Guest guest Posted October 20, 2011 Report Share Posted October 20, 2011 I have a child who has low muscle tone. He is 6'4 " tall and is 14 yrs old. We keep him very active in sports, but we notice that due to the low muscle tone an his size he has to work sooo much harder than other boys his age. I have been reading posts on creatine and other supplements. If you have seen results with certain supplements would you please share info with me. I am worried about trying things as he tends to be sensitive. Our ped says the only solution is to keep him in sports and exercising, but I feel there must be some other options. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2011 Report Share Posted November 2, 2011 We have used Glutamine Powder for several years with great success. It mixes in with water or coconut milk for us, and it helps repair the gut lining as well. Our Mia has been VERY sensitive to new things and we have not had any trouble with this. We've used I think it is called " Phytoceuticals " Bioactive Glutamine Powder with FOS and IronTek brands. The one with FOS is sweetened by the prebiotic sugar and is not grainy and can be added directly to water for a pretty tasty if not too terribly interesting drink. The Irontek is not sweet and is gritty so needs to be added to something like coconut milk or tahini or rice syrup or something. > > I have a child who has low muscle tone. He is 6'4 " tall and is 14 yrs old. We keep him very active in sports, but we notice that due to the low muscle tone an his size he has to work sooo much harder than other boys his age. I have been reading posts on creatine and other supplements. If you have seen results with certain supplements would you please share info with me. I am worried about trying things as he tends to be sensitive. Our ped says the only solution is to keep him in sports and exercising, but I feel there must be some other options. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2011 Report Share Posted November 2, 2011 Hi, My daughter got a very ow muscle tone and hyper moie joints, we started KRE-ALKALYNE CREATINE a month back, i can feel her muscle tone is improving and joints too, as a result now she can walk longer distance and seems to be more active. Hope it helps. Regards, cindy To: mb12valtrex Sent: Wednesday, 2 November 2011, 21:30Subject: Re: Creatine and low muscle tone We have used Glutamine Powder for several years with great success. It mixes in with water or coconut milk for us, and it helps repair the gut lining as well. Our Mia has been VERY sensitive to new things and we have not had any trouble with this. We've used I think it is called "Phytoceuticals" Bioactive Glutamine Powder with FOS and IronTek brands. The one with FOS is sweetened by the prebiotic sugar and is not grainy and can be added directly to water for a pretty tasty if not too terribly interesting drink. The Irontek is not sweet and is gritty so needs to be added to something like coconut milk or tahini or rice syrup or something.>> I have a child who has low muscle tone. He is 6'4" tall and is 14 yrs old. We keep him very active in sports, but we notice that due to the low muscle tone an his size he has to work sooo much harder than other boys his age. I have been reading posts on creatine and other supplements. If you have seen results with certain supplements would you please share info with me. I am worried about trying things as he tends to be sensitive. Our ped says the only solution is to keep him in sports and exercising, but I feel there must be some other options.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2011 Report Share Posted November 2, 2011 Have you had your son's creatine levels tested? My son had severe apraxia - could not even babble, could not nod his head, ... He was low (blood work) and I started supplementing with creatine ethyl ester. We got very good improvements with this supplement. I would want to know that he was low before I supplemented with this. Cathy > > I have a child who has low muscle tone. He is 6'4 " tall and is 14 yrs old. We keep him very active in sports, but we notice that due to the low muscle tone an his size he has to work sooo much harder than other boys his age. I have been reading posts on creatine and other supplements. If you have seen results with certain supplements would you please share info with me. I am worried about trying things as he tends to be sensitive. Our ped says the only solution is to keep him in sports and exercising, but I feel there must be some other options. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2011 Report Share Posted November 2, 2011 Some forms of creatine can produce toxic by products... So you need to select your creatine product carefully.I have seen 1-2 posts by families trying creatine who have reported "regressions" on creatine... But they were always using another form/brand of creatine, than I've used in my boys. Kre-alkalyn is a form of creatine showing good results in kids with autism and mitochondrial dysfunction.My sons have been on Cytotine for a long time and are doing very well. Kre-alkaline is the active ingredient in this product.Look at the product on the solace nutrition web site. It's a medical food for mitochondrial myopathies... my two boys are dx'd mito.Pure encapsulations also makes a kre-alkaline (creatine product). Google it. I know others who are using this with positive results.Ast and alt should be monitored through blood work while on creatine because theoretically it could cause increased liver stress. This has not been the case with my two boys who have seen significant developmental gains on creatine over the past few years.... including increased expressive language, improved motor coordination, and improvement in muscle tone. But they are monitored regularly, to be cautious.Btw, the only proven treatment for mitochondrial disease is exercise! So keep your child active because it edges out mutated cells and healthier cells are generated in their place.Hope that helps,AlyssaWww.mitoaction.org/autism From: ckrupa ; To: <mb12valtrex >; Subject: Re: Creatine and low muscle tone Sent: Thu, Nov 3, 2011 12:54:47 AM Have you had your son's creatine levels tested? My son had severe apraxia - could not even babble, could not nod his head, ... He was low (blood work) and I started supplementing with creatine ethyl ester. We got very good improvements with this supplement. I would want to know that he was low before I supplemented with this. Cathy > > I have a child who has low muscle tone. He is 6'4 " tall and is 14 yrs old. We keep him very active in sports, but we notice that due to the low muscle tone an his size he has to work sooo much harder than other boys his age. I have been reading posts on creatine and other supplements. If you have seen results with certain supplements would you please share info with me. I am worried about trying things as he tends to be sensitive. Our ped says the only solution is to keep him in sports and exercising, but I feel there must be some other options. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2011 Report Share Posted November 3, 2011 ,It's funny this post should come up now as I've been looking at creatine for my guy. He is 9, 80lbs and is VERY active in sports. We struggle with the same thing - he has to work twice as hard to be half as good. During football season, we supplement with l-carnitine and l-carnosine. These seem to help especially with endurance. Back on Aug 1, at the start of football season, his push-ups BARELY resembled what one should look like. His season just ended, and while he still has a way to go, his form is MUCH better and he's able to get closer to the ground than ever before. (The boost in expressive language/cognitive function that came along with the carnosine was awesome, btw). We also have a pull-up bar at home. When we first got it, it took everything he had just to be able to hold on and hang from it. Now, with (minimal)help, he's at a point where he's able to hoist himself up into 3 chin-ups. They're not terribly pretty, but it's a far cry from where he started. (I've also noticed that his mouth does not gape open the way it used to) Recently, one of his football coaches asked if he'd be interested in wrestling over the winter. Because of his low muscle tone, he's probably going to get his ass kicked. alot. But their conditioning program is great. I'll put him back on both if he decides to go for it. I think these supps in combination with daily workouts and lean protein will be enough. Your son's mito would play a role, too. Do you have any idea what his looks like?I've been looking to add creatine but I've been hesitant to try because I'm not sure which is the best kind.-TammyTo: mb12valtrex Sent: Thursday, October 20, 2011 10:18 AMSubject: Creatine and low muscle tone I have a child who has low muscle tone. He is 6'4" tall and is 14 yrs old. We keep him very active in sports, but we notice that due to the low muscle tone an his size he has to work sooo much harder than other boys his age. I have been reading posts on creatine and other supplements. If you have seen results with certain supplements would you please share info with me. I am worried about trying things as he tends to be sensitive. Our ped says the only solution is to keep him in sports and exercising, but I feel there must be some other options. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2011 Report Share Posted November 3, 2011 Thank to everyone for their response to my post on low muscle tone. I plan to continue to research and hope to act soon:) Alyssa, I found your post interesting. I have not had my sons blood levels checked nor has he had any testing for mito disease, although I am starting to wonder. Our family fits much of the mito profiles I have read. We have a somewhat traditional devel ped who doesn't seem interested in exploring this stuff. He just says our son has low muscle tone and to keep him exercising. Any suggestions on how to get a proper evaluation for Mito diseases? The reading I have done thus far says it is tricky to get a diagnosis. He was diagnosed with Autism, but once on a GF/CF diet and with other therapies no longer has this diagnosis:) He still has other issues and that is why I am considering exploring supplements, chelation and parasite protocols. I am just nervous to rock the boat as he is doing okay for the most part. Anyway, if you have any suggestions about Dr. to help with Mito testing I would be interested to hear. We live in Northern VA. I also plan to check out the web address you have attached to your post. In my gut I do believe supplementation for the low muscle tone is needed. I may see if his ped will at least run the blood level tests. Thanks again, > > Some forms of creatine can produce toxic by products... So you need to select your creatine product carefully. > > I have seen 1-2 posts by families trying creatine who have reported " regressions " on creatine... But they were always using another form/brand of creatine, than I & #39;ve used in my boys. > > Kre-alkalyn is a form of creatine showing good results in kids with autism and mitochondrial dysfunction. > > My sons have been on Cytotine for a long time and are doing very well. Kre-alkaline is the active ingredient in this product. > Look at the product on the solace nutrition web site. It & #39;s a medical food for mitochondrial myopathies... my two boys are dx & #39;d mito. > > Pure encapsulations also makes a kre-alkaline (creatine product). Google it. I know others who are using this with positive results. > > Ast and alt should be monitored through blood work while on creatine because theoretically it could cause increased liver stress. This has not been the case with my two boys who have seen significant developmental gains on creatine over the past few years.... including increased expressive language, improved motor coordination, and improvement in muscle tone. But they are monitored regularly, to be cautious. > > Btw, the only proven treatment for mitochondrial disease is exercise! So keep your child active because it edges out mutated cells and healthier cells are generated in their place. > > Hope that helps, > Alyssa > Www.mitoaction.org/autism > Quote Link to comment Share on other sites More sharing options...
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