to Dee from nne

[Guest guest]

Hi Dee,

Well – I am glad we found each other (again)! And the only

reason I stay positive is that my doctor tells me the story, time and time

again about one of his first patients that he performed surgery on in France

(he was there for over a year learning from the doctor who developed the PN

surgical technique), that she kept telling him (year one) that it was the worst

decision she had ever made (having the surgery), year two – the same

thing – year three, she called him up and said this was the best decision

she had ever made – she was completely cured. The doctor who developed

the surgery told my doctor that this was the way it happened, so to tell every

patient he performed surgery on to just WAIT it out. It takes a long time for

nerves to heal and regenerate. And actually it is the pain from the

vestibulitis that is the worse. If I could just get some relief from that I

wouldn’t be in too bad of shape. And there are days when I think I am

better, and from what I have been told from some of the women who have had

surgery a year or so before me, the good days slowly outnumber the bad days,

until there are no more bad days. Boy when that happens, I will have the

biggest internet party!!!

And your poor computer – you are one amazing woman to pick

up the pieces and start over. I just can’t imagine having 100,000 email

addresses! That is mind boggling to say the least. But the past is the past,

and you are going forward slowly and recouping some of your lost stuff. I sure

wish I lived near you to give you some help. You really should know how your

backup program works though, because even they can fail, and your new storage

drive can fail too. Everything can and will fail eventually – it makes me

crazy sometimes when I think of it. I had hundreds of music CD’s from 20+

years. I took them all and loaded them on an extra drive and now have wonderful

play lists of all my favorite music. But now I am backing up that drive,

because I am so scared that I will lose all that music, plus I don’t buy

physical CD’s anymore (I download them all from Itunes), so all my new

music is just on the computer – no hard copies. And my husband wanted us

to go “paperless”, and scan every piece of paper, receipt, bill, warrantee,

etc. that comes into the house. It is great, the program I have categorizes it

all and gives me information on any piece of paper that I have, but I am petrified

that that disk will become corrupted and I will loose everything. I don’t

know – I don’t think technology saves us the time that we think it

does. And what happens 5-10 years from now. How much of this equipment will

still be working. I don’t have an answer to any of this, but I am sure

glad you are OK Dee, and your attitude about it is fantastic!

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Dee Troll

Sent: Tuesday, April 01, 2008 1:37 AM

To: VulvarDisorders

Subject: Re: To nne from Dee

OMG it IS you!!! *grin*

Well I'll be doggone.. Some of your writings sounded like it

and it just felt like 'you'.....*smile* I'm so glad to be in touch

again. (and it is true, I might know an email handle before I'll

rememer a name. DUH) although I knew your name I knew that address wasn't

right and figured surely there are other nnes, maybe it's not.

Well I'm sure sorry to hear the surgery wasn't more of

a success (yet) *smile*... and glad you were able to have the 3 months of

relief. I remember us talking about your physician and how great he

was and if you're still talking like that hon I KNOW he is. *grin*..

It's too bad about that nerve regeneration *sigh* and there

are those with spinal cord injuries that just 'wish' those nerves would

regenerate and are told they can't.. Whuddah thunk it. Although I'm

certain your doctor was aware of the possibility and why he's not

calling it quits or a non-success till some time passes (or you either)

.... Good for you.

I hope this new doctor you'll be seeing has some good or

new ideas too, if not, you'll probably teach her a few things.

*smile*. But I'll tell ya hon for all you've been thru and still are in..

your cheeriness & helpfulness comes thru (and why I suspected that was

you) *grin*

My computer problems were from hell believe me and it

wasn't a rest period at all. (I wish) I'm still working on cleaning

up what was saved as it was left in total chaos with no rhyme or reason to it

and now stored elsewhere. It felt like 10 yrs of my life went down the

drain.

After the 5th guy worked on it.. (the rest totally gave

up) I even lost all my email addresses, talk about what a crying jag that

was! I never felt so lost in my life. But he did manage to save about

50,000 thousand pieces but I still lost over 50,000 so half way

wasn't too bad.

But bad enough because every single day I'd go to look

for something (still today as well) that I always took for granted was

there and it was just GONE.... and then my mind would go blank.. Now

what do I do? haha So I've been working on that daily and not

even 1/4th of the way thru those.. but getting there.

OH and I finally did spend some Big bucks to get an external

harddrive that's huge in storage space, (so they tell me) *DUH*

Nothing like a day late and a dollar short. eh?

Someone hooked it up for me and scheduled it but I have NO

Idea of 'what's what' or how to work it, and if I ever crash again I just

hope someone knows what to do with it. I sure don't.

Please take care and I'm sure sending some positive vibes

that those nerves start letting up for you & doing what they're supposed

to.

Big hugs hon

Dee ~