Treatment

[Guest guest]

I've been on Copaxone for 9 yrs and have had very little progression with my ms. I've also never had any flu-like symptoms you apparently get with interferons like Rebif. Copaxone at least for me is an excellent ms drug that keeps relapses at bay and if that means a daily shot that results in a mildly itchy bump, I'll take it. I say try it, if it doesn't work for you then go another direction. You're very new to ms so don't give up so fast. If Copaxone doesn't work for you I've read that there are other drugs coming soon so don't throw in the towel on your ms fight just yet.

Amy

Treatment

Hello-I am Sherri,I have only posted here once before but I do read the posts, and appreciate the info and education shared here. I was dx'd in Feb 2010 and have had 2 flares, and 2 rounds of steroids since the first one. I was put on Rebif and have been basically sick every since. Two weeks ago due to Liver and tyroid panel problems and a allergic type reaction I was taken off the Rebif for a "drug vacation" and to see if my abnormal blood work would normalize. The Dr's plan is to repeat blood this week and than start me on Copaxone (sp). I am working on developing my own plan, and am seriously considering no treatment for now. I am curious if anyone one else has opted for that decision? I am sick of feeling sick!S.

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[Guest guest]

Hello-I am Sherri,

I have only posted here once before but I do read the posts, and appreciate the

info and education shared here. I was dx'd in Feb 2010 and have had 2 flares,

and 2 rounds of steroids since the first one. I was put on Rebif and have been

basically sick every since. Two weeks ago due to Liver and tyroid panel problems

and a allergic type reaction I was taken off the Rebif for a " drug vacation " and

to see if my abnormal blood work would normalize. The Dr's plan is to repeat

blood this week and than start me on Copaxone (sp). I am working on developing

my own plan, and am seriously considering no treatment for now. I am curious if

anyone one else has opted for that decision? I am sick of feeling sick!

S.

[Guest guest]

Wow. 2 flares since february this year, that's a lot! Considering that, and the severe effect Rebif has had on your liver etc., I would say that it's quite clear that Rebif isn't working for you. Which seems to be the doctor's conclusion as well. That's the thing with the MS-drugs (as well as most other drugs, for that matter, but perhaps especially these disease modifying ones), they work differently for/with different individuals. That's why you'll often need to do a little trial and error after your dx, and also why you need to do regular check ups. Now, that Rebif worked that badly for you really doesn't mean that Copaxone will, it's awhole other drug, with a whole other mechanism. I would strongly recommend you toat least try out the Copaxone before you make the decision to stay off MS-drugs. YourMS seems to be very active (2 flares in just 6 months), and really could do some seriousdamage if left to its own devices. Not trying to put a damper on your spirit, just wanting you to be as healthy as possiblefor as long as possible!love/Reb - in Sweden----original message---- Hello-I am Sherri,I have only posted here once before but I do read the posts, and appreciate theinfo and education shared here. I was dx'd in Feb 2010 and have had 2 flares,and 2 rounds of steroids since the first one. I was put on Rebif and have

beenbasically sick every since. Two weeks ago due to Liver and tyroid panel problemsand a allergic type reaction I was taken off the Rebif for a "drug vacation" andto see if my abnormal blood work would normalize. The Dr's plan is to repeatblood this week and than start me on Copaxone (sp). I am working on developingmy own plan, and am seriously considering no treatment for now. I am curious ifanyone one else has opted for that decision? I am sick of feeling sick!S.

[Guest guest]

Wow, sorry to hear that. if it were me, i'd at the very least wait a bit longer before starting a new drug...at least an extra month. you can live with ms, but you can't live without your internal organs...they probably need a break.

http://practical-homeschooling.orgwww.laurascoolstuff.com

 

Hello-I am Sherri,

I have only posted here once before but I do read the posts, and appreciate the info and education shared here. I was dx'd in Feb 2010 and have had 2 flares, and 2 rounds of steroids since the first one. I was put on Rebif and have been basically sick every since. Two weeks ago due to Liver and tyroid panel problems and a allergic type reaction I was taken off the Rebif for a " drug vacation " and to see if my abnormal blood work would normalize. The Dr's plan is to repeat blood this week and than start me on Copaxone (sp). I am working on developing my own plan, and am seriously considering no treatment for now. I am curious if anyone one else has opted for that decision? I am sick of feeling sick!

S.

[Guest guest]

I was on copaxone fro 7 years and after daily bumps from injection sites, I stopped for 4 months. My doctor then tried me on rebif,,, after 2 years I have low thyroid and flu like reaction, I stopped it again. My neuro isn't happy but because I am the only one that can put the prescription into the drug store he decided it wasn't worth the battle until he can give me more proof that I really need it.

good luck- sometimes we need to take a break just to feel ourselves again

Treatment

Hello-I am Sherri,I have only posted here once before but I do read the posts, and appreciate the info and education shared here. I was dx'd in Feb 2010 and have had 2 flares, and 2 rounds of steroids since the first one. I was put on Rebif and have been basically sick every since. Two weeks ago due to Liver and tyroid panel problems and a allergic type reaction I was taken off the Rebif for a "drug vacation" and to see if my abnormal blood work would normalize. The Dr's plan is to repeat blood this week and than start me on Copaxone (sp). I am working on developing my own plan, and am seriously considering no treatment for now. I am curious if anyone one else has opted for that decision? I am sick of feeling sick!S.

[Guest guest]

As someone else suggested, I think it was , it is probablya good idea to give your body a break from any of the CRABS, butI think it wise to go back on something, like Copaxone within thenext 3 months or so. 2 flares in such a short period of time is concerning.Do you have a neuro that is an MS specialist? Just wondering...hugs to you, Kate TreatmentTo: MSersLife > Hello-I am Sherri,> I have only posted here once before but I do read the posts, and > appreciate the info and education shared here. I was dx'd in Feb > 2010 and have had 2 flares, and 2 rounds of steroids since the > first one. I was put on Rebif and have been basically sick every > since. Two weeks ago due to Liver and tyroid panel problems and > a allergic type reaction I was taken off the Rebif for a "drug > vacation" and to see if my abnormal blood work would normalize. > The Dr's plan is to repeat blood this week and than start me on > Copaxone (sp). I am working on developing my own plan, and am > seriously considering no treatment for now. I am curious if > anyone one else has opted for that decision? I am sick of > feeling sick!> S.> > love and blessings,Kate

Attachment: vcard [not shown]

[Guest guest]

Dear SherriWell.... I was on Avonex for 5 years and did well on it. But I had two "down days" a week, had to plan my life around shot day, and finally got tired of the shots and quit. It felt wonderful to be off the shots. I did well for over a year. I moved to Alaska and had a major exacerbation when we got there. I didn't have treatment for it but did finally see a doctor. I just toughed it out and got better and did fine. Then I moved back to Arizona and went into a flare that lasted about 2 years. I was in real bad shape. One neuro wanted me to go back on Avonex. Another neuro said it wouldn't help because I was now Secondary Progressive. I went on

LDN for about a year and did well on it. At the time I didn't think it helped me. I quit LDN because I was having oral surgery (you can't take narcotic pain pills on LDN). I have thought about going back on LDN.I still don't know what helped and what didn't but I am SO much better now. I did move back from the city to the country. Maybe the clean air and good water is the reason for my improvement? I really don't know. I am not on any treatment at all. I don't even take any meds for symptom relief now because I don't have symptoms that require it! I did have a flare in May, however. I had trouble walking and my left leg was dragging. I ended up taking a nasty fall and had to take it easy for awhile. I feel like I am back from that flare now. I am careful walking outside now

though. I can't tell you what to do (none of us here can). All we can do is give you our own experiences. I will say we are lucky that there are treatments now for MS! There is hope for MSers now. The treatments aren't perfect and there are some miserable side effects, but at least we have them.That said, I am comfortable with me not being on treatment. If I was younger with MS I might make a different decision. How old are you, Sherri? I am glad your doc is taking a drug vacation because you certainly don't want liver damage. That's one thing all MSers on these powerful drugs have to be on top on. I don't have any advice. I can, instead, say I understand and sent empathy your way. Please keep posting! hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, August 29, 2010 7:47:18 AMSubject: Treatment

Hello-I am Sherri,I have only posted here once before but I do read the posts, and appreciate the info and education shared here. I was dx'd in Feb 2010 and have had 2 flares, and 2 rounds of steroids since the first one. I was put on Rebif and have been basically sick every since. Two weeks ago due to Liver and tyroid panel problems and a allergic type reaction I was taken off the Rebif for a "drug vacation" and to see if my abnormal blood work would normalize. The Dr's plan is to repeat blood this week and than start me on Copaxone (sp). I am working on developing my own plan, and am seriously considering no treatment for now. I am curious if anyone one else has opted for that decision? I am sick of feeling sick!S.------------------------------------

[Guest guest]

That's great advice, Reb. SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife <MSersLife >Sent: Sun, August 29, 2010 8:13:09 AMSubject: Re: Treatment

Wow. 2 flares since february this year, that's a lot! Considering that, and the severe effect Rebif has had on your liver etc., I would say that it's quite clear that Rebif isn't working for you. Which seems to be the doctor's conclusion as well. That's the thing with the MS-drugs (as well as most other

drugs, for that matter, but perhaps especially these disease modifying ones), they work differently for/with different individuals. That's why you'll often need to do a little trial and error after your dx, and also why you need to do regular check ups. Now, that Rebif worked that badly for you really doesn't mean that Copaxone will, it's awhole other drug, with a whole other mechanism. I would strongly recommend you toat least try out the Copaxone before you make the decision to stay off MS-drugs. YourMS seems to be very active (2 flares in just 6 months), and really could do some seriousdamage if left to its own

devices. Not trying to put a damper on your spirit, just wanting you to be as healthy as possiblefor as long as possible!love/Reb - in

Sweden----original message---- Hello-I am Sherri,I have only posted here once before but I do read the posts, and appreciate theinfo and education shared here. I was dx'd in Feb 2010 and have had 2 flares,and 2 rounds of steroids since the first one. I was put on Rebif and have

beenbasically sick every since. Two weeks ago due to Liver and tyroid panel problemsand a allergic type reaction I was taken off the Rebif for a "drug vacation" andto see if my abnormal blood work would normalize. The Dr's plan is to repeatblood this week and than start me on Copaxone (sp). I am working on developingmy own plan, and am seriously considering no treatment for now. I am curious ifanyone one else has opted for that decision? I am sick of feeling sick!S.

[Guest guest]

I am sorry you have to spend so much time in bed. You will be in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: dscrider@...Sent: Mon, 30 Aug 2010 06:37:04 -0700 (PDT)To: mserslife Subject: Treatment

TY for all the thoughts and support. I am 47 and prob. have had MS for longer than I have been dx'd. I am going to a MS Center in Kansas City and I like them very much. Essentially I had a normal MRI-brain 2 yrs ago, now I have multiple lesions in brain and spine. I was told at last visit that it is possible that I have a virilent (sp) form of MS. So what do u do with that info-in my head I want to live my life as normal as I can for as long as I can. Being so sick I am in bed 6 out 7 days of the week doesn't fit that "living my life" formula. I know I will have to have tratment I am just considerinbg postponing it for a bit.

S.

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