I am astounded - sharing to encourage others!

[Guest guest]

The point of my message: never cross anything off your list for good. Something

your child doesn't respond to now may be just what s/he needs in the future.

Because of another family member we have done a strict salicylate free diet

(Feingold) in the past. That child can now eat salicylates and only has a

reaction to tomato, grapes, and apples or if he has WAY too many that have built

up in his system. He can even now eat the big offenders if he takes No-Fenol

with them. So we no longer eat by the Feingold diet, although we never eat food

with added chemicals or corn syrup and eat mostly organic, whole foods.

Our youngest is diagnosed ASD/PANDAS. He is mostly recovered. His remaining

issues are anxiety/OCD and behaviors related to the obsessions/rituals like

aggression, controlling behavior, irritability, etc. We thought all the

remaining symptoms were related to the PANDAS. When we did Feingold in the

past, we never saw a difference with him when he went without salicylates, so we

allowed the naturally occuring salicylates back into his diet. I thought I

started to see a link recently. The final straw was after a particularly bad

morning where he just woke up angry and controlling and couldn't snap out of the

behavior. The day before he had eaten apples, grapes, strawberry jelly, etc. I

pulled salicylates.

OH.MY.WORD. I have a new child!! He is relaxed, not controlling, and

agreeable. If something triggers his typical OCD, like the fact that he feels

like he has to be first, he either is totally okay with it (!!!) or he speaks

his thoughts on the issue, but doesn't get stuck on it and ramp up to a tantrum

that can't be derailed. It's like he still has some OCD but the intensity about

it is WAYYYY down. We ordered new Feingold materials to get the updated

shopping list and it seems like my son is really sensitive. He ate something

yesterday that made him unable to go to sleep until 11:30 last night and a

little grumpy today. Looking at his food chart the only possibility is honey.

Honey is usually okay, but some sensitive individuals may react if the honey was

made from citrus like orange blossoms. I am in FL, so our Greenwise honey

probably came from citrus. I will just have to get clover honey. But the point

is, if he is that sensitive, no wonder he was reacting so horribly even if he

wasn't eating a lot of obvious salicylates.

Speaking of food, my son is one of those who really struggles with eating new

things. He is now eating whatever I put in front of him. Now, he is working on

earning a Wii by doing this, but the point is that in the past he would tantrum

about food, even if there was a reward for trying something new. In fact,

rewards were counter-productive because he would have MORE anxiety and get stuck

because he would want the reward but not be able to try the new food.

I had dismissed salicylates as an issue for him. We had not seen a difference

when he was salicylate-free in the past. Why? Don't know. Maybe he had so

many health issues back then that we couldn't see the positive difference in him

because of the other issues. Or maybe he has developed a sensitivity that he

didn't have before. But if I had not been willing to open my mind and say,

" Maybe this is a problem even though I have already ruled it out " , I would still

be looking for different answers.

Hope this helps someone!

Cathy

[Guest guest]

Thanks Cathy. You've made my day. We are far from recovery, but you've given me hope. Kudos to you for being vigilant and making the difficult choice to retry the diet. Go Mamma!Sylvia

The point of my message: never cross anything off your list for good. Something your child doesn't respond to now may be just what s/he needs in the future.

Because of another family member we have done a strict salicylate free diet (Feingold) in the past. That child can now eat salicylates and only has a reaction to tomato, grapes, and apples or if he has WAY too many that have built up in his system. He can even now eat the big offenders if he takes No-Fenol with them. So we no longer eat by the Feingold diet, although we never eat food with added chemicals or corn syrup and eat mostly organic, whole foods.

Our youngest is diagnosed ASD/PANDAS. He is mostly recovered. His remaining issues are anxiety/OCD and behaviors related to the obsessions/rituals like aggression, controlling behavior, irritability, etc. We thought all the remaining symptoms were related to the PANDAS. When we did Feingold in the past, we never saw a difference with him when he went without salicylates, so we allowed the naturally occuring salicylates back into his diet. I thought I started to see a link recently. The final straw was after a particularly bad morning where he just woke up angry and controlling and couldn't snap out of the behavior. The day before he had eaten apples, grapes, strawberry jelly, etc. I pulled salicylates.

OH.MY.WORD. I have a new child!! He is relaxed, not controlling, and agreeable. If something triggers his typical OCD, like the fact that he feels like he has to be first, he either is totally okay with it (!!!) or he speaks his thoughts on the issue, but doesn't get stuck on it and ramp up to a tantrum that can't be derailed. It's like he still has some OCD but the intensity about it is WAYYYY down. We ordered new Feingold materials to get the updated shopping list and it seems like my son is really sensitive. He ate something yesterday that made him unable to go to sleep until 11:30 last night and a little grumpy today. Looking at his food chart the only possibility is honey. Honey is usually okay, but some sensitive individuals may react if the honey was made from citrus like orange blossoms. I am in FL, so our Greenwise honey probably came from citrus. I will just have to get clover honey. But the point is, if he is that sensitive, no wonder he was reacting so horribly

even if he wasn't eating a lot of obvious salicylates.

Speaking of food, my son is one of those who really struggles with eating new things. He is now eating whatever I put in front of him. Now, he is working on earning a Wii by doing this, but the point is that in the past he would tantrum about food, even if there was a reward for trying something new. In fact, rewards were counter-productive because he would have MORE anxiety and get stuck because he would want the reward but not be able to try the new food.

I had dismissed salicylates as an issue for him. We had not seen a difference when he was salicylate-free in the past. Why? Don't know. Maybe he had so many health issues back then that we couldn't see the positive difference in him because of the other issues. Or maybe he has developed a sensitivity that he didn't have before. But if I had not been willing to open my mind and say, "Maybe this is a problem even though I have already ruled it out", I would still be looking for different answers.

Hope this helps someone!

Cathy

[Guest guest]

Cathy,My daughter Gabi can eat Manuka Honey from Vitamin Shoppe but the locally grown orange blossom honey sent her over the edge and me running for the hills. Big ix-nay on that one.She is doing ok with a couple organic stage 2 jellies. I don't know if they are in the book, but they look ok and she's doing ok... a blueberry one and an apricot one. The apricot one is cascadian farms.

Are you also doing B6 + magnesium and additional sulfur-containing supps, and/or molybdenum? I believe they all help support the sal. digestion... also LOD helps too because oxalate screws with the same pathways that metabolize sal.

My kids are able to tolerate a few infractions now, here and there. Gabi did ok with yellow food color (in a mountain dew retro that was left open in her room, daddy!) but Alek went bonkers with a yellow dum dum.

They seem to be ok on rice krispies treats.All trial and error... Congrats on it working... we also learned not to cross things off... my son didn't respond much to b6 before, but we recently upped the dose and added more mag and now he is doing great...

 

The point of my message: never cross anything off your list for good. Something your child doesn't respond to now may be just what s/he needs in the future.

Because of another family member we have done a strict salicylate free diet (Feingold) in the past. That child can now eat salicylates and only has a reaction to tomato, grapes, and apples or if he has WAY too many that have built up in his system. He can even now eat the big offenders if he takes No-Fenol with them. So we no longer eat by the Feingold diet, although we never eat food with added chemicals or corn syrup and eat mostly organic, whole foods.

Our youngest is diagnosed ASD/PANDAS. He is mostly recovered. His remaining issues are anxiety/OCD and behaviors related to the obsessions/rituals like aggression, controlling behavior, irritability, etc. We thought all the remaining symptoms were related to the PANDAS. When we did Feingold in the past, we never saw a difference with him when he went without salicylates, so we allowed the naturally occuring salicylates back into his diet. I thought I started to see a link recently. The final straw was after a particularly bad morning where he just woke up angry and controlling and couldn't snap out of the behavior. The day before he had eaten apples, grapes, strawberry jelly, etc. I pulled salicylates.

OH.MY.WORD. I have a new child!! He is relaxed, not controlling, and agreeable. If something triggers his typical OCD, like the fact that he feels like he has to be first, he either is totally okay with it (!!!) or he speaks his thoughts on the issue, but doesn't get stuck on it and ramp up to a tantrum that can't be derailed. It's like he still has some OCD but the intensity about it is WAYYYY down. We ordered new Feingold materials to get the updated shopping list and it seems like my son is really sensitive. He ate something yesterday that made him unable to go to sleep until 11:30 last night and a little grumpy today. Looking at his food chart the only possibility is honey. Honey is usually okay, but some sensitive individuals may react if the honey was made from citrus like orange blossoms. I am in FL, so our Greenwise honey probably came from citrus. I will just have to get clover honey. But the point is, if he is that sensitive, no wonder he was reacting so horribly even if he wasn't eating a lot of obvious salicylates.

Speaking of food, my son is one of those who really struggles with eating new things. He is now eating whatever I put in front of him. Now, he is working on earning a Wii by doing this, but the point is that in the past he would tantrum about food, even if there was a reward for trying something new. In fact, rewards were counter-productive because he would have MORE anxiety and get stuck because he would want the reward but not be able to try the new food.

I had dismissed salicylates as an issue for him. We had not seen a difference when he was salicylate-free in the past. Why? Don't know. Maybe he had so many health issues back then that we couldn't see the positive difference in him because of the other issues. Or maybe he has developed a sensitivity that he didn't have before. But if I had not been willing to open my mind and say, " Maybe this is a problem even though I have already ruled it out " , I would still be looking for different answers.

Hope this helps someone!

Cathy

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Yay!! Way to go!!!

To: mb12valtrex Sent: Thursday, November 3, 2011 2:44 PMSubject: I am astounded - sharing to encourage others!

The point of my message: never cross anything off your list for good. Something your child doesn't respond to now may be just what s/he needs in the future.Because of another family member we have done a strict salicylate free diet (Feingold) in the past. That child can now eat salicylates and only has a reaction to tomato, grapes, and apples or if he has WAY too many that have built up in his system. He can even now eat the big offenders if he takes No-Fenol with them. So we no longer eat by the Feingold diet, although we never eat food with added chemicals or corn syrup and eat mostly organic, whole foods.Our youngest is diagnosed ASD/PANDAS. He is mostly recovered. His remaining issues are anxiety/OCD and behaviors related to the obsessions/rituals like aggression, controlling behavior, irritability, etc. We thought all the remaining symptoms were related to the PANDAS. When we did Feingold in the past, we never saw a difference

with him when he went without salicylates, so we allowed the naturally occuring salicylates back into his diet. I thought I started to see a link recently. The final straw was after a particularly bad morning where he just woke up angry and controlling and couldn't snap out of the behavior. The day before he had eaten apples, grapes, strawberry jelly, etc. I pulled salicylates.OH.MY.WORD. I have a new child!! He is relaxed, not controlling, and agreeable. If something triggers his typical OCD, like the fact that he feels like he has to be first, he either is totally okay with it (!!!) or he speaks his thoughts on the issue, but doesn't get stuck on it and ramp up to a tantrum that can't be derailed. It's like he still has some OCD but the intensity about it is WAYYYY down. We ordered new Feingold materials to get the updated shopping list and it seems like my son is really sensitive. He ate something yesterday that made him unable to go to sleep

until 11:30 last night and a little grumpy today. Looking at his food chart the only possibility is honey. Honey is usually okay, but some sensitive individuals may react if the honey was made from citrus like orange blossoms. I am in FL, so our Greenwise honey probably came from citrus. I will just have to get clover honey. But the point is, if he is that sensitive, no wonder he was reacting so horribly even if he wasn't eating a lot of obvious salicylates.Speaking of food, my son is one of those who really struggles with eating new things. He is now eating whatever I put in front of him. Now, he is working on earning a Wii by doing this, but the point is that in the past he would tantrum about food, even if there was a reward for trying something new. In fact, rewards were counter-productive because he would have MORE anxiety and get stuck because he would want the reward but not be able to try the new food.I had dismissed salicylates

as an issue for him. We had not seen a difference when he was salicylate-free in the past. Why? Don't know. Maybe he had so many health issues back then that we couldn't see the positive difference in him because of the other issues. Or maybe he has developed a sensitivity that he didn't have before. But if I had not been willing to open my mind and say, "Maybe this is a problem even though I have already ruled it out", I would still be looking for different answers.Hope this helps someone!Cathy