askin for support with DCF

[Guest guest]

Okay guys, I know we are all adults but there are members here that probably don't cuss. I don't really regulate it because I'm the queen of the potty mouth IRL. But here on the list, let's try to at least control the urge to drop the f-bomb. I've seen it come up a couple times already in the last week and I think people are getting a little too comfortable with the loose language. We can find a happy stasis between free language and complete censorship of it.Rein it in a little, please.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~

>> Speaking of the busybody coworker with no kids… (she is the one who

told my boss that my office had been messy since my kid's diagnosis,

causing my pushover-boss-with-no-sense-of-right-and-wrong to come to me and say "Are your personal problems interfering with your work?")Is he for fucking real??? Do they have ANY idea??? I've been following your story, Mel, and I think anyone who can say that to you has not one shred of humanity left in them. It amazes me how callous people can be! I seriously just want to go there and knock every tooth out of this busybody and your boss' heads. What a couple of self-centered assholes! Wow, that makes me SO MAD!!!

[Guest guest]

I am reading my email late today, so maybe someone else has said this already,

but girlfriend, you need to make time to do this now. I understand not being

able to deal with constipation or surgery, but you need to make time for

yourself to watch a good movie and eat a favorite snack! You may not be able to

do them all at once, but maybe one every Friday night?

Blessings,

Cathy

>

> Something else I'll do is, I will watch all the Bourne movies while eating

bags of sunflower seeds.

[Guest guest]

Sorry, guys...it just made me really mad...I'm trying to cut back on talking like a sailor IRL, too.  I know I get carried away a lot...it just makes me really mad that someone could get on someone's back about breadcrumbs on the desk (of all stupid things) or a workspace being messy when you're awaiting to hear back on test results...just not knowing what's ahead is brutal.  I remember the time between when we I realized things weren't quite right with Maia to the time when she got her diagnosis...the waiting and not knowing (and your mind's racing a thousand miles a minute because of all the uncertainty) -- it's so stressful.  After you know, then you can deal with it?  But not knowing...that's quite an emotional toll.  It just hit a nerve with me.  I really am trying to cut down on the sailor talk all around...

Okay guys, I know we are all adults but there are members here that probably don't cuss. I don't really regulate it because I'm the queen of the potty mouth IRL. But here on the list, let's try to at least control the urge to drop the f-bomb. I've seen it come up a couple times already in the last week and I think people are getting a little too comfortable with the loose language. We can find a happy stasis between free language and complete censorship of it.

Rein it in a little, please.

~ Antiviral Therapy 101~ gryffinstail.wordpress.com ~

~ @Gryffins_Tail ~

 

>> Speaking of the busybody coworker with no kids… (she is the one who

told my boss that my office had been messy since my kid's diagnosis,

causing my pushover-boss-with-no-sense-of-right-and-wrong to come to me and say " Are your personal problems interfering with your work? " )Is he for fucking real???  Do they have ANY idea???  I've been following your story, Mel, and I think anyone who can say that to you has not one shred of humanity left in them.  It amazes me how callous people can be!  I seriously just want to go there and knock every tooth out of this busybody and your boss' heads.  What a couple of self-centered assholes!  Wow, that makes me SO MAD!!!

[Guest guest]

thats the sad thing....no one knows what we all go thru except each other.

people are closed minded and have a hard time with empathy, if they havent gone thru it themselves.

I had read somewhere once a theory that humans were dumped on this planet by aliens as a defective spieces...I would say that makes sense to me right about now.

there is good in the world ...but there is so much bad as well..we judge each other,so harshly, we kill each other based on religion..we automatically judge someone because they are too rich or too poor to white or too black...nobody gets that when we die our souls have no color or money connected to it. no one will be better then another because of religious beliefs or status..we will all be judged on how much happiness we brought to other people or how much pain we brought to other people.

im sorry folks i am a little nastalgic today.

To: mb12valtrex Sent: Friday, November 18, 2011 3:38 AMSubject: Re: askin for support with DCF

Sorry, guys...it just made me really mad...I'm trying to cut back on talking like a sailor IRL, too. I know I get carried away a lot...it just makes me really mad that someone could get on someone's back about breadcrumbs on the desk (of all stupid things) or a workspace being messy when you're awaiting to hear back on test results...just not knowing what's ahead is brutal. I remember the time between when we I realized things weren't quite right with Maia to the time when she got her diagnosis...the waiting and not knowing (and your mind's racing a thousand miles a minute because of all the uncertainty) -- it's so stressful. After you know, then you can deal with it? But not knowing...that's quite an emotional toll. It just hit a nerve with me. I really am trying to cut down on the sailor talk all around...

Okay guys, I know we are all adults but there are members here that probably don't cuss. I don't really regulate it because I'm the queen of the potty mouth IRL. But here on the list, let's try to at least control the urge to drop the f-bomb. I've seen it come up a couple times already in the last week and I think people are getting a little too comfortable with the loose language. We can find a happy stasis between free language and complete censorship of it.

Rein it in a little, please.

~ Antiviral Therapy 101

~ gryffinstail.wordpress.com ~

~ @Gryffins_Tail ~

>> Speaking of the busybody coworker with no kids… (she is the one who told my boss that my office had been messy since my kid's diagnosis, causing my pushover-boss-with-no-sense-of-right-and-wrong to come to me and say "Are your personal problems interfering with your work?")Is he for fucking real??? Do they have ANY idea??? I've been following your story, Mel, and I think anyone who can say that to you has not one shred of humanity left in them. It amazes me how callous people can be! I seriously just want to go there and knock every tooth out of this busybody and your boss' heads. What a couple of self-centered assholes! Wow, that makes me SO MAD!!!

[Guest guest]

The people I have met either DONT GET IT AT ALL or GET IT COMPLETELY.LOLSeems like no in between.I had a pool repair guy come over and see all the vits on the counter. He was like " uh, you like vitamins? " ROTFL

I got into talking to him abt the behaviors we deal with with my son (whom I had just picked upat school for hurling the toilet tank lid at the teacher, remember that?) and this dude really got it.He had been a " troubled youth " I guess so he was impressed and happy and encouraging to me

for being willing to do whatever I could for my kid.It was nice for a member of the regular community to get it.Then again I have friends who like with " troubled kids " and think diet/vitamins are

useless but whatever they are doing isn't quite working either, but *I AM* the one still " out there. " Channa.... defective species is about right!

thats the sad  thing....no one knows what we all go thru except each other.

people are closed minded and have a hard time with empathy, if they havent gone thru it themselves.

    I had read somewhere once a theory that humans were dumped on this planet by aliens as a defective spieces...I would say that makes sense to me right about now.

there is good in the world ...but there is so much bad as well..we judge each other,so harshly, we kill each other based on religion..we automatically judge someone because they are too rich or too poor to white or too black...nobody gets that when we die our souls have no color or money connected to it. no one will be better then another because of religious beliefs or status..we will all be judged on how much happiness we brought to other people or how much pain we brought to other people.

im sorry folks i am a little nastalgic today.-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Many of this words are exactly what I was trying to type earlier, for some reason I type messages and then just don't send them as I think they are not good enough or won't help in any sense... It is so true when it is mentioned that we should give ourselves credit for what we are doing trying to help our children... My son goes to a "community class" (in a regular school there is classroom for kindergarden where there are only kids with autism and the ratio is almost one on one ), in almost year and a half, only my son and another boy are the ones that seem to be

improving fast, they are the only ones being "treated" by some form of medical or nutritional way, besides the therapies they give at the class and everything we do at home.So yes, the children with autism improve and get better when the symptoms are treated vs. the ones that have parents that don't do anything... and many children because of those efforts are recovering. I want to thank from the bottom of my heart to the parents or relatives that write encouraging messages... sometimes even what you think it won't affect someone else lives it does in a very positive way. Many times I read the problems many are going thru and I just don't know what to say, but my heart feels it.Life goes on and We are still here to try and deal with it and make the best out of it, even with all our problems.Sasha To: mb12valtrex Sent: Thursday, November 17, 2011 1:00:35 PM Subject: Re: askin for support with DCF

Mel! I have never been this moved by any posts on this forum but right now I just want to cry. Your post reflects a lot of emotional stuff that all warrior mothers go through. I feel like everything is on hold in our family also while we are trying to recover our son. I wish we were all living in the same neighborhood and helping each other out with kids, taking turns and supporting each other different chores. I wish people with neurotypical kids were more understanding and would stop staring. But yesterday something happened which gave me some confidence as a mother. I observed my son's classroom and out of 5 kids in the class, he is the only one on the diet and getting biomedical help. While my son was working on his academics and dealing with some lack of focus, the other 3 were screaming extremely loud non-stop, hitting classroom floor with their chests, hitting themselves and not even able to identify colors at grade 3 level. I felt so

sad for those kids as despite discussions on diet and biomed, their moms look at me like I am talking nonsense. Those kids obviously are in a lot of pain and as per advise of mainstream pediatricians, those parents are not trying any biomed options. It made it even clearer to me that all us parents on this forum are trying our level bests to recover our kids and should feel confident and give ourselves credit for all our efforts. I pray to God to give all of us strength to go on and to be help each other with any support we can offer.

is

>

> Channa, I am really sorry about what you are going through. I feel the need to vent about goody-two-shoes, clueless busybodies who get in our way:

> A local radio station had "Do me a favor Friday". The way it went is: A listener calls in saying they need something. Other listeners try to meet that need. Years ago, a Mom called. She said, "I've been up with a sick kid all night. I just want a single bottle of beer and a single cigarette." You should have heard the uproar about what a bad Mom she was. The poor woman called back and said, "Obviously, I'm not someone who keeps any of this stuff around. I had a rough night. I am crazy about my kid. Forget I ever called." I felt really bad for the woman.

> My sister says my kid is hyperactive because she watches too much TV. The funny thing is we don't even get a single TV channel. The therapists use clips of Baby Einstein and Baby Bumblebee as reinforcers. My sister says the therapists use these video clips too much and that's why my kid is hyperactive. I just roll my eyes.

> Until my kid's genetic test results are finalized, I am taking an antidepressant. I don't go around advertising this because I don't want lectures from goody-two-shoes, clueless busybodies. Imagine the field day my busybody coworker would have, if she knew.

> Speaking of the busybody coworker with no kids… (she is the one who told my boss that my office had been messy since my kid's diagnosis, causing my pushover-boss-with-no-sense-of-right-and-wrong to come to me and say "Are your personal problems interfering with your work?") While my boss and I were discussing work one day, this coworker came in to my office and said there were still bread crumbs on my desk after I had lunch and my stupid boss didn't say "What's it to you?" This coworker looks in my car in the parking lot and sees the dirty Kleenex on the floor and clucks her tongue in judgment at it. I have quit talking with this coworker. I am certain she has figured out that I am ignoring her. I don't even want to talk back and argue anything and I never have. Because all I care about at this time is my kid. I don't have energy for anyone else.

> I am recovering my kid. "My house is on fire" as the saying goes. Nothing else matters and nothing else exists (except of course my other kid who I am also crazy about).

> Last summer, during a rough patch, I bought a pack of cigarettes and smoked one cigarette a day at a park on my way home every day. Okay, I did it for 5 days and then gave the rest to a smoker friend. My husband does not need to know. My teen does not need to know. Nobody who knows me needs to know. I don't need a lecture from anyone at this time.

> I am high-strung at this time, too, but I am high-strung inside. I look stoic outside.

> Our highest boss, the county manager, announced how much weight he lost thanks to our great benefits program which includes a wellness coordinator who helped him. I wanted to punch the guy because our benefits program, which states in the booklet that autism treatments are covered, does not cover shit. It helps the richest employee who needs someone else to teach him how to lose weight, but it doesn't help a poor clerk's kid who really needs the help. Doesn't even cover ABA therapy, which is backed by years of scientific research and evidence.

> I vacuum and dust the room that the therapists use, but not the rest of the house, because, when I am not at work, I am playing with my kid, so she doesn't get lost in her own stimming world.

> I use paper plates and plasticware so I don't have to waste time washing dishes. The house and the environment can wait until my kid is as recovered as I can get her.

> The money my Mom gave is getting very low. Next step is taking loans out. After that, selling the house. Nothing else matters. I am stoic and I don't say much anymore, because I don't want anyone coming after me, not my coworker, not my boss, not my sister, not the county manager, not the wellness coordinator, not all the other moms at the library and the playground who stare at my hyperactive kid, and not child welfare people who might say I am high strung or my rooms are messy.

> Since I am not saying much, I have become a good listener. People won't stop coming to my office and going on and on about their dogs or their vacations or their remodeling projects or the antics of their cute, smart, verbal kids. I smile, I listen, I ask questions. You can't find a better listener than me these days. I do genuinely care about them, but I also see how petty their so-called problems are.

> I have a list of things I will do also once my kid is recovered. They don't involve anything mind-altering only because 11 years of Miralax abuse for my extreme constipation has already stolen some of my brainpower. I need all the brains I have left.

> I will experiment with natural cures for my constipation, for one thing. I have done this before and failed miserably, but I will try harder. I don't have time to be constipated at this time, because I can't even walk when I am constipated and I need to walk to help my kid.

> Something else I'll do is, I will watch all the Bourne movies while eating bags of sunflower seeds. I will have the lumps on my head surgically removed, like my sister did. That's it. I don't have any imagination left to think of anything else I would do.

>

[Guest guest]

Just remember that we have all been told that we are crazy. Even I when

I first starting learning things, I had to fight my own self to move

away from this kind of thinking and leap into believing the docs and

parents who were getting results. The results tell the real story.

Crazy or not, when your kids' are losing symptoms, you are on the right

path. I tell people to call me what you want, but I call me a mom with

healed kids.

Love and prayers,

Heidi N

...when you are told by people you are crazy long enuff you start to

believe it.

[Guest guest]

LIKE! :-)

 

Just remember that we have all been told that we are crazy. Even I when

I first starting learning things, I had to fight my own self to move

away from this kind of thinking and leap into believing the docs and

parents who were getting results. The results tell the real story.

Crazy or not, when your kids' are losing symptoms, you are on the right

path. I tell people to call me what you want, but I call me a mom with

healed kids.

Love and prayers,

Heidi N-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Heidi, I would love to post this as a quote " from a friend " on facebook. Let me know if I can. I bet I get adozen " like " and shares LOL

LIKE! :-)

 

Just remember that we have all been told that we are crazy. Even I when

I first starting learning things, I had to fight my own self to move

away from this kind of thinking and leap into believing the docs and

parents who were getting results. The results tell the real story.

Crazy or not, when your kids' are losing symptoms, you are on the right

path. I tell people to call me what you want, but I call me a mom with

healed kids.

Love and prayers,

Heidi N-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Please use this quote as your own. We all need to stick up for ourselves!

Love and prayers,

Heidi N

Heidi, I would love to post this as a quote " from a friend " on facebook.

Let me know if I can. I bet I get a

dozen " like " and shares LOL

>> Just remember that we have all been told that we are crazy. Even I when

>> I first starting learning things, I had to fight my own self to move

>> away from this kind of thinking and leap into believing the docs and

>> parents who were getting results. The results tell the real story.

>> Crazy or not, when your kids' are losing symptoms, you are on the right

>> path. I tell people to call me what you want, but I call me a mom with

>> healed kids.

>>

>> Love and prayers,

>>

>> Heidi N

[Guest guest]

I know this was in MA, what office was this reported to?

Judy

> Please use this quote as your own. We all need to stick up for ourselves!

>

> Love and prayers,

>

> Heidi N

>

>

> Heidi, I would love to post this as a quote " from a friend " on facebook.

> Let me know if I can. I bet I get a

> dozen " like " and shares LOL

>

>

> >> Just remember that we have all been told that we are crazy. Even I when

> >> I first starting learning things, I had to fight my own self to move

> >> away from this kind of thinking and leap into believing the docs and

> >> parents who were getting results. The results tell the real story.

> >> Crazy or not, when your kids' are losing symptoms, you are on the right

> >> path. I tell people to call me what you want, but I call me a mom with

> >> healed kids.

> >>

> >> Love and prayers,

> >>

> >> Heidi N

>

>

>

>

>

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