Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Tom – PT does not work in all cases. I am going to very nice and composed and not “vent” back at you, but I had the pudendal nerve decompression surgery seven months ago, and I am very glad I did – in my case it was the only thing left to do. And they do not “cut out the nerve”, they manipulate it internally until it is free. Maybe you should read up on the procedure even though you don’t agree with it, at least you will be informed. And yes, I had months of good pelvic PT before I made the decision to have the surgery. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of K. Ockler Sent: Wednesday, April 02, 2008 12:35 AM To: VulvarDisorders Subject: Re: Pudendal Nerve Entrapment.... Good evening all, please excuse me while I vent!!! ARRRRRRGGG!! In section 6 where they say " what are the treatment options? " Stop the offending activity .....ah 'cuse me but DUH!!! ( Doctor it hurts when I do this... Well, don't do that!) Nerve blocks ...DRUGS Neurontin and Elavil...DRUGS Surgery!!! ( on what?? cut out the nerve?) Never a mention of fixing the cause and using the nonmanipulative techniques to relieve the pressure on the pudendal nerve right where it is entraped. UNBELIEVABLE!!!!! K. Ockler P.T. Dee Troll wrote: Here's another I found in my 'mess'. Dee ======================================== Pudendal Neuralgia Pudendal neuralgia is pain in the area supplied by the pudendal nerve. This includes the external genitals, the urethra, the anus, and the perineum. Fred M. , Jr., M.D., M.S. Professor of Obstetrics & Gynecology Department of Obstetrics & Gynecology University of Rochester Medical Center 601 Elmwood Avenue Rochester, NY 14642-8668 Telephone: Per Lennart Westesson, MD, PhD, DDS Professor of Radiology Division of Diagnostic and Interventional Neuroradiology University of Rochester Medical Center 601 Elmwood Avenue Rochester, NY 14642-8648 Telephone: S T R O N G H E A L T H STRONG MEMORIAL HOSPITAL For questions regarding clinical appointments, clinical examinations, and clinic visits call Dr. Fred 's office at . For questions regarding pudendal nerve blocks please call Dr. P-L Westesson's office at . Frequently asked questions 1. What is Pudendal Nerve Entrapment? Pudendal Nerve Entrapment is a pain condition for no apparent reason in the lower central pelvic areas. These are the anal region, perineum, and scrotum and penis or vulva. Pain is worse upon sitting and less when standing or sitting on a donut cushion or toilet seat. The pain could be stinging, burning, stabbing, aching, Knife-like, irritation, cramping, spasm, tightness, crawling on the skin, twisting, pins and needles, numbness, and hyper sensitivity. The pain is piercing and very comparable to a toothache. It often starts in one place and progresses. Frequently there is also urinary, anal, or sexual dysfunction. The pain is often on both sides. 2. What causes pudendal nerve entrapment? Pudendal nerve entrapment is caused by entrapment of the pudendal nerve. The initial constriction is often caused by pressure or trauma. As the nerve swells it encounters a natural constraint. Stretching or rubbing of the pudendal nerve can also cause pudendal nerve entrapment. 3. What causes entrapment? Pudendal nerve entrapment is usually precipitated by prolonged sitting or trauma to the sitting area, combined with a genetic and developmental susceptibility. Pudendal nerve entrapment is common in high mileage (drivers) and it is sometimes called Cyclist’s Syndrome. 4. What is Pudendal nerve entrapment frequently misdiagnosed as? Prostatodynia, nonbacterial prostatitis, idiopathic vulvodynia (Idiopathic means unknown cause, dt), idiopathic orchialgia, idiopathic proctalgia, idiopathic penile pain syndrome etc. 5. What are the most common symptoms of PNE? The main symptom is pain with sitting. You feel great in the AM until you sit for coffee, or drive to work. You get better with lying down. The pain is in the distribution of the pudendal nerve.... genitalia, perineal or rectal. It can be any combination of these areas depending on the part of the nerve entrapped. 6. What are the treatment options? 1. Avoiding the offending factor that causes pain 2. Three sequential image guided nerve blocks first with local anesthetics and later possible combined with corticosteroids 3. Conservative medical treatment such as neurotin, Elavil 4. Surgery with decompression of the nerves is rarely done 7. If a patient suspects that they have pudendal neuralgia what should they do to get help? First, you need to make sure that other possible conditions are ruled out. It is important to have a complete workup. Next is an image guided nerve block and if you get numb in the area of your pain and pain is gone you have a good indication that you might have pudendal neuralgia. 8. Is there a connection between pudendal neuralgia and spinal disorders and scoliosis? No. 9. Which CPT codes are applicable for the image guided nerve block? 64430 Injection, anesthetic agent; pudendal nerve 76360 Computed tomography guidance for needle placement (e.g., biopsy, aspiration, injection, localization device), radiological supervision and interpretation Symptoms of Pudendal Neuralgia Pudendal neuralgia is frequently caused by a mechanical and/or inflammatory damage to this nerve. Symptoms include vague pains, stabbing pains, burning sensations, pin pricking, numbness, twisting, cold sensations and pulling sensations. The area involved could be the rectum, anus, urethra, and perineum. In women, the vagina and vulva, the vaginal entrance, the minor and major labia, the mons veneris, and the clitoris. In men, the penis and scrotum may be similarly affected. Pains and paraesthesias symptoms may extend as far as the groin, inner leg, buttocks, and abdomen. The pain and paraesthesia may be perceived in only one of these areas, in several, or in all of them. These symptoms may be unilateral or bilateral or more distinct on one side than the other, and they are usually exacerbated by sitting position. Utilization of a “doughnut” pillow and/or sitting on a toilet seat often provides some degree of comfort, as this lessens the pressure on the pudendal nerve(s). The skin overlying some of this region may react with extreme sensitivity to the slightest touch (hyperesthesia and allodynia), such that the affected person may avoid wearing certain items of clothing to avoid such discomfort. Difficulty with normal voiding, with hesitancy or extreme urgency may cause repeated trips to the bathroom. Bowel function may be abnormal, as well as painful. Constipation is reported more frequently among those individuals diagnosed with pudendal neuralgia. Sexual intercourse may be problematic as penetration, for the woman, may be extremely painful, and for the males erectile dysfunction and/or pain with orgasm may predominate. DIFFERENTIAL DIAGNOSIS There are many other causes for similar symptoms and other underlying conditions such as tumors, diseases of the spine or skin, gynecological, urological, and/or proctological conditions should be excluded before concluding that the patient suffer from pudendal neuralgia. Specifically chronic or non-bacterial prostatitis, prostatodynia, vulvodynia, vestibulitis, chronic pelvic pain syndrome, proctalgia, anorectal neuralgia, pelvic contracture syndrome/pelvic congestion or levator ani syndrome can resemble pudendal neuralgia. Pain in the genital region is often brushed aside as a “psychosomatic” which leaves the patient feeling more distressed, uncertain, and helpless. The pudendal nerve comes from the sacral plexus (S2-S4) and enters the gluteal region through the lower part of the greater sciatic foramen. It courses through the pelvis around ischial spine and between the sacrospinous and sacrotuberous ligaments. It splits up into the rectal/anal, perineal and clitorial/penis branches. The nerve turns forward and downwards through the lower sciatic foramen underneath the surface of the levator muscle into the Alcock's canal where the nerve is flattened out between this double fascia (aponeurosis). The two most important narrow passages are around the ischial spine between the sacrospinous and the sacrotuberous ligament (80%), and in the Alcock’s canal (20%). Cycling, riding and long drives can kick off the symptoms of pudendal neuralgia. DIAGNOSIS Pudendal neuralgia is a diagnosis of exclusion meaning that other causes for the symptoms must be excluded before the diagnosis of pudendal neuralgia is made. Image guided pudendal nerve block Image guided pudendal nerve block is the most important diagnostic test following history and physical examination. The nerve is blocked by local anesthetic to see if symptoms can be eliminated by numbing the nerve. The block is done where the nerve is passing between the two ligaments or in the Alcock’s canal. In the first case, the block would be administered through the buttock into the area adjacent to the ischial tuberosity. In the second case, the block is given directly into the Alcock’s canal. Pudendal Nerve Motor Latency Test Pudendal Nerve Motor Latency Test is similar to EMG (electromyogram) and measures the speed of nerve conduction. Electrodes fixed in the muscles of the perineum, in the rectum, in the muscles underneath the vulva around the vaginal entrance and the pudendal nerve is stimulated electrically while measuring the speed of the stimulus transmission. This speed is often slower when the nerve is compressed. This test is done relatively infrequently and has been replaced by image guided pudendal nerve blocks. Pudendal nerve block and steroid injection Image guided anesthetic and steroid blocks of the pudendal nerve are used for both diagnosis and treatment. If the pain is relieved immediately following the block it suggests that the pudendal nerve is the source of the symptoms and is probably trapped. Symptoms often return as the local anesthetics wears off. The steroids may or may not relieve symptoms for a longer period of time. If they do, it usually begins to improve about two weeks after the block, with improvements continuing for up to four to five weeks. Two to three blocks may be sufficient, alone, to cure the problem. The purpose of the steroid is to reduce inflammation and allow the nerve more room to glide freely. After the injection, there might be a temporary deterioration due to the steroid for a period of two to ten days (worsening of symptoms). The blocks are done at the at the ischial spine between the sacrospinous and sacrotuberous ligaments or in the area of Alcock’s canal. Botox (botulinum toxin) injections have been proposed but there is no documentation as to its effect. One injection protocol is to administer three sets of injections 1 weeks apart; the first injection is local anesthetics and if this has a positive effect the next two injections is a mixture of methylprednisolone (1 mL of 40 mg/mL solution) and bupivacaine (3 mL of 0.25% solution). The injections are usually given at the level of the ischial spine but if not successful the injection can be given directly into the pudendal canal (Alcock’s canal). Usually the injections are unilateral, but patients with bilateral symptoms, both sides may be injected. Medical Management Medical management may include an anti-depressant and/or an anti-seizure medication. Surgery Surgery is rarely done for this condition. The results are not well documented and the operations are only available in a handful places in France and US. If there is temporary or partial improvement after the injections and if the nerve is still suspected of being compressed some Doctors believe that decompression of the nerve through surgery may be an alternative for selected patients. The nerve is exposed and freed from any entrapment or constriction along its entire course. The surgery is done under general anesthesia and lasts approximately 20-30 minutes per side. After the surgery, it takes a few to several months before a successful outcome can be demonstrated, as the nerve requires a relatively long period of time to heal. Often post surgical injections are needed. Surgery has been reported to be 60% successful, but there are no scientific studies published. REFERENCES: .. FM, The role of laparoscopy in the evaluation of chronic pelvic pain: pitfalls with a negative laparoscopy. J Am Assoc Gynecol Laparosc 1996; 4:1,85-94. • FM. Adhesiolysis for pain relief. Operative Techniques in Gynecologic Surgery 2000;5:3-12. • FM. Chronic Pelvic Pain in Women. Amer J Managed Care 2001;7:1001-13. • FM. Gynecologic Pain. In: Handbook of Pain Management, 3rd Edition. CD Tollison, JR Satterthwaite, JW Tollison, eds. Lippincott, , and Wilkins: Philadelphia, 2001, pp 459-93. • FM. Laparoscopic evaluation and treatment of women with chronic pelvic pain. J Am Assoc Gynecol Laparosc 1994;1:325-31. • FM. The role of laparoscopy as a diagnostic tool in chronic pelvic pain. Bailliere’s Best Practice & Research in Clinical Obstetrics & Gynaecology 2000;14:467-94. • FM. The role of laparoscopy in chronic pelvic pain: promise and pitfalls. Obstet Gynecol Survey 1993;48:357-87. • http:/pn.jcon.org • http:/pudendal.de/ • http:/pudendal.de/Publikationen/CTARTICLE.pdf • http:/pudendal.info/ • http:/pudendal.info//info/documents/ • http:/pudendal.info/documents/CT_GuidedNerveBlock.pdf • http:/pudendal.info/info/documetns/IschialSpineAndPNE.pdf • http://www.pudendal.de/Publikationen/Anal%20pain%20caus ed%20bei%20Nervus%20Pudendus%20(Shafik).pdf • Mc JS, Spigos DG. Computed tomography-guided pudendal block for treatment of pelvic pain due to pudendal neuropathy. Obstet Gynecol 2000;95:306–309 [Medline] source: http://www.urmc.rochester.edu/smd/rad/pudendal.pdf NOTE* At the site are also some pictures w. the surgery showing the buttocks immediately after the surgery and other photos of the nerves, etc. that I couldn't copy here. Dee T. (Copied from a PDF File, that took me forever, *grin*) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi nne and all. YOu may have missunderstood my comments and so to clear this up. #1. I am absolutly thrilled that you are much better after your surgery. #2, I know perfectly well that they do not "cut the nerve out", I was making a sacrcastic remark about the author's vague "surgery" comment. The article was so matter-of-fact and left out so many other options.. "drugs and surgery" just makes the hair on the back of my necks stand up. #3. I could not agree with you more that PT (a somewhat generic term) as it is currently being employed on this group of disorders does not always work. That is why I specifically mentioned the use of non-manipulative manual therapy techniques and did not say PT. These techniques are rare and not .. I repeat... not part of the standard study or practice of Physical Therapists. Muscle Energy and Counterstrain, when used appropriately can free up the structures that are entraping the pudendal nerve. All without surgery and especially without the risks that go along with surgery.. like infection and the proliferation of scar tissue which will just entrap the nerve again. The nerve does not become entrapped unless something happens to change the structure of the pelvis and pelvic floor. So to surgically alter the anatomy and change it for ever when you have not adressed the reason for the entrapement to me is just plane wrong! (To me anyway.) I realize all to well that my philosophy is somewhat eclectic and not traditional but I am so enthusiastic about reaching as many as i can to tell them... there are other means. Hopefully I didn't ruffle anyones feathers more than a little and of course, after being on this site for almost 8 years.. i'm used to getting the rasberries every now and then. It is worth it even if I can keep some of you from the knife and help you toward a safe and effective cure. By the way, I'm not all talk / smoke and mirrors....My new course, M3: No Man's Land ... The all external evaluation and treatment of disorders of the pelvis and plevic floor, is scheduled for September 27-28th of this year at my clinic in Willoughby (Cleveland Ohio.) This course is for female and male therapists. The more therapists of either gender who are willing to learn how to do this.... the better. If you have the names and addresses of clinics that you are familiar with and would like to give me their addresses, I will get the full brochures out to them pronto! Night all... Tom Ockler PT www.tomocklerpt.com With these millburytimes wrote: Tom – PT does not work in all cases. I am going to very nice and composed and not “vent” back at you, but I had the pudendal nerve decompression surgery seven months ago, and I am very glad I did – in my case it was the only thing left to do. And they do not “cut out the nerve”, they manipulate it internally until it is free. Maybe you should read up on the procedure even though you don’t agree with it, at least you will be informed. And yes, I had months of good pelvic PT before I made the decision to have the surgery. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of K. Ockler Sent: Wednesday, April 02, 2008 12:35 AM To: VulvarDisorders Subject: Re: Pudendal Nerve Entrapment.... Good evening all, please excuse me while I vent!!! ARRRRRRGGG!! In section 6 where they say "what are the treatment options?" Stop the offending activity .....ah 'cuse me but DUH!!! ( Doctor it hurts when I do this... Well, don't do that!) Nerve blocks ...DRUGS Neurontin and Elavil...DRUGS Surgery!!! ( on what?? cut out the nerve?) Never a mention of fixing the cause and using the nonmanipulative techniques to relieve the pressure on the pudendal nerve right where it is entraped. UNBELIEVABLE!!!!! K. Ockler P.T. Dee Troll wrote: Here's another I found in my 'mess'. Dee ======================================== Quote Link to comment Share on other sites More sharing options...
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