Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 Hello everyone: I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend. Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst. I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it. Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. ZapataSender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more infochannaTo: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have withregards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids).-- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 well I cant swear by anything but from my own experience with chlorella it seems if you dont give enuff of the stuff there is chance for redistribution. I have heard so much overwhelming good about chlorella and since I am a big believer in naturals I decided to try on my son. I gave him a small amount "to be safe" well he went ballistic....but my instinct told me to try again...this time i gave him a handful! and his reaction was wonderful. so my conclusion was that if you give chlorella it must be enuff to bind to the free floating metals. this goes against the RFA group and Andy Cutler. but im not one to follow the rules. I love andy cutler he is amazing man and has saved many many kids with his protocol. bbut all kids are diffrent and diffrent things work for diffrent kids. if i had enuff money i would do chlorella during the week and dmsa/ala on the weekend.. bur again when my sons gut was really messed up he couldnt tolerate chlorella...maybe because of oxylates or whatever.. I will also tell you my son had the worst gut i ever ever heard of in a child. he had an xray that showed impaction from one end to the other...he bloated up like a balloon after he ate anything...he woke up every one to three hours all night long screamning in pure agony his gut hurt so bad...he had loose mushy stool if i was lucky every four days...he had the worst case of leaky gut i ever heard of food ..all food made him so sick. oh yah he was also failure to thrive. doing the chelation and cutting out all grains is what started the healing process of the gut. is dmsa hard on the gut? can be....but the mercury and lead is sooooooooo much more harder on the gut and you must get rid of the metals in the gut for the gut to heal...if that is an issue for your kid. channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!!-- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it. if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect the public! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know!-- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it. if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. and we dont use suppositories in AC chelation. never. thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 11:40 PMSubject: Re: EDTA - Calcium Suppository Chelation Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect the public! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know! -- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it. if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 I got very pissy over their membership policy recently - I didn't know what it was until I was asked to write a reference letter for someone. My suggestion would be to join the autism-mercury list instead. I don't know if Andy is on the other list, but I know he's on autism-mercury. ~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~ I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. and we dont use suppositories in AC chelation. never. thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 11:40 PMSubject: Re: EDTA - Calcium Suppository Chelation Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect the public! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know! -- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it. if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2011 Report Share Posted November 12, 2011 yah they are a really hard core army like group of moderators...andy I have not seen ever on their group.. I dont know what the info is on autism mercury but RFA does have a lot of great info for people starting out with AC chelation...if you can get past the lashings.. channa To: mb12valtrex Sent: Saturday, November 12, 2011 5:16 PMSubject: Re: EDTA - Calcium Suppository Chelation I got very pissy over their membership policy recently - I didn't know what it was until I was asked to write a reference letter for someone. My suggestion would be to join the autism-mercury list instead. I don't know if Andy is on the other list, but I know he's on autism-mercury. ~ Antiviral Therapy 101 ~ gryffinstail.wordpress.com/ ~ ~ @Gryffins_Tail ~ I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. and we dont use suppositories in AC chelation. never. thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 11:40 PMSubject: Re: EDTA - Calcium Suppository Chelation Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect the public! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know! -- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it. if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 Are there counter reactions if we are using suppository vs pills? Or is it simply a slower process?? T. ZapataSender: mb12valtrex Date: Sat, 12 Nov 2011 06:02:08 -0800 (PST)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. and we dont use suppositories in AC chelation. never.thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point..channaTo: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 11:40 PMSubject: Re: EDTA - Calcium Suppository Chelation Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect thepublic! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know!-- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it.if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channaTo: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!!-- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under controlchannaTo: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans arerecomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids).-- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance.channaTo: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more infochannaTo: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have withregards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 Hi , if I am right, you was going to take your son to Guayaquil. Did you go?Thank you, Sent: Sunday, November 13, 2011 9:57 AMTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation Are there counter reactions if we are using suppository vs pills? Or is it simply a slower process?? T. ZapataSender: mb12valtrex Date: Sat, 12 Nov 2011 06:02:08 -0800 (PST)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. and we dont use suppositories in AC chelation. never.thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point..channaTo: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 11:40 PMSubject: Re: EDTA - Calcium Suppository Chelation Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect the public! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know! -- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it.if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channaTo: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under controlchannaTo: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance.channaTo: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation ChannaThank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations.Thank you for your advise. I have Andy's book and will read his method. T. ZapataSender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more infochannaTo: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all.I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 well the half life of the chelator drugs need to be taken into consideration meaning for example dmsa only works for four hours and you must give every three to four hours in order to prevent redistribution of metals back into brain...giving a kid a suppository every three to four hours?? you need to look at the greater good...or kids suffer enuff with blood draws ect...i think it would be cruel to do suppositirys every four hours...maybe not worth the emotional trauma... dont get me wrong when my son was a baby and couldnt poop to save his life i gave suppositorys as I did not know what else to help him...but damn if there is a easier way for our kids...lets do that. channa To: mb12valtrex Sent: Sunday, November 13, 2011 9:57 AMSubject: Re: EDTA - Calcium Suppository Chelation Are there counter reactions if we are using suppository vs pills? Or is it simply a slower process?? T. Zapata Sender: mb12valtrex Date: Sat, 12 Nov 2011 06:02:08 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. and we dont use suppositories in AC chelation. never. thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 11:40 PMSubject: Re: EDTA - Calcium Suppository Chelation Thank you channa! I definitely want to hear the bad along with thegood! It's a bit annoying that my dans haven't mentioned risks with edta though! The one dan we are seeing locally did give me a dmsa sheet and it mentions the possibility of giving it at a lower dose evry 4 hrs so i think this is more along the ac protocol?...although with ac, does everyone use the oral dmsa or are suppositories also used?And, I have been meaning to respond to another one of your previous emails. Pls don't give up on your dream of helping poor people to access biomedical treatments! I think this is an awesome idea! Maybe wait for awhile for this child protective thing to pass and get your kiddo recovered. It is so true that the human/civil rights situation here is crazy...i don't know when alternative medicine became a crime (probably about the same time mainstream medicine became a business) but we need people out there fighting to inform and protect the public! Anyway, I hope you are writing a book in the meantime...on that note maybe you should tell the child protection goons that you are writing a book and therefore need to tape their visits - maybe that will get them off your back;) I was also thinking about taca (talk about curing autism). Do you have any reps in your area you can contact? Maybe someone from taca can join you while the goons are there? I have heard they have reps throughout the country who organise parent support groups etc. The naperville,il group is currently supporting dr. Usman with her legal issues...just a thought! If you're in the midwest let me know! -- Sent from my Palm Pre I do try not to be one track minded about what I think is good verses what i think is bad....but what i do try and share is the amount of bad reaction parents report as well as good reactions....I have heard so much good i would say 98 percent of parents who tried AC chelation...and fifty percent good with the DAN protocol...of course im not doing a perfect lab study in my home it is just a very very rough estimate according to my best estimation from what i hear other parents report...im not telling you to not do the DAN way but just research all the diffrent protocols before you make a decision.....im so glad you are getting the book I have heard it is well worth getting it. if your kid has trouble with digestion i would suggest cutting out grains to start with..it helped me huge in the begginging also i did low oxylate foods.. channa To: "mb12valtrex " <mb12valtrex >Sent: Friday, November 11, 2011 2:01 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks channa, very helpful! Have taken note on the goldenseal and culturelle...we are just on the 2nd and last month of flagyl and a new antifungal and hope this is it..sometimes I feel the more we try to treat the gut problems the worse they can get...but he is doing much better then this summer...and yes I think I agree on getting the metals out to help gut function better...i was just hoping to get him back to where he was on minimal supplements and diet...i think some of the supplements cause an immune response...on the edta, I have ordered andy's book..wonder why the drs here think it is ok??? Dr usman who has been doing this for awhile recommends starting there...we also did her biofilm protocol which includes a different edta (naedta) and he did well..still it makes me nervous to hear bad things about edta....thanks for the info!!! -- Sent from my Palm Pre oh and lots of kids do fine on dmsa that have sulfa issues...its in andys book also their is some danger andy believes about edta! i would look into that first to see what he says about the he really is knowledgeable guy! my sons clostridia was thru the roof when i started chelation but I found chelation made everything better...i used goldenseal and culturelle adult strength it helped a lot get the bacteria under control channa To: "mb12valtrex " <mb12valtrex >Sent: Wednesday, November 9, 2011 10:45 PMSubject: Re: EDTA - Calcium Suppository Chelation Thanks for this channa! I am not very familiar with the andy cutler protocol so need to do some more reading. We are planning to start chelation soon once mu guy's clostridia flare is more under control. , the two dans we see have both recommended starting with the edta bc they both say it is gentler on the body then dmsa. And kids who have sulfa issues do not tolerate dmsa (but we think oliver doesn't have sulfa issues). I think edta is more for lead but pls check in that (and my guy has lead we think...symptoms and porphyrins testing)...they both recommend to then move to dmsa after we see how he does on edta. Not sure about crossing the blood brain barrier q you had on edta? While we're on this topic, I noticed that ac protocol says to avoid cilantro and chlorella...i think I asked about this before...does this mean bioray's ndfplus is not recommended? They have a cilantro,clhorella and other stuff product that the dans are recomending here to start out with to get an idea if the kids are ready for the stronger chelators....we tried it on my guy and he had some gut problems so we stopped. Oh and one more q. I think I saw that ac recommends oral chelation?? Doesn't that really mess up the guts? Here they mostly recommend chelation via suppositories or iv (and sometimes transdermally for really sensitive kids). -- Sent from my Palm Pre awesome! i know im always pushing on about the andly cutler method but its only because i been on countless autism groups for over a year and that is what i hear people get the best results from...and yes it is recomennded to do dmsa for three months to bring down body burden first then do ala...but if you dont give it carefully every three hours there is much higher chance for redistribution.....i dont listen to every thing cutler says or believes but with the chelators like dmsa and ALA i have heard enuff from other parents that i believe he is right about this. you can also join www.recoveryfromautism@... they are more strict army like mentality but very very knowledgeable about chelation...and use me for a referance. channa To: mb12valtrex Sent: Tuesday, November 8, 2011 10:15 PMSubject: Re: EDTA - Calcium Suppository Chelation Channa Thank you so much. I once asked by DAN about the ALA on Andy Cutler and that is when she explained about the ALA crossing the brain barrier and that is why she wanted to go slower - first getting rid of the metals in his body (hence the DMSA) and then target the brain with the ALA. But in my son's last blood test, there was no mercury being extracted and that is why I guess she sent in this new prescription. Our original conversation was months ago so now that she sent in this new prescription I was worried that she may have forgotten our previous conversations. Thank you for your advise. I have Andy's book and will read his method. T. Zapata Sender: mb12valtrex Date: Tue, 8 Nov 2011 16:35:47 -0800 (PST) To: mb12valtrex <mb12valtrex > ReplyTo: mb12valtrex Subject: Re: EDTA - Calcium Suppository Chelation I am doin andy cutler low frequent dose chelation...i been on the RFA chelation group for a year and while i have heard of maybe almost no bad reactions on AC chealtion I have heard of a lot more regression stories with DAN chelation methods. to be fair i have heard also sucess stories with DAN chelation but I would never want to gamble with something like that when thier is a much safer method! look up andy cutler chelation and also look into autism mercury yahoo group...recovery from autism is the army version yahoo group so its harder to get on their list and you need a refferal.. let me know if you want more info channa To: mb12valtrex Sent: Tuesday, November 8, 2011 11:45 AMSubject: EDTA - Calcium Suppository Chelation Hello everyone:I know this is not a chelation group but you guys always help and all the information you post is super helpful for all. I'm hoping you can help me. I've been chelating my son with DMSA suppositories for the past 5 months (every 11 days). Now the doctor wants us to add another chelator EDTA - Calcium suppository in between rounds. Although she said we could do DMSA then 11 days later EDTA then 11 days later DMSA, so it would not be every weekend.Does anyone know side effects or what to expect from the EDTA Calcium?? Does anyone know if it crosses the brain barrier, that is what I am afraid of - I don't want to be putting in a medication that while traveling to the brain it pulls more toxins to the brain. I know his body still probably has lost of metals and until that is clear I don't want the medication to cross to the brain and so making it worst.I would appreciate any information anyone may have with regards to your experiences with EDTA or what you have heard from it.Thank you in advance, Zapata Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 He does post on RFA but the moderators there are very good and usually answer questions correctly, so he doesn't need to comment much. JMO...They do try to make sure when accepting new members that they are legitimate parents looking to understand/use AC..Its closed and A-M is not. Your posts may show up on a yahoo search so I dont post there anymore..or not about chelation anyways. Oh and AC protocol is amazing > > > > > I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. > > and we dont use suppositories in AC chelation. never. > > thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point.. > > channa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 Thanks , Toni and Channa! I have joined those mentioned and waiting to hear on the RFA. May need a reference?? Also, good point on the public posts...am opening up a new yahoo address (without my full name) to use for all of my wonderful autism messages/posts!To: mb12valtrex Sent: Sunday, November 13, 2011 8:59 PMSubject: Re: EDTA - Calcium Suppository Chelation He does post on RFA but the moderators there are very good and usually answer questions correctly, so he doesn't need to comment much. JMO...They do try to make sure when accepting new members that they are legitimate parents looking to understand/use AC..Its closed and A-M is not. Your posts may show up on a yahoo search so I dont post there anymore..or not about chelation anyways. Oh and AC protocol is amazing > > > > > I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are.. > > and we dont use suppositories in AC chelation. never. > > thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point.. > > channa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 you can use me as a reference..tell them you have heard great things and am interested in learning more. channa To: "mb12valtrex " <mb12valtrex >Sent: Sunday, November 13, 2011 9:41 PMSubject: Re: Re: EDTA - Calcium Suppository Chelation Thanks , Toni and Channa! I have joined those mentioned and waiting to hear on the RFA. May need a reference?? Also, good point on the public posts...am opening up a new yahoo address (without my full name) to use for all of my wonderful autism messages/posts! To: mb12valtrex Sent: Sunday, November 13, 2011 8:59 PMSubject: Re: EDTA - Calcium Suppository Chelation He does post on RFA but the moderators there are very good and usually answer questions correctly, so he doesn't need to comment much. JMO...They do try to make sure when accepting new members thatthey are legitimate parents looking to understand/use AC..Its closed and A-M is not. Your posts may show up on a yahoo search so I dont post there anymore..or not about chelation anyways. Oh and AC protocol is amazing> > > > > I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are..> > and we dont use suppositories in AC chelation. never.> > thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point..> > channa> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 Thanks channa! -- Sent from my Palm Pre you can use me as a reference..tell them you have heard great things and am interested in learning more. channa To: "mb12valtrex " <mb12valtrex >Sent: Sunday, November 13, 2011 9:41 PMSubject: Re: Re: EDTA - Calcium Suppository Chelation Thanks , Toni and Channa! I have joined those mentioned and waiting to hear on the RFA. May need a reference?? Also, good point on the public posts...am opening up a new yahoo address (without my full name) to use for all of my wonderful autism messages/posts! To: mb12valtrex Sent: Sunday, November 13, 2011 8:59 PMSubject: Re: EDTA - Calcium Suppository Chelation He does post on RFA but the moderators there are very good and usually answer questions correctly, so he doesn't need to comment much. JMO...They do try to make sure when accepting new members thatthey are legitimate parents looking to understand/use AC..Its closed and A-M is not. Your posts may show up on a yahoo search so I dont post there anymore..or not about chelation anyways. Oh and AC protocol is amazing> > > > > I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are..> > and we dont use suppositories in AC chelation. never.> > thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point..> > channa> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2011 Report Share Posted November 14, 2011 I was under the impression that they required a moderator from another group to give the reference. Is this not the case? ~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~ you can use me as a reference..tell them you have heard great things and am interested in learning more. channa To: "mb12valtrex " <mb12valtrex >Sent: Sunday, November 13, 2011 9:41 PMSubject: Re: Re: EDTA - Calcium Suppository Chelation Thanks , Toni and Channa! I have joined those mentioned and waiting to hear on the RFA. May need a reference?? Also, good point on the public posts...am opening up a new yahoo address (without my full name) to use for all of my wonderful autism messages/posts! To: mb12valtrex Sent: Sunday, November 13, 2011 8:59 PMSubject: Re: EDTA - Calcium Suppository Chelation He does post on RFA but the moderators there are very good and usually answer questions correctly, so he doesn't need to comment much. JMO...They do try to make sure when accepting new members thatthey are legitimate parents looking to understand/use AC..Its closed and A-M is not. Your posts may show up on a yahoo search so I dont post there anymore..or not about chelation anyways. Oh and AC protocol is amazing> > > > > I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are..> > and we dont use suppositories in AC chelation. never.> > thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point..> > channa> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2011 Report Share Posted November 14, 2011 No, just a member and a good explanation of your interest in the group. ( I think )Sent from my iPhoneI was under the impression that they required a moderator from another group to give the reference. Is this not the case? <skullsignatureb & wsepiahandcoloredsmall.png>~ Antiviral Therapy 101~ gryffinstail.wordpress.com/ ~~ @Gryffins_Tail ~ you can use me as a reference..tell them you have heard great things and am interested in learning more. channa To: "mb12valtrex " <mb12valtrex >Sent: Sunday, November 13, 2011 9:41 PMSubject: Re: Re: EDTA - Calcium Suppository Chelation Thanks , Toni and Channa! I have joined those mentioned and waiting to hear on the RFA. May need a reference?? Also, good point on the public posts...am opening up a new yahoo address (without my full name) to use for all of my wonderful autism messages/posts! To: mb12valtrex Sent: Sunday, November 13, 2011 8:59 PMSubject: Re: EDTA - Calcium Suppository Chelation He does post on RFA but the moderators there are very good and usually answer questions correctly, so he doesn't need to comment much. JMO...They do try to make sure when accepting new members thatthey are legitimate parents looking to understand/use AC..Its closed and A-M is not. Your posts may show up on a yahoo search so I dont post there anymore..or not about chelation anyways. Oh and AC protocol is amazing> > > > > I would insist that if you are going to try AC chelation please join the recoveryfromautism yahoo group! they are experts in that area! and can give you so much info..on AC chelatation. DAN are familiar with DAN chelation not AC chelation! unless they have told you they are following strict AC guidlines which i dont believe most are..> > and we dont use suppositories in AC chelation. never.> > thank you so much for the advice and encouraging words....I will keep Taca in mind...am hoping God will send them on thier way before this goes any further thou....i havent heard from any of the goons in over a week...so im really not knowing whats goin on at this point..> > channa> > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.