Ok, I need to earn a PhD in phenol sensitivity!

[Guest guest]

Hi everyone,

I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

http://www.autism.com/index.php/pro_research_B6Sulfation

Our friend Mardella sent me a list of foods to avoid and I am really grateful

for that. There are still so many things that are not clear. I learned about P5P

and have removed him from the supps. I was already giving magnesium with P5P and

that was not sufficient. I added magnesium sulfate, was using no phenol with no

significant results so switched to phenol assist. I am adding molybdenum this

week and hopefully that would help also. But now I just found out that Vitamin A

can be an issue too. I have been using vitaspectrum which has carotenes and

vitamin palmitate which can be phenolic too. This is really becoming a headache

now. I am 150% sure that my son has a major issue with phenols and most of his

bad symptoms are coming from that. I need to treat the microbial infections at

the same time and that should help with the sensitivity too. Phenols in the skin

products can also create problems and I have yet to find an organic lotion for

my kid whose skin gets really dry if I don't use a moisturizer after shower. I

would love to learn from parents of kids who had major phenol issues and who

have successfully taken care of those with interventions.

I will appreciate all the help on the subject.

is

[Guest guest]

Could it be a salicylate issue? I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more. To: mb12valtrex Sent: Monday, May 7, 2012 1:07 PM Subject: Ok, I need to earn a PhD in phenol sensitivity!

Hi everyone,

I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

http://www.autism.com/index.php/pro_research_B6Sulfation

Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose

skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

I will appreciate all the help on the subject.

is

[Guest guest]

Salicylates are a definite problem. His days are worse when he eats dried

strawberries. I have looked at a lot of phenol lists and banana is low in

phenols and salicylates. Still I remember most of the naturopaths and

nutritionist don't like bananas - not sure if it is because they promote yeast

growth or mold??? My son definitely needs milk in the morning and after school.

I am still using almond milk which is high in salicylates. I alternate that with

coconut milk. Can someone recommend an alternative to almond milk? He cannot

tolerate soy milk, rice milk. Is there any nut milk which is relatively low

salicylate? I am really getting inclined towards scd goat yogurt as my son loves

yogurt and would love to eat it in place of milk. I have lost my faith in GFCF

diet but still continuing it so far as I am too afraid to lose the gains he

had(which I cannot even attribute to GFCF). I personally feel that these nut

milks are actually worse if your kid is sensitive to phenols and oxalates. I

asked the neurologist at the ARI conference and he told me that according to

their study, camel milk and goat milk are as bad as cow's milk for kids with

folate antibodies. So far I am not convinced though. Please share what foods

your kid is consuming.

is

>

> Could it be a salicylate issue? 

>

> I'm battling the same thing...it's difficult for me to distinguish what is

affecting my child more.

>

>

>

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Monday, May 7, 2012 1:07 PM

> Subject: Ok, I need to earn a PhD in phenol sensitivity!

>

>

>  

> Hi everyone,

>

> I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

>

> http://www.autism.com/index.php/pro_research_B6Sulfation

>

> Our friend Mardella sent me a list of foods to avoid and I am really grateful

for that. There are still so many things that are not clear. I learned about P5P

and have removed him from the supps. I was already giving magnesium with P5P and

that was not sufficient. I added magnesium sulfate, was using no phenol with no

significant results so switched to phenol assist. I am adding molybdenum this

week and hopefully that would help also. But now I just found out that Vitamin A

can be an issue too. I have been using vitaspectrum which has carotenes and

vitamin palmitate which can be phenolic too. This is really becoming a headache

now. I am 150% sure that my son has a major issue with phenols and most of his

bad symptoms are coming from that. I need to treat the microbial infections at

the same time and that should help with the sensitivity too. Phenols in the skin

products can also create problems and I have yet to find an organic lotion for

my kid whose

> skin gets really dry if I don't use a moisturizer after shower. I would love

to learn from parents of kids who had major phenol issues and who have

successfully taken care of those with interventions.

>

> I will appreciate all the help on the subject.

> is

>

[Guest guest]

my child is currently gfcf. we are working to get off corn and soy. he has a sensitivity to berries. we had just started with no fenol as of last week. To: mb12valtrex Sent: Monday, May 7, 2012 7:41 PM Subject: Re: Ok, I need to earn a PhD in phenol

sensitivity!

Salicylates are a definite problem. His days are worse when he eats dried strawberries. I have looked at a lot of phenol lists and banana is low in phenols and salicylates. Still I remember most of the naturopaths and nutritionist don't like bananas - not sure if it is because they promote yeast growth or mold??? My son definitely needs milk in the morning and after school. I am still using almond milk which is high in salicylates. I alternate that with coconut milk. Can someone recommend an alternative to almond milk? He cannot tolerate soy milk, rice milk. Is there any nut milk which is relatively low salicylate? I am really getting inclined towards scd goat yogurt as my son loves yogurt and would love to eat it in place of milk. I have lost my faith in GFCF diet but still continuing it so far as I am too afraid to lose the gains he had(which I cannot even attribute to GFCF). I personally feel that these nut milks are actually worse if your

kid is sensitive to phenols and oxalates. I asked the neurologist at the ARI conference and he told me that according to their study, camel milk and goat milk are as bad as cow's milk for kids with folate antibodies. So far I am not convinced though. Please share what foods your kid is consuming.

is

>

> Could it be a salicylate issue?Â

>

> I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

>

>

>

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Monday, May 7, 2012 1:07 PM

> Subject: Ok, I need to earn a PhD in phenol sensitivity!

>

>

> Â

> Hi everyone,

>

> I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

>

> http://www.autism.com/index.php/pro_research_B6Sulfation

>

> Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid

whose

> skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

>

> I will appreciate all the help on the subject.

> is

>

[Guest guest]

Hi is,We stopped the almond milk for now (for oxalate reasons but salicylates may be a problem here too not sure)....we are currently just on water and some juice with supplements...I am giving them both calcium citrate at breakfast and dinner for calcium and reducing oxalates...not sure this will be the right route for them either but keeping an eye on it....i dont think the almond milk was good for my kids either...and they dont seem to tolerate rice milk either (i think it is the inulin but not sure). There is also hemp milk but I have heard that it has oxalates too.....i also give them broccoli and spring mix/avacado/banana/pineapple juice smoothies for a little more calcium...bananas are a sulfur food so this is not great but I have finally just decided to look

for balance bc they cannot eat air only....we have a sulfur limit and as long as we dont go over that they seem to be ok..the molybdenum definitely helped us this i think....still looking for more calcium foods that they will eat too.....hope this helps!megan To: mb12valtrex Sent: Monday, May 7, 2012 7:41 PM Subject: Re: Ok, I need to earn a PhD in phenol sensitivity!

Salicylates are a definite problem. His days are worse when he eats dried strawberries. I have looked at a lot of phenol lists and banana is low in phenols and salicylates. Still I remember most of the naturopaths and nutritionist don't like bananas - not sure if it is because they promote yeast growth or mold??? My son definitely needs milk in the morning and after school. I am still using almond milk which is high in salicylates. I alternate that with coconut milk. Can someone recommend an alternative to almond milk? He cannot tolerate soy milk, rice milk. Is there any nut milk which is relatively low salicylate? I am really getting inclined towards scd goat yogurt as my son loves yogurt and would love to eat it in place of milk. I have lost my faith in GFCF diet but still continuing it so far as I am too afraid to lose the gains he had(which I cannot even attribute to GFCF). I personally feel that these nut milks are actually worse if your

kid is sensitive to phenols and oxalates. I asked the neurologist at the ARI conference and he told me that according to their study, camel milk and goat milk are as bad as cow's milk for kids with folate antibodies. So far I am not convinced though. Please share what foods your kid is consuming.

is

>

> Could it be a salicylate issue?Â

>

> I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

>

>

>

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Monday, May 7, 2012 1:07 PM

> Subject: Ok, I need to earn a PhD in phenol sensitivity!

>

>

> Â

> Hi everyone,

>

> I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

>

> http://www.autism.com/index.php/pro_research_B6Sulfation

>

> Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid

whose

> skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

>

> I will appreciate all the help on the subject.

> is

>

[Guest guest]

Hi,We are on gaps and just stick wth coconut milk if at all he gets milk... I just tend to do juicing I make at home or water lots of waterSent from my iPod

my child is currently gfcf. we are working to get off corn and soy. he has a sensitivity to berries. we had just started with no fenol as of last week. To: mb12valtrex Sent: Monday, May 7, 2012 7:41 PM Subject: Re: Ok, I need to earn a PhD in phenol

sensitivity!

Salicylates are a definite problem. His days are worse when he eats dried strawberries. I have looked at a lot of phenol lists and banana is low in phenols and salicylates. Still I remember most of the naturopaths and nutritionist don't like bananas - not sure if it is because they promote yeast growth or mold??? My son definitely needs milk in the morning and after school. I am still using almond milk which is high in salicylates. I alternate that with coconut milk. Can someone recommend an alternative to almond milk? He cannot tolerate soy milk, rice milk. Is there any nut milk which is relatively low salicylate? I am really getting inclined towards scd goat yogurt as my son loves yogurt and would love to eat it in place of milk. I have lost my faith in GFCF diet but still continuing it so far as I am too afraid to lose the gains he had(which I cannot even attribute to GFCF). I personally feel that these nut milks are actually worse if your

kid is sensitive to phenols and oxalates. I asked the neurologist at the ARI conference and he told me that according to their study, camel milk and goat milk are as bad as cow's milk for kids with folate antibodies. So far I am not convinced though. Please share what foods your kid is consuming.

is

>

> Could it be a salicylate issue?Â

>

> I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

>

>

>

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Monday, May 7, 2012 1:07 PM

> Subject: Ok, I need to earn a PhD in phenol sensitivity!

>

>

> Â

> Hi everyone,

>

> I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

>

> http://www.autism.com/index.php/pro_research_B6Sulfation

>

> Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid

whose

> skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

>

> I will appreciate all the help on the subject.

> is

>

[Guest guest]

I have so much to say about diets and addressing mito, but I think I'd

just end up hijacking the thread.

Here's a really useful article about the phenol problem:

http://www.newtreatments.org/ga.php?linkid=252

So much useful info in there -- especially about NADH and how to fix

this. We have fully resolved the phenol problem for both my kids with

the stuff that's talked about in this article.

We used NAC, MSM, methionine, and taurine as our sulfur. We used

ionic magnesium and mag taurate and mag citrate for part of the time

but I ditched the mag citrate bc it was causing too much loose stools.

We did get some aggression for a bit because I overdid the sulfur

without supporting the rest of the methylation pathway. I'm in the

process of increasing the sulfur again while supporting with arginine,

methylfolate, tyrosine and 5-HTP (although I only do tyrosine and

5-HTP twice a week now, whereas I did them everyday for a while I was

trying to increase the production of neurotransmitters).

We don't do any special diets anymore except 95% whole foods, soy-free

and corn-free. We maintain a medium oxalate diet.

[Guest guest]

is, you could try cashew milk. As far as I know, cashews are the only low salicylate nuts. However, like all nuts they are high in oxalates. Bananas are low in salicylates but can be medium to high in amines (subgroup of phenols I believe), depending on how ripe they are. I've similar problems with my son. I'm constantly dealing with phenol sensitivities and PANDAS like symptoms. I think Alberta makes an excellent point regarding methylation support when giving sulfur.Joanna Sent from my iPhone

I have so much to say about diets and addressing mito, but I think I'd

just end up hijacking the thread.

Here's a really useful article about the phenol problem:

http://www.newtreatments.org/ga.php?linkid=252

So much useful info in there -- especially about NADH and how to fix

this. We have fully resolved the phenol problem for both my kids with

the stuff that's talked about in this article.

We used NAC, MSM, methionine, and taurine as our sulfur. We used

ionic magnesium and mag taurate and mag citrate for part of the time

but I ditched the mag citrate bc it was causing too much loose stools.

We did get some aggression for a bit because I overdid the sulfur

without supporting the rest of the methylation pathway. I'm in the

process of increasing the sulfur again while supporting with arginine,

methylfolate, tyrosine and 5-HTP (although I only do tyrosine and

5-HTP twice a week now, whereas I did them everyday for a while I was

trying to increase the production of neurotransmitters).

We don't do any special diets anymore except 95% whole foods, soy-free

and corn-free. We maintain a medium oxalate diet.

[Guest guest]

I used to give dd Epsom salt baths every night, this helped (and No Phenol

enzyme, but now I just give a few Trienza caps before a meal, we are no longer

on any 'special' diets after 2 full years of being strict on them, but I keep

gluten, casein, and soy low, and always with Trienza digestive enzymes, which

include No Phenol)

Anyway, she has moved onto showers, so I have the magnesium sulfate cream (like

Epsom salts) and do massage that into her feet and back --

>

> > I have so much to say about diets and addressing mito, but I think I'd

> > just end up hijacking the thread.

> >

> > Here's a really useful article about the phenol problem:

> > http://www.newtreatments.org/ga.php?linkid=252

> >

> > So much useful info in there -- especially about NADH and how to fix

> > this. We have fully resolved the phenol problem for both my kids with

> > the stuff that's talked about in this article.

> >

> > We used NAC, MSM, methionine, and taurine as our sulfur. We used

> > ionic magnesium and mag taurate and mag citrate for part of the time

> > but I ditched the mag citrate bc it was causing too much loose stools.

> > We did get some aggression for a bit because I overdid the sulfur

> > without supporting the rest of the methylation pathway. I'm in the

> > process of increasing the sulfur again while supporting with arginine,

> > methylfolate, tyrosine and 5-HTP (although I only do tyrosine and

> > 5-HTP twice a week now, whereas I did them everyday for a while I was

> > trying to increase the production of neurotransmitters).

> >

> > We don't do any special diets anymore except 95% whole foods, soy-free

> > and corn-free. We maintain a medium oxalate diet.

> >

>

[Guest guest]

Thanks everyone for helping. Alberta, I have been making my notes from the same

article that you are talking about. In terms of providing sulfur, I am a little

scared as when I added taurine about 2 years ago, my son had extreme

hyperactivity and started acting very silly. It was so bad that I never gave it

a try again. But at that time, he was only using the MB12 lollipops. So now that

he is on MB12 and I am about to start 5MTHF again, may be he will not react this

bad. When I tried NAC recently, he became aggressive. Can you share how you

started to fix this issue? Like in terms of order of supps that you added. I

know that Maia is on P5P. Did she start tolerating it after you fixed the issue?

My son does horrible on P5P. I was already supplementing a lot of magnesium with

it- a total of 300 mg of magnesium glycinate with 50 mg of P5P. Now I have

removed P5P as a separate supp but he is still getting it in vitaspectrum but a

minimal dose. I will be switching to probably brainchild nutritionals without

P5P and see how that goes. I have been gradually removing the high phenol foods

from my son's diet but still working on it. I am thinking of getting registered

at the Feingold website to learn more. Alberta, when you say that you needed to

support methylation more, what did you do? Did you increase the frequency of

mb12 sublingual or added 5MTHF or went up on 5Mthf dose? You know how much we

all love your posts so please don't worry about hijacking the thread and just

share your wealth of information with us. I have been saving your posts and just

reading them frequently to understand things better.

Joanna, I did look into cashew milk but yes, oxalate will still be a concern. I

also feel that there is a lot of overlap between phenol issues and pandas like

symptoms. Dr Goldberg is against nut milks and it makes sense to me that we are

removing dairy and then introducing the alternates that could actually be worse

for these kids. I am dreaming about adding goat yogurt(SCD) to his diet. I feel

like his diet has no nutrition other than what he gets from juicing and broths.

And he wants to drink some form of milk twice a day. I don't want to take 1that

away from him as he doesn't get any junk food, no store bought fruit juices.

Kids in his class are always munching on something(non-nutritious) and he cries

for those. I want to be able to give him at least the nutritious things he loves

like yogurt.

is

[Guest guest]

,

What do you juice and how do you rotate?

is

> > >

> > > Could it be a salicylate issue?Â

> > >

> > > I'm battling the same thing...it's difficult for me to distinguish what is

affecting my child more.

> > >

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: alexis_d3378 <alexis_d3378@>

> > > To: mb12valtrex

> > > Sent: Monday, May 7, 2012 1:07 PM

> > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > >

> > >

> > > Â

> > > Hi everyone,

> > >

> > > I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> > >

> > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > >

> > > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose

> > > skin gets really dry if I don't use a moisturizer after shower. I would

love to learn from parents of kids who had major phenol issues and who have

successfully taken care of those with interventions.

> > >

> > > I will appreciate all the help on the subject.

> > > is

> > >

> >

> >

> >

> >

>

[Guest guest]

, my son has acid reflux and I noticed that he was more miserable when I

gave him calcium citrate. I have been looking for an alternate. Our friend

on the forum suggested Easy Bones which looked amazing but I just found out that

there is inulin in it. So not sure which one to use. Dr B told me a while ago

that if different milks are causing a problem, there is no need to give any kind

of milk. I am not using these milks for calcium. My son is frustrated with the

whole diet thing and now wants at least some form of milk for breakfast. I will

try some days with the broth and home made juice. Lets see if that works.

is

> >

> > Could it be a salicylate issue? 

> >

> > I'm battling the same thing...it's difficult for me to distinguish what is

affecting my child more.

> >

> >

> >

> >

> >

> > ________________________________

> > From: alexis_d3378 <alexis_d3378@>

> > To: mb12valtrex

> > Sent: Monday, May 7, 2012 1:07 PM

> > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> >

> >

> >  

> > Hi everyone,

> >

> > I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> >

> > http://www.autism.com/index.php/pro_research_B6Sulfation

> >

> > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose

> > skin gets really dry if I don't use a moisturizer after shower. I would

love to learn from parents of kids who had major phenol issues and who have

successfully taken care of those with interventions.

> >

> > I will appreciate all the help on the subject.

> > is

> >

>

[Guest guest]

Hello,

My son used to be very sensitive to phenol. He even had a grand mal seizure

caused by a severe phenol overload one time (before I knew what phenol was).

We have been on the GAPS diet for 15 months now and he no longer seems to react

to phenol.

NO-Fenol has helped us, as well as mag cream and epsom salt baths.

When my son was tested for molybdenum, his level was high, bordering on toxic so

it may be a good idea to check levels before supplementing.

Gen

>

> Hi everyone,

>

> I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

>

> http://www.autism.com/index.php/pro_research_B6Sulfation

>

> Our friend Mardella sent me a list of foods to avoid and I am really grateful

for that. There are still so many things that are not clear. I learned about P5P

and have removed him from the supps. I was already giving magnesium with P5P and

that was not sufficient. I added magnesium sulfate, was using no phenol with no

significant results so switched to phenol assist. I am adding molybdenum this

week and hopefully that would help also. But now I just found out that Vitamin A

can be an issue too. I have been using vitaspectrum which has carotenes and

vitamin palmitate which can be phenolic too. This is really becoming a headache

now. I am 150% sure that my son has a major issue with phenols and most of his

bad symptoms are coming from that. I need to treat the microbial infections at

the same time and that should help with the sensitivity too. Phenols in the skin

products can also create problems and I have yet to find an organic lotion for

my kid whose skin gets really dry if I don't use a moisturizer after shower. I

would love to learn from parents of kids who had major phenol issues and who

have successfully taken care of those with interventions.

>

> I will appreciate all the help on the subject.

> is

>

[Guest guest]

Like u ve struggled wth oxalates, salicylate issues.. Even on gaps ve tended to worry as my son reacts to soo many foods at some point even eggs...ve stopped raw honey(hyper plus)Which makes most sweet fruit hard to give him..So i tend to juice pears,and despite oxalates issues beet root and kale at times carrots too I then do the gaps milkshake..... 2 raw eggs(ve to be from safe farmer free range and not from vaccinated chicken) and a large dollop of sour cream (made at home from raw or pastured cream)It makes for good source of amino acid source and eats the sugar in the juice and the juice itself meant to detox... Sent from my iPod

,

What do you juice and how do you rotate?

is

> > >

> > > Could it be a salicylate issue?Â

> > >

> > > I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

> > >

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: alexis_d3378 <alexis_d3378@>

> > > To: mb12valtrex

> > > Sent: Monday, May 7, 2012 1:07 PM

> > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > >

> > >

> > > Â

> > > Hi everyone,

> > >

> > > I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

> > >

> > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > >

> > > Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose

> > > skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

> > >

> > > I will appreciate all the help on the subject.

> > > is

> > >

> >

> >

> >

> >

>

[Guest guest]

Thank you so much for your help. I will definitely check for the molybdenum

level. Are you following the actual gaps diet or you have modified it?

Thanks

is

> >

> > Hi everyone,

> >

> > I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> >

> > http://www.autism.com/index.php/pro_research_B6Sulfation

> >

> > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose skin gets really dry if I don't use a

moisturizer after shower. I would love to learn from parents of kids who had

major phenol issues and who have successfully taken care of those with

interventions.

> >

> > I will appreciate all the help on the subject.

> > is

> >

>

[Guest guest]

Thanks . How difficult it is to start it? I am thinking may be I should

give it a try during summer as his school will be closed for about 18 days

before the summer school starts.

is

> > > > >

> > > > > Could it be a salicylate issue?Â

> > > > >

> > > > > I'm battling the same thing...it's difficult for me to distinguish

what is affecting my child more.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: alexis_d3378 <alexis_d3378@>

> > > > > To: mb12valtrex

> > > > > Sent: Monday, May 7, 2012 1:07 PM

> > > > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > > > >

> > > > >

> > > > > Â

> > > > > Hi everyone,

> > > > >

> > > > > I think I am going crazy trying to figure out how to combat this

phenol sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> > > > >

> > > > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > > > >

> > > > > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose

> > > > > skin gets really dry if I don't use a moisturizer after shower. I

would love to learn from parents of kids who had major phenol issues and who

have successfully taken care of those with interventions.

> > > > >

> > > > > I will appreciate all the help on the subject.

> > > > > is

> > > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

And wth the coconut milk I tend to buy organic coconut flakes one cup of flaked and cup of filtered water bring to boil cool then put in blender and blend use a fine strainer strain, and u ve uo coconut milk... That way u no there are no additives to it...My son loves itSent from my iPod

,

What do you juice and how do you rotate?

is

> > >

> > > Could it be a salicylate issue?Â

> > >

> > > I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

> > >

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: alexis_d3378 <alexis_d3378@>

> > > To: mb12valtrex

> > > Sent: Monday, May 7, 2012 1:07 PM

> > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > >

> > >

> > > Â

> > > Hi everyone,

> > >

> > > I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

> > >

> > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > >

> > > Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose

> > > skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

> > >

> > > I will appreciate all the help on the subject.

> > > is

> > >

> >

> >

> >

> >

>

[Guest guest]

It was a overwhelming to begin wth now that is how we start the day.. Could not do anything else we do the shake half hr later light breakfast...Will ve to see how I will cope wth all this as an due back to work end of september...And he is due to start school so ve to view school end of this month to see if they can work wth me re my sending him in wth lunch and keeping him off most food...Sent from my iPod

Thanks . How difficult it is to start it? I am thinking may be I should give it a try during summer as his school will be closed for about 18 days before the summer school starts.

is

> > > > >

> > > > > Could it be a salicylate issue?Â

> > > > >

> > > > > I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: alexis_d3378 <alexis_d3378@>

> > > > > To: mb12valtrex

> > > > > Sent: Monday, May 7, 2012 1:07 PM

> > > > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > > > >

> > > > >

> > > > > Â

> > > > > Hi everyone,

> > > > >

> > > > > I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

> > > > >

> > > > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > > > >

> > > > > Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose

> > > > > skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

> > > > >

> > > > > I will appreciate all the help on the subject.

> > > > > is

> > > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Great idea for the coconut milk ! I will try it this weekend. And yeah,

this gaps diet is overwhelming and have been thinking of trying it and just lose

strength every time. Will start implementing some aspects though.

Thanks

is

> > > > >

> > > > > Could it be a salicylate issue?Â

> > > > >

> > > > > I'm battling the same thing...it's difficult for me to distinguish

what is affecting my child more.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: alexis_d3378 <alexis_d3378@>

> > > > > To: mb12valtrex

> > > > > Sent: Monday, May 7, 2012 1:07 PM

> > > > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > > > >

> > > > >

> > > > > Â

> > > > > Hi everyone,

> > > > >

> > > > > I think I am going crazy trying to figure out how to combat this

phenol sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> > > > >

> > > > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > > > >

> > > > > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose

> > > > > skin gets really dry if I don't use a moisturizer after shower. I

would love to learn from parents of kids who had major phenol issues and who

have successfully taken care of those with interventions.

> > > > >

> > > > > I will appreciate all the help on the subject.

> > > > > is

> > > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Can someone please recommend any resources that you have read to help you understand all of this. I am OVERWHELMED and yet impressed with the knowledge you all have? Do you have doctor that helps you with this? (probably not as it seems like most of us parents have become the best doctor for our kids).

- I know what salycites are and we are on a low to (occasional) medium sal. diet.

- have no clue what phenol is. my sons LOVES his peanut butter, cashew butter, almond butter and just read that nuts are high in phenols. I do not know if he has issues with nuts. I just commented last night to my husband, "If CPR is sensitive to nuts and we have to remove them, we are in trouble (with regards to a good source of protein that he really likes)

- what is p5p?

- is, why did you add taurine?

- what is the deal with sulfur?

- Why is this (molybdenum) important?

Sorry for the questions. Just trying to get all of this straight in my head.

Cristine

Re: Ok, I need to earn a PhD in phenol sensitivity!

Hello,My son used to be very sensitive to phenol. He even had a grand mal seizure caused by a severe phenol overload one time (before I knew what phenol was).We have been on the GAPS diet for 15 months now and he no longer seems to react to phenol.NO-Fenol has helped us, as well as mag cream and epsom salt baths.When my son was tested for molybdenum, his level was high, bordering on toxic so it may be a good idea to check levels before supplementing.Gen>> Hi everyone,> > I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:> > http://www.autism.com/index.php/pro_research_B6Sulfation> > Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose skin gets really dr y if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions. > > I will appreciate all the help on the subject. > is>

[Guest guest]

Can someone please recommend any resources that you have read to help you understand all of this. I am OVERWHELMED and yet impressed with the knowledge you all have? Do you have doctor that helps you with this? (probably not as it seems like most of us parents have become the best doctor for our kids).

- I know what salycites are and we are on a low to (occasional) medium sal. diet.

- have no clue what phenol is. my sons LOVES his peanut butter, cashew butter, almond butter and just read that nuts are high in phenols. I do not know if he has issues with nuts. I just commented last night to my husband, "If CPR is sensitive to nuts and we have to remove them, we are in trouble (with regards to a good source of protein that he really likes)

- what is p5p?

- is, why did you add taurine?

- what is the deal with sulfur?

- Why is this (molybdenum) important?

Sorry for the questions. Just trying to get all of this straight in my head.

Cristine

Re: Ok, I need to earn a PhD in phenol sensitivity!

Hello,My son used to be very sensitive to phenol. He even had a grand mal seizure caused by a severe phenol overload one time (before I knew what phenol was).We have been on the GAPS diet for 15 months now and he no longer seems to react to phenol.NO-Fenol has helped us, as well as mag cream and epsom salt baths.When my son was tested for molybdenum, his level was high, bordering on toxic so it may be a good idea to check levels before supplementing.Gen>> Hi everyone,> > I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:> > http://www.autism.com/index.php/pro_research_B6Sulfation> > Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose skin gets really dr y if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions. > > I will appreciate all the help on the subject. > is>

[Guest guest]

Yes, we are doing GAPS strictly. It has been 15 months already. We decided to do

this because we had no other option. We tried DAN protocol for 4 months and it

was a disaster for us. My son actually got worse with it and developed nerve

damage by overdosing on a supplement (it went away, luckily). He is very

sensitive and can't tolerate any supplement at all besides enzymes and a few

homeopathic drops (UNDA Numbers).

This diet is difficult but we see progress. When he was diagnosed 2 years ago

(at 3.5 years old), he was " severe " with the language of a 12 to 18 month-old

and cognitive scores in the mentally retarded range. He was reassessed a few

weeks ago and now his language is at the 4.5 year-old level (he is 5.5

years-old), is considered " mild " and his cognitive scores were average.

He has a long way to go though. Recently his OCD symptoms returned and I have no

idea why. I don't know how far we will be able to take him but it helps.

Gen

> > >

> > > Hi everyone,

> > >

> > > I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> > >

> > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > >

> > > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose skin gets really dry if I don't use a

moisturizer after shower. I would love to learn from parents of kids who had

major phenol issues and who have successfully taken care of those with

interventions.

> > >

> > > I will appreciate all the help on the subject.

> > > is

> > >

> >

>

[Guest guest]

Not my idea all in the gaps book... If u ever do it start wth full gaps not the intro.. It boot camp on poor kid to remove so much so quickly my son suffered and in high-insight that's what we would do differently Sent from my iPod

Great idea for the coconut milk ! I will try it this weekend. And yeah, this gaps diet is overwhelming and have been thinking of trying it and just lose strength every time. Will start implementing some aspects though.

Thanks

is

> > > > >

> > > > > Could it be a salicylate issue?Â

> > > > >

> > > > > I'm battling the same thing...it's difficult for me to distinguish what is affecting my child more.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: alexis_d3378 <alexis_d3378@>

> > > > > To: mb12valtrex

> > > > > Sent: Monday, May 7, 2012 1:07 PM

> > > > > Subject: Ok, I need to earn a PhD in phenol sensitivity!

> > > > >

> > > > >

> > > > > Â

> > > > > Hi everyone,

> > > > >

> > > > > I think I am going crazy trying to figure out how to combat this phenol sensitivity issue. I have been trying to make my notes and gather as much information as possible but still need to learn more. In my search, I found a good study by Dr Waring:

> > > > >

> > > > > http://www.autism.com/index.php/pro_research_B6Sulfation

> > > > >

> > > > > Our friend Mardella sent me a list of foods to avoid and I am really grateful for that. There are still so many things that are not clear. I learned about P5P and have removed him from the supps. I was already giving magnesium with P5P and that was not sufficient. I added magnesium sulfate, was using no phenol with no significant results so switched to phenol assist. I am adding molybdenum this week and hopefully that would help also. But now I just found out that Vitamin A can be an issue too. I have been using vitaspectrum which has carotenes and vitamin palmitate which can be phenolic too. This is really becoming a headache now. I am 150% sure that my son has a major issue with phenols and most of his bad symptoms are coming from that. I need to treat the microbial infections at the same time and that should help with the sensitivity too. Phenols in the skin products can also create problems and I have yet to find an organic lotion for my kid whose

> > > > > skin gets really dry if I don't use a moisturizer after shower. I would love to learn from parents of kids who had major phenol issues and who have successfully taken care of those with interventions.

> > > > >

> > > > > I will appreciate all the help on the subject.

> > > > > is

> > > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I agree. If you decide to do the GAPS diet, start with the full GAPS diet. It's

a good idea to introduce GAPS foods first and then gradually, remove the none

GAPS foods. Otherwise, it's too much of a chock.

I also wanted to add that for some children (like mine) it can take several

months before you see real progress. For us, during the first few weeks, we saw

more regression than improvement (there is a lot of detox in the beginning).

I also think it's a good idea not to do this alone and to have a good GAPS

practitioner on board in case there are problems or if things don't progress

fast enough (in our case, we needed to add enzymes and then we saw big progress

in combination with the diet).

The person who moderates the GAPS Help Yahoo group was able to recover her son

with the diet. They started when he was around 10, I believe, but I remember her

mentioning that they saw no progress for the first 9 months.

http://www.blogtalkradio.com/gapsjourney/2011/04/23/success-on-the-gut-and-psych\

ology-syndrome-diet--millie-and-kevin

Other children seem to make progress rapidly though. Here is one:

http://www.takesatown.com/

Gen

> > > > > > >

> > > > > > > Could it be a salicylate issue?ÃÆ'‚

> > > > > > >

> > > > > > > I'm battling the same thing...it's difficult for me to distinguish

what is affecting my child more.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ________________________________

> > > > > > > From: alexis_d3378 <alexis_d3378@>

> > > > > > > To: mb12valtrex

> > > > > > > Sent: Monday, May 7, 2012 1:07 PM

> > > > > > > Subject: Ok, I need to earn a PhD in phenol

sensitivity!

> > > > > > >

> > > > > > >

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> > > > > > > Hi everyone,

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> > > > > > > I think I am going crazy trying to figure out how to combat this

phenol sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

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> > > > > > > http://www.autism.com/index.php/pro_research_B6Sulfation

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> > > > > > > Our friend Mardella sent me a list of foods to avoid and I am

really grateful for that. There are still so many things that are not clear. I

learned about P5P and have removed him from the supps. I was already giving

magnesium with P5P and that was not sufficient. I added magnesium sulfate, was

using no phenol with no significant results so switched to phenol assist. I am

adding molybdenum this week and hopefully that would help also. But now I just

found out that Vitamin A can be an issue too. I have been using vitaspectrum

which has carotenes and vitamin palmitate which can be phenolic too. This is

really becoming a headache now. I am 150% sure that my son has a major issue

with phenols and most of his bad symptoms are coming from that. I need to treat

the microbial infections at the same time and that should help with the

sensitivity too. Phenols in the skin products can also create problems and I

have yet to find an organic lotion for my kid whose

> > > > > > > skin gets really dry if I don't use a moisturizer after shower. I

would love to learn from parents of kids who had major phenol issues and who

have successfully taken care of those with interventions.

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> > > > > > > I will appreciate all the help on the subject.

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[Guest guest]

Have you tried just regular b6 instead of p5p?  I don't remember the names of the two coenzymes(?) right now but was just posting abt it on TLO today.  Some people can tolerate just one form and not the other based on how much of those coenzymes are available.

Methylation support, I just gave support to the different parts of the pathway where I thought she may be needing -- arginine, methylfolate, b6 & p5p,  tyrosine, 5-htp, I'm also thinking abt BH4 but haven't had a chance to try it yet, taurine, NAC, magnesium, zinc, and methionine for a while until it started causing aggression.