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Molly/Media and other talk shows PSS

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Any article I find on the subjects that we talk about, I either

mail or hand to every one of my doctors. They either read them or pitch them.

The only doctor who is very appreciative of the articles – strangely enough

(but maybe not so) is my pain management doctor. He has gone in the last year

from only giving blocks and trigger point injections to every other part of the

anatomy except the vagina – to now giving them in the perineum area, the

vagina, the butt and all surrounding areas. He told me up until two years ago

he never had to do that. So what has happened – why now, what happened to

all the poor women who could have used them in past years. I was one of his

first pudendal patients – pre and post surgery, so he is learning along

with me on what to do for his new patients. So my pain management doctor is

very happy to get any articles I bring him on the subject.

My pudendal doctor is doing seminars all over the country with

accompanying him most of the time. She is sponsoring all of his

physical therapy treatments – both pre and post surgery. Two years ago,

his name was unknown and now he is months backed up with new patient

appointments.

All of my doctors have gotten all of ’s

presentations – I know one was amazed at the detailed graphics she uses.

Most of them had never heard of the pudendal nerve before. I added one of Steph’s

presentations to our group files today – everyone – copy it and

take it to your doctors. We can start our own little revolution; it only takes

a few people and then a few more, etc. etc. Times have changed even in the two

years since I joined this group.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of molly ring

Sent: Monday, March 31, 2008 9:07 AM

To: VulvarDisorders

Subject: Re: Media and other talk shows PSS

I think it needs to be sufferers. And there are an

awful lot of sufferers at home on the couch, unfortunately. If enough

sufferers are educated, the doctors will have no choice. The doctors

already have much info at hand. Dr. Weiss' and Prendergast' wonderful

article " Screening for Musculoskeletal Componants of Pelvic Pain " was

in the Journal of Urology for pete's sake. I know none of MY doctors

bothered to read it.

love, Molly

Re: Media and other talk shows PSS

Just who are we trying to get the word out too should be the first

question everyone should ask?

Housewives? Doctors? Scientist? People that could fund it?

This is the marketing degree in me coming out..ha ha

Who is our target audience? I don't think we can say everyone.

Unfortunately, not everyone cares.

I think it should be doctors. Because they are the ones that

ususally say you have Vuvo what? OR it is in your HEAD.

Blueeberri

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Pros. Watch

the video on AOL Home.

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month of Blockbuster Total Access, No Cost.

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