisical activity, so I ask her dr to test both of my kids vitamin d. they are both low, my is also below 20 and I get terrible legs cramp, the interesting thing is that we live in las vega nv is very sunny here. Quote Link to comment Share on other sites More sharing options...
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