New to group - running out of hope

[Guest guest]

Hello ~

My name is Debbie, I'm 42, and have been living in chronic pain off and on for

nearly five years. I can't seem to get anywhere with a diagnosis, except to

keep being told what I " don't have " .

When I search my symptoms on the web, MS comes up repeatedly but the last thing

I want to do is jump to conclusions. I had an MRI of the lumbar spine a few days

ago and was told there are no disc problems - which is supposed to be good news.

All I heard was that there's still no explanation, and still no hope for getting

out of pain. I'm at a point now where my hope is running out, and my optimism

is quickly fading. The next test on the horizon for me is nerve-conduction

studies b/c of the tingling / pins-and-needles/ in my toes and feet. For years

it was just the right foot/leg, and arm - now the left foot has started. I

could go through all my symptoms, but I don't even know which ones may or may

not be possible signs of MS; and I'd hate to waste everyone's time.

I am lost - I am confused - and I am scared. Not scared of what may causing all

this anymore, but scared that I'll never know - that this will just be how my

life turns out.

I joined this group in hopes that I could get some " real life " information - not

just what's on the web; and hopefully get a better idea if MS is a real

possibility.

Thanks for your time,

Debbie

[Guest guest]

Debbie please don't give up hope. Hope is one thing noone can take away from us. I don't have MS but my husband has a lot of the symptoms. How about changing to a neurologist that specializes in MS? I will keep you in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: debdossjones@...Sent: Sun, 29 Aug 2010 14:42:29 -0000To: mserslife Subject: New to group - running out of hope

Hello ~My name is Debbie, I'm 42, and have been living in chronic pain off and on for nearly five years. I can't seem to get anywhere with a diagnosis, except to keep being told what I "don't have". When I search my symptoms on the web, MS comes up repeatedly but the last thing I want to do is jump to conclusions. I had an MRI of the lumbar spine a few days ago and was told there are no disc problems - which is supposed to be good news. All I heard was that there's still no explanation, and still no hope for getting out of pain. I'm at a point now where my hope is running out, and my optimism is quickly fading. The next test on the horizon for me is nerve-conduction studies b/c of the tingling / pins-and-needles/ in my toes and feet. For years it was just the right foot/leg, and arm - now the left foot has started. I could go through all my symptoms, but I don't even know which ones may or may not be possible signs of MS; and I'd hate to waste everyone's time.I am lost - I am confused - and I am scared. Not scared of what may causing all this anymore, but scared that I'll never know - that this will just be how my life turns out. I joined this group in hopes that I could get some "real life" information - not just what's on the web; and hopefully get a better idea if MS is a real possibility. Thanks for your time,Debbie

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[Guest guest]

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[Guest guest]

Keep trying - from everything I read, MS is often not dxed until everything

else is eliminated.

You can share symptoms here all you like - the rest of us sure do! (and

broken toes, Evil Killer Chickens, wildlife expeditions, stupid exes, just

about everything else you can think of...) It helps to know that somebody

else gets that Weird Thing too!

in WY

Practical Blackwork Designs

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://practicalblackwork.com

New to group - running out of hope

Hello ~

My name is Debbie, I'm 42, and have been living in chronic pain off and on

for nearly five years. I can't seem to get anywhere with a diagnosis, except

to keep being told what I " don't have " .

When I search my symptoms on the web, MS comes up repeatedly but the last

thing I want to do is jump to conclusions. I had an MRI of the lumbar spine

a few days ago and was told there are no disc problems - which is supposed

to be good news.

All I heard was that there's still no explanation, and still no hope for

getting out of pain. I'm at a point now where my hope is running out, and my

optimism is quickly fading. The next test on the horizon for me is

nerve-conduction studies b/c of the tingling / pins-and-needles/ in my toes

and feet. For years it was just the right foot/leg, and arm - now the left

foot has started. I could go through all my symptoms, but I don't even know

which ones may or may not be possible signs of MS; and I'd hate to waste

everyone's time.

I am lost - I am confused - and I am scared. Not scared of what may causing

all this anymore, but scared that I'll never know - that this will just be

how my life turns out.

I joined this group in hopes that I could get some " real life " information -

not just what's on the web; and hopefully get a better idea if MS is a real

possibility.

Thanks for your time,

Debbie

[Guest guest]

Dear DebbieI am sorry to hear of your problems but I'm glad you found us. I understand your frustration with getting a diagnosis. There are some good links in our files on diagnosing MS. I'm sure you know they have to rule out all sorts of things before they can give an MS diagnosis. There are more blood tests and more blood tests, MRIs, nerve conductions..... on and on it seems. What kind of pain do you have and where is it? What do your doctors say may be wrong?big hugs SharonThis email is a natural hand made product. The

slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, August 29, 2010 7:42:29 AMSubject: New to group - running out of hope

Hello ~My name is Debbie, I'm 42, and have been living in chronic pain off and on for nearly five years. I can't seem to get anywhere with a diagnosis, except to keep being told what I "don't have". When I search my symptoms on the web, MS comes up repeatedly but the last thing I want to do is jump to conclusions. I had an MRI of the lumbar spine a few days ago and was told there are no disc problems - which is supposed to be good news. All I heard was that there's still no explanation, and still no hope for getting out of pain. I'm at a point now where my hope is running out, and my optimism is quickly fading. The next test on the horizon for me is nerve-conduction studies b/c of the tingling / pins-and-needles/ in my toes and feet. For years it was just the right foot/leg, and arm - now the left foot has started. I could go through all my symptoms, but I don't even know which ones may

or may not be possible signs of MS; and I'd hate to waste everyone's time.I am lost - I am confused - and I am scared. Not scared of what may causing all this anymore, but scared that I'll never know - that this will just be how my life turns out. I joined this group in hopes that I could get some "real life" information - not just what's on the web; and hopefully get a better idea if MS is a real possibility. Thanks for your time,Debbie------------------------------------

[Guest guest]

Debbie, you are welcome here, even if the ultimate differentialdiagnosis turns out to be something else. Many of us here haveor have had peripheral neuropathy of the feet and legs.From my own experience, and I was diagnosed with MS beforeI acquired peripheral neuropathy (the pain, tingling numbnessin extremities, usually the feet and legs).They should check out diabetes as a possibility. I am glad to herethat the MRI of your back/spine was good. I hope they did or willdo an MRI of your cervical spine (neck) and of your HEAD!Sorry as we are to hear of your suffering, we are glad that you didfind our group and did choose to join us.Love to you,n Rojas, from way out in Oakland, CaliforniaTo: MSersLife Sent: Sun, August 29, 2010 4:51:09 PMSubject: Re: New to group - running out of hope

Dear DebbieI am sorry to hear of your problems but I'm glad you found us. I understand your frustration with getting a diagnosis. There are some good links in our files on diagnosing MS. I'm sure you know they have to rule out all sorts of things before they can give an MS diagnosis. There are more blood tests and more blood tests, MRIs, nerve conductions..... on and on it seems. What kind of pain do you have and where is it? What do your doctors say may be wrong?big hugs SharonThis email is a natural hand made product. The

slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, August 29, 2010 7:42:29 AMSubject: New to group - running out of hope

Hello ~My name is Debbie, I'm 42, and have been living in chronic pain off and on for nearly five years. I can't seem to get anywhere with a diagnosis, except to keep being told what I "don't have". When I search my symptoms on the web, MS comes up repeatedly but the last thing I want to do is jump to conclusions. I had an MRI of the lumbar spine a few days ago and was told there are no disc problems - which is supposed to be good news. All I heard was that there's still no explanation, and still no hope for getting out of pain. I'm at a point now where my hope is running out, and my optimism is quickly fading. The next test on the horizon for me is nerve-conduction studies b/c of the tingling / pins-and-needles/ in my toes and feet. For years it was just the right foot/leg, and arm - now the left foot has started. I could go through all my symptoms, but I don't even know which ones may

or may not be possible signs of MS; and I'd hate to waste everyone's time.I am lost - I am confused - and I am scared. Not scared of what may causing all this anymore, but scared that I'll never know - that this will just be how my life turns out. I joined this group in hopes that I could get some "real life" information - not just what's on the web; and hopefully get a better idea if MS is a real possibility. Thanks for your time,Debbie------------------------------------