Chelle/ Case Report of Treatment Resistant Vulvodynia - Abstract

[Guest guest]

Chelle, I really liked this quote from the article, and also the

part on why vestibulectomies fail. Great information, even though the paper was

written five years ago.

Recently, different causes have been

implicated, including neuropathic pain, particularly complex regional pain

syndrome (formerly called reflex sympathetic dystrophy), and pudendal

neuralgia.8,9 The role of neuropathic pain in vulvodynia is supported by good response

rates when patients are treated for neuropathic pain.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of BABB

Sent: Tuesday, April 08, 2008 7:08 AM

To: VulvarDisorders

Subject: Re: Case Report of Treatment Resistant Vulvodynia -

Abstract

Chelle, that was a really interesting article. I was

especially interested in the part where being enzyme

deficient in Biotin seemed to be a problem or maybe a

solution:

" 1 in every 123 individuals may have biotinidase

deficiency, so some women with chronic vaginal

candidiasis, possibly causing treatment resistant

vulvodynia, might respond to biotin administration. "

These nutritional deficits are finally getting noticed

by the docs. The enzyme supplementation is I think a

wonderful area to look into for health. When the small

intestine is damaged by some disease or condition or

food intolerance, the body can't digest the food it

eats if the particular enzyme isn't produced. I

haven't noticed if Biotinidase (the enzyme which makes

the body capable of utilizing Biotin which is a very

important B vitamin--probably has something to do with

nerves) is being sold over the counter. I am going to

find out though as I know I am deficient in enzymes as

being gluten and milk sensitive has wrecked my small

intestine apparently. If one has a vitamin B

deficiency or is anemic or deficient in something

else, look to not having the enzymes being produced.

One should find out why they are B deficient. There

are causes. I've taken biotin for years but if I can't

absorb it, it doesn't do much good.

Blueeberri send a really good article about enzymes

among other things a couple days ago.

Anyway I am delighted to finally see them getting

around to looking into nutritional deficits for the

cause of disease and dysfunction.

Arline

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[Guest guest]

Hey nne, That article was sent to me a few days ago by Pete Hueseman at Bellevue 'compounding' Pharmacy in St. Louis, MO. He said they have had good success with that combination of meds...Atropine, Ketoconazole and Biotin. Maybe that combination is something you can look into??? There was a woman on the group several years ago named Debbie 'Tiger' and the Atropine is what she used on her vestibulitis -- and she had good results. If you do a search on Atropine or Debbie Tiger on the homepage you will find some past posts. Seems like it takes awhile for things to 'catch on' so at times the info can remain helpful long after the publish date. It seems like very slow progress, but 'hopefully' as times goes by, treatment options will get better. Hugs, Chelle