Ok, I need to earn a PhD in phenol sensitivity!

[Guest guest]

Cristine,

The first resource to learn about phenol sensitivity was Dana's blog. The link

is:

http://www.danasview.net/phenol.htm

I also found a discussion forum where moms are very knowledgeable and I am

slowly going thru all the material available there. The link is:

http://www.healthyawareness.com/articles/about-autism/foods-high-in-sulfur-and-w\

hey.aspx

Molybdenum is needed for the enzyme sulfide oxidase and cystine dioxygenase

which are involved in the pathway for sulfoxidation. I had added taurine about

two years ago when my son was on homeotoxicology protocols and I needed to add

sulfur for that particular detox. Currently my son is not on it. Taurine is a

precursor of sulfur in the metabolic chain and can help the

Phenolsulfotransferase activity.

Some other links are:

http://www.epsomsaltcouncil.org/articles/sulfation_benefits.pdf

Hope this helps.

is

> >

> > Hi everyone,

> >

> > I think I am going crazy trying to figure out how to combat this phenol

sensitivity issue. I have been trying to make my notes and gather as much

information as possible but still need to learn more. In my search, I found a

good study by Dr Waring:

> >

> > http://www.autism.com/index.php/pro_research_B6Sulfation

> >

> > Our friend Mardella sent me a list of foods to avoid and I am really

grateful for that. There are still so many things that are not clear. I learned

about P5P and have removed him from the supps. I was already giving magnesium

with P5P and that was not sufficient. I added magnesium sulfate, was using no

phenol with no significant results so switched to phenol assist. I am adding

molybdenum this week and hopefully that would help also. But now I just found

out that Vitamin A can be an issue too. I have been using vitaspectrum which has

carotenes and vitamin palmitate which can be phenolic too. This is really

becoming a headache now. I am 150% sure that my son has a major issue with

phenols and most of his bad symptoms are coming from that. I need to treat the

microbial infections at the same time and that should help with the sensitivity

too. Phenols in the skin products can also create problems and I have yet to

find an organic lotion for my kid whose skin gets really dr y if I don't use a

moisturizer after shower. I would love to learn from parents of kids who had

major phenol issues and who have successfully taken care of those with

interventions.

> >

> > I will appreciate all the help on the subject.

> > is

> >

>

[Guest guest]

I found this site to be helpful in explaining phenols/salicylates...but i

couldn't re-articulate it at a party!

http://healingautismandadhd.wordpress.com/diet-2/phenolssalicylates

we've finally come up with a juice that my kids will drink that is somewhat

healthy, low in phenols.

1 grapefruit

3 pears

3 carrots

1 large bunch of kale

this is enough for 2 adults and 2 kids

cheers, mardi

[Guest guest]

Thanks Mardi. Do you use a juicer to make this? Duh...probably, LOL! What kind of juicer do you have?

Cristine

Re: Ok, I need to earn a PhD in phenol sensitivity!

I found this site to be helpful in explaining phenols/salicylates...but i couldn't re-articulate it at a party!http://healingautismandadhd.wordpress.com/diet-2/phenolssalicylateswe've finally come up with a juice that my kids will drink that is somewhat healthy, low in phenols. 1 grapefruit3 pears3 carrots1 large bunch of kalethis is enough for 2 adults and 2 kidscheers, mardi

[Guest guest]

is, I just read a post on another group today that really made sense to me and I see this w Maia too.  Did your son by any chance show low riboflavin?  Is there any chance he's low riboflavin in any way?  

A woman on another group had talked abt increasing her own sulfur tolerance with r5p.  Maia was quite low riboflavin and she had a similar reaction to sulfur that you described happened to your son.  I was doing methionine, MSM, NAC, and taurine.  Then I had added in oral glutathione for a few days and that tipped the scale and she started biting people on the days where I gave any sulfur supps.  After that, any of the sulfur supps (except taurine) that I gave in isolation still caused her to bite people (from abt October to December, when I stopped the sulfur supps altogether).

As you already know, in January, we started high dose r5p.  We did abt 90 mg r5p for abt 2 months and I've been tapering it down since (we're back down to 40 to 60 mg r5p right now) and I've brought back NAC and taurine back w/o aggression.  Of course, I'm abt to tempt fate again and possibly eat my words bc I'm going to introduce SAMe.

[Guest guest]

I've been reading these posts with much interest. I am wondering how a CBS mutation plays into these problems. CBS mutations cause excess sulfur to be converted to ammonia which has multiple negative consequences. People with a CBS mutation and are told to limit P5P, taurine and sulfur. My son does terribly with any high salicylate foods so I assumed (based on all the other links you all have been posting that I've also been reading the last 2 years) that epsom salt baths, etc would help. My son does awful with epsom salt baths. Perhaps that is because of his CBS mutation? I had never heard of riboflavin being involved in any of these processes but interestingly my son's last OAT recommended in several areas to consider supplementing riboflavin. I haven't done that yet as I seem to be battling a yeast flare from seasonal allergies (anyone else's kids regressing this spring?) Perhaps riboflavin should be next on the list...Let's keep this thread going and perhaps well figure out what the "experts" have not been able to! I know that we cannot all be doing low phenol, low salicylate, low oxalate, low sulfur, GFCFSF, SCD/BED/GAPS because our kids will have NOTHING left to eat!!!Kim is, I just read a post on another group today that really made sense to me and I see this w Maia too. Did your son by any chance show low riboflavin? Is there any chance he's low riboflavin in any way? A woman on another group had talked abt increasing her own sulfur tolerance with r5p. Maia was quite low riboflavin and she had a similar reaction to sulfur that you described happened to your son. I was doing methionine, MSM, NAC, and taurine. Then I had added in oral glutathione for a few days and that tipped the scale and she started biting people on the days where I gave any sulfur supps. After that, any of the sulfur supps (except taurine) that I gave in isolation still caused her to bite people (from abt October to December, when I stopped the sulfur supps altogether). As you already know, in January, we started high dose r5p. We did abt 90 mg r5p for abt 2 months and I've been tapering it down since (we're back down to 40 to 60 mg r5p right now) and I've brought back NAC and taurine back w/o aggression. Of course, I'm abt to tempt fate again and possibly eat my words bc I'm going to introduce SAMe.

[Guest guest]

Thanks Mardi. I have also been juicing carrots, pear and celery once or twice a

week(too lazy to do more often). That is one replacement I use for milk.

Cristine, I use Jack lalanne juicer which I bought on sale but don't remember

how much I paid for that. I am satisfied with it mainly because it is easy to

assemble and clean. Would love to get more low phenol/low salicylate juice

ideas.

is

>

> I found this site to be helpful in explaining phenols/salicylates...but i

couldn't re-articulate it at a party!

>

> http://healingautismandadhd.wordpress.com/diet-2/phenolssalicylates

>

> we've finally come up with a juice that my kids will drink that is somewhat

healthy, low in phenols.

>

> 1 grapefruit

> 3 pears

> 3 carrots

> 1 large bunch of kale

>

> this is enough for 2 adults and 2 kids

>

> cheers, mardi

>

[Guest guest]

Alberta,

I will be getting OAT result soon and I am also waiting for my son's mito clinic

appointment. I have a strong feeling that he has mito dysfunction and needs

riboflavin as part of mito cocktail. He is getting 10 mg of riboflavin in his

multi but I am pretty sure he is still deficient in it as he has some angular

cheilitis as well. I am so frustrated with waiting for the mito clinic to get

him tested for mito dysfunction, I just feel like I should start him on the

supps now. The only reason I didn't start them yet are because I read that you

can miss the diagnosis if the child is already on supps. Lets see what the OAT

shows and if it confirms my suspicion, I will just go ahead and start the

required supps.

is

>

> is, I just read a post on another group today that really made sense to

> me and I see this w Maia too. Did your son by any chance show low

> riboflavin? Is there any chance he's low riboflavin in any way?

> >

> >

> A woman on another group had talked abt increasing her own sulfur tolerance

> with r5p. Maia was quite low riboflavin and she had a similar reaction to

> sulfur that you described happened to your son. I was doing methionine,

> MSM, NAC, and taurine. Then I had added in oral glutathione for a few days

> and that tipped the scale and she started biting people on the days where I

> gave any sulfur supps. After that, any of the sulfur supps (except

> taurine) that I gave in isolation still caused her to bite people (from abt

> October to December, when I stopped the sulfur supps altogether).

>

> As you already know, in January, we started high dose r5p. We did abt 90

> mg r5p for abt 2 months and I've been tapering it down since (we're back

> down to 40 to 60 mg r5p right now) and I've brought back NAC and taurine

> back w/o aggression. Of course, I'm abt to tempt fate again and possibly

> eat my words bc I'm going to introduce SAMe.

>

[Guest guest]

The woman on the other group specifically said R5P for increasing her

sulfur tolerance.

Strange thing, though, the OAT actually indicated that Maia was quite

deficient in riboflavin but she didn't have angular chelitis -- no

physical symptoms that actually indicated that she was low riboflavin.

Makes me wonder if it was a new thing with her that was recently

emerging just before we did our OAT.