Brain Connectivity Disorder

[Guest guest]

Hi everyone,

Has any one heard of the medicine rapamcyn to improve neurocognition.

Its from the article:

http://www.sciencedaily.com/releases/2010/01/100110151333.htm

Do you know if anyone has given this to their child?

Thanks,

mum of 4 yr old asd

[Guest guest]

,

We are actually having a researcher test this for our Sanfilippo kids. Seeing if it effects mTOR in Sanfilippo or not. Sanfilippo kids present very similar to Autism in the first 3 - 8 yrs of life. The brain is our main issue, but due to lysosomal storage build up in the brain then prgans and so on, until it destroys our kids. Many are missed diagnosed initally, until real regression sets in.

Patty T- mom to in land

P.S. We in the Chase Giving Event right now for the next 2 weeks, if anyone wants to cast a vote to help us win more dollars for the research you can do it here.. https://apps.facebook.com/chasecommunitygiving/charities/270513546-team-sanfilippo-foundation It's easy, just "like" Chase Giving in the upper left corner..., then "like" us and go for the vote. Be sure it's Team Sanfilippo you are voting for if so. Thanks in advance.

[Guest guest]

Patty... off topic, sorry to hijack thread - how is your husband?... I had never heard of it, off to read...

 

,

 

We are actually having a researcher test this for our Sanfilippo kids. Seeing if it effects mTOR in Sanfilippo or not. Sanfilippo kids present very similar to Autism in the first 3 - 8 yrs of life. The brain is our main issue, but due to lysosomal storage build up in the brain then prgans and so on, until it destroys our kids.  Many are missed diagnosed initally, until real regression sets in. 

 

Patty T- mom to in land

 

P.S. We in the Chase Giving Event right now for the next 2 weeks, if anyone wants to cast a vote to help us win more dollars for the research you can do it here.. https://apps.facebook.com/chasecommunitygiving/charities/270513546-team-sanfilippo-foundation It's easy, just " like " Chase Giving in the upper left corner..., then " like " us and go for the vote. Be sure it's Team Sanfilippo you are voting for if so. Thanks in advance.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Here is a study in pubmed to look more into:http://www.ncbi.nlm.nih.gov/pubmed/21907282On Wed, Nov 9, 2011 at 5:47 AM, Mancuso wrote:

 

Hi Everyone,

Have you ever heard of a medicine called rapamcyn. On an article I have read, this may be good for children with autism as it improves neurocognition. The article is here:

http://www.sciencedaily.com/releases/2010/01/100110151333.htm

What do you guys think?

Thanks

Mum of 4 yr old asd

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.