To Dee from nne

[Guest guest]

Hi Dee, Yep, that’s me. I had to get a new internet

connection as we got Verizon Fios high speed which is supposed to be so much

faster! LOL – I sure can’t see any difference, it even seems slower

now. Anyway I had to change my email address. It is funny how we get to be known

by our email address or “handle” or “log-in”. –

sometimes even more so than our own name. And yes – I am going on my

eighth month post surgery. Still not doing very well, but keep my hopes up that

I still will get better. My doctor tells me “time” and “patience”,

as nerves do not heal quickly and it will be two – three years before he

will consider my surgery a failure. The only part that was a failure was the

vestibulectomy. It actually worked out great, and would be wonderful for the

average woman, but mine was caused by the pudendal nerve over-firing, so the

nerves grew back and I have it all back again. It lasted for about three

months, and it was so wonderful – no pain, inflammation, the whole vulvar

area was completely pain free. And for the average woman who has a

vestibulectomy that is what the outcome should be. It was such a teaser for me

when all the symptoms grew back. But I always want to tell women that the

vestibulectomy surgery in itself was a breeze, barely any after-pain or

recovery time. If I was the “average” woman with vestibulitis I

would have it in a second, and anyone who is considering it – please email

me for all the details. My doctor did a marvelous job – I would highly

recommend the surgery. But he tells me as my pudendal nerve calms down, the

nerves in the perineum area will also and I should get better in the vulvar

area also, but in the meantime I am back to every gel, cream, magic potion I

can find to try and calm the pain – it can be pretty brutal in that area.

I am going to see a new highly recommended vulvar specialist in ten days. I

hope she may have some new ideas. I was very dissatisfied with Dr. , she

was of no help at all, and in fact I gave her some new ideas of treatment. Go

figure – sometime’s the older specialists don’t keep up with

the new technology.

So again – glad to have to you back Dee – and I hope

your computer problems are all a bad memory never to have their ugly head rise

up again. And I hope you found a backup system in your fun time off. And I hope

it was some fun time for you – although we all sure did miss you. There

is no one that can research like you can – you are the queen!

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Dee Troll

Sent: Sunday, March 30, 2008 11:55 PM

To: VulvarDisorders

Subject: Re: DEE/ email to neuropathic pain/slides

HI nne...

Hon I " ve a question? And been meaning to

ask this....Are YOU the same " nne'' who had

the ''time flies'' handle? and we wrote so much before and at

the last you were going in for some major surgery? Forgive me if

not... because the email address is different so maybe you're not her, but

I'm just getting some vibes it may be you... *smile*

If it is you I definitely am hoping all of that went well

for you and thought of you so often when I was dead in the water and up $hit

creek, with my computer. Either way, thank you hon and you are

more than welcome.. believe me.

You've no idea how lost I felt and missed everyone so much.

Big hugs

Dee~

-----

Original Message -----

From: millburytimes

Thanks

Dee for the great article. You do such marvelous research! I am so glad you are

back with us – I really missed you!

nne