need some support

[Guest guest]

I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better.

Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted.

We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

I am so sorry to hear u r feeling this way.. But at some point in this we all feel like that...I personally are exhausted from cooking Gaps food.. SCD... Only thing that is finally making a huge difference to my son is regular enemas(on top of diet, other supplements, and mms) the enema I ve avoid since starting Gaps dr NMC has a whole chapter on constipation and enamas but I just would not go there for mths thought of all other alternatives and did them but my 4yo stayed const.. He would spend 3-5days.. Am sure u get the pic.Now he is less hyper wth alt enema days...Hang on in there and pray... The kitchen has become my place of prayer as I cool and prepare foods..Good luck u are in my prayer Sent from my iPhone

I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better.

Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted.

We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

Thank you. I have the opposite. Lots of soft BMs. She is also on a moderated, lox oxalate GAPs diet.

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, May 23, 2012 11:29 AMSubject: Re: need some support

I am so sorry to hear u r feeling this way.. But at some point in this we all feel like that...

I personally are exhausted from cooking Gaps food.. SCD... Only thing that is finally making a huge difference to my son is regular enemas(on top of diet, other supplements, and mms) the enema I ve avoid since starting Gaps dr NMC has a whole chapter on constipation and enamas but I just would not go there for mths thought of all other alternatives and did them but my 4yo stayed const.. He would spend 3-5days.. Am sure u get the pic.

Now he is less hyper wth alt enema days...

Hang on in there and pray... The kitchen has become my place of prayer as I cool and prepare foods..

Good luck u are in my prayer

Sent from my iPhone

I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better.

Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted.

We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

Hang in there,we all have the black weeks,days when its hard to keep going,we are 6 years into this journey ,but since starting MMS we are seeing subtle changes,we are less than month in,40 recoveries in 20 months,something about it sits right ,email kerririvera@... she will get you started there is a facebook page too friend me and I will join you to grouop.that so called expert is wrong,your child is sick,not retarded,don't give up!!!Let your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Wed, 23 May 2012 01:12:52 -0700 (PDT)To: mb12valtrex@yahoogroups com<mb12valtrex >ReplyTo: mb12valtrex Subject: need some support I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better. Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted. We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

,

 

This life of being a parent of an autistic child is a roller coaster ride; allow yourself time to be angry, resentful and even still grieve sometimes (we all do!!), but then pick yourself up and move on for your daughter.  I don't know how she will fare over the long term, but there is hope for every child, and you are the best person to find the keys to unlock her future.  Heaven knows these " experts " add no value for our children with their input of no hope and discouragement of even trying.  Those people disgust me with the emotional weight they place on parents who are already overburdened, not to mention the long term impact on the children whose parents actually heed their advice...and it's all in a day's work for them.

 

At just under 2yo, my son was diagnosed with autism at the Kennedy Krieger Institute.  Those " experts " told us the best thing for us to do would be to learn how to give him the best life possible given his condition and that we shouldn't focus on teaching the things most kids learn (letters, numbers, manners, etc.) because he didn't even have basic life skills.  was in the 1st percentile (yep - his skills were totally nonexistent) for expressive & receptive communication, stimmed all the time, no connectedness, tantrums, constantly loose BMs, the whole nine yards.  Of course, we agreed that he needed basic skills...but I thought that ignoring everything else was a bunch of bunk and promptly decided to ignore that.  We quickly saw that the only people who cared enough about him to believe in answers were our family - NOT the specialists.  They basically just read to you from a script.

 

Today, a year and a half later, after many measures and tons of effort and prayer, is practically a recovered child.  Asks to go to the library, the park, grandma's house (even told me likes one better than the other - yikes!), talks about experiences at preschool, knows letters, numbers, songs, has wonderful manners, and so much more.  If we had accepted the guidance of those who supposedly know so much more than we do, where would he be??  What a disservice it would have been to him for us to give up just because someone told us to hold no hope for him.  I don't know how those people sleep at night, but as tiring as all of the work is, I can at least rest in the knowledge that we've done everything we know to do.  If it doesn't work, it doesn't work but I will never ever lie awake at night wondering " what ifs. "

 

What all have you tried for your daughter?  Different things work for different kiddos.  Never stop trying to piece together the puzzle for her - you are by far her best advocate!

 

 

Hugs to you,

 

 

Hang in there,we all have the black weeks,days when its hard to keep going,we are 6 years into this journey ,but since starting MMS we are seeing subtle changes,we are less than month in,40 recoveries in 20 months,something about it sits right ,email kerririvera@... she will get you started there is a facebook page too friend me and I will join you to grouop.that so called expert is wrong,your child is sick,not retarded,don't give up!!! Let your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Wed, 23 May 2012 01:12:52 -0700 (PDT)

To: mb12valtrex@yahoogroups com<mb12valtrex >

ReplyTo: mb12valtrex

Subject: need some support

 

I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better.

 

Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted. 

 

We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

 

[Guest guest]

what is the facebook called, I looked up MMS and it was not enough. Virginia To: mb12valtrex Sent: Wednesday, May 23, 2012 4:38:59 AM Subject: Re: need some support

Hang in there,we all have the black weeks,days when its hard to keep going,we are 6 years into this journey ,but since starting MMS we are seeing subtle changes,we are less than month in,40 recoveries in 20 months,something about it sits right ,email kerririvera@... she will get you started there is a facebook page too friend me and I will join you to grouop.that so called expert is wrong,your child is sick,not retarded,don't give up!!!Let your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Wed, 23 May 2012 01:12:52 -0700 (PDT)To: mb12valtrex@yahoogroups com<mb12valtrex >ReplyTo: mb12valtrex

Subject: need some support

I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better.

Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted.

We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

Hi ,

My son was also constantly grinding his teeth and even in his sleep. I read that

this could be due to allergies as the inside of their mouths were itchy. I

eventually worked out that my son could not tolerate eggs which made him grind

his teeth day and night. I since stopped giving him eggs and his teeth grinding

has stopped. He has also had a blood test and i now know what foods to avoid. I

completely understand how you feel my son and daughter both are on the spectrum.

>

> Hang in there,we all have the black weeks,days when its hard to keep going,we

are 6 years into this journey ,but since starting MMS we are seeing subtle

changes,we are less than month in,40 recoveries in 20 months,something about it

sits right ,email kerririvera@... she will get you started there is a facebook

page too friend me and I will join you to grouop.that so called expert is

wrong,your child is sick,not retarded,don't give up!!!

> Let your email find you with BlackBerry® from Vodafone

>

> need some support

>

> I am working so hard to try and help my child. Very often I feel more like a

caretaker than a mother. How are her bowel movements, did she drink enough, how

can i improve her sleep, did she take her pills, supplements, what's her menu

today, how is potty training going, how can I assist her nursery, what about

after school curriculum, intensive ABA ? And all the time I am thinking, I have

to help her. I have to help her recover. She has to get better.

>  

> Then I get to meet the child development specialist who I have avoided seeing

for the last two years. She tells me. Your daughter shouldn't be at a

communication nursery. What's the point of her learning about the seasons and

holidays? She is severely autistic and severely mentally retarded. She needs to

learn skills. I don't disagree about the skills part. But the other part was so

hard to hear. And maybe she is right. On paper when you look at my beautiful

head spinning, teeth grinding, barely responsive child, you think, maybe she is

right. And all the wind is taken out of my sails. I don't know how to help my

child. I am not winning this battle.She isn't getting any better with all the

things I am trying. I am facing the fact that I am going to be a caretaker for

the rest of my life. These are very hard facts for me to accept. I feel

exhausted. 

>  

> We are meant to be going away on a big family holiday this summer. We are very

excited about it. But i keep thinking. Are we really going to enjoy it? Is my

daughter going to be unwell and withdrawn? Will she let us sleep at night? I

feel resentful. Angry. I know I have to accept the reality as it is. I know

things change and that life has it's own dynamism. But right now I am aching

inside with sadness.

>

[Guest guest]

, Awesome post!!!Tammy To: mb12valtrex Sent: Wednesday, May 23, 2012 8:44 AM Subject: Re: need some support

,

This life of being a parent of an autistic child is a roller coaster ride; allow yourself time to be angry, resentful and even still grieve sometimes (we all do!!), but then pick yourself up and move on for your daughter. I don't know how she will fare over the long term, but there is hope for every child, and you are the best person to find the keys to unlock her future. Heaven knows these "experts" add no value for our children with their input of no hope and discouragement of even trying. Those people disgust me with the emotional weight they place on parents who are already overburdened, not to mention the long term impact on the children whose parents actually heed their advice...and it's all in a day's work for them.

At just under 2yo, my son was diagnosed with autism at the Kennedy Krieger Institute. Those "experts" told us the best thing for us to do would be to learn how to give him the best life possible given his condition and that we shouldn't focus on teaching the things most kids learn (letters, numbers, manners, etc.) because he didn't even have basic life skills. was in the 1st percentile (yep - his skills were totally nonexistent) for expressive & receptive communication, stimmed all the time, no connectedness, tantrums, constantly loose BMs, the whole nine yards. Of course, we agreed that he needed basic skills...but I thought that ignoring everything else was a bunch of bunk and promptly decided to ignore that. We quickly saw that the only people who cared enough about him to believe in answers were our family - NOT the specialists. They basically just read to you from a

script.

Today, a year and a half later, after many measures and tons of effort and prayer, is practically a recovered child. Asks to go to the library, the park, grandma's house (even told me likes one better than the other - yikes!), talks about experiences at preschool, knows letters, numbers, songs, has wonderful manners, and so much more. If we had accepted the guidance of those who supposedly know so much more than we do, where would he be?? What a disservice it would have been to him for us to give up just because someone told us to hold no hope for him. I don't know how those people sleep at night, but as tiring as all of the work is, I can at least rest in the knowledge that we've done everything we know to do. If it doesn't work, it doesn't work but I will never ever lie awake at night wondering "what ifs."

What all have you tried for your daughter? Different things work for different kiddos. Never stop trying to piece together the puzzle for her - you are by far her best advocate!

Hugs to you,

Hang in there,we all have the black weeks,days when its hard to keep going,we are 6 years into this journey ,but since starting MMS we are seeing subtle changes,we are less than month in,40 recoveries in 20 months,something about it sits right ,email kerririvera@... she will get you started there is a facebook page too friend me and I will join you to grouop.that so called expert is wrong,your child is sick,not retarded,don't give up!!! Let your email find you with BlackBerry® from Vodafone

Sender: mb12valtrex

Date: Wed, 23 May 2012 01:12:52 -0700 (PDT)

To: mb12valtrex@yahoogroups com<mb12valtrex >

ReplyTo: mb12valtrex

Subject: need some support

I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better.

Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted.

We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

Its a secret group .the email I gave u to kerri is the lady who runs the protocol.friend me and I can invite u to join mms groupLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Wed, 23 May 2012 16:12:52 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: need some support what is the facebook called, I looked up MMS and it was not enough. Virginia To: mb12valtrex Sent: Wednesday, May 23, 2012 4:38:59 AM Subject: Re: need some support Hang in there,we all have the black weeks,days when its hard to keep going,we are 6 years into this journey ,but since starting MMS we are seeing subtle changes,we are less than month in,40 recoveries in 20 months,something about it sits right ,email kerririvera@... she will get you started there is a facebook page too friend me and I will join you to grouop.that so called expert is wrong,your child is sick,not retarded,don't give up!!!Let your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Wed, 23 May 2012 01:12:52 -0700 (PDT)To: mb12valtrex@yahoogroups com<mb12valtrex >ReplyTo: mb12valtrex Subject: need some support I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better. Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted. We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.

[Guest guest]

yes we all have our tough days for sure. my son and daughter are on the spectrum too. after a years hard slog with my son i thought he was doing so well, but they tell me he is severe. The thing is a absolutely agree just focusing in on the gains that your child is making in front of you, they may look small to others but to us they have been huge. and yeh he might have a way to go, but we will get there! The experts can have their opinion. Stay in prayer you will get there.

To: mb12valtrex Sent: Thursday, 24 May 2012 8:46 PMSubject: Re: need some support

Hi ,My son was also constantly grinding his teeth and even in his sleep. I read that this could be due to allergies as the inside of their mouths were itchy. I eventually worked out that my son could not tolerate eggs which made him grind his teeth day and night. I since stopped giving him eggs and his teeth grinding has stopped. He has also had a blood test and i now know what foods to avoid. I completely understand how you feel my son and daughter both are on the spectrum.>> Hang in there,we all have the black weeks,days when its hard to keep going,we are 6 years into this journey ,but since starting MMS we are seeing subtle changes,we are less than month in,40 recoveries in 20 months,something about it sits right ,email

kerririvera@... she will get you started there is a facebook page too friend me and I will join you to grouop.that so called expert is wrong,your child is sick,not retarded,don't give up!!!> Let your email find you with BlackBerry® from Vodafone> >

need some support> > I am working so hard to try and help my child. Very often I feel more like a caretaker than a mother. How are her bowel movements, did she drink enough, how can i improve her sleep, did she take her pills, supplements, what's her menu today, how is potty training going, how can I assist her nursery, what about after school curriculum, intensive ABA ? And all the time I am thinking, I have to help her. I have to help her recover. She has to get better. > > Then I get to meet the child development specialist who I have avoided seeing for the last two years. She tells me. Your daughter shouldn't be at a communication nursery. What's the point of her learning about the seasons and holidays? She is severely autistic and severely mentally retarded. She needs to learn skills. I don't disagree about the skills part. But the other part was so hard to hear. And maybe she is right. On paper when you look

at my beautiful head spinning, teeth grinding, barely responsive child, you think, maybe she is right. And all the wind is taken out of my sails. I don't know how to help my child. I am not winning this battle.She isn't getting any better with all the things I am trying. I am facing the fact that I am going to be a caretaker for the rest of my life. These are very hard facts for me to accept. I feel exhausted. > > We are meant to be going away on a big family holiday this summer. We are very excited about it. But i keep thinking. Are we really going to enjoy it? Is my daughter going to be unwell and withdrawn? Will she let us sleep at night? I feel resentful. Angry. I know I have to accept the reality as it is. I know things change and that life has it's own dynamism. But right now I am aching inside with sadness.>

[Guest guest]

,

I'd have very colorful words for that Child Development Specialist

that I prob wouldn't be allowed to say on this list. In fact, I think

if someone said something like that to me, I'd call up their

supervisor and tell their supervisor that they're saying stuff like

this. It is very very easy for many moms of special needs kids to

fall into depression because of their situation, because we face more

challenging battles than our counterpart mothers with typical

children.

That makes me so angry that she said that to you. What an a-hole!

With that said, yeah, the people who diagnosed my son said that it'll

be likely he'll be learning disabled (which is just a more politically

correct way of saying he's mentally retarded). Wow, they can predict

what hasn't been yet and they can predict when he's 2. Holy Mackerel,

they must be the Amazing Kreskin. In fact, this woman must be the

Amazing Kreskin because she can give a diagnosis of mental retardation

without a way to do an IQ test? Wow. Simply remarkable...she must be

Wonder Woman...did she have a magic lasso too to do this IQ test? Now

I really really want to send her an email to ask if I can ride in her

invisible jet...

Whatever.

A lot of parents of special needs kids get told BS like this. Your

child has no way of knowing because your child does not have the

adequate neurotransmitters yet to communicate with the rest of the

world. This does not mean her brain does not work properly. You can

do a lot of things to help the biosynthesis of neurotransmitters.

Personally, I would've reported this Child Development Specialist to

her supervisor in a heartbeat, but maybe because I am a bitch and not

afraid to be one. This individual is not suited to do her job and she

is going to do a lot more damage than help and the kicker is that your

tax dollars are paying for her to be there to say these nasty things

to emotionally vulnerable parents all day long. This woman is a sick

predator who takes some perverse pleasure in making people feel bad.

I would refuse to see this person any further. This person will be of

zero help to you and it's obvious that she's attempting to break your

spirit. I would also call up this person's supervisor saying that

this person is too negative to work with and that you would like to

see someone more positive who believes that special needs children can

be helped. I don't know why people do this, but again, they seem to

take some perverse pleasure in it. Sick people. What she did

constitutes as mental abuse. She said something that she has no way

of substantiating. And even if her client was mentally retarded,

she's never supposed to foster a a setting of making the client feel

like they can't help their child. I've personally seen this on more

than one occasion in interacting with people who work in servicing

special needs families. I just decline all further contact with these

types or if I have time, I send them on wild goose chases and I'll

bombard them with email after email after email and phone calls to

" educate " them until they no longer wish to see me anymore (and if

you've read any of my posts on here, you'll know that I can get into

very long winded details about things...I can also do this with

teaching techniques, too).

I honestly feel that people with special needs children are better

equipped to work in supporting families with special needs. I don't

think such insensitive people should be allowed to work in the field.

[Guest guest]

I'm having issues with my mail so I was unable to see the beginning of this thread., I'm sorry that someone said something hurtful and insensitive. Sometimes people don't know or care how deeply words can hurt.My son was labeled "retarded", too. I didn't buy it for a second. Tom never had to be taught to read and spell, or how to count. I suppose it all depends on the individual defining the word. Maybe according to the DSM he is. Who knows or cares.This thread totally makes me think of The Breakfast Clubwhen much to brainiac 's dismay, he fails shop:: I'm a ******* idiot because I can't make a lamp?Bender: No, you're a genius because you can't make a lamp.: What do you know about Trigonometry?Bender: I could care less about Trigonometry.: Bender, did you know without Trigonometry there'd be no engineering?Bender: Without lamps, there'd be no light.xoxoxoxoxTammy To: mb12valtrex Sent: Friday, May 25, 2012 6:29 AM Subject: Re: Re: need some support

,

I'd have very colorful words for that Child Development Specialist

that I prob wouldn't be allowed to say on this list. In fact, I think

if someone said something like that to me, I'd call up their

supervisor and tell their supervisor that they're saying stuff like

this. It is very very easy for many moms of special needs kids to

fall into depression because of their situation, because we face more

challenging battles than our counterpart mothers with typical

children.

That makes me so angry that she said that to you. What an a-hole!

With that said, yeah, the people who diagnosed my son said that it'll

be likely he'll be learning disabled (which is just a more politically

correct way of saying he's mentally retarded). Wow, they can predict

what hasn't been yet and they can predict when he's 2. Holy Mackerel,

they must be the Amazing Kreskin. In fact, this woman must be the

Amazing Kreskin because she can give a diagnosis of mental retardation

without a way to do an IQ test? Wow. Simply remarkable...she must be

Wonder Woman...did she have a magic lasso too to do this IQ test? Now

I really really want to send her an email to ask if I can ride in her

invisible jet...

Whatever.

A lot of parents of special needs kids get told BS like this. Your

child has no way of knowing because your child does not have the

adequate neurotransmitters yet to communicate with the rest of the

world. This does not mean her brain does not work properly. You can

do a lot of things to help the biosynthesis of neurotransmitters.

Personally, I would've reported this Child Development Specialist to

her supervisor in a heartbeat, but maybe because I am a bitch and not

afraid to be one. This individual is not suited to do her job and she

is going to do a lot more damage than help and the kicker is that your

tax dollars are paying for her to be there to say these nasty things

to emotionally vulnerable parents all day long. This woman is a sick

predator who takes some perverse pleasure in making people feel bad.

I would refuse to see this person any further. This person will be of

zero help to you and it's obvious that she's attempting to break your

spirit. I would also call up this person's supervisor saying that

this person is too negative to work with and that you would like to

see someone more positive who believes that special needs children can

be helped. I don't know why people do this, but again, they seem to

take some perverse pleasure in it. Sick people. What she did

constitutes as mental abuse. She said something that she has no way

of substantiating. And even if her client was mentally retarded,

she's never supposed to foster a a setting of making the client feel

like they can't help their child. I've personally seen this on more

than one occasion in interacting with people who work in servicing

special needs families. I just decline all further contact with these

types or if I have time, I send them on wild goose chases and I'll

bombard them with email after email after email and phone calls to

"educate" them until they no longer wish to see me anymore (and if

you've read any of my posts on here, you'll know that I can get into

very long winded details about things...I can also do this with

teaching techniques, too).

I honestly feel that people with special needs children are better

equipped to work in supporting families with special needs. I don't

think such insensitive people should be allowed to work in the field.

[Guest guest]

Thank you dear listmates. You are truely the only place where I feel understood. God bless you all.

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